News

Unite for Bleeding Disorders Walk Registration is Open!

GLHF News

Join us at the Milwaukee County Zoo for our annual Unite for Bleeding Disorders Walk. We are in our original picnic area at…

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Federal and State Advocacy Update

Advocacy & Legislation

The Senate and the House show strong support for federal bleeding disorders programs;  HELP Copays Act continues to gain sponsors, and a…

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FED UP Act Introduced in Congress

Advocacy & Legislation, Women with Bleeding Disorders

The Fostering Effective Diagnosis (FED) and Treatment for Underserved Populations with Bleeding Disorders Act, the product of work between bleeding disorders advocates…

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2026 Unite for Bleeding Disorders Walk – Register Now and Win a Prize! 

GLHF News, Health and Well Being, Living with a Bleeding Disorder

Registration is open for GLHF’s annual Unite for Bleeding Disorders Walk at the Milwaukee County Zoo on Saturday, September 26! You can…

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Mark Your Calendar: GLHF’s 15th Annual Milwaukee’s Best Bloody is Sunday, February 28!

GLHF News, Health and Well Being, Living with a Bleeding Disorder

Join us on Sunday, February 28, 2027, for GLHF’s 15th annual Milwaukee’s Best Bloody! We will raise critical funds for the bleeding disorders community…

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We are Headed to GLHF’s Camp Klotty Pine, August 2-7

GLHF News, Health and Well Being, Living with a Bleeding Disorder

Get ready for an unforgettable summer. GLHF’s Camp Klotty Pine is back August 2–7. This special week is more than just camp…

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Next-generation Factor VIII Variants to Improve Gene Therapy for Hemophilia A

Gene Therapy, Industry News & Research

In this webinar, Ben Samelson-Jones, M.D., Ph.D., a pediatric hematologist at Children’s Hospital of Philadelphia, shared research his team is doing to…

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How to Keep Summer Activities Safe for Kids with Bleeding Disorders

Health and Well Being, Living with a Bleeding Disorder

School is out for most children. Learn why a popular piece of backyard play equipment is riskier than you might think. Source:…

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Von Willebrand Disease vs. Hemophilia: Key Differences in Symptoms, Causes, and Treatment

Living with a Bleeding Disorder

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know. Source: National…

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How to Choose the Right Hemophilia Treatment Options for You

Health and Well Being, Living with a Bleeding Disorder

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best. Source: National Bleeding…

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Federal and State Advocacy Update

Advocacy & Legislation

The bleeding disorders community’s advocacy at Washington Days continues to pay off: five additional Senate cosponsors signed on to the HELP Copays…

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Discontinuation Timeline for HEMOFIL ®M and RECOMBINATE

Industry News & Research

Takeda has updated the information for how long the these treatments will be available for patients who are still using these therapies….

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NBDF-Takeda Clinical Fellows

Industry News & Research

As fewer clinicians enter the field of benign hematology, learn how the NBDF-Takeda Clinical Fellowships are working to strengthen the pipeline of…

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Camp Klotty Pine Registration is Open!

GLHF News

Get ready for an unforgettable summer. Camp Klotty Pine is back August 2–7, and registration is officially open! This special week is…

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The Unite Walk is up and Live! Register today for this fun and critical event

GLHF News

This year’s Unite Walk site is up and live!  Register your team now here: Please remember that we are using a new fundraising…

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Last Call: Register by May 1: 2026 Wisconsin Bleeding Disorders Conference

GLHF News

The Wisconsin Bleeding Disorders Conference (WBDC) is right around the corner ad registration is NOW OPEN through MAY 1! this annual weekend…

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2026 Program Features. Save Your Date Today!

GLHF News

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

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Crack the Case: A Hemophilia A Mystery Awaits

GLHF News, Industry News & Research, Living with a Bleeding Disorder

Hemophilia A patients with life cases. Together, we will try to explore a compelling question: can two individuals with very different experiences…

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2026 Program Features. Save Your Date Today!

GLHF News, Living with a Bleeding Disorder

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

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A Saint with Hemophilia

Living with a Bleeding Disorder

History records that Prince Alexei, son of Nicholas II, the last tsar of Russia, had hemophilia B. But does the bleeding disorder…

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HEMGENIX® On Hold

Industry News & Research

CSL Behring has notified the hemophilia B community of a temporary global stockout of Hemgenix. This situation is not related to the…

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A Preview of the Role Health Care May Play in the 2026 Election

Advocacy & Legislation

KFF (Kaiser Family Foundation) knows that health costs historically have often been among the most important issues to voters. An on-line article…

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New Treatment That Can Improve Hemophilia Care

Industry News & Research, Living with a Bleeding Disorder

As hemophilia treatments continue to roll out that are different than traditional factor replacement, they can offer more promising treatment but can…

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Ask a Social Worker

Health and Well Being, Living with a Bleeding Disorder

The daily news can be overwhelming, especially so for families already dealing with hospital visits, treatments, complications and soaring medical bills. How…

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