News

Often misdiagnosed, this common blood disorder can frequently lead to anemia and sometimes organ damage. It can also cause life-threatening gastrointestinal, brain,…

Follow these tips to manage your condition while you’re away from home and on your own.

Many women spend years searching for answers. Clinics that bring hematology and gynecology together are helping close gaps with coordinated care.

Here’s what you should—and shouldn’t—say to kids to help them feel empowered about their bleeding disorder.

Improving care for women and girls with bleeding disorders requires changes at multiple levels. It includes earlier recognition of heavy menstrual bleeding…

What is genetic counseling? Genetic counseling helps people understand how a genetic test for inherited bleeding disorders may affect themselves, others in…

Track Your Symptoms Keeping track of bleeding patterns can help providers recognize warning signs sooner. Consider noting: How many days bleeding lastsHow…

Bleeding disorders can affect women and girls differently at different stages of life. Symptoms may appear during childhood, intensify with menstruation or…

Heavy bleeding can disrupt nearly every aspect of daily life. People describe missing school and work, carrying extra clothes and menstrual products…

Classic medical teaching around hemophilia focused on X-linked inheritance: Males were affected, while females were carriers. But providers say that framework oversimplified the reality….

The government of Ontario, Canada, recently passed a ban on invasive medical research involving dogs and cats. This appears to directly affect…

Children’s Hospital of Philadelphia received an award of up to $38.9 million from ARPA-H for a five-year program developing personalized gene-editing therapies…

On July 29 Ferring announced that Stimate nasal spray will return after a six-year absence following the 2020 recall. Patient availability is…

Altuviiio (efanesoctocog alfa) continues to impress in difficult-to-treat patients. A French real-world study reported that once-weekly Altuviiio reduced treated bleeds by about…

A published study in Blood Advances reports that over 60% of hemophilia A patients on Hemlibra (emicizumab) experienced no bleeding episodes. Long-term treatment with…

The Unite for Bleeding Disorders Walk is Saturday, September 26 at the Milwaukee County Zoo. This is Bryce’s Brave Bunch’s second year…

Changes to Medicaid could affect access to coverage, treatment, infusion services, and specialty care for some people with hemophilia. The Coalition for…

The first serious efforts to develop long-acting subcutaneous preventive treatments for VWD are taking place. VGA039 is a subcutaneous antibody designed to…

Novo Nordisk’s “Mim8” (denecimig) is an investigational bispecific antibody that mimics activated factor VIII. According to findings from the multinational randomized, Phase…

Hemophilia has quite a history. Perhaps the most famous personality with hemophilia in history was Prince Alexei Romanov, whose father, Nicholas II,…

Fibrinogen deficiency is an ultra-rare bleeding disorder, and now NBDF has a publication to help people with this condition gain a deeper…

A group of 26 states are suing the Centers for Medicare and Medicaid Services over the new work requirements for Medicaid eligibility;…

The new indication for HYMPAVZI® (marstacimab-hncq) broadens access to this once-weekly non-factor prophylactic therapy that targets TFPI to improve clotting and reduce bleeding…

Each month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org…