News

Dear Friends, On March 11, 2020 the World Health Organization (WHO) declared the novel Coronavirus (COVID-19) outbreak a global pandemic. Since then,…

The Partners in Bleeding Disorders Education Program has announced the launch of a new online learning module, “Accounting for Home Care: The Role…

CSL Behring recently announced that it has agreed to acquire exclusive global license rights from uniQure, to commercialize etranacogene dezaparvovec (AMT-061), an…

Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…

The upheaval and fear we experience during COVID-19 can have a lasting impact on our mental health. Learn more about how to…

How can two balloons keep your kids active? You’d be surprised. This video from Raising Rookies shows an array of games kids…

Testing people for the coronavirus is the best way we can understand the spread of the virus. But understanding the data is…

As the coronavirus continues to spread, infectious disease experts have been able to gain more understanding into why some people get sicker…

In the past few weeks, we’ve seen a lot of discussion in the media about face coverings. Unfortunately, for some people, the…

Join us for an active and educational June for Joint Health webinar. Learn how you can start to form healthy habits by…

Published June 15, 2020 by the Centers for Disease Control What you need to know In general, the more closely you interact…

June 15, 2020  

Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…

Physical Health and Exercise: It’s getting hot, and with pools and beaches operating at limited capacity (if at all), you may need…

If you look at the national COVID-19 infection rate, overall the numbers are down. However, it is more important to look at…

About one-sixth of all American workers have lost their jobs due to the coronavirus. For many, that means their health insurance is…

La Fundación Nacional de Hemofilia te invita para un seminario de web: El Estrés y Ansiedad: Copiando con COVID-19, el martes 16…

Join NHF on Friday, June 12th at 3 pm (4 pm ET – new time!) for our townhall webinar, Pain Management: Coping…

The CDC issued new guidelines designed to protect people who work in office buildings. They include modifying office furniture to allow social…

On June 8th, The World Health Organization released a statement saying that people who have COVID-19 but are asymptomatic only spread the…

The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of…

BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…

The National Hemophilia Foundation, along with Great Lakes Hemophilia Foundation and affiliated chapters across the nation, condemns discrimination of ANY Kind. We…

Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…