News

RareAF: Advocacy & Facts is a podcast created to serve the rare disease community through education, advocacy, and real conversation. Sponsored by…

The first serious efforts to develop long-acting subcutaneous preventive treatments for VWD are taking place. VGA039 is a subcutaneous antibody designed to…

A group of 26 states are suing the Centers for Medicare and Medicaid Services over the new work requirements for Medicaid eligibility;…

Each month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org…

Bringing Families Together for a Weekend of Learning and Connection. More than 55 families from across Wisconsin gathered at the Kalahari Resort…

Sing along and teach through song! To the tune of “Alouette,” teach your toddler with hemophilia about bumps, bruises, “boo-boos,” and factor….

LA Kelley Communications provides downloadable tables that present clotting factor concentrates, novel therapies, gene therapies and adjunct therapies licensed for distribution in…

The Canadian Hemophilia Society has a new podcast about von Willebrand Disease.  Source: LA Kelley Communications, Inc., Communique, June 2026

The new rule states that having a “serious or complex medical condition,” such as bleeding disorder, will no longer automatically exempt a…

A new MASAC recommendation states that all people with an inheritable bleeding disorder, regardless of sex, age, or bleeding disorder severity, be…

Registration is open for GLHF’s annual Unite for Bleeding Disorders Walk at the Milwaukee County Zoo on Saturday, September 26! You can…

Join us on Sunday, February 28, 2027, for GLHF’s 15th annual Milwaukee’s Best Bloody! We will raise critical funds for the bleeding disorders community…

Get ready for an unforgettable summer. GLHF’s Camp Klotty Pine is back August 2–7. This special week is more than just camp…

School is out for most children. Learn why a popular piece of backyard play equipment is riskier than you might think. Source:…

These two bleeding disorders share some similarities but are also unique in significant ways. Here’s what you need to know. Source: National…

In a rapidly changing hemophilia treatment landscape, shared decision-making helps patients and providers choose the option that fits best. Source: National Bleeding…

Hemophilia A patients with life cases. Together, we will try to explore a compelling question: can two individuals with very different experiences…

Spots are limited and we expect registration to fill quickly as the deadline approaches. If you’ve been thinking about attending, now is…

History records that Prince Alexei, son of Nicholas II, the last tsar of Russia, had hemophilia B. But does the bleeding disorder…

As hemophilia treatments continue to roll out that are different than traditional factor replacement, they can offer more promising treatment but can…

The daily news can be overwhelming, especially so for families already dealing with hospital visits, treatments, complications and soaring medical bills. How…

Lifelines for Health was the first national publication for those in the bleeding disorders community with an inhibitor. Its content expanded to include…

Dana Kuhn’s legendary story moves from private devastation to investigative public accountability. After losing his wife to AIDS when Dana unknowingly contracted…

Acquired hemophilia usually affects people in their 70s and 80s without warning. Here’s what you need to know. National Bleeding Disorders Foundation,…