COVID-19 / Coronavirus Information and Resources

COVID-19 Information and Resources

As COVID-19 continues to evolve on a day-to-day and hour-by-hour basis, the amount of information can become overwhelming. During these uncertain times, we remind ourselves of our mission: to educate, support and advocate for the bleeding disorders community of Wisconsin. We are working diligently to make sure you have the most up-to-date and relevant information we can provide.

Below is a comprehensive list of information and resources. Moving forward, we will be sending our subscribers emails that contain information related to COVID-19, as well as GLHF programs and services.  For a list of the most recent articles and up-to-date information, visit GLHF’s COVID-19 category of the News Section of our website. Simply click on ‘News’ and then choose the ‘COVID-19’ category on the top.

In addition, we have added a full list of reputable resources related to COVID-19 information as it relates to bleeding disorders, as well as general COVID-19 information for the entire population. You can find this comprehensive list in the Resources section of our website.

Great Lakes Hemophilia Foundation (GLHF)
GLHF has created a special section on our website dedicated to COVID-19 and bleeding disorders in our News Section.

GLHF has also created a special section on its Resources Page that has all a list of all reputable resources regarding COVID-19. It includes recent and up-to-date articles, advisories and statements from NHF, HFA, WFA, MASAC, the CDC and the FDA.

A Message to the Community from GLHF’s Executive Director, Danielle Leitner Baxter

GLHF Letter to the Community on COVID-19

State of Wisconsin

State of Wisconsin updates on COVID-19 / Coronavirus and how it’s affecting life in Wisconsin from reporters at the Milwaukee Journal Sentinel and USA TODAY NETWORK-Wisconsin. This includes Updates from May 8-11, What You Need to Know About Coronavirus in WisconsinCoronavirus in the U.S. and Around the World and Names of Care Centers with COVID-19 Cases Released by DHS.

Wisconsin Healthcare Access Network

Medicine Assistance Tool– A search engine designed to help patients, caregivers and healthcare providers discover available resources. Many companies have recently expanded their assistance programs due to COVID-19.

Medicine Assistance Tool – a search engine designed to help patients, caregivers and health care providers discover available resources. Many companies have recently expanded their assistance programs due to COVID-19

Partnership to Fight Chronic Disease – This is informational resources for high risk groups.

Kaiser Family Foundation– A map that shows which states have taken “health policy actions” including waiving cost sharing, early refills, etc.

Stateside– This is a list by state of recent state actions, legislative and executive.

National Governors Association– A list of state actions, including an essential business tracker.

National Conference of State Legislators– A list of legislature-focused actions.

The Commonwealth Fund– This is a list of private insurance changes by states.

Council of State Governments– A list of wide-ranging tools, governors and legislatures.

Milkin Institute COVID-19 Treatment Tracker – This includes information on potential treatments & vaccines in development.

Chamber of Commerce – This is a list of essential workforce items.

National Hemophilia Foundation (NHF) 
NHF is hosting webinars and town hall meetings every Friday at 5 pm (6 pm ET) on topics related to COVID-19. Topics have included telehealthinsurance coverage, a health and wellness update from NHF’s Dr. Leonard Valentino and more. For information about upcoming webinars and how to register, visit NHF’s website. To register for the Friday, April 17 webinar: Stress and Anxiety: Coping with COVID-19, click here.

NHF created a section on their website titled COVID-19 Informationwhere you can find the latest resources and information regarding the virus and the bleeding disorders community.

Updates on Specialty Pharmacy Provider Services During COVID-19 Pandemic – NHF is posting all communications from specialty pharmacy providers regarding any potential effects that the COVID-19 pandemic could have on their ability to distribute product and provide services. If you have any questions about your specialty pharmacy provider, we urge to you contact them directly. You can visit NHF’s Updates on Product Availability page to see statements from pharmaceutical companies on possible impacts to manufacture of products.

NHF’s CEO, Dr. Leonard Valentino, in partnership with the Hemophilia Federation of America’s (HFA) President and CEO, Sharon Meyers, M.S., CFRE, has conducted webinars including Dr. Valentino’s Town Hall Webinar and Coverage Concerns and Unanswered Questions: We Get It.

For information about upcoming webinars or to view previously recorded webinars, visit NHF’s website or GLHF’s website.

Statements/Updates from NHF’s Dr. Leonard Valentino on COVID-19: Dr. Leonard Valentino is adding updates every week for the community.

NHF Letter to the Community on COVID-19

HTC Visits and COVID-19

Updates on Product Availability During COVID-19

NHF’s Medical and Scientific Advisory Council (MASAC)
Over the years MASAC has issued more than 400 communications covering a wide range of medical issues, from prevention and treatment to infectious disease complications and women with bleeding disorders. Each year, MASAC establishes standard treatment guidelines. These are often referred to by international experts, medical schools, pharmacists, emergency room personnel, insurance companies and many others. View the latest MASAC recommendations here.

MASAC Letter to the Community Regarding the Coronavirus Disease 2019

Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration

Wisconsin Department of Health Services
Get the Latest on COVID-19 and the State of Wisconsin’s Safer-at-Home

Public Meetings During a Public Health Emergency

World Federation of Hemophilia (WFH)
The WFH website has created several sections on their website dedicated to COVID-19 including: WFH Statements and AdvisoriesRegulatory Agencies and Partner Announcement Statements and Pharmaceutical Industry Statements.

A Message from the WFH President and CEO

Specific Risks of COVID-19 to the Bleeding Disorders Community

WFH eLearning Platform – To ensure all members of the bleeding disorder community have access to important clinical and patient-focused information, the WFH developed the WFH eLearning Platform. The platform features more than 500 important resources in six languages.

Webinar: View WFH’s Webinar: Bleeding Disorders and COVID-19 – Facts and Risks for People with Bleeding Disorders, which was held on April 9.

Hemophilia Federation of America (HFA)
The HFA has created a section on its website titled Coronavirus: What HFA is Doing.

The site includes a section on Frequently Asked Questions: Bleeding Disorders and COVID-19 that is frequently updated.

HFA has also created a Patient Voice Inbox for patient care and product availability concerns or issues. questions or issues regarding access to your products or care.

HFA President and CEO, Sharon Meyers, M.S., CFRE, in partnership with NHF’s CEO, Dr. Leonard Valentio, have and will continue to conduct webinars every Friday at 5 pm (6 pm ET). For upcoming webinars, as well as past webinars that you can listen to online, visit NHF’s website.

Centers for Disease Control and Prevention (CDC)
The CDC website has created a COVID-19 section on their website. It includes what top medical professionals and experts consider the most trusted, up-to-date information about COVID-19. All information and resources are multilingual. Click here to access CDC resources in languages other than English.

Symptoms of Coronavirus

Coronavirus Self-Checker: A guide to help you make decisions and seek appropriate medical care

How to Protect Yourself and Others

What to Do if You Are Sick

Cases, Data and Surveillance

COVID-19 Cases in the U.S.

Running Essential Errands and Limiting Your Exposure

Older Adults and COVID-19

Use of Cloth Face Coverings to Help Slow the Spread of COVID-19

The U.S. Food and Drug Administration (FDA)
The FDA is working with U.S. government partners, including the CDC and internal partners to address the pandemic.

Along with other federal, state and local agencies and public health officials across the country, the FDA continues critical work to protect public health. Visit the FDA’s COVID-19 section of their website and  Learn more about the FDA Covid-19 Response.

The FDA Releases a New Webpage During COVID-19 Outbreak

Latest COVID-19 Information from the FDA

Frequently Asked Questions

Medical Countermeasures

How to Help

Report a Problem

Health Fraud

Contact FDA

Additional Resources

World Health Organization (WHO)
The WHO works worldwide to promote health, keep the world safe, and serve the vulnerable. WHO’s primary goal is to direct international health within the United Nations’ system and to lead partners. Their website has a comprehensive list of resources, including Rolling Updates on the Coronavirus Disease.

Coronavirus Disease Situation Dashboard

WHO Health Alert brings COVID-19 facts to billions via WhatsApp

Medicare RX Access Network (MRAN)

MRAN has developed a COVID-19 Resource Guide, including links to government resources, aging resources, patient group resources and industry resources.

Pharmaceutical Research and Manufacturers of America (PhRMA)

PhRMA represents the country’s leading biopharmaceutical research companies and supports the search for new treatments and cures.

Learn the latest information on the biopharmaceutical industry’s effort to beat COVID-19

PhRMA has created a COVID-19 Infographic: How we are Fighting COVID-19

Other Helpful Websites

Covidactnow.org – Covid Act Now is a multidisciplinary team of technologists, epidemiologists, health experts and public policy leaders working to provide disease intelligence and data analysis on COVID-19 in the U.S. The website allows you to search by state or county and gives you answers to some of these questions: Is your community ready to re-open? Is COVID-19 decreasing? Are we testing enough? Are hospitals ready? Their partners include: Georgetown University Center for Global Health Science and SecurityStanford University Clinical Excellence Research Center, and Grand Rounds. They published their first version of their model on March 20. More than 10 million Americans have used the model since. They engaged with dozens of federal, state, and local government officials, including the U.S. military and White House, to assist with response planning.