News

Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

Judith Graham Pool Postdoctoral Research Fellowships
Industry News & Research
Letter of Intent Deadline: July, 5, 2020 Application Deadline: August 16, 2020 Award Start Date: December 2020 NHF’s premier research fellowship program is named in honor…

Accredited Gene Therapy Educational Opportunities Available Online Now
Industry News & Research
These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia. The National Hemophilia Foundation…

Industry News & Research
NHF is excited to launch Run, White, & Blue for Bleeding Disorders – a family-friendly virtual event, featuring a 5K and Family Fun…

Mental Health:
COVID-19
Want to take a break from the news and watch something delightful for the whole family? Thor: Ragnarok director Taika Waititi has…

How Contact Tracing Works
COVID-19
While you may have heard of contact tracing only recently, it’s actually a method that has been used in fighting pandemics all…

Protective Measures to Keep Your Family Safe During COVID-19
COVID-19
Kids are itching to see their friends, have the run of the playground, and generally get back to the practice of being…

Assessing Risk During the Reopening
COVID-19
All fifty states have begun “reopening” – loosening restrictions around gatherings and how businesses can operate. However, nothing has changed about the…

Live Today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care
COVID-19
Live today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care Join NHF for this live, educational session to hear…

17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Advocacy & Legislation
Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…

Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.

Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling out…

Managing a Bleeding Disorder During a Pandemic: Answers to 6 Common Questions About COVID-19
COVID-19
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

Mental Health: Discussing the Pandemic with Your Child and Helping Your Child Cope with Anxiety and Stress
COVID-19
Discussing the Pandemic with Your Child: The American Academy of Child and Adolescent Psychiatry has a simple fact sheet that will help…

Visiting Parks and Recreational Facilities – Protect Yourself and Others From COVID-19
COVID-19
Parks and beaches are reopening in some states. The CDC has recommendations to follow if you choose to visit these recreational facilities….

Telemedicine and Hemophilia in the Age of COVID-19
COVID-19
Role of telemedicine during the COVID-19 pandemic analysed in Haemophilia A commentary, published in the World Federation of Hemophilia’s journal Haemophilia by NHF…

Encouraging Safety Results on Trial Vaccine
COVID-19
Moderna’s coronavirus vaccine shows encouraging early results Moderna, a biotech company from Massachusetts which has been working on a COVID-19 vaccine, has…

CDC Issues Alert on New COVID-linked Disorder
COVID-19
Multisystem Inflammatory Syndrome in Children (MIS-C) Associated with Coronavirus Disease 2019 (COVID-19) The CDC issued an alert on a multisystem inflammatory syndrome…

HFA’s Annual Symposium is Going Virtual – August 24-29!
Industry News & Research
HFA is pleased to announce new dates for our previously-postponed Symposium. The 2020 Symposium will be held Aug. 24-29, 2020. HFA’s Symposium is an…

Statement from Novo Nordisk on Rebinyn and COVID-19
Industry News & Research
To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…

Watch NHF’s Webinar: Playing It Safe – Coping During COVID-19
COVID-19

GLHF Wins Award for #RedTieCampaign – Most Unique Way of Celebrating World Hemophilia Day
GLHF News
Every year, GLHF participates in the #RedTieCampaign, a fundraising campaign that kicks off on March 1, with the start of Bleeding Disorders…

WFH Virtual Summit, June 14-19, 2020: Connecting the Global Bleeding Disorders Community
Industry News & Research
Join the World Federation of Hemophilia (WFH) for a high-profile six-day virtual event, June 14-19, 2020: Connecting the Global Bleeding Disorders Community….

HFA’S COVID-19 RELIEF FUND
COVID-19
As COVID-19 threatens the livelihood of families across the U.S. who are part of the bleeding disorders community, the need for a…