NHF/HFA Seek Feedback on Product Safety and Communication
Industry News & Research
The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary…
Health and Exercise During COVID-19
COVID-19 / Coronavirus
Keeping kids active during the pandemic is important – and it helps them burn up all that excess energy! The United Federation…
Mental Health
COVID-19 / Coronavirus
Source: NHF and the National Association of Mental Illness (NAMI) We are all experiencing stress and anxiety right now. NAMI, the National…
CDC Adds to List of Symptoms to COVID-19
COVID-19 / Coronavirus
The Centers for Disease Control and Prevention have updated their list of symptoms for COVID-19, adding a sore throat and loss of…
Advocacy Efforts During COVID-19
COVID-19 / Coronavirus, Advocacy & Legislation
While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…
NHF Webinar: As the Experts: Coping During COVID-19, Friday, May 1 at 5 pm (6 pm ET)
COVID-19 / Coronavirus
Do you have questions about COVID-19? Join us on Friday, May 1st at 3pm ET for our townhall webinar, Ask the Experts: Coping…
Help Us Continue Providing Support to Those Depending on Us! Donate on #GivingTuesday, May 5.
GLHF News
The health and safety of this community are always at the center of our work. COVID-19 won’t prevent GLHF from serving our friends…
Genentech Notice on COVID-19, Hemlibra®, and Laboratory Assays
Industry News & Research
Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain laboratory assays used to…
Voluntary Recall Notice for BD PosiFlush™ SF Saline Flush Syringes
Industry News & Research
BD is conducting a voluntary medical device recall for multiple lots of the BD PosiFlush™ SF (Sterile Field) Saline Flush Syringe 10mL identified…
CDC Calls for Stakeholder Comments on Pain, Pain Management and Opioid Use
Industry News & Research
The Centers for Disease Control and Prevention (CDC) are currently soliciting written comments on pain and pain management, including those relevant to…
GLHF Welcomes Tomi Vandergriff, Special Events Coordinator
GLHF News
Tomi is very excited to start at GLHF as our Special Events Coordinator! She received her B.A. in Religious Studies from UW-Milwaukee…
How Your Plasma Could Lead to a Potential Treatment for COVID-19
COVID-19 / Coronavirus
Source: National Hemophilia Foundation When you donate your plasma, you become the essential first step in a journey to develop a potential…
Health and Wellness Update #6 from Dr. Valentino
COVID-19 / Coronavirus
Source: National Hemophilia Foundation I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and…
Mental Health and COVID-19
COVID-19 / Coronavirus
Source: Mental Health America Mental Health and COVID-19 – Information and Resources from Mental Health America For the general public, the mental…
Rolling Updates on Coronavirus Disease (COVID-19) From WHO
COVID-19 / Coronavirus
New Joint Effort to Reach Billions who are Offline with Vital Health Information The World Health Organization and the International Telecommunication Union…
To Streamline Coronavirus Vaccine and Drug Efforts, NIH and Firms Join Forces
COVID-19 / Coronavirus
Source: National Institute of Health (NIH) With reporting by Jon Cohen and David Malakoff. More than 100 treatments and vaccines are in…
The COVID-19 Pandemic: New Global Challenges for the Hemophilia Community
COVID-19 / Coronavirus
Source: Haemophilia, The Official Journal of the World Federation of Hemophilia A new article providing additional information on how people with hemophilia…
Register for Staying Active: Coping During COVID-19
COVID-19 / Coronavirus
Join NHF on Friday, April 24th at 5 pm (6 pm ET) for NHF’s Townhall Webinar: Staying Active: Coping During COVID-19. Physical…
Voluntary Recall Notice for BD PosiFlush™ SF Saline Flush Syringes
Industry News & Research
BD is conducting a voluntary medical device recall for multiple lots of the BD PosiFlush™ SF (Sterile Field) Saline Flush Syringe 10mL identified…
BioMarin Update on the Impact of COVID-19 on Trials
COVID-19 / Coronavirus
BioMarin has released an update on the impact of COVID-19 on the clinical trial program for their investigational hemophilia A gene therapy valoctocogene…
Listen to NHF’s Webinar – Stress & Anxiety: Coping with COVID-19
COVID-19 / Coronavirus
Listen to NHF’s Friday, April 17 webinar: Stress & Anxiety: Coping with COVID-19.
Hemlibra® is known to interfere with certain laboratory assays used to measure blood coagulation.
COVID-19 / Coronavirus
Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain…
A Message to the GLHF Community from our Executive Director
GLHF News
Happy World Hemophilia Day! As we have navigated through the difficult times of the last few weeks, we have proven we are…
The WFH Creates Covid-19 Statements and Advisories Section on Website
COVID-19 / Coronavirus
The World Federation of Hemophilia (WFH) has created an entire section on their website dedicated to Covid-19 including: WFH Statements and Advisories;…