News

GLHF’s Annual Wisconsin Bleeding Disorders Conference is June 7-9

GLHF News

GLHF’s annual Wisconsin Bleeding Disorders Conference, for people and families living with a bleeding disorder, is June 7-9 at the Kalahari Resort…

Read More

The Importance of Family When Living with Hemophilia: Paul Allen Natvig (September 1953 – October 2023)

GLHF News, Living with a Bleeding Disorder

Jan Natvig (holding Emi); Paul Natvig (holding David).

Read More

GLHF Wraps 2024 Best Bloody Mary Competitions with Great Success!

GLHF News

GLHF wrapped the last of its 2024 Best Bloody Mary competitions in Green Bay on May 5! Our three Best Bloody Mary…

Read More

Rebinyn Supplies Restored in 3,000 IU Vial Size

GLHF News

NBDF recently learned that Novo Nordisk now has 3,000 IU vial size of Rebinyn® back in stock. Rebinyn is the company’s recombinant…

Read More

Green Bay’s Bets Bloody is May 5! Get Your Tickets Today!

GLHF News

Join us at the Resch Expo on Sunday, May 5 for our 4th annual Green Bay’s Best Bloody – where Green Bay-area bars and…

Read More

Video Celebrates Nurses in Bleeding Disorders Care

GLHF News

The National Bleeding Disorders Foundation (NBDF) marked its 75th Anniversary in 2023 by recognizing the contribution of various community stakeholders. As part…

Read More

Join us for a Bloody Good Time in Madison (April 7) and Green Bay (May 5) as GLHF’s Best Bloody Mary Series Continues!

GLHF News

Milwaukee’s Best Bloody, held February 25, raised more than $57,000 for the bleeding disorders community of Wisconsin! Congratulations to The Hideaway who…

Read More

Bleeding Disorders Awareness Month

Advocacy & Legislation, GLHF News, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Each March, the community calls attention to inheritable blood and bleeding disorders during Bleeding Disorders Awareness Month. This time gives patients and…

Read More

Researchers Look at Impact of Factor X Deficiency on Patients/Caregivers

GLHF News, Industry News & Research

A new study published in the journal Blood Coagulation & Fibrinolysis, looked at the impact of hereditary factor X deficiency (HFXD) on patients…

Read More

Study Shows Pain and Mobility Issues Common with Moderate Hemophilia

GLHF News

Patients ages 15 and older report problems more typical of severe disease by Patricia Inácio, PhD Progressive joint disease caused by repeat bleeds,…

Read More

The Wait is Over – Milwaukee’s Best Bloody is This Sunday! Get Your Tickets Today!

GLHF News

There’s still time to get your tickets to the Best Bloody Mary contest in WI – Milwaukee’s Best Bloody is this Sunday,…

Read More

Save the date! GLHF’s Annual Wisconsin Bleeding Disorders Conference (WBDC) is June 7-9

GLHF News, Living with a Bleeding Disorder

Annually, GLHF hosts the Wisconsin Bleeding Disorders Conference for individuals and families living with a bleeding disorder. The weekend provides an opportunity…

Read More

A Gathering of the Generations: Reflecting on the Past, Present and Future of the Bleeding Disorders Community

GLHF News, Living with a Bleeding Disorder

Saturday, April 20, 10 am – 2 pm, Blue Harbor Conventions Center, Sheboygan, WI In 2024, GLHF is celebrating 50 years of…

Read More

GLHF Testifies Before the Assembly Health Committee About Harmful Insurance Practices Including PBMs and Copay Accumulator Adjuster Programs

Advocacy & Legislation, GLHF News

Great Lakes Hemophilia Foundation and community advocates spent the day in Madison on February 14 educating legislators and showing support for the Pharmacy Benefit…

Read More

Takeda’s Voluntary Withdrawal: Alert on Misprinted Labels for VONVENDI®

GLHF News

Takeda announces a voluntary withdrawal for 650 IU VONVENDI® due to misprinted labels showing incorrect expiration dates. Takeda announced today that it…

Read More

Patient Receives First Hemophilia A Gene Therapy Outside a Clinical Trial

GLHF News

Roctavian™ was approved in the summer of 2023 for the treatment of adults with severe hemophilia A The first hemophilia A gene…

Read More

GLHF Celebrates 50 Years of Educating, Supporting and Advocating for the Bleeding Disorders Community of WI 

GLHF News

GLHF is excited to celebrate 50 years of educating, supporting and advocating for the bleeding disorders community of Wisconsin. Since 1974, GLHF…

Read More

Save-the-Date for our 2024 Best Bloody Competitions! Tickets on Sale Next Week!

GLHF News

Tickets on sale December 18!  Holiday-priced tickets for Milwaukee’s, Madison’s and Green Bay’s Best Bloody will be on sale Dec. 18 – Jan….

Read More

Gene Therapy for Hemophilia — Progress and Conundrums

GLHF News

In this video, Dr. Radek Kaczmarek of the Indiana University School of Medicine lays out the scientific advances underpinning two currently approved gene…

Read More

GLHF Plans Successful 2023 Regional Meeting – 13 HTCs Join to Discuss Goals and Emerging Issues

GLHF News

Did you know that GLHF serves as the Regional Core Center of Region V-West/Northern States Region for the United States Hemophilia Treatment…

Read More

GLHF’s Unite for Bleeding Disorders Walk Exceeds Expectation

GLHF News

GLHF’s Unite for Bleeding Disorders Walk was a great success with year, surpassing our goal by 7%, earning $74,417. The event included…

Read More

Gene Therapy in Hemophilia: Come Find Out What All the Buzz is About

GLHF News, Industry News & Research

From Curiosity To Eligibility And Beyond! Gene therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is…

Read More

In Memory of David Linney

GLHF News

Our community is small, but the challenges of life can be so big for those living with a bleeding disorder. Individuals and…

Read More

The 2023 Unite for Bleeding Disorders Walk is September 23. Register Today!

GLHF News

The Unite for Bleeding Disorders Walk is Saturday, September 23. There’s still time to register yourself and your team! We are nearly halfway to…

Read More