Comparing Adherence and Physical Activity in Hemophilia A Patients
Industry News & Research
In a recently published study, a team of Italian investigators studied potential correlations between levels of physical activity and adherence to a…
NHF-McMasters Guidelines on ECRI
Industry News & Research
The ECRI Institute, an independent, nonprofit patient safety organization, has published the NHF-McMaster University Guideline on Care Models for Haemophilia Management in the…
Wisconsin Bleeding Disorders Conference Provides Opportunity to Learn, Connect and Build Relationships
GLHF News
“A major part of our experience in attending [the conference] has been the people we’ve met. It was a great opportunity to…
Children’s Storybooks Provide Insight and Education for Kids with Hemophilia
Living with a Bleeding Disorder
LA Kelley Communications has many books back in print that provide the bleeding disorders community with high quality educational materials. Their content…
Report Focuses on Two Cases of Sporadic CJD in the UK
Industry News & Research
Medscape Education recently launched a new activity, the focus of which is a report from the journal Emerging Infectious Diseases (EID) on surveillance as…
BioMarin Provides Trial Updates for Hemophilia A Gene Therapy
Industry News & Research
BioMarin recently announced clinical trial updates relevant to valoctocogene roxaparvovec (formerly known as BMN 270) its investigational gene therapy for the treatment…
NHF to Host Preconference Medical Symposium on Glanzmann’s Thrombasthenia
Industry News & Research
The National Hemophilia Foundation will hold the first annual Victor Grifols Roura Medical Preconference Symposium at its 71st Annual Bleeding Disorders Conference on…
ASC and Expression Therapeutics Collaborate on Hemophilia Gene Therapies
Industry News & Research
ASC Therapeutics recently announced that they have obtained an exclusive therapeutics license from Atlanta, GA-based Expression Therapeutics. ASC, a division of Applied…
Registration is Open for NHF’s 2019 Bleeding Disorders Conference
GLHF News
The National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference (BDC), a three-day educational experience that is designed to support the entire bleeding…
The 2019 Unite for Bleeding Disorders Walk is September 28. Start Forming Your Walk Team Today!
GLHF News
Every year, Wisconsin walkers team up with the National Hemophilia Foundation (NHF) and walkers from across the country to raise dollars and…
Thanks for Your Support Raising Funds and Awareness for the 2019 Red Tie Campaign!
GLHF News
Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time…
2nd Annual Madison’s Best Bloody Draws Support and Awareness for the Bleeding Disorders Community
GLHF News
Building on the success of Milwaukee’s Best Bloody, which started seven years ago, GLHF decided to take our event to Madison in…