Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients
Industry News & Research
Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…
Pfizer and Sangamo Dose First Participant in Phase 3 Study Evaluating Hemophilia A in Gene Therapy Treatment
Industry News & Research
AFFINE is a global Phase 3, open-label, multicenter, single arm study that will evaluate the efficacy and safety of giroctocogene fitelparvovec in…
Be an Informed Voter! Register to Vote Today!
Advocacy & Legislation, Industry News & Research
There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…
GLHF’s 1st Virtual Unite Walk Proves Successful While #BeingTogetherApart!
GLHF News
In a year with so many “new normals” and unique challenges, the community came together on September 26 to raise $48,225! In our…
Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs
Industry News & Research, Advocacy & Legislation
The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Industry News & Research, Advocacy & Legislation
A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…
Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
Managing a Bleeding Disorder During a Pandemic
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
GET WIRED WITH HFA
Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…
Public Health Symposia Now Available on the NHF Website!
Industry News & Research
This summer’s Virtual Bleeding Disorders Conference (BDC) featured a pair of excellent public health symposiums, which were developed through an inspired collaboration…
COVID-19 and Coagulopathy: Frequently Asked Questions
What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…
First Patient Dosed in Phase 3 Gene Therapy Trial
Industry News & Research
The purpose of the study is to evaluate the efficacy and safety of this investigational gene therapy in patients with moderately severe…