News

New Hemophilia Gene Therapy Video Presentations Available

Industry News & Research

The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of video presentations on fundamental topics relevant…

Read More

Hepatocellular Cancer Screening and Gene Therapy Preparedness the Focus of New Recommendations

Industry News & Research

Two new documents have been issued by the NBDF’s Medical and Scientific Advisory Council (MASAC), which periodically writes recommendations and advisories on…

Read More

The Importance of Telehealth

Health and Well Being, Living with a Bleeding Disorder

Interview with Jacob Murcock, Chapter Executive Director, Nevada It was a pleasure for the foundation to sit down with Jacob to learn…

Read More

World Hemophilia Day 2024 Theme Revealed

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

On April 17, 2024, the global bleeding disorders community will come together to celebrate World Hemophilia Day. The theme of the event…

Read More

WFH Humanitarian Aid Program supports Syrian refugees (Part 1: Karam’s story)

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

The World Federation of Hemophilia (WFH) provides care to people with bleeding disorders (PWBDs) all around the world—including individuals living in refugee…

Read More

Hepatocellular Cancer Screening and Gene Therapy Preparedness the Focus of New Recommendations

Industry News & Research

Two new documents have been issued by the NBDF’s Medical and Scientific Advisory Council (MASAC), which periodically writes recommendations and advisories on…

Read More

The State of Mental Health on College Campuses

Health and Well Being

Enrolling in college as a student with a mental health condition doesn’t need to be overwhelming or intimidating. Students who know their…

Read More

Study Results Encourage Discussion of Therapeutic Options for VWD Patients with Menorrhagia

Industry News & Research

While the majority of women with von Willebrand disease (VWD) will experience heavy menstrual bleeding (HMB) often associated negative impacts on overall…

Read More

New publications provide guidance to increase identification of PWBDs

Industry News & Research

One of the World Federation of Hemophilia’s (WFH) 2021-2025 strategic priorities is to enhance the identification and diagnosis of people with bleeding…

Read More

Paper Highlights Treatment for Ultra-Rare Type 1 Plasminogen Deficiency

Industry News & Research

Type 1 plasminogen deficiency, also known as hypoplasminogenemia, is a very rare genetic disorder. A recent publication in the journal Haemophilia, represents a…

Read More

New Study Looks at Hemophilia Survival Rate Disparities

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Black men experience much lower hemophilia survival rates compared to their white counterparts. Results of a new study published in the journal Haemophilia are…

Read More

Investigational T-Cell Therapy for Hemophilia A Inhibitors Receives Orphan Drug Designation

Industry News & Research

Orphan drug designation is awarded to therapies designed to treat rare diseases affecting fewer than 200,000 people in the United States. The…

Read More

International Hemophilia Survey Suggests Psychosocial Challenges and Lack of Shared Decision Making

Health and Well Being, Industry News & Research

Some compelling results from the ‘Hemophilia Life Stages and Changes Global Survey’ were recently announced in a new press release. The survey…

Read More

Pfizer Announces Positive Marstacimab Results from Pivotal Phase 3 Hemophilia A and B Trial

Industry News & Research

Marstacimab (PF-06741086) is under development for the treatment of hemophilia A and hemophilia B. It’s administered through intravenous or subcutaneous route. It…

Read More

Bypassing Agents for Hemophilia Explained

Industry News & Research, Living with a Bleeding Disorder

Learn about bypassing agents as treatment for inhibitors and whether they might be right for you. One of the most problematic issues…

Read More

Help for People with Substance Abuse

Health and Well Being

The National Bleeding Disorders Foundation (NBDF) has published Document 279, “Recommendations on Reducing Barriers to Substance Use Disorder (SUD) Treatment Facilities and…

Read More

Know Who Represents You

Advocacy & Legislation

Your voice matters! It’s important that policymakers, elected officials, and other legislative staff hear from people with bleeding disorders in order to…

Read More

The Parent-Teacher Relationship

Health and Well Being, Living with a Bleeding Disorder

It’s normal for anyone to be concerned at the thought of a child with hemophilia in the classroom, but it can especially…

Read More

Healthy Living Items Assistance

Health and Well Being, Living with a Bleeding Disorder

Healthy Living Items Assistance helps individuals in the bleeding disorders community with the cost of medically necessary items that are not affordable…

Read More

Investigational T-Cell Therapy for Hemophilia A Inhibitors Receives Orphan Drug Designation

Industry News & Research

Orphan drug designation is awarded to therapies designed to treat rare diseases affecting fewer than 200,000 people in the United States. The…

Read More

GLHF’s Unite for Bleeding Disorders Walk Exceeds Expectation

GLHF News

GLHF’s Unite for Bleeding Disorders Walk was a great success with year, surpassing our goal by 7%, earning $74,417. The event included…

Read More

Gene Therapy in Hemophilia: Come Find Out What All the Buzz is About

GLHF News, Industry News & Research

From Curiosity To Eligibility And Beyond! Gene therapy has arrived! Join us for a one-hour presentation to hear how gene therapy is…

Read More

Depression, anxiety prevalent among hemophilia patients: Study

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Men with Bleeding Disorders

Analysis focused on 90 men with hemophilia A and B in Turkey by Lindsey Shapiro, PhD | September 15, 2023 About a quarter (24.4%) of…

Read More

Court Rules in Favor of Patients Regarding Copay Accumulator Adjustor Programs

Advocacy & Legislation, Living with a Bleeding Disorder

In a major victory for patients who depend on prescription drugs, Judge John D. Bates of the U.S. District Court for the…

Read More