Copay Accumulator Adjustments: What Are They and How They Can Affect You
Advocacy & Legislation
In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford…
Two New MASAC Documents Issued
Industry News & Research
The National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council has issued two new documents on November 21, 2018 that were approved…
Inhibitor Chapter Updated in Nurses’ Guide to Bleeding Disorders
Industry News & Research
The National Hemophilia Foundation’s (NHF’s) Nursing Working Group continues to revise and expand its Nurses’ Guide to Bleeding Disorders (NGBD). The latest chapter that has…
Results of Bayer’s PROTECT VIII Extension Study Announced
Industry News & Research, Industry News & Research
Bayer announced findings from an analysis of the PROTECT VIII extension study. This study found that long-term safety and efficacy was consistent…
Bioverativ and Sobi Release Long-Term Study Results for Extended Half-Life Therapies
Industry News & Research, Industry News & Research
Swedish Orphan Biovitrum AB (Sobi) and Bioverativ Inc. announced the results of ASPIRE and B-YOND, the most comprehensive long-term studies of extended…
GLHF’s First Men’s Retreat Offered as Part of Community Connection Series
GLHF News
In early October, GLHF hosted a Men’s Retreat at the Blue Harbor Resort in Sheboygan as part of Great Lakes Hemophilia Foundation’s…
Poinsettia and Wreath Sale Discontinued
GLHF News
As the holiday season gets underway, you might be wondering — is Great Lakes Hemophilia Foundation (GLHF) offering poinsettias and wreaths for sale this…
Introducing GLHF’s New Website, Logo and Colors
GLHF News
Big news! We are proud to share our new website which is part of our refreshed identity. The updates show the evolution…
Unite for Bleeding Disorders Walk Raises Funds for Bleeding Disorders Community
GLHF News
There’s a tremendous amount of energy and camaraderie when 550 dedicated walkers raise nearly $80,000 for the bleeding disorders community. In September,…
GLHF Welcomes New Regional Coordinator and Special Events Coordinator to its Team
GLHF News
We are proud to announce that Kaveh Shabtaie, MPH, and Julie Pahnke, MS, have joined the GLHF team! Kaveh has accepted a…
Bayer Receives FDA Approval for Jivi, New Hemophilia A Treatment With Step-Wise Prophylaxis Dosing Regimen
Industry News & Research
Jivi’s extended half-life allows for twice-weekly initial dosing and may be adjusted to every five days and further individually adjusted to less…
A Parent’s Story of Learning, Making Connections and Finding Support
Living with a Bleeding Disorder
Deana’s son, Raffi, was diagnosed with severe hemophilia A when he was seven months old. “He had strange bruising to the point…