Skip to main content
  • Visit us on facebook
  • Visit us on instagram
  • Visit us on twitter
  • Visit us on youtube
Great Lakes Hemophilia Foundation
Donate
  • What We Do
    • Advocacy
    • Camp
    • Community Events
    • Fundraising Events
    • Financial Assistance
    • Scholarships
  • Resources
    • COVID-19 / Coronavirus Information and Resources
    • Facts About Bleeding Disorders
    • Regional Hemophilia Network
    • Hemophilia Treatment Centers
  • Events Calendar
  • News
  • Support Us
    • Ways to Give
    • The Impact of Your Gift
    • DIY – Plan Your Own Event!
    • Volunteer
  • Donate
  • What We DoView Children
    • Advocacy
    • Camp
    • Community Events
    • Fundraising Events
    • Financial Assistance
    • Scholarships
  • ResourcesView Children
    • COVID-19 / Coronavirus Information and Resources
    • Facts About Bleeding Disorders
    • Regional Hemophilia Network
    • Hemophilia Treatment Centers
  • Events Calendar
  • News
  • Support UsView Children
    • Ways to Give
    • The Impact of Your Gift
    • DIY – Plan Your Own Event!
    • Volunteer
  • Donate
  • Visit us on facebook
  • Visit us on instagram
  • Visit us on twitter
  • Visit us on youtube

News

Categories
  • Advocacy & Legislation
  • COVID-19 / Coronavirus
  • Events
  • GLHF News
  • Health and Well Being
  • Industry News & Research
  • Living with a Bleeding Disorder
  • Research
  • Uncategorized
April 22, 2020

Register for Staying Active: Coping During COVID-19

COVID-19 / Coronavirus

Join NHF on Friday, April 24th at 5 pm (6 pm ET) for NHF’s Townhall Webinar: Staying Active: Coping During COVID-19. Physical…

Read More
April 22, 2020

Voluntary Recall Notice for BD PosiFlush™ SF Saline Flush Syringes

Industry News & Research

BD is conducting a voluntary medical device recall for multiple lots of the BD PosiFlush™ SF (Sterile Field) Saline Flush Syringe 10mL identified…

Read More
April 22, 2020

BioMarin Update on the Impact of COVID-19 on Trials

COVID-19 / Coronavirus

BioMarin has released an update on the impact of COVID-19 on the clinical trial program for their investigational hemophilia A gene therapy valoctocogene…

Read More
April 22, 2020

Listen to NHF’s Webinar – Stress & Anxiety: Coping with COVID-19

COVID-19 / Coronavirus

Listen to NHF’s Friday, April 17 webinar: Stress & Anxiety: Coping with COVID-19.    

Read More
April 22, 2020

Hemlibra® is known to interfere with certain laboratory assays used to measure blood coagulation.

COVID-19 / Coronavirus

Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain…

Read More
April 17, 2020

A Message to the GLHF Community from our Executive Director

GLHF News

Happy World Hemophilia Day! As we have navigated through the difficult times of the last few weeks, we have proven we are…

Read More
April 14, 2020

The WFH Creates Covid-19 Statements and Advisories Section on Website

COVID-19 / Coronavirus

The World Federation of Hemophilia (WFH) has created an entire section on their website dedicated to Covid-19 including: WFH Statements and Advisories;…

Read More
April 14, 2020

Town Hall Webinar – Telehealth: Coping During COVID-19

COVID-19 / Coronavirus

On April 10th, experts discussed what is involved in a telemedicine visit and provided a look at what is needed for a…

Read More
April 9, 2020

A Message from the WFH President and the WFH CEO

COVID-19 / Coronavirus

On behalf of everyone at the WFH, we hope you and your loved ones are safe and healthy. Along with the rest…

Read More
April 9, 2020

Specific Risks of COVID-19 to the Bleeding Disorders Community

COVID-19 / Coronavirus

The World Federation of Hemophilia (WFH) is holding online webinars and sharing information from around the world, including information and data from…

Read More
April 9, 2020

Updates on Specialty Pharmacy Provider Services During COVID-19 Pandemic

COVID-19 / Coronavirus

NHF is posting all communications from specialty pharmacy providers regarding any potential effects that the COVID-19 pandemic could have on their ability…

Read More
April 8, 2020

Comment Period for VWD Clinical Practice Guidelines Open

Industry News & Research

The National Hemophilia Foundation (NHF)  is seeking comments on draft ASH, ISTH, NHF and WHF clinical practice guidelines on VWD Diagnosis &…

Read More
April 7, 2020

Join WFH for Virtual World Hemophilia Day on April 14. See How Your Community Can Get Involved!

COVID-19 / Coronavirus

Tuesday April 14th 1 – 1:30pm (EDT) – Learn how your community can safely GET+INVOLVED. Join us for a brief overview of…

Read More
April 7, 2020

Bleeding Disorders and Covid-19 Webinar, April 9: Facts and Risks for People with Bleeding Disorders

COVID-19 / Coronavirus

On Thursday, April 9th, at 10:00 am EST, the World Federation of Hemophilia (WFH) will host a 60-minute webinar for the bleeding…

Read More
April 7, 2020

Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration

COVID-19 / Coronavirus

Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…

Read More
April 7, 2020

Industry Forms Alliance to Develop Potential Treatment for Patients with Serious COVID-19 Complications

COVID-19 / Coronavirus

An international group of pharmaceutical companies have joined an alliance, with the purpose of pooling their industry technologies and expertise to develop…

Read More
April 7, 2020

Specific Risks of COVID-19 to the Bleeding Disorders Community

COVID-19 / Coronavirus

WFH COVID-19 Task Force: Assad Haffar, Cedric Hermans, Barbara Konkle, Brian O’Mahony, David Page, Flora Peyvandi, Steve Pipe, Mark Skinner and Radek…

Read More
April 7, 2020

The FDA Releases a New Webpage During Covid-19 Outbreak

COVID-19 / Coronavirus

The U.S. Food and Drug Administration (FDA) released a new webpage of information to help address questions patients and caregivers may have…

Read More
April 1, 2020

HTC Visits and COVID-19

COVID-19 / Coronavirus

The National Hemophilia Foundation is monitoring the availability of access to hemophilia treatment centers (HTCs) during the COVID-19 pandemic. Our HTC network…

Read More
April 1, 2020

GLHF Advocated for the Bleeding Disorders Community in Washington, D.C.

GLHF News

At the end of February, to kick off March as Bleeding Disorders Awareness Month, GLHF joined more than 400 members of the…

Read More
March 31, 2020

Wisconsin Legislative Day Offered Stories, Experiences and Strength with Lawmakers

GLHF News

On March 4, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true…

Read More
March 31, 2020

Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration

COVID-19 / Coronavirus

Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…

Read More
March 31, 2020

Town Hall Webinar – Insurance: Coping During COVID-19

COVID-19 / Coronavirus

On March 27th, experts from NHF answered your questions regarding changes in insurance in our townhall webinar: Insurance: Coping During COVID-19.  …

Read More
March 30, 2020

MASAC Issues Four New Documents

The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) issued four new documents, which were adopted by NHF’s Board of…

Read More
<...89101112...>

Contact Us

Great Lakes Hemophilia Foundation
638 North 18th Street Milwaukee, WI 53233
888.797.GLHF

414.257.0200

414.257.1225 (Fax)

  • Contact Us
  • Support our work with a donation!

Stay Connected

Join the conversation on Social Media:

  • Visit us on facebook
  • Visit us on instagram
  • Visit us on twitter
  • Visit us on youtube
Subscribe to email updates:
  • This field is for validation purposes and should be left unchanged.

About Us

  • Our Story
  • Our Impact
  • Our Team
  • Board of Directors
  • Annual Report
  • Patient Choice Policy
  • Medical Disclaimer
  • Privacy Policy
  • Affiliated Chapter

  • Member Organization

  • Non-Profit Partner

© 2021 Great Lakes Hemophilia Foundation. All Rights Reserved.