News
A Saint with Hemophilia
Living with a Bleeding Disorder
History records that Prince Alexei, son of Nicholas II, the last tsar of Russia, had hemophilia B. But does the bleeding disorder…
New Treatment That Can Improve Hemophilia Care
Industry News & Research, Living with a Bleeding Disorder
As hemophilia treatments continue to roll out that are different than traditional factor replacement, they can offer more promising treatment but can…
Ask a Social Worker
Health and Well Being, Living with a Bleeding Disorder
The daily news can be overwhelming, especially so for families already dealing with hospital visits, treatments, complications and soaring medical bills. How…
Understanding Grief
Health and Well Being, Living with a Bleeding Disorder
Lifelines for Health was the first national publication for those in the bleeding disorders community with an inhibitor. Its content expanded to include…
Boundless B Podcast: The Trail of AIDS
Health and Well Being, Living with a Bleeding Disorder
Dana Kuhn’s legendary story moves from private devastation to investigative public accountability. After losing his wife to AIDS when Dana unknowingly contracted…
When Unexpected Bleeding Appears Later in Life
Industry News & Research, Living with a Bleeding Disorder
Acquired hemophilia usually affects people in their 70s and 80s without warning. Here’s what you need to know. National Bleeding Disorders Foundation,…
Period Tracking Apps and Privacy: What You Should Know
Living with a Bleeding Disorder, Women with Bleeding Disorders
Menstruation tracking is a valuable tool for women with bleeding disorders, but experts say you need to be vigilant about what information…
Learn About the New Medications That Could Change Hemophilia Care
Industry News & Research, Living with a Bleeding Disorder
Anti-TFPI treatments can help people with hemophilia A or B — with or without inhibitors — to better control bleeding. Source: National…
Von Willebrand Disease Treatment: What’s New and Next?
Industry News & Research, Living with a Bleeding Disorder
Advances include improved access to prophylaxis, multiple subcutaneous drugs in development, and research looking at better ways to personalize treatment. Source: National…
NBDF & Save One Life, Inc. Pair Up to Help Kids with Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Save One Life, Inc., helps kids with bleeding disorders in countries where access to treatment and specialized care is limited. NBDF is…
Hemophilia Logic
Health and Well Being, Living with a Bleeding Disorder
by: Diane Horbacz, illustrated by Jarrett Krosoczka Designed to help teach your child age seven to twelve about his or her bleeding…
Books for Children: My First Factor Boxed Gift Set
Health and Well Being, Living with a Bleeding Disorder
by: Shannon Brush The world’s first toddler books for children with hemophilia reviews basic concepts in colorful, chunky books just right for…
Success as a Hemophilia Leader
Health and Well Being, Living with a Bleeding Disorder
World’s first guide to founding, managing, and growing a grassroots hemophilia organization or improving an existing one. Advice on creating vision and…
Empower Yourself About Hemophilia
Health and Well Being, Living with a Bleeding Disorder
A hemophilia diagnosis can upset your beliefs, feelings, and life. This book offers simple, concrete ways to regain feelings of control through…
Teach Your Child About Hemophilia
Health and Well Being, Living with a Bleeding Disorder
Explains what your child with hemophilia may be thinking at different ages when experiencing a bleed, receiving an infusion, visiting the hospital….
Raising a Child with Hemophilia: A Practical Guide for Parents
Health and Well Being, Living with a Bleeding Disorder
by: Kelley and Paul Clement World’s first parenting book on hemophilia written by a parent of a child with hemophilia, now updated…
Government Relations Update
Advocacy & Legislation, Industry News & Research, Living with a Bleeding Disorder
Good news for the bleeding disorders community in the House of Representative’s FY26 Labor, Health and Human Services appropriations bill, which included…
Honoring Dr. Lynn Malec – A Distinguished Clinician, Research and Advocate for the Bleeding Disorders Community
Advocacy & Legislation, Gene Therapy, GLHF News, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Great Lakes Hemophilia Foundation (GLHF) grieves the recent loss of Dr. Lynn Malec, a beloved Wisconsin Hematologist. Her life and work profoundly…
Camp Klotty Pine – Where Kids Can Be Kids
GLHF News, Living with a Bleeding Disorder
August 2–7 | Cambellsport, WI For many families in the bleeding disorders community, summer camp can feel complicated. Questions about safety, treatment schedules,…
These Dietary Supplements Can Be Dangerous
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Certain common “natural” remedies can interfere with your body’s ability to clot. Source: National Bleeding Disorders Foundation, HemAware, February 2026
How to Get Help for Anxiety and Depression at Midlife
Living with a Bleeding Disorder
Learn how to spot emotional warning signs — and what steps to take. Source: National Bleeding Disorders Foundation, HemAware, February 2026
NBDF Awards Research Grants
Industry News & Research, Living with a Bleeding Disorder
NBDF is proud to announce the 2025 recipients of the Judith Graham Pool Postdoctoral Research Fellowship, the NEHA Postdoctoral Research Fellowship, the…
Resources for Caregivers
Health and Well Being, Living with a Bleeding Disorder
The holidays can be a particularly hectic time for caregivers in the bleeding disorders community. This month’s Resource Roundup has resources on…
How Parents of Kids with Bleeding Disorders Can Raise Resilient Kids
Living with a Bleeding Disorder
Here’s how to give your child tools not just to manage their condition, but to grow confidently into who they are.