There is a 60 Day Window to Get Health Insurance if You’re Unemployed Due to COVID-19
COVID-19 / Coronavirus
About one-sixth of all American workers have lost their jobs due to the coronavirus. For many, that means their health insurance is…
NHF Webinar En español, Tuesday, June 16: El Estrés y Ansiedad: Copiando con COVID-19
COVID-19 / Coronavirus
La Fundación Nacional de Hemofilia te invita para un seminario de web: El Estrés y Ansiedad: Copiando con COVID-19, el martes 16…
NHF Webinar, Friday, June 12: Pain Management – Coping During COVID-19
COVID-19 / Coronavirus
Join NHF on Friday, June 12th at 3 pm (4 pm ET – new time!) for our townhall webinar, Pain Management: Coping…
CDC Issues Guidelines on Office Buildings
COVID-19 / Coronavirus
The CDC issued new guidelines designed to protect people who work in office buildings. They include modifying office furniture to allow social…
WHO Walks Back Comments on Asymptomatic Spread of Coronavirus
COVID-19 / Coronavirus
On June 8th, The World Health Organization released a statement saying that people who have COVID-19 but are asymptomatic only spread the…
Hemophilia History the Focus of New Partners Modules
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of…
BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
Industry News & Research, Uncategorized
BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…
We Stand With You
GLHF News
The National Hemophilia Foundation, along with Great Lakes Hemophilia Foundation and affiliated chapters across the nation, condemns discrimination of ANY Kind. We…
COVID-19 Assistance Programs
COVID-19 / Coronavirus, Uncategorized
Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…
COVID-19 Update
GLHF News, COVID-19 / Coronavirus
In response to the COVID-19 pandemic, GLHF has produced two new vehicles for information: a COVID-19 specific category in the News section…
Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…
Judith Graham Pool Postdoctoral Research Fellowships
Industry News & Research
Letter of Intent Deadline: July, 5, 2020 Application Deadline: August 16, 2020 Award Start Date: December 2020 NHF’s premier research fellowship program is named in…
Accredited Gene Therapy Educational Opportunities Available Online Now
Industry News & Research
These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia. The National Hemophilia Foundation…
Events
NHF is excited to launch Run, White, & Blue for Bleeding Disorders – a family-friendly virtual event, featuring a 5K and Family Fun…
Mental Health:
COVID-19 / Coronavirus
Want to take a break from the news and watch something delightful for the whole family? Thor: Ragnarok director Taika Waititi has…
How Contact Tracing Works
COVID-19 / Coronavirus
While you may have heard of contact tracing only recently, it’s actually a method that has been used in fighting pandemics all…
Protective Measures to Keep Your Family Safe During COVID-19
COVID-19 / Coronavirus
Kids are itching to see their friends, have the run of the playground, and generally get back to the practice of being…
Assessing Risk During the Reopening
COVID-19 / Coronavirus
All fifty states have begun “reopening” – loosening restrictions around gatherings and how businesses can operate. However, nothing has changed about the…
Live Today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care
COVID-19 / Coronavirus
Live today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care Join NHF for this live, educational session to hear…
17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Advocacy & Legislation
Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…
Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation, Uncategorized
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.
Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling out…
Managing a Bleeding Disorder During a Pandemic: Answers to 6 Common Questions About COVID-19
COVID-19 / Coronavirus
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
Mental Health: Discussing the Pandemic with Your Child and Helping Your Child Cope with Anxiety and Stress
COVID-19 / Coronavirus
Discussing the Pandemic with Your Child: The American Academy of Child and Adolescent Psychiatry has a simple fact sheet that will help…