News
Unite Walk Raises More Than $82,000 for GLHF! Congratulations to Our Top Team Captain, Beverly Peterson of Cousin’s Crew, and Our Top Fundraiser, Caleb Fechter!
GLHF News
The Unite for Bleeding Disorders Walk was held on September 26 at the Milwaukee County Zoo, raising more than $82,000 for GLHF…
World Hemophilia Day 2027 – Every Voice Counts!
Advocacy & Legislation, Industry News & Research, Living with a Bleeding Disorder
How will you advocate this #WHD2027? On April 17, 2027, the global bleeding disorders community will come together for World Hemophilia Day…
Camp Klotty Pine – Where Confidence Grows and Friendships Take Root
GLHF News
This past August, children from across Wisconsin came together at Great Lakes Hemophilia Foundation’s (GLHF) Camp Klotty Pine for a week of…
Save-the-Date: GLHF’s Wisconsin Bleeding Disorders Conference is June 4-6, 2027!
GLHF News
Mark your calendars for GLHF’s Wisconsin Bleeding Disorders Conference, June 4–6, 2027 at the Kalahari Resort in Wisconsin Dells! As GLHF’s largest…
What to Learn about Advocacy?
Advocacy & Legislation
The HIV scandal of the 1990s created fierce and exemplary advocacy strength in the bleeding disorders community. Our advocates championed successful compensation…
Artificial Intelligence and Hemophilia
Living with a Bleeding Disorder
Hemophilia News Today shares an article in which AI shows promise for helping doctors diagnose hemophilia, detect joint complications, and predict disease…
B2B Book Series Young Adults & Hemophilia B
Living with a Bleeding Disorder
Get information about dating, moving out, starting a career, and starting a family in this book written for young adults. Sponsored by…
New ICD-10-CM Code for Glanzmann Thrombasthenia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The code, which will be used by healthcare systems, will improve care, research and insurance clarity for people living with the rare…
Upcoming Medicaid Changes — What You Need to Know
Health and Well Being, Living with a Bleeding Disorder
In this webinar, public policy experts discuss the changes coming as a result of HR 1 (the one Big Beautiful Bill Act)…
What Is a 340B Program and Why Does it Matter?
GLHF News
Learn why using your HTC’s pharmacy program can benefit you and your family. Source: National Bleeding Disorders Foundation, HemAware, October 2026
Redefining Success in Bleeding Disorders Care
Health and Well Being, Living with a Bleeding Disorder
Managing your condition is about more than controlling bleeds. It’s also about living the life you want. Source: National Bleeding Disorders Foundation,…
Marvel-ous Hemophilia!
GLHF News
Superheroes and hemophilia—did you know that Marvel Comics included hemophilia in some of its stories and superheroes? Archivist Richard Atwood of North…
Medicaid Changes Can Change Everything
Industry News & Research, Living with a Bleeding Disorder
Both HFA and NBDF issued important updates this month concerning new Medicaid work-reporting requirements. Beginning January 1, 2027, certain adults ages 19–64…
Investigational VWD Update
Industry News & Research
On August 11, Hemab Therapeutics reported encouraging early work across several rare bleeding disorders. Its investigational HMB-002 for VWD produced dose-dependent increases…
Where is Hemophilia Gene Therapy Now?
Gene Therapy, Industry News & Research
A new European hematologist survey reported August 24 found that about 90% of physicians surveyed still believe gene therapies will be part…
Bad Blood: A Cautionary Tale
Living with a Bleeding Disorder
This gripping documentary about how HIV and hepatitis C contaminated the US blood supply in the 1970s and 1980s is a must-see….
Federal Advocacy Update
Advocacy & Legislation
Wednesday Webinar on Medicaid Work Requirements Beginning January 1, 2027, State Medicaid programs must implement “community engagement requirements” (also known as “work…
Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Often misdiagnosed, this common blood disorder can frequently lead to anemia and sometimes organ damage. It can also cause life-threatening gastrointestinal, brain,…
Bleeding Disorder Self-Care and Self-Advocacy for College Students
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Follow these tips to manage your condition while you’re away from home and on your own.
Specialized Clinics for Women and Girls with Bleeding Disorders Are Improving Care
Health and Well Being, Women with Bleeding Disorders
Many women spend years searching for answers. Clinics that bring hematology and gynecology together are helping close gaps with coordinated care.
How to Build Your Child’s Confidence
Health and Well Being, Living with a Bleeding Disorder
Here’s what you should—and shouldn’t—say to kids to help them feel empowered about their bleeding disorder.
What Meaningful Change Looks Like
Living with a Bleeding Disorder, Women with Bleeding Disorders
Improving care for women and girls with bleeding disorders requires changes at multiple levels. It includes earlier recognition of heavy menstrual bleeding…
FAQ: The Importance of Genetic Counseling for Hemophilia and Other Bleeding Disorders
Living with a Bleeding Disorder, Women with Bleeding Disorders
What is genetic counseling? Genetic counseling helps people understand how a genetic test for inherited bleeding disorders may affect themselves, others in…
Heavy Periods: What Can Help
Living with a Bleeding Disorder, Women with Bleeding Disorders
Track Your Symptoms Keeping track of bleeding patterns can help providers recognize warning signs sooner. Consider noting: How many days bleeding lastsHow…