News

Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity

Industry News & Research, Living with a Bleeding Disorder

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

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FDA Approves New Non-Opioid Treatment for Pain

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Pain Management

The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…

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We are Excited to Announce a New Venue for Milwaukee’s Best Bloody!

GLHF News

Join us for our 13th annual Milwaukee’s Best Bloody at our new venue, Wisconsin State Fair Park on April 13! Drink local, give…

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Watch the 2024 Awards of Excellence Ceremony at the National Bleeding Disorders Foundation Annual Conference

Health and Well Being, Industry News & Research

This inspiring event celebrates the exceptional individuals and organizations making a lasting impact in the bleeding disorders community. Trailblazing healthcare professionals and dedicated advocates were…

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Ever Wonder Why Hemophilia B Was Once Called Christmas Disease?  

Industry News & Research, Living with a Bleeding Disorder

Did You Know? The name for a well-known bleeding disorder has a surprising origin tied to a 5-year-old boy from Canada. Learn why…

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Choosing a Day Care: A Guide for Parents of Children with Bleeding Disorders

GLHF News

Finding the right day care provider can be difficult for any parent. But when a child has a bleeding disorder, there are important safety issues…

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How to Cope with Seasonal Depression When You Have a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

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Postponed: GLHF’s 2025 Green Bay’s Best Bloody

GLHF News

We are disappointed to announce that it is both necessary and responsible to postpone Green Bay’s Best Bloody, which was scheduled for March 2. Tickets…

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Join us at Camp Klotty Pine, August 3-8

GLHF News

Camp Klotty Pine offers more than just a traditional summer camp experience. It’s a place where children gain confidence, independence and form…

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Calling All Former Campers and LITs: Learn How to Apply for Camp Klotty Pine’s 2025 Leader in Training (LIT) Program!

GLHF News

We are excited to announce that applications for Camp Klotty Pine’s 2025 Leader-in-Training (LIT) program are open! This three-year program is designed…

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Make Your Voice Heard! Join us on February 18 to Advocate for the Bleeding Disorders Community of Wisconsin. Register by February 1!

Advocacy & Legislation, GLHF News

With many newly elected legislators in Wisconsin, it is crucial to speak up and share what it is like to live with…

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Join us for the Wisconsin Bleeding Disorders Conference, June 6-8! Tickets are on Sale Through May 1.

GLHF News

“My family is very new to the bleeding disorders community. We have great support from our HTC care team, but something was…

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Sanofi Announces Positive Data for Its Investigational ITP Therapy

Industry News & Research

ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…

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Michigan Study Explores Gene Therapy Understanding in Hemophilia Community

Gene Therapy, Industry News & Research, Living with a Bleeding Disorder

Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

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Greater Los Angeles Wildfires: Community Support

GLHF News, Health and Well Being

Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

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NBDF’s Patient Assistance Programs (PAPs) Listing Updated!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

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FDA Approves Subcutaneous Therapy for Hemophilia Patients with Inhibitors

Industry News & Research

The U.S. Food and Drug Administration (FDA) has approved Alhemo (concizumab-mtci) for routine prophylaxis to prevent or reduce the frequency of bleeding…

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Global Experts Create Blueprint for Future VWD Research

Industry News & Research

In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers,…

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Investigational Sub-Q von Willebrand Disease Therapy Put on Fast Track

Industry News & Research

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

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Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity

Gene Therapy, Industry News & Research

The National Bleeding Disorders Foundation (NBDF) is excited to announce a new online, enduring, and accredited educational activity available to healthcare providers….

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Your Holiday Giving Will Make an Impact!

GLHF News

Dear Friend, Every summer, there’s a magical place called Camp Klotty Pine where kids find confidence, build lifelong friendships, and experience a…

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Washington Days 2025, NBDF’s Annual Advocacy Event, is March 5-7

Advocacy & Legislation, Industry News & Research

Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…

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Learn About the T.H.R.I.V.E. Campaign

Health and Well Being, Industry News & Research

The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

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How to Protect Yourself from Fractures

Health and Well Being, Industry News & Research

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

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