COVID-19 / Coronavirus Information and Resources
As COVID-19 continues to evolve on a day-to-day and hour-by-hour basis, the amount of information can become overwhelming. During these uncertain times, we remind ourselves of our mission: to educate, support and advocate for the bleeding disorders community of Wisconsin. We are working diligently to make sure you have the most up-to-date and relevant information we can provide.
Below is a comprehensive list of information and resources. Moving forward, we will be sending our subscribers emails that contain information related to COVID-19, as well as GLHF programs and services. For a list of the most recent articles and up-to-date information, visit GLHF’s COVID-19 category of the News Section of our website. Simply click on ‘News’ and then choose the ‘COVID-19’ category on the top.
In addition, we have added a full list of reputable resources related to COVID-19 information as it relates to bleeding disorders, as well as general COVID-19 information for the entire population. You can find this comprehensive list in the Resources section of our website.
GLHF has also created a special section on its Resources Page that has all a list of all reputable resources regarding COVID-19. It includes recent and up-to-date articles, advisories and statements from NHF, HFA, WFA, MASAC, the CDC and the FDA.
State of Wisconsin
State of Wisconsin updates on COVID-19 / Coronavirus and how it’s affecting life in Wisconsin from reporters at the Milwaukee Journal Sentinel and USA TODAY NETWORK-Wisconsin. This includes Updates from May 8-11, What You Need to Know About Coronavirus in Wisconsin, Coronavirus in the U.S. and Around the World and Names of Care Centers with COVID-19 Cases Released by DHS.
Wisconsin Healthcare Access Network
Medicine Assistance Tool– A search engine designed to help patients, caregivers and healthcare providers discover available resources. Many companies have recently expanded their assistance programs due to COVID-19.
Medicine Assistance Tool – a search engine designed to help patients, caregivers and health care providers discover available resources. Many companies have recently expanded their assistance programs due to COVID-19
Partnership to Fight Chronic Disease – This is informational resources for high risk groups.
Stateside– This is a list by state of recent state actions, legislative and executive.
National Conference of State Legislators– A list of legislature-focused actions.
Council of State Governments– A list of wide-ranging tools, governors and legislatures.
Milkin Institute COVID-19 Treatment Tracker – This includes information on potential treatments & vaccines in development.
Chamber of Commerce – This is a list of essential workforce items.
National Hemophilia Foundation (NHF)
NHF is hosting webinars and town hall meetings every Friday at 5 pm (6 pm ET) on topics related to COVID-19. Topics have included telehealth, insurance coverage, a health and wellness update from NHF’s Dr. Leonard Valentino and more. For information about upcoming webinars and how to register, visit NHF’s website. To register for the Friday, April 17 webinar: Stress and Anxiety: Coping with COVID-19, click here.
NHF created a section on their website titled COVID-19 Information, where you can find the latest resources and information regarding the virus and the bleeding disorders community.
Updates on Specialty Pharmacy Provider Services During COVID-19 Pandemic – NHF is posting all communications from specialty pharmacy providers regarding any potential effects that the COVID-19 pandemic could have on their ability to distribute product and provide services. If you have any questions about your specialty pharmacy provider, we urge to you contact them directly. You can visit NHF’s Updates on Product Availability page to see statements from pharmaceutical companies on possible impacts to manufacture of products.
NHF’s CEO, Dr. Leonard Valentino, in partnership with the Hemophilia Federation of America’s (HFA) President and CEO, Sharon Meyers, M.S., CFRE, has conducted webinars including Dr. Valentino’s Town Hall Webinar and Coverage Concerns and Unanswered Questions: We Get It.
Statements/Updates from NHF’s Dr. Leonard Valentino on COVID-19: Dr. Leonard Valentino is adding updates every week for the community.
NHF’s Medical and Scientific Advisory Council (MASAC)
Over the years MASAC has issued more than 400 communications covering a wide range of medical issues, from prevention and treatment to infectious disease complications and women with bleeding disorders. Each year, MASAC establishes standard treatment guidelines. These are often referred to by international experts, medical schools, pharmacists, emergency room personnel, insurance companies and many others. View the latest MASAC recommendations here.
World Federation of Hemophilia (WFH)
The WFH website has created several sections on their website dedicated to COVID-19 including: WFH Statements and Advisories, Regulatory Agencies and Partner Announcement Statements and Pharmaceutical Industry Statements.
WFH eLearning Platform – To ensure all members of the bleeding disorder community have access to important clinical and patient-focused information, the WFH developed the WFH eLearning Platform. The platform features more than 500 important resources in six languages.
Webinar: View WFH’s Webinar: Bleeding Disorders and COVID-19 – Facts and Risks for People with Bleeding Disorders, which was held on April 9.
Hemophilia Federation of America (HFA)
The HFA has created a section on its website titled Coronavirus: What HFA is Doing.
The site includes a section on Frequently Asked Questions: Bleeding Disorders and COVID-19 that is frequently updated.
HFA has also created a Patient Voice Inbox for patient care and product availability concerns or issues. questions or issues regarding access to your products or care.
HFA President and CEO, Sharon Meyers, M.S., CFRE, in partnership with NHF’s CEO, Dr. Leonard Valentio, have and will continue to conduct webinars every Friday at 5 pm (6 pm ET). For upcoming webinars, as well as past webinars that you can listen to online, visit NHF’s website.
Centers for Disease Control and Prevention (CDC)
The CDC website has created a COVID-19 section on their website. It includes what top medical professionals and experts consider the most trusted, up-to-date information about COVID-19. All information and resources are multilingual. Click here to access CDC resources in languages other than English.
Along with other federal, state and local agencies and public health officials across the country, the FDA continues critical work to protect public health. Visit the FDA’s COVID-19 section of their website and Learn more about the FDA Covid-19 Response.
World Health Organization (WHO)
The WHO works worldwide to promote health, keep the world safe, and serve the vulnerable. WHO’s primary goal is to direct international health within the United Nations’ system and to lead partners. Their website has a comprehensive list of resources, including Rolling Updates on the Coronavirus Disease.
Medicare RX Access Network (MRAN)
MRAN has developed a COVID-19 Resource Guide, including links to government resources, aging resources, patient group resources and industry resources.
Pharmaceutical Research and Manufacturers of America (PhRMA)
PhRMA represents the country’s leading biopharmaceutical research companies and supports the search for new treatments and cures.
Learn the latest information on the biopharmaceutical industry’s effort to beat COVID-19
PhRMA has created a COVID-19 Infographic: How we are Fighting COVID-19
Other Helpful Websites
Covidactnow.org – Covid Act Now is a multidisciplinary team of technologists, epidemiologists, health experts and public policy leaders working to provide disease intelligence and data analysis on COVID-19 in the U.S. The website allows you to search by state or county and gives you answers to some of these questions: Is your community ready to re-open? Is COVID-19 decreasing? Are we testing enough? Are hospitals ready? Their partners include: Georgetown University Center for Global Health Science and Security, Stanford University Clinical Excellence Research Center, and Grand Rounds. They published their first version of their model on March 20. More than 10 million Americans have used the model since. They engaged with dozens of federal, state, and local government officials, including the U.S. military and White House, to assist with response planning.