News

Results from a pair of phase 2 clinical trials of the investigational subcutaneous therapy, Concizumab were presented at the recent XXVII Congress…

Cambridge, Massachusetts-based Casebia Therapeutics recently presented new research on a novel therapy being developed for patients with hemophilia A. Casebia Therapeutics is…

Sanofi Genzyme reported positive data from their recently completed phase 1/2 EXTEN-A study of their investigational factor replacement product for hemophilia A….

BioMarin Pharmaceutical recently announced that they plan to submit marketing applications to both the European Medicines Agency (EMA) and the U.S. Food…

uniQure recently announced updated data related to a phase IIb clinical study of AMT-061, the company’s investigational gene therapy candidate for patients…

Great Lakes Hemophilia Foundation (GLHF) is excited to announce that Governor Evers signed the WI Step Therapy bill on July 9. We…

Through a series of abstracts and oral presentations at the recent 2019 Congress of the International Society on Thrombosis and Haemostasis (ISTH),…

Octapharma recently announced new data on the benefits of their recombinant factor VIII therapy Nuwiq® in patients with hemophilia A. Nuwiq® is…

Patient groups are urging the Fifth Circuit Court of Appeals to prioritize patient protections, including those for people with pre-existing conditions, when…

In an oral presentation at the XXVII Congress of the International Society on Thrombosis and Haemostasis (ISTH), Sangamo Therapeutics, Inc and Pfizer,…

In a recently published study, a team of Italian investigators studied potential correlations between levels of physical activity and adherence to a…

The ECRI Institute, an independent, nonprofit patient safety organization, has published the NHF-McMaster University Guideline on Care Models for Haemophilia Management in the…

“A major part of our experience in attending [the conference] has been the people we’ve met. It was a great opportunity to…

LA Kelley Communications has many books back in print that provide the bleeding disorders community with high quality educational materials. Their content…

Medscape Education recently launched a new activity, the focus of which is a report from the journal Emerging Infectious Diseases (EID) on surveillance as…

BioMarin recently announced clinical trial updates relevant to valoctocogene roxaparvovec (formerly known as BMN 270) its investigational gene therapy for the treatment…

The National Hemophilia Foundation will hold the first annual Victor Grifols Roura Medical Preconference Symposium at its 71st Annual Bleeding Disorders Conference on…

ASC Therapeutics recently announced that they have obtained an exclusive therapeutics license from Atlanta, GA-based Expression Therapeutics. ASC, a division of Applied…

The National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference (BDC), a three-day educational experience that is designed to support the entire bleeding…

Every year, Wisconsin walkers team up with the National Hemophilia Foundation (NHF) and walkers from across the country to raise dollars and…

Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time…

Building on the success of Milwaukee’s Best Bloody, which started seven years ago, GLHF decided to take our event to Madison in…

Camp Klotty Pine Registration is Now Open! GLHF works diligently to provide programs for people and families living with a bleeding disorder…

NHF has applauded Senators Baldwin (D-WI) and Jones (D-AL) for introducing the No Junk Plans Act, which seeks to stop the spread of short-term health…