News

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

Hemophilia A patients with life cases. Together, we will try to explore a compelling question: can two individuals with very different experiences…

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

History records that Prince Alexei, son of Nicholas II, the last tsar of Russia, had hemophilia B. But does the bleeding disorder…

CSL Behring has notified the hemophilia B community of a temporary global stockout of Hemgenix. This situation is not related to the…

KFF (Kaiser Family Foundation) knows that health costs historically have often been among the most important issues to voters. An on-line article…

As hemophilia treatments continue to roll out that are different than traditional factor replacement, they can offer more promising treatment but can…

The daily news can be overwhelming, especially so for families already dealing with hospital visits, treatments, complications and soaring medical bills. How…

Lifelines for Health was the first national publication for those in the bleeding disorders community with an inhibitor. Its content expanded to include…

Dana Kuhn’s legendary story moves from private devastation to investigative public accountability. After losing his wife to AIDS when Dana unknowingly contracted…

Acquired hemophilia usually affects people in their 70s and 80s without warning. Here’s what you need to know. National Bleeding Disorders Foundation,…

Menstruation tracking is a valuable tool for women with bleeding disorders, but experts say you need to be vigilant about what information…

Anti-TFPI treatments can help people with hemophilia A or B — with or without inhibitors — to better control bleeding. Source: National…

Advice from a social worker on how to stay grounded when current events feel heavy. Source: National Bleeding Disorders Foundation, HemAware, April…

Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment. Source: National…

Dear Hemophilia B Community, We are writing to share an important update on the availability of HEMGENIX® (etranacogene dezaparvovec-drlb). CSL is currently experiencing…

Registration is now open for the 2026 Wisconsin Bleeding Disorders Conference, taking place June 5–7 at the Kalahari Resort in Wisconsin Dells….

Save One Life, Inc., helps kids with bleeding disorders in countries where access to treatment and specialized care is limited. NBDF is…

by: Diane Horbacz, illustrated by Jarrett Krosoczka Designed to help teach your child age seven to twelve about his or her bleeding…

by: Shannon Brush The world’s first toddler books for children with hemophilia reviews basic concepts in colorful, chunky books just right for…

World’s first guide to founding, managing, and growing a grassroots hemophilia organization or improving an existing one. Advice on creating vision and…

A hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through…

The world’s first book on the world’s most commonly inherited bleeding disorder. Topics include learning to cope with VWD, inheritance, the medical…

Explains what your child with hemophilia may be thinking at different ages when experiencing a bleed, receiving an infusion, visiting the hospital….