News
GLHF’s Wisconsin Bleeding Disorders Conference Hosted a Great Weekend of Education, Connection and Community
GLHF News, Living with a Bleeding Disorder
Bringing Families Together for a Weekend of Learning and Connection. More than 55 families from across Wisconsin gathered at the Kalahari Resort…
Save-the-Date: GLHF’s 15th Annual Milwaukee’s Best Bloody Is Sunday, February 28!
GLHF News
GLHF’s 15th annual Milwaukee’s Best Bloody will be held Sunday, February 28, 2026, from 11:30 am until 2:30 pm. Back by popular demand,…
My First Factor Song
Living with a Bleeding Disorder
Sing along and teach through song! To the tune of “Alouette,” teach your toddler with hemophilia about bumps, bruises, “boo-boos,” and factor….
Comparative Tables of Bleeding Disorder Therapies by Brand
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
LA Kelley Communications provides downloadable tables that present clotting factor concentrates, novel therapies, gene therapies and adjunct therapies licensed for distribution in…
Data Tells a Story: Logging Infusions
GLHF News
Every time you log a bleed, an infusion, or even just how you’re feeling, you’re telling a story. Consistent data recording creates…
Podcast for VWD Patients
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
The Canadian Hemophilia Society has a new podcast about von Willebrand Disease. Source: LA Kelley Communications, Inc., Communique, June 2026
CMS Rule Threatens Medicaid Protections for Bleeding Disorders
Advocacy & Legislation, Industry News & Research, Living with a Bleeding Disorder
The new rule states that having a “serious or complex medical condition,” such as bleeding disorder, will no longer automatically exempt a…
First-Ever Recommendations Call for Routine Iron Screening in People with Bleeding Disorders
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
A new MASAC recommendation states that all people with an inheritable bleeding disorder, regardless of sex, age, or bleeding disorder severity, be…
Unite for Bleeding Disorders Walk Registration is Open!
GLHF News
Join us at the Milwaukee County Zoo for our annual Unite for Bleeding Disorders Walk. We are in our original picnic area at…
Federal and State Advocacy Update
Advocacy & Legislation
The Senate and the House show strong support for federal bleeding disorders programs; HELP Copays Act continues to gain sponsors, and a…
FED UP Act Introduced in Congress
Advocacy & Legislation, Women with Bleeding Disorders
The Fostering Effective Diagnosis (FED) and Treatment for Underserved Populations with Bleeding Disorders Act, the product of work between bleeding disorders advocates…
2026 Unite for Bleeding Disorders Walk – Register Now and Win a Prize!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Registration is open for GLHF’s annual Unite for Bleeding Disorders Walk at the Milwaukee County Zoo on Saturday, September 26! You can…
Mark Your Calendar: GLHF’s 15th Annual Milwaukee’s Best Bloody is Sunday, February 28!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Join us on Sunday, February 28, 2027, for GLHF’s 15th annual Milwaukee’s Best Bloody! We will raise critical funds for the bleeding disorders community…
We are Headed to GLHF’s Camp Klotty Pine, August 2-7
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Get ready for an unforgettable summer. GLHF’s Camp Klotty Pine is back August 2–7. This special week is more than just camp…
Next-generation Factor VIII Variants to Improve Gene Therapy for Hemophilia A
Gene Therapy, Industry News & Research
In this webinar, Ben Samelson-Jones, M.D., Ph.D., a pediatric hematologist at Children’s Hospital of Philadelphia, shared research his team is doing to…
How to Keep Summer Activities Safe for Kids with Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
School is out for most children. Learn why a popular piece of backyard play equipment is riskier than you might think. Source:…
Von Willebrand Disease vs. Hemophilia: Key Differences in Symptoms, Causes, and Treatment
Living with a Bleeding Disorder
These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know. Source: National…
How to Choose the Right Hemophilia Treatment Options for You
Health and Well Being, Living with a Bleeding Disorder
In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best. Source: National Bleeding…
Federal and State Advocacy Update
Advocacy & Legislation
The bleeding disorders community’s advocacy at Washington Days continues to pay off: five additional Senate cosponsors signed on to the HELP Copays…
Discontinuation Timeline for HEMOFIL ®M and RECOMBINATE
Industry News & Research
Takeda has updated the information for how long the these treatments will be available for patients who are still using these therapies….
NBDF-Takeda Clinical Fellows
Industry News & Research
As fewer clinicians enter the field of benign hematology, learn how the NBDF-Takeda Clinical Fellowships are working to strengthen the pipeline of…
Camp Klotty Pine Registration is Open!
GLHF News
Get ready for an unforgettable summer. Camp Klotty Pine is back August 2–7, and registration is officially open! This special week is…
The Unite Walk is up and Live! Register today for this fun and critical event
GLHF News
This year’s Unite Walk site is up and live! Register your team now here: Please remember that we are using a new fundraising…
Last Call: Register by May 1: 2026 Wisconsin Bleeding Disorders Conference
GLHF News
The Wisconsin Bleeding Disorders Conference (WBDC) is right around the corner ad registration is NOW OPEN through MAY 1! this annual weekend…