News
A Parent’s Story of Learning, Making Connections and Finding Support
Living with a Bleeding Disorder
Deana’s son, Raffi, was diagnosed with severe hemophilia A when he was seven months old. “He had strange bruising to the point…
Scholarship Spotlight — Professional Pianist, Kangwoo Jin Living with Hemophilia and Pursuing his Passion
Living with a Bleeding Disorder
“I’m always thankful that I can still play the piano and make the music I can,” said Kangwoo, who began playing piano…
Tracie’s Journey as a Mother and Advocate
Living with a Bleeding Disorder, Living with a Bleeding Disorder
When Tracie and her husband Tim had their son Zach, everything seemed perfect. Shortly after his birth, doctors noticed some bruising on…
A Mother’s Perspective on Her Son’s Life with Hemophilia
Living with a Bleeding Disorder
Jessica details her son’s life with hemophilia Some might consider Dean to be “lucky,” because although he has severe hemophilia, he is…
Active Dad Doesn’t Let Hemophilia Slow Him Down
Living with a Bleeding Disorder
He’s Completed Ten Triathlons Since 2015! David Varney was diagnosed with Hemophilia B when he was 3 months old. He has never…
A Day in Owen’s Life
Living with a Bleeding Disorder
A Day in the life of this busy 2-year old, as told by his incredible parents, Stacie and Kyle Owen is just…