News

School will be out soon for most children. Learn why a popular piece of backyard play equipment is riskier than you might…

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know. Source: National…

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best. Source: National Bleeding…

The bleeding disorders community’s advocacy at Washington Days continues to pay off: five additional Senate cosponsors signed on to the HELP Copays…

Takeda has updated the information for how long the these treatments will be available for patients who are still using these therapies….

As fewer clinicians enter the field of benign hematology, learn how the NBDF-Takeda Clinical Fellowships are working to strengthen the pipeline of…

Get ready for an unforgettable summer. Camp Klotty Pine is back August 2–7, and registration is officially open! This special week is…

This year’s Unite Walk site is up and live!  Register your team now here: Please remember that we are using a new fundraising…

The Wisconsin Bleeding Disorders Conference (WBDC) is right around the corner ad registration is NOW OPEN through MAY 1! this annual weekend…

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

Hemophilia A patients with life cases. Together, we will try to explore a compelling question: can two individuals with very different experiences…

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

History records that Prince Alexei, son of Nicholas II, the last tsar of Russia, had hemophilia B. But does the bleeding disorder…

Two therapies used to treat hemophilia A, including the first ever recombinant therapy for hemophilia, will eventually be discontinued. Manufacturer Takeda recently…

CSL Behring has notified the hemophilia B community of a temporary global stockout of Hemgenix. This situation is not related to the…

KFF (Kaiser Family Foundation) knows that health costs historically have often been among the most important issues to voters. An on-line article…

As hemophilia treatments continue to roll out that are different than traditional factor replacement, they can offer more promising treatment but can…

The daily news can be overwhelming, especially so for families already dealing with hospital visits, treatments, complications and soaring medical bills. How…

Lifelines for Health was the first national publication for those in the bleeding disorders community with an inhibitor. Its content expanded to include…

Dana Kuhn’s legendary story moves from private devastation to investigative public accountability. After losing his wife to AIDS when Dana unknowingly contracted…

Acquired hemophilia usually affects people in their 70s and 80s without warning. Here’s what you need to know. National Bleeding Disorders Foundation,…

Menstruation tracking is a valuable tool for women with bleeding disorders, but experts say you need to be vigilant about what information…

Anti-TFPI treatments can help people with hemophilia A or B — with or without inhibitors — to better control bleeding. Source: National…

Advice from a social worker on how to stay grounded when current events feel heavy. Source: National Bleeding Disorders Foundation, HemAware, April…