Unite for Bleeding Disorders Walk – A Statewide Celebration to Raise Funds Bleeding Disorders Community
GLHF News
Every year, families and friends join together for the Unite for Bleeding Disorders Walk — a statewide celebration at the Milwaukee County…
Family Camp Broadens Scope While Providing a Bonding Experience for Families Impacted by Bleeding Disorders
GLHF News
GLHF hosted its eleventh year of Family Camp October 4-6 in Campbellsport, WI. We are thrilled to return to the original Family…
NHF and HFA Letter to Genentech Announcement of Particulate Matter in Emicizumab (HEMLIBRA)
Industry News & Research
October 10, 2019 The National Hemophilia Foundation and the Hemophilia Federation of America continue to follow up on issues arising from Genentech’s recent…
Octapharma’s Wilate® Receives Expanded Approval from FDA
Industry News & Research
October 9, 2019 Octapharma recently announced that their plasma-derived von Willebrand Factor (VWF)/Factor VIII (FVIII) product Wilate®, was approved by the U.S….
Genentech Issues Statement on Hemlibra Particles; MASAC Responds
Industry News & Research
October 7, 2019 Today, Genentech provided the following statement regarding reports of particulate matter in vials of Hemlibra. You can read Genentech’s…
HFA and NHF Share an Update on Product Safety Conversation with the FDA
Industry News & Research
October 7, 2019 HFA and NHF are pleased to share this brief update with the community concerning a recent meeting we had with the…
WFH Lead Research Points to Higher Global Hemophilia Prevalence
Industry News & Research
The World Federation of Hemophilia (WFH) recently announced the publication of a new study on the global prevalence of hemophilia, the results…
NHF and HFA Letter to the Community
Industry News & Research
October 1, 2019 Recently there has been a lot of news related to the safety of the bleeding disorders community. HFA &…
Introducing NHF’s Community-Powered Registry, MyBDC
Industry News & Research
The National Hemophilia Foundation (NHF) has created a community-powered registry for people with bleeding disorders, MyBDC. MyBDC will help researchers understand what…
Camp Klotty Pine Builds Confidence and Pride
GLHF News
by: Karin Koppen, Director of Camp Klotty Pine and Community Outreach Every child brings their own set of unique experiences to…
WFH Lead Research Points to Higher Global Hemophilia Prevalence
Industry News & Research
The World Federation of Hemophilia (WFH) recently announced the publication of a new study on the global prevalence of hemophilia, the results…
Dedicated Hemotologist and Patient Advocate Dies at 95
August 12, 2019 saw the passing of longtime hematologist Shelby Lee Dietrich, MD at the age 95. Born in 1924, Dietrich spent…