News
Artificial Intelligence and Hemophilia
Living with a Bleeding Disorder
Hemophilia News Today shares an article in which AI shows promise for helping doctors diagnose hemophilia, detect joint complications, and predict disease…
B2B Book Series Young Adults & Hemophilia B
Living with a Bleeding Disorder
Get information about dating, moving out, starting a career, and starting a family in this book written for young adults. Sponsored by…
New ICD-10-CM Code for Glanzmann Thrombasthenia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The code, which will be used by healthcare systems, will improve care, research and insurance clarity for people living with the rare…
Upcoming Medicaid Changes — What You Need to Know
Health and Well Being, Living with a Bleeding Disorder
In this webinar, public policy experts discuss the changes coming as a result of HR 1 (the one Big Beautiful Bill Act)…
Redefining Success in Bleeding Disorders Care
Health and Well Being, Living with a Bleeding Disorder
Managing your condition is about more than controlling bleeds. It’s also about living the life you want. Source: National Bleeding Disorders Foundation,…
Medicaid Changes Can Change Everything
Industry News & Research, Living with a Bleeding Disorder
Both HFA and NBDF issued important updates this month concerning new Medicaid work-reporting requirements. Beginning January 1, 2027, certain adults ages 19–64…
Bad Blood: A Cautionary Tale
Living with a Bleeding Disorder
This gripping documentary about how HIV and hepatitis C contaminated the US blood supply in the 1970s and 1980s is a must-see….
Hereditary Hemorrhagic Telangiectasia: More Than Just Nosebleeds
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Often misdiagnosed, this common blood disorder can frequently lead to anemia and sometimes organ damage. It can also cause life-threatening gastrointestinal, brain,…
Bleeding Disorder Self-Care and Self-Advocacy for College Students
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Follow these tips to manage your condition while you’re away from home and on your own.
How to Build Your Child’s Confidence
Health and Well Being, Living with a Bleeding Disorder
Here’s what you should—and shouldn’t—say to kids to help them feel empowered about their bleeding disorder.
What Meaningful Change Looks Like
Living with a Bleeding Disorder, Women with Bleeding Disorders
Improving care for women and girls with bleeding disorders requires changes at multiple levels. It includes earlier recognition of heavy menstrual bleeding…
FAQ: The Importance of Genetic Counseling for Hemophilia and Other Bleeding Disorders
Living with a Bleeding Disorder, Women with Bleeding Disorders
What is genetic counseling? Genetic counseling helps people understand how a genetic test for inherited bleeding disorders may affect themselves, others in…
Heavy Periods: What Can Help
Living with a Bleeding Disorder, Women with Bleeding Disorders
Track Your Symptoms Keeping track of bleeding patterns can help providers recognize warning signs sooner. Consider noting: How many days bleeding lastsHow…
Bleeding Disorder Symptoms Across Stages of Life
Living with a Bleeding Disorder, Women with Bleeding Disorders
Bleeding disorders can affect women and girls differently at different stages of life. Symptoms may appear during childhood, intensify with menstruation or…
The Toll of Heavy Bleeding
Living with a Bleeding Disorder, Women with Bleeding Disorders
Heavy bleeding can disrupt nearly every aspect of daily life. People describe missing school and work, carrying extra clothes and menstrual products…
The Problem with Women As “Just Carriers” for Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Classic medical teaching around hemophilia focused on X-linked inheritance: Males were affected, while females were carriers. But providers say that framework oversimplified the reality….
Von Willebrand Disease Research Gets Active
Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders
The first serious efforts to develop long-acting subcutaneous preventive treatments for VWD are taking place. VGA039 is a subcutaneous antibody designed to…
Federal and State Advocacy Update
Advocacy & Legislation, Living with a Bleeding Disorder
A group of 26 states are suing the Centers for Medicare and Medicaid Services over the new work requirements for Medicaid eligibility;…
Introducing Bleeding.org Conversations: A New Podcast from NBDF
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Each month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org…
GLHF’s Wisconsin Bleeding Disorders Conference Hosted a Great Weekend of Education, Connection and Community
GLHF News, Living with a Bleeding Disorder
Bringing Families Together for a Weekend of Learning and Connection. More than 55 families from across Wisconsin gathered at the Kalahari Resort…
My First Factor Song
Living with a Bleeding Disorder
Sing along and teach through song! To the tune of “Alouette,” teach your toddler with hemophilia about bumps, bruises, “boo-boos,” and factor….
Comparative Tables of Bleeding Disorder Therapies by Brand
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
LA Kelley Communications provides downloadable tables that present clotting factor concentrates, novel therapies, gene therapies and adjunct therapies licensed for distribution in…
Podcast for VWD Patients
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
The Canadian Hemophilia Society has a new podcast about von Willebrand Disease. Source: LA Kelley Communications, Inc., Communique, June 2026
CMS Rule Threatens Medicaid Protections for Bleeding Disorders
Advocacy & Legislation, Industry News & Research, Living with a Bleeding Disorder
The new rule states that having a “serious or complex medical condition,” such as bleeding disorder, will no longer automatically exempt a…