Who Makes the Decision?
Living with a Bleeding Disorder
by: Derek L. Markley It has been more than eight years since St. Jude Children’s Research Hospital, University College London, and the…
What’s the Best Way to Learn About Your Bleeding Disorder?
Living with a Bleeding Disorder
by: Laurie Kelley Our world is biased toward visual information and learning, because humans are mainly visual beings. From advertising to teaching…
NHF and Partners Announce Innovative Infusion Logging Tool
Industry News & Research
The National Hemophilia Foundation (NHF) has announced a new two-year pilot program that aims to improve the efficacy of patient infusion logs…
Online Health Information: Is It Reliable?
Research
by: Paul Clement It’s an exciting time for people with inhibitors. In addition to bypassing agents, new products may prevent or control…
PT Study Focuses on Comprehensive Survey of Physical Activities Risks for 101 Activities
Industry News & Research
Physical therapists (PTs) at hemophilia treatment centers (HTCs) often consult with hemophilia patients about engaging in new physical activities like exercise, team/individual…
Catalyst Reports Positive Trial Updates for Subcutaneous Therapy for Hemophilia
Industry News & Research
Catalyst Biosciences, Inc recently reported updated interim data from their phase 2/3, multinational clinical study of marzeptacog alfa (MarzAA), a subcutaneous (administered…
GLHF Hosts Event to Help Young Adults Own Their Future
GLHF News
Part of GLHF’s mission is to educate the bleeding disorders community about opportunities and information that can benefit them and impact their…
Camp Klotty Pine Celebrates Five Successful Years of Service to the Bleeding Disorders Community
GLHF News
This past January, GLHF hosted more than 40 children, families, Hemophilia Treatment Center staff and donors to celebrate Camp Klotty Pine’s five…
Own Your Future: College, Career and Independence Workshop
GLHF News
Discover the resources and information you need to take advantage of the educational, career and scholarship opportunities that are available to the…
Takeda Completes Acquisition of Shire
Industry News & Research
Takeda Pharmaceutical Company Limited recently announced the completion of its acquisition of Shire plc on January 8, 2019. The acquisition was approved…
5 Myths and Facts About von Willebrand Disease (VWD)
Living with a Bleeding Disorder
The most prevalent bleeding disorder, von Willebrand disease (VWD), affects more than 3 million Americans, about 1% of the population. And, its…
Be a Part of Making Tough Decisions Now
Living with a Bleeding Disorder
by: Steve Place I have lived for 64 years with mild hemophilia and have voluminous experience, from which I came to my…