News
A Global Victory for People with Hemophilia and VWD
Living with a Bleeding Disorder
Updates to the World Health Organization’s Essential Medicines List represent a major step forward for the bleeding disorders community. Source: National Hemophilia…
Managing Joint Pain as You Age
Health and Well Being, Living with a Bleeding Disorder, Pain Management
For people with a bleeding disorder, exercise and proactive care can keep pain in check. Source: National Bleeding Disorders Foundation, HemAware, November…
Emergency Card Templates
Health and Well Being, Living with a Bleeding Disorder
The National Bleeding Disorder Foundation provides a new series of customizable emergency alert card templates for patients with bleeding disorders. These wallet-sized…
VWD Medicine Now Indicated for Prophy
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The U.S. FDA approved Takeda’s supplemental Biologics License Application (sBLA) for Von Vendi, to expand its indication for routine prophylaxis to reduce…
Major Changes to Medicaid
Advocacy & Legislation, Living with a Bleeding Disorder
In the 1980s, product safety was the bleeding disorders community primary concern. Now the main concern is coverage: how to pay for…
Wingmen Foundation
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This registered nonprofit was founded by two men with hemophilia to offer support to people with bleeding disorders. Wingmen Foundation offers individuals,…
World Federation Reports on Progress
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Nearly 400 people with hemophilia joined gene therapy trials, and shared their data to help future generations. The WFH Gene Therapy Registry…
First Documentation of VWD?
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders are finally getting the attention they deserve and need in our community. Doctors and patients are often clued…
Gene Therapy: The Positive
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Gene therapy has received some doubtful news: not about its effectiveness, but about cost and slow acceptance. Here’s some good news: two…
Game On!
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This program, supported by Bayer HealthCare, empowers young adults age 18 and older with hemophilia to be accountable for their treatment, to…
Educating Emergency Personnel about Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Danny’s Dose is a nonprofit organization that educates the public to advocate for improved emergency medical protocols for chronic illnesses and rare…
Pilot Study Highlights Health Equity Gaps in Bleeding Disorders Community
Industry News & Research, Living with a Bleeding Disorder
A new pilot study reveals how social determinants of health disproportionately affect underserved groups — including Black, Indigenous, and Hispanic/Latino individuals —…
GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…
What Friends Need to Know About Your Bleeding Disorder
Living with a Bleeding Disorder
Here’s why young adults should consider disclosing to their inner circle. Source: National Bleeding Disorders Foundation, October 2025, HemAware
3 Ways to Build Resilience in the Face of Chronic Pain
Health and Well Being, Living with a Bleeding Disorder, Pain Management
Persistent pain may be a part of life when you have a bleeding disorder. Try these strategies to cope. Source: National Bleeding…
Meet TikTok Influencers in the Bleeding Disorders Community
Health and Well Being, Living with a Bleeding Disorder
These two women are using the popular video-focused social media platform to inspire and help others. Source: National Bleeding Disorders Foundation, October…
The Importance of Participating in Research
Industry News & Research, Living with a Bleeding Disorder
In this webinar, you’ll learn about the gaps that exist in modern research, and how Community Voices in Research uses lived experiences…
What Should I Be Doing to Age Well with Hemophilia?
Health and Well Being, Living with a Bleeding Disorder
From joint care to legal documents, here’s what to consider as you plan for your later years with a bleeding disorder. Source:…
Beware of Health Advice on Social Media
Health and Well Being, Living with a Bleeding Disorder
You can find any information you’re looking for on Facebook, Instagram, TikTok, and YouTube, but that doesn’t mean it’s true. Source: National…
Pathway to Cures Spotlight: Be Biopharma
Industry News & Research, Living with a Bleeding Disorder
NBDF’s Pathway to Cures is investing in cutting edge technology and new approaches to bleeding disorders therapies. Learn more about Be Biopharma,…
VONVENDI Approved for Prophylaxis
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The FDA has expanded the indication for VONVENDI, a recombinant von Willebrand factor replacement therapy. It is now approved for prophylactic treatment…
A Milestone Victory for the Global Bleeding Disorders Community
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Dedicated advocacy work by the World Federation of Hemophilia (WFH) has resulted in crucial changes to the World Health Organization (WHO) Essential…
Grappling with Healthcare Changes: States Begin Preparing for the Implementation of Medicaid Work Reporting Requirements Under H.R. 1
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Track your state’s readiness to implement the changes under H.R. 1 at the CFF’s tracker and find your state-specific name for its Medicaid…
What Treatments are Available for Bleeding Disorders?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Do you know the full range of therapy choices for you or your loved one? Read a great summary of information presented…