Visiting Parks and Recreational Facilities – Protect Yourself and Others From COVID-19
COVID-19 / Coronavirus
Parks and beaches are reopening in some states. The CDC has recommendations to follow if you choose to visit these recreational facilities….
Telemedicine and Hemophilia in the Age of COVID-19
COVID-19 / Coronavirus
Role of telemedicine during the COVID-19 pandemic analysed in Haemophilia A commentary, published in the World Federation of Hemophilia’s journal Haemophilia by NHF…
Encouraging Safety Results on Trial Vaccine
COVID-19 / Coronavirus
Moderna’s coronavirus vaccine shows encouraging early results Moderna, a biotech company from Massachusetts which has been working on a COVID-19 vaccine, has…
CDC Issues Alert on New COVID-linked Disorder
COVID-19 / Coronavirus
Multisystem Inflammatory Syndrome in Children (MIS-C) Associated with Coronavirus Disease 2019 (COVID-19) The CDC issued an alert on a multisystem inflammatory syndrome…
HFA’s Annual Symposium is Going Virtual – August 24-29!
Events
HFA is pleased to announce new dates for our previously-postponed Symposium. The 2020 Symposium will be held Aug. 24-29, 2020. HFA’s Symposium is an…
Statement from Novo Nordisk on Rebinyn and COVID-19
Industry News & Research
To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…
Watch NHF’s Webinar: Playing It Safe – Coping During COVID-19
COVID-19 / Coronavirus
GLHF Wins Award for #RedTieCampaign – Most Unique Way of Celebrating World Hemophilia Day
GLHF News
Every year, GLHF participates in the #RedTieCampaign, a fundraising campaign that kicks off on March 1, with the start of Bleeding Disorders…
WFH Virtual Summit, June 14-19, 2020: Connecting the Global Bleeding Disorders Community
Events
Join the World Federation of Hemophilia (WFH) for a high-profile six-day virtual event, June 14-19, 2020: Connecting the Global Bleeding Disorders Community….
HFA’S COVID-19 RELIEF FUND
COVID-19 / Coronavirus
As COVID-19 threatens the livelihood of families across the U.S. who are part of the bleeding disorders community, the need for a…
Health and Wellness Update #9 from Dr. Valentino
COVID-19 / Coronavirus
On March 11, 2020 the World Health Organization (WHO) declared the novel coronavirus (COVID-19) outbreak a global pandemic. Our life and lifestyle…
NHF’s Board of Directors Meeting
Events
The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT. The Board…
NHF’s Community Voices in Research Replaces MyBDC Program – A Message From Leonard Valentino, M.D.
Industry News & Research
Dear Community Members, The National Hemophilia Foundation wishes to inspire and partner with the community on their journeys to a cure and…
GLHF Announces Winners of Multi-Media Art Contest!
GLHF News
To ring in World Hemophilia Day, GLHF gave community members two weeks to create and submit a piece of artwork for our…
Take GLHF’s 3-Minute Survey!
Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…
GLHF Wants to Help Celebrate Your 2020 Graduate!
GLHF News
Do you have a loved one graduating from a university, high school, middle school or elementary school? Let us give them a…
HFA: A Whole New World – Parenting In a Pandemic. A Series of Live Webinars for Parents Seeking Support.
COVID-19 / Coronavirus
Parenting is hard enough! How can parents navigate this “new normal” brought about by a pandemic? Join the Hemophilia Federation of America…
UniQure Announces Highlights of Recent Progress
Industry News & Research
UniQure N.V., a gene therapy company advancing transformative therapies for patients with severe medical needs, reported recent progress across its business. “Despite…
Pfizer and Biontech Dose First Participants In the COVID-19 Vaccine Development Program
Industry News & Research
Pfizer Inc. and BionTech SE announced the first participants have been dosed in the U.S. in the Phase 1/2 clinical trial for…
Town Hall Webinar – Ask the Experts: Coping During COVID-19
COVID-19 / Coronavirus
Listen to NHF’s Townhall Meeting from May 1, 2020. Or, make suggestions about what you want to hear NHF discuss in one…
Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…
NHF’s next Spanish Townhall COVID-19 webinar is May 19, 2020
COVID-19 / Coronavirus
NHF’s next Spanish Townhall COVID-19 Webinar is May 19, 2020. La Fundación Nacional de Hemofilia te invita para un seminario de web:…
#GivingTuesdayNow! Thank You! We are Stronger Together!
GLHF News, COVID-19 / Coronavirus
Thank you for your generosity to GLHF on #GivingTuesdayNow!. Your support helps insure that we may offer the programs and services that make a difference for…
Listen to NHF’s Townhall Webinar: Coping During COVID-19
COVID-19 / Coronavirus
May 5, 2020