From the CDC: Mental Health and Coping During COVID-19 – Tools and Resources
COVID-19 / Coronavirus, Health and Well Being
Pandemics can be stressful The coronavirus disease 2019 (COVID-19) pandemic may be stressful for people. Fear and anxiety about a new disease…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…
Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events
Industry News & Research
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF). The WFH, EHC…
Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law
Advocacy & Legislation, Industry News & Research
Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…
Access the World’s Largest Hemophilia Repository
Industry News & Research
Note: The My Life, Our Future Research Repository includes the largest bank of genomic and phenotypic data about people with hemophilia. While…
Webinar Creates Opportunity to Learn More About Rare Platelet and Bleeding Disorders!
Industry News & Research
Note: This webinar explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. The National Hemophilia Foundation…
Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab
Industry News & Research
Note: Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors. Pfizer recently announced…
COVID-19 and the Growing Mental Health Crisis in Milwaukee
COVID-19 / Coronavirus, Health and Well Being, Uncategorized
The COVID-19 pandemic may be worsening an already growing mental health crisis in Milwaukee County. In the county, crisis calls have been…
Milwaukee Area Physicians Appeal to the Community
COVID-19 / Coronavirus, Industry News & Research
Our local physicians are here to help when we need it most. Now they’re asking us to do our part in preventing…
COVID-19: Latest News and Updates
COVID-19 / Coronavirus
With COVID-19 cases and deaths at an all time high, we must stay safe and continue to protect ourselves and others in…
uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B
uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…
Together We Can! #GivingTuesday is December 1. Donate Today!
GLHF News, Events
In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over the…
5 Easy Ways to Add More Physical Activity to Every Day
Health and Well Being
Tips to include mini intervals of activity into your everyday routines. Learn more. Source: National Hemophilia Foundation, HEMAWARExpress
COVID-19 Vaccines: What to Expect
In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…
Helpful Tools to Keep Track of Your Hemophilia Treatments
Living with a Bleeding Disorder
These electronic options can help make record-keeping easier for people with bleeding disorders. Read more. Source: National Hemophilia Foundation, HEMAWARExpress
Why Compliance Matters When You Have a Bleeding Disorder
Living with a Bleeding Disorder
Adhering to your treatment schedule is associated with fewer bleeding events and a reduction in joint disease. Here is how to stay…
Holiday Travel Guidance from the CDC
COVID-19 / Coronavirus, Uncategorized
As cases of COVID-19 increase in Wisconsin and around the United States, use CDC guidance to plan a healthy and safe Thanksgiving…
New Paper Published on the First National Patient Satisfaction Survey of U.S. HTCs
Industry News & Research, GLHF News
The federally funded hemophilia treatment center (HTC) network, with its model of a multidisciplinary care team (MDT) and regional infrastructure, has proven…
COVID-19: Latest News and Updates
COVID-19 / Coronavirus
Governor Evers Issues New Order As COVID-19 continues to surge across the state, Gov. Tony Evers announced Executive Order #94, which includes…
ACA Open Enrollment Underway
Advocacy & Legislation, Industry News & Research
Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…
Sharp Increase in COVID-19 Cases
COVID-19 / Coronavirus, Industry News & Research
The coronavirus case numbers in the US are not looking good. The COVID-19 Tracking Project is an excellent reason for both viewing…
Depressive Incidents Could Rise in the Coming Months
COVID-19 / Coronavirus, Health and Well Being
As the days grow shorter, incidences of seasonal depression increase. This winter, increased isolation and stress could increase those numbers more. It’s…
Chronic Pain, CAM and YOU
Living with a Bleeding Disorder, Health and Well Being
by Laurie Kelley Pain is highly personal. No two people experience the same feeling of pain, even when it’s the same injury,…
Eli Lilly’s Antibody Treatment Proves Unhelpful for Advanced COVID Cases
Industry News & Research, COVID-19 / Coronavirus
A paused clinical trial of an Eli Lilly & Co. experimental antibody therapy won’t resume after federal researchers concluded the drug likely…