Be a Part of Making Tough Decisions Now
Living with a Bleeding Disorder
by: Steve Place I have lived for 64 years with mild hemophilia and have voluminous experience, from which I came to my…
Sangamo Announces First Patient Treated in Hemophilia B Gene Therapy Trial
Industry News & Research
Sangamo Therapeutics, Inc. recently announced it has treated the first patient in a Phase 1/2 clinical trial evaluating SB-FIX, the company’s investigational…
NHF Statement on Texas vs. United States Lawsuit
Advocacy & Legislation
On December 14, 2018, a Texas judge ruled in Texas vs. United States, a case challenging the constitutionality of the Affordable Care…
To Play or Not to Play?
Living with a Bleeding Disorder
by: Derek Markley As a father, I will be the first to say that learning about hemophilia leads to a number of…
Copay Accumulator Adjustments: What Are They and How They Can Affect You
Advocacy & Legislation
In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford…
Two New MASAC Documents Issued
Industry News & Research
The National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council has issued two new documents on November 21, 2018 that were approved…
Inhibitor Chapter Updated in Nurses’ Guide to Bleeding Disorders
Industry News & Research
The National Hemophilia Foundation’s (NHF’s) Nursing Working Group continues to revise and expand its Nurses’ Guide to Bleeding Disorders (NGBD). The latest chapter that has…
Results of Bayer’s PROTECT VIII Extension Study Announced
Industry News & Research
Bayer announced findings from an analysis of the PROTECT VIII extension study. This study found that long-term safety and efficacy was consistent…
Bioverativ and Sobi Release Long-Term Study Results for Extended Half-Life Therapies
Industry News & Research
Swedish Orphan Biovitrum AB (Sobi) and Bioverativ Inc. announced the results of ASPIRE and B-YOND, the most comprehensive long-term studies of extended…
GLHF’s First Men’s Retreat Offered as Part of Community Connection Series
GLHF News
In early October, GLHF hosted a Men’s Retreat at the Blue Harbor Resort in Sheboygan as part of Great Lakes Hemophilia Foundation’s…
Poinsettia and Wreath Sale Discontinued
GLHF News
As the holiday season gets underway, you might be wondering — is Great Lakes Hemophilia Foundation (GLHF) offering poinsettias and wreaths for sale this…
Introducing GLHF’s New Website, Logo and Colors
GLHF News
Big news! We are proud to share our new website which is part of our refreshed identity. The updates show the evolution…