uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B
uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…
Together We Can! #GivingTuesday is December 1. Donate Today!
GLHF News, Events
In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over the…
5 Easy Ways to Add More Physical Activity to Every Day
Health and Well Being
Tips to include mini intervals of activity into your everyday routines. Learn more. Source: National Hemophilia Foundation, HEMAWARExpress
COVID-19 Vaccines: What to Expect
In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…
Helpful Tools to Keep Track of Your Hemophilia Treatments
Living with a Bleeding Disorder
These electronic options can help make record-keeping easier for people with bleeding disorders. Read more. Source: National Hemophilia Foundation, HEMAWARExpress
Why Compliance Matters When You Have a Bleeding Disorder
Living with a Bleeding Disorder
Adhering to your treatment schedule is associated with fewer bleeding events and a reduction in joint disease. Here is how to stay…
Holiday Travel Guidance from the CDC
COVID-19 / Coronavirus, Uncategorized
As cases of COVID-19 increase in Wisconsin and around the United States, use CDC guidance to plan a healthy and safe Thanksgiving…
New Paper Published on the First National Patient Satisfaction Survey of U.S. HTCs
Industry News & Research, GLHF News
The federally funded hemophilia treatment center (HTC) network, with its model of a multidisciplinary care team (MDT) and regional infrastructure, has proven…
COVID-19: Latest News and Updates
COVID-19 / Coronavirus
Governor Evers Issues New Order As COVID-19 continues to surge across the state, Gov. Tony Evers announced Executive Order #94, which includes…
ACA Open Enrollment Underway
Advocacy & Legislation, Industry News & Research
Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…
Sharp Increase in COVID-19 Cases
COVID-19 / Coronavirus, Industry News & Research
The coronavirus case numbers in the US are not looking good. The COVID-19 Tracking Project is an excellent reason for both viewing…
Depressive Incidents Could Rise in the Coming Months
COVID-19 / Coronavirus, Health and Well Being
As the days grow shorter, incidences of seasonal depression increase. This winter, increased isolation and stress could increase those numbers more. It’s…
Chronic Pain, CAM and YOU
Living with a Bleeding Disorder, Health and Well Being
by Laurie Kelley Pain is highly personal. No two people experience the same feeling of pain, even when it’s the same injury,…
Eli Lilly’s Antibody Treatment Proves Unhelpful for Advanced COVID Cases
Industry News & Research, COVID-19 / Coronavirus
A paused clinical trial of an Eli Lilly & Co. experimental antibody therapy won’t resume after federal researchers concluded the drug likely…
Managing Pain
Living with a Bleeding Disorder, Industry News & Research
by Paul Clement Pain and hemophilia go hand-in-hand. During a joint or muscle bleed, blood fills the joint cavity or makes muscles…
Scientists Identify the Five Symptoms That May Predict a Long-Term Case of Coronavirus
COVID-19 / Coronavirus
Preliminary studies are beginning to pinpoint the early signs that a patient won’t recover right away. For a select group of coronavirus…
COVID-19 Vaccines: What to Expect
COVID-19 / Coronavirus, Events
We all want an end to this global pandemic, and an effective vaccine is a critical part of finding that path. However,…
Interesting Fictional Teens….With Bleeding Disorders!
Living with a Bleeding Disorder
by Richard J. Atwood Do you ever wonder whether teenage fictional characters with bleeding disorders can foreshadow the future of our community?…
Vote Your Way! Make a Plan TODAY!
Advocacy & Legislation
Vote Your Way The 2020 General Election is Tuesday, Nov. 3. Voter registration deadlines for the 2020 General Election are: Oct. 30,…
Milwaukee Adds Virtual Field Trip Portal and a Virtual Weatherization Day – Including Free Weatherization & Grab and Go Bags on Halloween!
COVID-19 / Coronavirus, Events
Virtual Field Trip Planning Planning field trips has been a challenge with COVID-19. Milwaukee cultural institutions have launched a virtual field trip…
Halloween Re-Imagined in the Age of COVID-19! Ways to Make it Fun and Stay Safe
COVID-19 / Coronavirus
The Milwaukee Health Department encourages residents to re-imagine Halloween this year. There are many low-risk activities you and your family can participate…
COVID-19 Updates: Testing Locations, Handling COVID-19 Misinformation and Free Flu Shots!
COVID-19 / Coronavirus
For daily COVID-19 statistics locally, nationally and worldwide, go to: Milwaukee County COVID-19 Dashboard State of Wisconsin United States and Countries Worldwide…
Update on ACA Lawsuit
Industry News & Research, Uncategorized
The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…
Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients
Industry News & Research
Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…