News

GLHF Website Updates, Including Medicare Changes, Gene Therapy, Pain Management and more

COVID-19, GLHF News, Health and Well Being, Living with a Bleeding Disorder

As we all know, the web is a pretty fast-moving place. In that fast-moving environment, GLHF likes to think that its website…

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HTCs Participate in New CDC Community Counts Data Collection for COVID-19

COVID-19, Industry News & Research

Patients with bleeding orders may be asked some new questions during their next comprehensive clinic visit. COVID-19 information will now be collected…

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Coming Soon: CDC to add COVID-19 Information Collection to the Community Counts Registry

COVID-19

In the coming months, the Centers for Disease Control and Prevention will be adding COVID-19 Information Collection to the Community Counts Registry….

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Are Nasal Swabs in At-Home COVID Tests Safe for People with Bleeding Disorders?

COVID-19

by: Michael Hickey How to stay safe from potential testing-related bleeds. It’s 2022 and COVID-19 is, unfortunately, still around. Of course, things…

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The FDA’s Office of Patient Affairs Shares Highlights from 2021 Programs and Encourages you to Participate in their Upcoming 2022 Activities.

Advocacy & Legislation, COVID-19, Industry News & Research

The United States Food and Drug Administration’s Office of Patient Affairs is sharing recent highlights with the public from 2021 and is…

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National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans

COVID-19, Industry News & Research

The National Hemophilia Foundation (NHF) today, in conjunction with the American Kidney Fund (AKF), Arthritis Foundation, and American Autoimmune Related Diseases Association (AARDA), released findings from…

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NHF’s Dr. Leonard Valentino Talks COVID-19, Vacccinations and Gratitude

COVID-19, Industry News & Research

Life during the time of COVID-19 Can you describe your life during the pandemic … in only six words? Well, a group…

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CDC Looks at COVID-19’s Impact in Public Health Workers

COVID-19, Health and Well Being, Industry News & Research

A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…

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Read New COVID-19 FAQs

COVID-19

NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…

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Living with Bleeding Disorders in the Time of COVID

COVID-19, Living with a Bleeding Disorder

by: Sari Harrar Pandemic stories of strength, perseverance and resiliency from three members of the bleeding disorders community. The COVID-19 pandemic has…

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COVID-19: Health and Wellness Update from NHF’s Dr. Leonard Valentino

COVID-19, Industry News & Research

The cautious optimism of May and June with regards to emerging from the pandemic has shifted as we are witnessing a resurgence…

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WFH: Specific Risks of COVID-19 to the Bleeding Disorders Community

COVID-19, Industry News & Research

The COVID-19 Task Force of the World Federation of Hemophilia (WFH) has released a statement on risks of acquiring COVID-19 disease and…

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National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans

COVID-19

Many patients across the country – including those in vulnerable and underserved communities – are experiencing challenges in affording and accessing necessary…

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Health and Wellness Update from Dr. Leonard Valentino About Vaccines, Hesitancy and Understanding VITT

COVID-19, Health and Well Being

COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…

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Extended ACA Open Enrollment Period

COVID-19, Health and Well Being

You can enroll in health plans due to the COVID-19 emergency through August 15, or anytime if you have certain life changes…

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Good News for Pregnant and Breastfeeding Vaccinated Mothers

COVID-19, Health and Well Being

Early studies have indicated that women who are pregnant or breastfeeding who have received a COVID-19 vaccination can pass antibodies along to…

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COVID-19 Rates Are Rising

COVID-19

There has been much positive news around the US vaccine efforts: about 207.9 million doses of the vaccine have been administered, 62.4 million…

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NHF’s Dr. Leonard Valentino Addresses COVID-19, Vaccines and Collaborative Progress

COVID-19, Industry News & Research

You have been reaching out to us with your questions and concerns about the COVID-19 vaccines and we are grateful that you…

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Learn More About the COVID-19 Vaccines and ITP

COVID-19, Industry News & Research

The Platelet Disorder Support Association recently recorded a patient education webinar on the new COVID-19 vaccines and immune thrombocytopenic purpura (ITP) As…

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How the American Rescue Plan Can Affect Your Healthcare Coverage

COVID-19

The new law lowers costs and opens up new options to get health insurance coverage. The American Rescue Plan (ARP), signed into…

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Herd Immunity Isn’t Going to Happen

COVID-19

Scientists – including Dr. Fauci – are estimating that around 90% of the US population would need to be either recovered from…

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COVID-19 Update: Vaccinations

COVID-19

CDC COVID Data Tracker: To date, there have been 27,879,604 cases reported in the US resulting in nearly 500,000 deaths of Americans!…

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NHF: Vaccination and COVID-19 Update

COVID-19

by: Dr. Leonard Valentino, Chief Executive Officer, National Hemophilia Foundation So, where are we with vaccines for COVID-19? Well, let’s first start…

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Should People with Hemophilia Get the COVID-19 Vaccine?

COVID-19

Answers for the bleeding disorders community to frequently asked questions about the vaccine. Read more. Source: National Hemophilia Foundation, HemaWare.

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