News

GLHF Advocated for the Bleeding Disorders Community in Washington, D.C.

GLHF News

At the end of February, to kick off March as Bleeding Disorders Awareness Month, GLHF joined more than 400 members of the…

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Wisconsin Legislative Day Offered Stories, Experiences and Strength with Lawmakers

GLHF News

On March 4, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true…

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Supplemental MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration

COVID-19 / Coronavirus

Patients on home therapy receive regular shipments of clotting factor concentrate (CFC) or non-factor replacement therapy (e.g., emicizumab-kxwh) from their pharmacy providers,…

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Town Hall Webinar – Insurance: Coping During COVID-19

COVID-19 / Coronavirus

On March 27th, experts from NHF answered your questions regarding changes in insurance in our townhall webinar: Insurance: Coping During COVID-19.  …

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MASAC Issues Four New Documents

Uncategorized

The National Hemophilia Foundation’s (NHF’s) Medical and Scientific Advisory Council (MASAC) issued four new documents, which were adopted by NHF’s Board of…

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Milwaukee’s Best Bloody Brings Together Bars, Clients and Greater Milwaukee to Support the Bleeding Disorders Community

GLHF News

DRINK LOCAL. GIVE LOCAL. When GLHF started Milwaukee’s Best Bloody eight years ago, we were looking for a fresh way to raise…

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Dr. Valentino’s COVID-19 Town Hall Webinar

COVID-19 / Coronavirus

On March 20th, NHF’s President and CEO answered your questions about how COVID-19 affects our community. You can watch the webinar in…

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GLHF Letter to the Community on COVID-19

COVID-19 / Coronavirus, GLHF News

Dear GLHF Community Members, We are thinking of you every day. As we navigate this current health crisis together, our primary concern is,…

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Health and Wellness Update from NHF’s Dr. Leonard Valentino

COVID-19 / Coronavirus

I know many of you are overwhelmed with often-conflicting information on the COVID-19 virus. As a doctor and researcher, the health of…

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Coverage Concerns and Unanswered Questions: We Get It

COVID-19 / Coronavirus

As a community, we know how important it is for people with bleeding disorders to maintain comprehensive health insurance. Amid the uncertainty…

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Three Concizumab Trials Halted by Novo Nordisk

Industry News & Research

Novo Nordisk recently announced that they have “paused” three clinical trials for their investigational subcutaneous therapy concizumab. The therapy is developed using…

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Updates on Product Availability During COVID-19 Outbreak

COVID-19 / Coronavirus

NHF will be posting all communications from pharmaceutical companies regarding any potential affects that the COVID-19 pandemic could have on the manufacture…

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Statement from Len Valentino on COVID-19

COVID-19 / Coronavirus

As we continue to monitor the COVID-19 outbreak in the US and around the world, we understand the uncertainty that it may…

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Takeda Responds to HFA-NHF Letter on VONVENDI Recall

Uncategorized

As previously reported by HFA and NHF, Takeda announced the recall of two lots of VONVENDI von Willebrand factor (recombinant) 1,300 I.U….

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NHF Letter to the Community on COVID-19

COVID-19 / Coronavirus

The greatest asset at NHF is the community we serve – our family of staff and volunteers. We are aware of the…

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MASAC Letter to the Community Regarding the Coronavirus Disease 2019

COVID-19 / Coronavirus

The Centers for Disease Control and Prevention (CDC) is responding to the rapidly evolving situation of the outbreak of respiratory disease (COVID-19)…

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Medexus Acquires XINITY® from Aptevo

Industry News & Research

Aptevo Theraoeutics has sold their recombinant factor IX product IXINITY® to Canada-based Medexus Pharmaceuticals. IXINITY®, which first received approval from the U.S….

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Partners in Bleeding Disorders Education Program Launches Revised Module

Industry News & Research

The Partners in Bleeding Disorders Education Program has announced the launch a new version of “Understanding Hemophilia,” a six-part online learning activity for clinicians…

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Emergency Department Guidelines Now Available in Multiple Formats

Industry News & Research

It is critical that an individual with a bleeding disorder who presents in an emergency department (ED) be triaged and administered care…

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NHF, WFH, EHC Monitor Coronavirus Impact on Bleeding Disorders Community

Industry News & Research

The National Hemophilia Foundation (NHF) has been monitoring the latest information on the current coronavirus (2019-nCoV) as it pertains to the bleeding…

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Novo Nordisk Announces Launch of New Factor VIII Therapy

Industry News & Research

Novo Nordisk has announced the launch of ESPEROCT®, the company’s long-acting recombinant factor VIII product for the prevention and treatment of bleeding…

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Bombardier Climbs the Seven Summits — Proving That with Support and Guidance, We Can All Achieve our Dreams

GLHF News

Chris Bombardier has never let severe hemophilia stop him. On January 6, 2018, Chris became the first person with hemophilia – and…

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Medexus Acquires XINITY® from Aptevo

Living with a Bleeding Disorder

Aptevo Theraoeutics has sold their recombinant factor IX product IXINITY® to Canada-based Medexus Pharmaceuticals. IXINITY®, which first received approval from the U.S….

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Medscape Launches Activity for Emergency Department Providers

Industry News & Research

An important new educational activity has launched for healthcare providers who practice in an emergency department setting. “Evaluation and Management of Hemophilia…

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