News

Takeda Announces Interim Trial Results for Investigational ITP Therapy

Health and Well Being, Industry News & Research

Takeda recently announced positive results from a phase 2 clinical trial of their investigational therapy (Mezagitamab), to treat patients with persistent or…

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Think Positive!

Health and Well Being, Living with a Bleeding Disorder

A hemophilia diagnosis can upset your beliefs, feelings, and life. This book, written by Laureen A. Kelley, offers simple, concrete ways to…

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Bleeding Disorders Awareness Month

Advocacy & Legislation, GLHF News, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Each March, the community calls attention to inheritable blood and bleeding disorders during Bleeding Disorders Awareness Month. This time gives patients and…

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Von Willebrand Emergency Care Manual Now Available in Spanish

Health and Well Being, Industry News & Research

NBDF is pleased to announce that the Emergency Care for Patients with von Willebrand Disease treatment manual is now available in a Spanish language…

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Navigating the financial challenges of bleeding disorders

Health and Well Being, Living with a Bleeding Disorder

As a nonprofit pauses its assistance, 5 programs still help those with hemophilia. by: Jennifer Lynne A person like me, with bleeding…

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Respiratory Viruses are Increasing this Winter – Protect Yourself from the Seasonal Spike of COVID-19

COVID-19, Health and Well Being, Industry News & Research

Infections from respiratory viruses, including the latest COVID-19 variants, are increasing this winter—but vaccines offer effective safeguards for people with inheritable blood…

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Study Suggests Hemophilia Patient Preferences Evolving Along with Treatments

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

In recent years, the arrival of novel hemophilia treatments that are effective and less burdensome to administer have opened up new possibilities…

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Nurses Working in the Bleeding Disorders Community Share Their Stories in These 2023 Video Interviews

Health and Well Being, Industry News & Research

In recognition of the National Bleeding Disorders Foundation’s 75th anniversary, the Nursing Working Group gathered recorded video interviews of established nurses working…

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Who’s at Higher Risk for Iron Deficiency?

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

Learn why women, girls, and people with the potential to menstruate (WGPPM) who have hemophilia, von Willebrand disease, or other inheritable blood…

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Statement: HFA and NBDF Address WHO Recommendations

Health and Well Being, Industry News & Research

Hemophilia Federation of America (HFA) and the National Bleeding Disorders Foundation (NBDF) are deeply concerned by the World Health Organization’s (WHO) recommendation…

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VWD Book for Children!

Health and Well Being, Living with a Bleeding Disorder

Fun Facts About a von Willebrand Warrior is a new softcover storybook for children with von Willebrand disease that empowers and educates…

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Concerns for Women with Polycystic Ovary Syndrome and Endometriosis

Health and Well Being, Pain Management, Women with Bleeding Disorders

Women with bleeding disorders and other medical concerns, or who have von Willebrand disease or hemophilia, are not necessarily at risk for…

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The Importance of Transgender Health: Interview with Alexis Dinno

Health and Well Being, Living with a Bleeding Disorder

November was Transgender Health Awareness Month, a time to reflect on the experiences of transgender and gender nonconforming individuals seeking and receiving…

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What is Therapeutic Phlebotomy?

Health and Well Being

While bloodletting was abandoned long ago by modern medicine, the procedure is still used today to treat specific medical conditions. Phlebotomy —…

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The Liver Disease That’s on the Rise

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Here’s why people with bleeding disorders need to know about it. Have you heard of metabolic dysfunction-associated steatotic liver disease, or MASLD?…

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Study Results Encourage Discussion of Therapeutic Options for VWD Patients with Menorrhagia

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

A new study investigated therapeutic options for von Willebrand Disease patients to help mitigate the negative health impacts of heavy menstrual bleeding. …

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Hepatocellular Cancer Screening and Gene Therapy Preparedness the Focus of New Recommendations

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

NBDF’s Medical and Scientific Advisory Council issued two new documents making recommendations on criteria for hepatocellular cancer (HCC) screening and helping hemophilia…

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The Importance of Telehealth

Health and Well Being, Living with a Bleeding Disorder

Interview with Jacob Murcock, Chapter Executive Director, Nevada It was a pleasure for the foundation to sit down with Jacob to learn…

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World Hemophilia Day 2024 Theme Revealed

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event…

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WFH Humanitarian Aid Program supports Syrian refugees (Part 1: Karam’s story)

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

The World Federation of Hemophilia (WFH) provides care to people with bleeding disorders (PWBDs) all around the world—including individuals living in refugee…

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The State of Mental Health on College Campuses

Health and Well Being

Enrolling in college as a student with a mental health condition doesn’t need to be overwhelming or intimidating. Students who know their…

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New Study Looks at Hemophilia Survival Rate Disparities

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Black men experience much lower hemophilia survival rates compared to their white counterparts. Results of a new study published in the journal Haemophilia are…

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International Hemophilia Survey Suggests Psychosocial Challenges and Lack of Shared Decision Making

Health and Well Being, Industry News & Research

Some compelling results from the ‘Hemophilia Life Stages and Changes Global Survey’ were recently announced in a new press release. The survey…

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Help for People with Substance Abuse

Health and Well Being

The National Bleeding Disorders Foundation (NBDF) has published Document 279, “Recommendations on Reducing Barriers to Substance Use Disorder (SUD) Treatment Facilities and…

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