Register for Staying Active: Coping During COVID-19
COVID-19 / Coronavirus
Join NHF on Friday, April 24th at 5 pm (6 pm ET) for NHF’s Townhall Webinar: Staying Active: Coping During COVID-19. Physical…
Voluntary Recall Notice for BD PosiFlush™ SF Saline Flush Syringes
Industry News & Research
BD is conducting a voluntary medical device recall for multiple lots of the BD PosiFlush™ SF (Sterile Field) Saline Flush Syringe 10mL identified…
BioMarin Update on the Impact of COVID-19 on Trials
COVID-19 / Coronavirus
BioMarin has released an update on the impact of COVID-19 on the clinical trial program for their investigational hemophilia A gene therapy valoctocogene…
Listen to NHF’s Webinar – Stress & Anxiety: Coping with COVID-19
COVID-19 / Coronavirus
Listen to NHF’s Friday, April 17 webinar: Stress & Anxiety: Coping with COVID-19.
Hemlibra® is known to interfere with certain laboratory assays used to measure blood coagulation.
COVID-19 / Coronavirus
Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain…
A Message to the GLHF Community from our Executive Director
GLHF News
Happy World Hemophilia Day! As we have navigated through the difficult times of the last few weeks, we have proven we are…
The WFH Creates Covid-19 Statements and Advisories Section on Website
COVID-19 / Coronavirus
The World Federation of Hemophilia (WFH) has created an entire section on their website dedicated to Covid-19 including: WFH Statements and Advisories;…
Town Hall Webinar – Telehealth: Coping During COVID-19
COVID-19 / Coronavirus
On April 10th, experts discussed what is involved in a telemedicine visit and provided a look at what is needed for a…
A Message from the WFH President and the WFH CEO
COVID-19 / Coronavirus
On behalf of everyone at the WFH, we hope you and your loved ones are safe and healthy. Along with the rest…
Specific Risks of COVID-19 to the Bleeding Disorders Community
COVID-19 / Coronavirus
The World Federation of Hemophilia (WFH) is holding online webinars and sharing information from around the world, including information and data from…
Updates on Specialty Pharmacy Provider Services During COVID-19 Pandemic
COVID-19 / Coronavirus
NHF is posting all communications from specialty pharmacy providers regarding any potential effects that the COVID-19 pandemic could have on their ability…
Comment Period for VWD Clinical Practice Guidelines Open
Industry News & Research
The National Hemophilia Foundation (NHF) is seeking comments on draft ASH, ISTH, NHF and WHF clinical practice guidelines on VWD Diagnosis &…
Join WFH for Virtual World Hemophilia Day on April 14. See How Your Community Can Get Involved!
COVID-19 / Coronavirus
Tuesday April 14th 1 – 1:30pm (EDT) – Learn how your community can safely GET+INVOLVED. Join us for a brief overview of…
Bleeding Disorders and Covid-19 Webinar, April 9: Facts and Risks for People with Bleeding Disorders
COVID-19 / Coronavirus
On Thursday, April 9th, at 10:00 am EST, the World Federation of Hemophilia (WFH) will host a 60-minute webinar for the bleeding…
Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration
COVID-19 / Coronavirus
Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…
Industry Forms Alliance to Develop Potential Treatment for Patients with Serious COVID-19 Complications
COVID-19 / Coronavirus
An international group of pharmaceutical companies have joined an alliance, with the purpose of pooling their industry technologies and expertise to develop…
Specific Risks of COVID-19 to the Bleeding Disorders Community
COVID-19 / Coronavirus
WFH COVID-19 Task Force: Assad Haffar, Cedric Hermans, Barbara Konkle, Brian O’Mahony, David Page, Flora Peyvandi, Steve Pipe, Mark Skinner and Radek…
The FDA Releases a New Webpage During Covid-19 Outbreak
COVID-19 / Coronavirus
The U.S. Food and Drug Administration (FDA) released a new webpage of information to help address questions patients and caregivers may have…
HTC Visits and COVID-19
COVID-19 / Coronavirus
The National Hemophilia Foundation is monitoring the availability of access to hemophilia treatment centers (HTCs) during the COVID-19 pandemic. Our HTC network…
GLHF Advocated for the Bleeding Disorders Community in Washington, D.C.
GLHF News
At the end of February, to kick off March as Bleeding Disorders Awareness Month, GLHF joined more than 400 members of the…
Wisconsin Legislative Day Offered Stories, Experiences and Strength with Lawmakers
GLHF News
On March 4, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true…
Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration
COVID-19 / Coronavirus
Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…
Town Hall Webinar – Insurance: Coping During COVID-19
COVID-19 / Coronavirus
On March 27th, experts from NHF answered your questions regarding changes in insurance in our townhall webinar: Insurance: Coping During COVID-19. …
MASAC Issues Four New Documents
The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) issued four new documents, which were adopted by NHF’s Board of…