News

Changes to Medicaid could affect access to coverage, treatment, infusion services, and specialty care for some people with hemophilia. The Coalition for…

RareAF: Advocacy & Facts is a podcast created to serve the rare disease community through education, advocacy, and real conversation. Sponsored by…

The first serious efforts to develop long-acting subcutaneous preventive treatments for VWD are taking place. VGA039 is a subcutaneous antibody designed to…

Novo Nordisk’s “Mim8” (denecimig) is an investigational bispecific antibody that mimics activated factor VIII. According to findings from the multinational randomized, Phase…

Hemophilia has quite a history. Perhaps the most famous personality with hemophilia in history was Prince Alexei Romanov, whose father, Nicholas II,…

Fibrinogen deficiency is an ultra-rare bleeding disorder, and now NBDF has a publication to help people with this condition gain a deeper…

A group of 26 states are suing the Centers for Medicare and Medicaid Services over the new work requirements for Medicaid eligibility;…

The new indication for HYMPAVZI® (marstacimab-hncq) broadens access to this once-weekly non-factor prophylactic therapy that targets TFPI to improve clotting and reduce bleeding…

Each month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org…

The Unite for Bleeding Disorders Walk is Saturday, September 26 at the Milwaukee County Zoo. Team Arlo has been participating for five years!…

The countdown has begun, and the camp experience truly starts before your camper even steps onto the bus. Families are preparing together…

Bringing Families Together for a Weekend of Learning and Connection. More than 55 families from across Wisconsin gathered at the Kalahari Resort…

GLHF’s 15th annual Milwaukee’s Best Bloody will be held Sunday, February 28, 2026, from 11:30 am until 2:30 pm. Back by popular demand,…

Sing along and teach through song! To the tune of “Alouette,” teach your toddler with hemophilia about bumps, bruises, “boo-boos,” and factor….

LA Kelley Communications provides downloadable tables that present clotting factor concentrates, novel therapies, gene therapies and adjunct therapies licensed for distribution in…

Every time you log a bleed, an infusion, or even just how you’re feeling, you’re telling a story. Consistent data recording creates…

The Canadian Hemophilia Society has a new podcast about von Willebrand Disease.  Source: LA Kelley Communications, Inc., Communique, June 2026

The new rule states that having a “serious or complex medical condition,” such as bleeding disorder, will no longer automatically exempt a…

A new MASAC recommendation states that all people with an inheritable bleeding disorder, regardless of sex, age, or bleeding disorder severity, be…

Join us at the Milwaukee County Zoo for our annual Unite for Bleeding Disorders Walk. We are in our original picnic area at…

The Senate and the House show strong support for federal bleeding disorders programs;  HELP Copays Act continues to gain sponsors, and a…

The Fostering Effective Diagnosis (FED) and Treatment for Underserved Populations with Bleeding Disorders Act, the product of work between bleeding disorders advocates…

Registration is open for GLHF’s annual Unite for Bleeding Disorders Walk at the Milwaukee County Zoo on Saturday, September 26! You can…

Join us on Sunday, February 28, 2027, for GLHF’s 15th annual Milwaukee’s Best Bloody! We will raise critical funds for the bleeding disorders community…