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News

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October 20, 2021

What You Should Know About Hematomas

Health and Well Being, Living with a Bleeding Disorder

Bruises and hematomas are similar, but they have some important differences. See what causes hematomas, what makes them unique, and how you…

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October 13, 2021

Back Together! GLHF Raises Funds – and Spirits – at Unite for Bleeding Disorders Walk

GLHF News

“I walk so that I can be around other people who are like me,” said one young Unite for Bleeding Disorders Walk…

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October 12, 2021

CDC Looks at COVID-19’s Impact in Public Health Workers

COVID-19 / Coronavirus, Health and Well Being, Industry News & Research

A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…

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October 7, 2021

NHF Applauds Congressional Enactment of The Hemophilia SNF Access Act

Industry News & Research, Living with a Bleeding Disorder

The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act. The National…

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September 29, 2021

State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Uncategorized

by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied?   What should you do if you’ve already…

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September 29, 2021

National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”

Industry News & Research, Advocacy & Legislation

New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…

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September 23, 2021

CDC Public Health Webinar on NHF Guidelines

Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…

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September 23, 2021

NHF Responds to STIMATE® Production Update

Industry News & Research

CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed…

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September 23, 2021

Prophylaxis Indication Restored for BeneFIX®

Industry News & Research

Prophylaxis Indication Restored for BeneFIX® Sep 14, 2021 In February 2021, the U.S. Food and Drug Administration (FDA) partially rescinded a supplemental Biologics…

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September 14, 2021

Vector Biology and Hemophilia Gene Therapy the Focus of Review

Industry News & Research

A new review article, The Intersection of Vector Biology, Gene Therapy and Hemophilia, was published recently in the journal Research Practice in…

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September 2, 2021

Read New COVID-19 FAQs

COVID-19 / Coronavirus

NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…

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September 1, 2021

Medicaid 101: Why Medicaid is Important to the Bleeding Disorders Community

Advocacy & Legislation, Industry News & Research

With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…

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September 1, 2021

Learn More About the Latest in Gene Therapy: FAQ’s, Clinical Trials and Scientific Research

Industry News & Research, Living with a Bleeding Disorder

The National Hemophilia Foundation (NHF) heard a lot of questions from the community about gene therapy clinical trials for hemophilia at its…

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August 26, 2021

Cardinal Health announces a voluntary recall for select Monoject™ Flush Prefilled Saline Syringes

Industry News & Research

News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be…

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August 25, 2021

Camp Klotty Pine Focused on Health and Friendships – And It Was Just What Camper’s Needed!

GLHF News

At Camp Klotty Pine, GLHF helps kids become more independent, learn about their bleeding disorder and take control of their care. Camp is…

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August 24, 2021

New Nursing Guidelines Available on Administration of Bleeding Disorders Therapies

Industry News & Research

These guidelines are readily accessible in PDF format on the NHF website. NHF is pleased to announce that two new resources have…

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August 17, 2021

Living with Bleeding Disorders in the Time of COVID

COVID-19 / Coronavirus, Living with a Bleeding Disorder

by: Sari Harrar Pandemic stories of strength, perseverance and resiliency from three members of the bleeding disorders community. The COVID-19 pandemic has…

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August 5, 2021

TARPA-H Overview

Industry News & Research

President Biden has called for the creation of a new $6.5 billion research institute, the Advanced Research Projects Agency for Health (ARPA-H),…

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August 5, 2021

Four Decades of HIV

Industry News & Research, Health and Well Being, Living with a Bleeding Disorder

This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…

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August 5, 2021

COVID-19: Health and Wellness Update from NHF’s Dr. Leonard Valentino

COVID-19 / Coronavirus, Industry News & Research

The cautious optimism of May and June with regards to emerging from the pandemic has shifted as we are witnessing a resurgence…

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August 4, 2021

Spark Provides Trial Updates for Investigational Gene Therapy SPK-8011

Industry News & Research

SPK-8011 is Spark Therapeutics’ investigational gene therapy candidate for hemophilia A. Spark Therapeutics recently announced updates from an ongoing phase 1/2 clinical…

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August 4, 2021

New Descriptive Study Looks at Bleeding Disorder Camps

Industry News & Research

The study included a number of notable findings relevant to the participation of healthcare providers in bleeding disorder camps (BDCs), adherence to…

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August 4, 2021

NHF Responds to New CMS Guidance

Industry News & Research

New guidance from the U.S. Department of Health and Human Services encourages states to educate eligible immigrants about Medicaid coverage. In a…

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July 22, 2021

BioMarin Hemophilia A Clinical Development Program: An Update for the Hemophilia Community

Industry News & Research

BioMarin is pleased to update the community regarding our ongoing gene therapy clinical trial program in hemophilia A. BioMarin’s investigational gene therapy…

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Great Lakes Hemophilia Foundation
638 North 18th Street Milwaukee, WI 53233
888.797.GLHF

414.257.0200

414.257.1225 (Fax)

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