Medscape Launches Activity for Emergency Department Providers
Industry News & Research
An important new educational activity has launched for healthcare providers who practice in an emergency department setting. “Evaluation and Management of Hemophilia…
FDA Releases Guidance Documents for Gene Therapies
Industry News & Research
The U.S. Food and Drug Administration (FDA) has released several new gene therapy guidance documents to provide “regulatory clarity” for developers of…
Patient Groups Urge Supreme Court to Swiftly Take Up Health Care Case
Industry News & Research
Washington, D.C.—January 15, 2020— Patient and health advocacy groups representing millions of Americans with pre-existing conditions will file an amicus curiae or friend of the…
NHF’s 72nd Bleeding Disorders Conference
Industry News & Research, Industry News & Research
Please join us at NHF’s Bleeding Disorders Conference, August 6-8, 2020 in Atlanta, Georgia. Registration is now open! New this year! We…
Study Shows Higher Postpartum Hemorrhage in FXI Deficiency Patients Post Cesarean
Research
Researchers from the Beth Israel Deaconess Medical Center in Boston, MA conducted a study on the link between postpartum hemorrhage (PPH) and…
Show and Tell: Disclosing a Diagnosis in the School Setting
by: Cazandra Campos-MacDonald School’s in session! And with the start of a new school year comes a question for the principal: “When…
Could a Cure for Hemophilia Be Personalized?
Has your hematologist ever asked that your child have pharmacokinetic (PK) testing? Chances are, the doctor wants to know how factor behaves…
GLHF Sponsors Inaugural Consumer Empowerment Medical Symposium
GLHF News
“GLHF has been a great help supporting our family with these types of events where we interacted with both sides of our…
UniQure Announces Interim Hemophilia B Gene Therapy Trial Data
Industry News & Research
uniQure recently announced interim clinical trial data related to a phase IIb clinical study of etranacogene dezaparvovec (AMT-061), the company’s investigational gene…
Two Gene Therapy Medscape Activities Recertified
Industry News & Research
The National Hemophilia Foundation (NHF) is pleased to announce that two educational activities in the “Clinical Advances in Gene Therapy for Hemophilia”…
Study Will Examine Brain Development in Young People with Hemophilia
Industry News & Research
A new observational study funded by Novo Nordisk, which is currently in the recruitment phase, will seek to better understand how hemophilia…
2nd Annual Men’s Retreat Offers Unique Opportunity for Shared Connections
GLHF News
This past September, GLHF hosted its second annual Men’s Retreat (ages 21+) at a beautiful location on Castle Rock Lake. Men from…