News
6 Do’s and Don’ts for Better Sleep
Living with a Bleeding Disorder
by Ian Landau Taking Charge In his TED Talk, “Sleep is your superpower,” Matthew Walker, PhD, a professor of neuroscience and psychology…
Children’s Storybooks Provide Insight and Education for Kids with Hemophilia
Living with a Bleeding Disorder
LA Kelley Communications has many books back in print that provide the bleeding disorders community with high quality educational materials. Their content…
New Books to Manage Hemophilia for All Ages
Living with a Bleeding Disorder
Global health education company Jumo Health is releasing four new comic books that provide contextual and age-appropriate information for children, teenagers, and…
Who Makes the Decision?
Living with a Bleeding Disorder
by: Derek L. Markley It has been more than eight years since St. Jude Children’s Research Hospital, University College London, and the…
What’s the Best Way to Learn About Your Bleeding Disorder?
Living with a Bleeding Disorder
by: Laurie Kelley Our world is biased toward visual information and learning, because humans are mainly visual beings. From advertising to teaching…
5 Myths and Facts About von Willebrand Disease (VWD)
Living with a Bleeding Disorder
The most prevalent bleeding disorder, von Willebrand disease (VWD), affects more than 3 million Americans, about 1% of the population. And, its…
Be a Part of Making Tough Decisions Now
Living with a Bleeding Disorder
by: Steve Place I have lived for 64 years with mild hemophilia and have voluminous experience, from which I came to my…
To Play or Not to Play?
Living with a Bleeding Disorder
by: Derek Markley As a father, I will be the first to say that learning about hemophilia leads to a number of…
A Parent’s Story of Learning, Making Connections and Finding Support
Living with a Bleeding Disorder
Deana’s son, Raffi, was diagnosed with severe hemophilia A when he was seven months old. “He had strange bruising to the point…
Scholarship Spotlight — Professional Pianist, Kangwoo Jin Living with Hemophilia and Pursuing his Passion
Living with a Bleeding Disorder
“I’m always thankful that I can still play the piano and make the music I can,” said Kangwoo, who began playing piano…
A Mother’s Perspective on Her Son’s Life with Hemophilia
Living with a Bleeding Disorder
Jessica details her son’s life with hemophilia Some might consider Dean to be “lucky,” because although he has severe hemophilia, he is…
Active Dad Doesn’t Let Hemophilia Slow Him Down
Living with a Bleeding Disorder
He’s Completed Ten Triathlons Since 2015! David Varney was diagnosed with Hemophilia B when he was 3 months old. He has never…