News

Classic medical teaching around hemophilia focused on X-linked inheritance: Males were affected, while females were carriers. But providers say that framework oversimplified the reality….

On July 29 Ferring announced that Stimate nasal spray will return after a six-year absence following the 2020 recall. Patient availability is…

Altuviiio (efanesoctocog alfa) continues to impress in difficult-to-treat patients. A French real-world study reported that once-weekly Altuviiio reduced treated bleeds by about…

A published study in Blood Advances reports that over 60% of hemophilia A patients on Hemlibra (emicizumab) experienced no bleeding episodes. Long-term treatment with…

Each month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org…

LA Kelley Communications provides downloadable tables that present clotting factor concentrates, novel therapies, gene therapies and adjunct therapies licensed for distribution in…

The Canadian Hemophilia Society has a new podcast about von Willebrand Disease.  Source: LA Kelley Communications, Inc., Communique, June 2026

A new MASAC recommendation states that all people with an inheritable bleeding disorder, regardless of sex, age, or bleeding disorder severity, be…

Registration is open for GLHF’s annual Unite for Bleeding Disorders Walk at the Milwaukee County Zoo on Saturday, September 26! You can…

Join us on Sunday, February 28, 2027, for GLHF’s 15th annual Milwaukee’s Best Bloody! We will raise critical funds for the bleeding disorders community…

Get ready for an unforgettable summer. GLHF’s Camp Klotty Pine is back August 2–7. This special week is more than just camp…

School is out for most children. Learn why a popular piece of backyard play equipment is riskier than you might think. Source:…

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best. Source: National Bleeding…

The daily news can be overwhelming, especially so for families already dealing with hospital visits, treatments, complications and soaring medical bills. How…

Lifelines for Health was the first national publication for those in the bleeding disorders community with an inhibitor. Its content expanded to include…

Dana Kuhn’s legendary story moves from private devastation to investigative public accountability. After losing his wife to AIDS when Dana unknowingly contracted…

Advice from a social worker on how to stay grounded when current events feel heavy. Source: National Bleeding Disorders Foundation, HemAware, April…

Dear Hemophilia B Community, We are writing to share an important update on the availability of HEMGENIX® (etranacogene dezaparvovec-drlb). CSL is currently experiencing…

Save One Life, Inc., helps kids with bleeding disorders in countries where access to treatment and specialized care is limited. NBDF is…

by: Diane Horbacz, illustrated by Jarrett Krosoczka Designed to help teach your child age seven to twelve about his or her bleeding…

by: Shannon Brush The world’s first toddler books for children with hemophilia reviews basic concepts in colorful, chunky books just right for…

World’s first guide to founding, managing, and growing a grassroots hemophilia organization or improving an existing one. Advice on creating vision and…

A hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through…

Explains what your child with hemophilia may be thinking at different ages when experiencing a bleed, receiving an infusion, visiting the hospital….