News
HTCs Participate in New CDC Community Counts Data Collection for COVID-19
COVID-19 / Coronavirus, Industry News & Research
Patients with bleeding orders may be asked some new questions during their next comprehensive clinic visit. COVID-19 information will now be collected…
Coming Soon: CDC to add COVID-19 Information Collection to the Community Counts Registry
COVID-19 / Coronavirus
In the coming months, the Centers for Disease Control and Prevention will be adding COVID-19 Information Collection to the Community Counts Registry….
Are Nasal Swabs in At-Home COVID Tests Safe for People with Bleeding Disorders?
COVID-19 / Coronavirus
by: Michael Hickey How to stay safe from potential testing-related bleeds. It’s 2022 and COVID-19 is, unfortunately, still around. Of course, things…
The FDA’s Office of Patient Affairs Shares Highlights from 2021 Programs and Encourages you to Participate in their Upcoming 2022 Activities.
Advocacy & Legislation, COVID-19 / Coronavirus, Industry News & Research
The United States Food and Drug Administration’s Office of Patient Affairs is sharing recent highlights with the public from 2021 and is…
National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans
COVID-19 / Coronavirus, Industry News & Research
The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Arthritis Foundation, and American Autoimmune Related Diseases Association (AARDA), released findings from…
NHF’s Dr. Leonard Valentino Talks COVID-19, Vacccinations and Gratitude
COVID-19 / Coronavirus, Industry News & Research
Life during the time of COVID-19 Can you describe your life during the pandemic … in only six words? Well, a group…
CDC Looks at COVID-19’s Impact in Public Health Workers
COVID-19 / Coronavirus, Health and Well Being, Industry News & Research
A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…
Read New COVID-19 FAQs
COVID-19 / Coronavirus
NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…
Living with Bleeding Disorders in the Time of COVID
COVID-19 / Coronavirus, Living with a Bleeding Disorder
by: Sari Harrar Pandemic stories of strength, perseverance and resiliency from three members of the bleeding disorders community. The COVID-19 pandemic has…
COVID-19: Health and Wellness Update from NHF’s Dr. Leonard Valentino
COVID-19 / Coronavirus, Industry News & Research
The cautious optimism of May and June with regards to emerging from the pandemic has shifted as we are witnessing a resurgence…
WFH: Specific Risks of COVID-19 to the Bleeding Disorders Community
COVID-19 / Coronavirus, Industry News & Research
The COVID-19 Task Force of the World Federation of Hemophilia (WFH) has released a statement on risks of acquiring COVID-19 disease and…
National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans
COVID-19 / Coronavirus
Many patients across the country – including those in vulnerable and underserved communities – are experiencing challenges in affording and accessing necessary…
Health and Wellness Update from Dr. Leonard Valentino About Vaccines, Hesitancy and Understanding VITT
COVID-19 / Coronavirus, Health and Well Being
COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…
Extended ACA Open Enrollment Period
COVID-19 / Coronavirus, Health and Well Being
You can enroll in health plans due to the COVID-19 emergency through August 15, or anytime if you have certain life changes…
Good News for Pregnant and Breastfeeding Vaccinated Mothers
COVID-19 / Coronavirus, Health and Well Being, Uncategorized
Early studies have indicated that women who are pregnant or breastfeeding who have received a COVID-19 vaccination can pass antibodies along to…
COVID-19 Rates Are Rising
COVID-19 / Coronavirus
There has been much positive news around the US vaccine efforts: about 207.9 million doses of the vaccine have been administered, 62.4 million…
NHF’s Dr. Leonard Valentino Addresses COVID-19, Vaccines and Collaborative Progress
COVID-19 / Coronavirus, Industry News & Research
You have been reaching out to us with your questions and concerns about the COVID-19 vaccines and we are grateful that you…
Learn More About the COVID-19 Vaccines and ITP
COVID-19 / Coronavirus, Industry News & Research
The Platelet Disorder Support Association recently recorded a patient education webinar on the new COVID-19 vaccines and immune thrombocytopenic purpura (ITP) As…
How the American Rescue Plan Can Affect Your Healthcare Coverage
COVID-19 / Coronavirus
The new law lowers costs and opens up new options to get health insurance coverage. The American Rescue Plan (ARP), signed into…
Herd Immunity Isn’t Going to Happen
COVID-19 / Coronavirus
Scientists – including Dr. Fauci – are estimating that around 90% of the US population would need to be either recovered from…
COVID-19 Update: Vaccinations
COVID-19 / Coronavirus
CDC COVID Data Tracker: To date, there have been 27,879,604 cases reported in the US resulting in nearly 500,000 deaths of Americans!…
NHF: Vaccination and COVID-19 Update
COVID-19 / Coronavirus
by: Dr. Leonard Valentino, Chief Executive Officer, National Hemophilia Foundation So, where are we with vaccines for COVID-19? Well, let’s first start…
Should People with Hemophilia Get the COVID-19 Vaccine?
COVID-19 / Coronavirus
Answers for the bleeding disorders community to frequently asked questions about the vaccine. Read more. Source: National Hemophilia Foundation, HemaWare.
as i see it: Patient Education Through Social Media in the COVID Era
COVID-19 / Coronavirus, Health and Well Being, Living with a Bleeding Disorder
by: Laurence Woollard, Hemophilia Influencer © PEN (Parent Empowerment Newsletter), LA Kelley Communications, Inc. The unparalleled, seismic societal shifts over the past…