News

Update on ACA Lawsuit

Industry News & Research

The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…

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Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients

Industry News & Research

Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…

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Pfizer and Sangamo Dose First Participant in Phase 3 Study Evaluating Hemophilia A in Gene Therapy Treatment

Industry News & Research

AFFINE is a global Phase 3, open-label, multicenter, single arm study that will evaluate the efficacy and safety of giroctocogene fitelparvovec in…

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Be an Informed Voter! Register to Vote Today!

Advocacy & Legislation, Industry News & Research

There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…

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GLHF’s 1st Virtual Unite Walk Proves Successful While #BeingTogetherApart!

GLHF News

In a year with so many “new normals” and unique challenges, the community came together on September 26 to raise $48,225!  In our…

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Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs

Advocacy & Legislation, Industry News & Research

The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…

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Patient Advocacy Organizations Release Blueprint to Protect Access to Care

Advocacy & Legislation, Industry News & Research

A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…

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Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.

COVID-19, Living with a Bleeding Disorder

As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

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Managing a Bleeding Disorder During a Pandemic

COVID-19, Living with a Bleeding Disorder

As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

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GET WIRED WITH HFA

Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…

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Public Health Symposia Now Available on the NHF Website!

Industry News & Research

This summer’s Virtual Bleeding Disorders Conference (BDC) featured a pair of excellent public health symposiums, which were developed through an inspired collaboration…

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COVID-19 and Coagulopathy: Frequently Asked Questions

COVID-19

What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…

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First Patient Dosed in Phase 3 Gene Therapy Trial

Industry News & Research

The purpose of the study is to evaluate the efficacy and safety of this investigational gene therapy in patients with moderately severe…

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Unanswered Questions Remain in Gene Therapy Trial

Industry News & Research

This commentary was authored by six individuals with severe hemophilia, all of whom have worked to achieve better health outcomes for patients…

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What’s Next for the ACA?

Advocacy & Legislation, Industry News & Research

The recent news about the passing of United State Supreme Court Justice Ruth Bader Ginsburg and nomination of Judge Amy Coney Barrett…

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CSL Behring States Stimate Will Not Be Resupplied until 2022

Industry News & Research

NHF and HFA have been provided the following statement from CSL Behring. The statement says, in part: “Ferring Pharmaceuticals Inc. initiated a voluntary,…

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Milwaukee County COVID-19 Update

COVID-19, Industry News & Research

The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…

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NHF Wants Your Input as They Chart a Course for the Future. Take Their Survey Today!

Industry News & Research

The National Hemophilia Foundation (NHF) is working with the bleeding disorders community to envision our future for the next decade, and they…

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NHF Friday Webinar – Gene Therapy: What’s New and What’s Next? October 2, 3 pm.

Industry News & Research

Gene therapy for hemophilia remains a very active area of research, although it may take longer than expected. To discuss this, join…

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Wow, There is a Lot Going On.

COVID-19, GLHF News

Remember a few simple recommendations to stay safe during the pandemic and a possible second wave of infection: practice good hygiene by…

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Emergency Preparedness

Industry News & Research

The NHF is saddened by the loss of life and destruction of communities due to catastrophic fires in the west and a…

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Who Gets a Vaccine?

COVID-19

Perhaps a more difficult job than discovering a safe vaccine for COVID-19 is producing enough to widely inoculate the public – and…

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CDC Updates Guidance on COVID-19 Transmission

COVID-19

Although posted on the CDC website on Friday, September 18th and reported in the popular press, a major change in the guidance from…

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Exercise Your Right to Vote!

Advocacy & Legislation

One of our most important civil liberties is the right to vote. With your vote, you have the power to influence public…

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