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News

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April 9, 2019

New Books to Manage Hemophilia for All Ages

Living with a Bleeding Disorder

Global health education company Jumo Health is releasing four new comic books that provide contextual and age-appropriate information for children, teenagers, and…

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April 3, 2019

GLHF Addresses Key Issues Impacting the Bleeding Disorders Community at Washington Days

GLHF News

In March, GLHF staff participated in the National Hemophilia Foundation’s Washington Days on Capitol Hill in Washington, D.C. “Washington Days is an…

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April 3, 2019

Sangamo and Pfizer Announce Interim Trial Data for Hemophilia A Gene Therapy

Industry News & Research

Sangamo Therapeutics, Inc and Pfizer, Inc. recently announced interim data from the phase 1/2 Alta study designed to evaluate SB-525, the company’s…

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April 3, 2019

New Financial and Patient Support Services for People Living With Hemophilia

Industry News & Research

The Patient Access Network (PAN) Foundation and the National Hemophilia Foundation (NHF) announced they are launching a new alliance to offer a…

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April 3, 2019

17 Patient Groups Urge Appeals Court to Uphold Healthcare Law

Advocacy & Legislation

Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for…

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March 21, 2019

New CME-Accredited Activity on Evaluating Patients with Suspected VWD

Research

Register today for a new CME-accredited educational activity on “Recognizing and Remediating von Willebrand Disease – A Case Study in Collaborative Care,” provided by Haymarket…

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March 21, 2019

Give Where You Live for The Red Tie Campaign!

GLHF News

Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time,…

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March 20, 2019

Light it Up Red! for World Hemophilia Day, April 17

Advocacy & Legislation

Light it Up Red! for World Hemophilia Day, April 17 Last year, thousands of people united to show their support for the…

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March 19, 2019

2nd Annual Madison’s Best Bloody Contest Returns April 28. Tickets on Sale Now!

GLHF News

GLHF’s Madison’s Best Bloody will be held at the Edgewater Hotel, 1001 Wisconsin Place, Madison, WI, on Sunday April 28 from 11:30…

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March 8, 2019

At Wisconsin Legislative Day, We Share our Stories, Experiences and Strength with Lawmakers

Advocacy & Legislation

Last month, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true reality…

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March 7, 2019

Milwaukee’s Best Bloody Draws Support and Awareness for the Bleeding Disorders Community

GLHF News

When GLHF started Milwaukee’s Best Bloody seven years ago, we were looking for a fresh way to raise critical funds and awareness…

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March 1, 2019

Cell-based Gene Therapy May Offer Long-term Treatment for Hemophilia A, Mouse Study Suggests

Industry News & Research

Cell therapy with endothelial progenitor cells and stem cells genetically engineered to produce a functional clotting factor VIII (FVIII) may provide a…

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February 21, 2019

Advocacy Priorities Established by NHF

Advocacy & Legislation

The National Hemophilia Foundation (NHF) has advocated for the needs and interests of people affected by hemophilia and related bleeding disorders for…

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February 20, 2019

GLHF Launches the 2019 Red Tie Campaign

GLHF News

It’s time to put on your red ties again and join us for the 2019 Red Tie Campaign! This March, during Bleeding…

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February 19, 2019

uniQure Announces Updated Data from Phase 2B Dose Confirmation of AMT-061

Industry News & Research

uniQure is excited to announce that updated data from their Phase 2B dose-confirmation study of AMT-061, an investigational gene therapy for the…

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February 17, 2019

Who Makes the Decision?

Living with a Bleeding Disorder

by: Derek L. Markley It has been more than eight years since St. Jude Children’s Research Hospital, University College London, and the…

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February 16, 2019

What’s the Best Way to Learn About Your Bleeding Disorder?

Living with a Bleeding Disorder

by: Laurie Kelley Our world is biased toward visual information and learning, because humans are mainly visual beings. From advertising to teaching…

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February 16, 2019

NHF and Partners Announce Innovative Infusion Logging Tool

Industry News & Research

The National Hemophilia Foundation (NHF) has announced a new two-year pilot program that aims to improve the efficacy of patient infusion logs…

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February 15, 2019

Online Health Information: Is It Reliable?

Research

by: Paul Clement It’s an exciting time for people with inhibitors. In addition to bypassing agents, new products may prevent or control…

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February 15, 2019

PT Study Focuses on Comprehensive Survey of Physical Activities Risks for 101 Activities

Industry News & Research

Physical therapists (PTs) at hemophilia treatment centers (HTCs) often consult with hemophilia patients about engaging in new physical activities like exercise, team/individual…

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February 14, 2019

Catalyst Reports Positive Trial Updates for Subcutaneous Therapy for Hemophilia

Industry News & Research

Catalyst Biosciences, Inc recently reported updated interim data from their phase 2/3, multinational clinical study of marzeptacog alfa (MarzAA), a subcutaneous (administered…

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January 29, 2019

GLHF Hosts Event to Help Young Adults Own Their Future

GLHF News

Part of GLHF’s mission is to educate the bleeding disorders community about opportunities and information that can benefit them and impact their…

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January 16, 2019

Camp Klotty Pine Celebrates Five Successful Years of Service to the Bleeding Disorders Community

GLHF News

This past January, GLHF hosted more than 40 children, families, Hemophilia Treatment Center staff and donors to celebrate Camp Klotty Pine’s five…

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January 8, 2019

Own Your Future: College, Career and Independence Workshop

GLHF News

Discover the resources and information you need to take advantage of the educational, career and scholarship opportunities that are available to the…

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Great Lakes Hemophilia Foundation
638 North 18th Street Milwaukee, WI 53233
888.797.GLHF

414.257.0200

414.257.1225 (Fax)

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