News

In the 1980s, product safety was the bleeding disorders community primary concern. Now the main concern is coverage: how to pay for…

Track your state’s readiness to implement the changes under H.R. 1 at the CFF’s tracker and find your state-specific name for its Medicaid…

The Bleeding Disorders Research Collaborative (formerly the National Research Blueprint) is signaling a change from planning to action – all with the…

Federal cuts will disrupt access to lifesaving care for thousands in our community. Read about the projected impacts — and what you…

This week, Congress passed a bill, the “One Big Beautiful Bill Act,” that will have widespread impacts on the bleeding disorders community…

Discover Resources on Bleeding Disorders and Joint Health Summer is now in full swing, with the sunny promise of more opportunities to…

In conjunction with NBDF and other national partners, GLHF encourages you to take action now. Right now, US Senators are debating a…

Oregon, North Dakota, Indiana, and Vermont join 19 other states that have passed copay accumulator bans. As the national momentum to protect…

by: Danielle Lennie Dave Amoroso took an internship position at Great Lakes Hemophilia Foundation (GLHF) in 1985 while attending Marquette University. “I…

The average annual cost of clotting factor therapies for a person with severe hemophilia is roughly $300,000. For patients with inhibitors, expenses…

The Coalition for Hemophilia B has created an excellent Action Sheet to help give you ideas and action items to help protect…

There are a great range of programs that offer financial assistance and factor for qualified patients. Co-pay assistance, free factor, scholarships and…

by: Danielle Leitner Baxter We need your help! Contact your representatives today! On April 1, the US Department of Health and Human…

Powered by the Hemophilia Outreach Center Beyond the Bleeds, a Podcast powered by the Hemophilia Outreach Center, and hosted by heather Hansen…

Whether you’re new to the bleeding disorders community or have been a part of it for years, GLHF’s Wisconsin Bleeding Disorders Conference…

NBDF Expands Health Access Initiatives Through Strategic Department Evolution Foundation Continues Mission Alignment with Enhanced Focus on Health Access, and Innovation to Better Serve Growing…

A Message from Phil Gattone, NBDF President and CEO Major restructuring at HHS has placed nearly all CDC Blood Disorders Division staff…

Every year the Neil Frick Resource Center (NFRC) (formerly HANDI) assembles a list of post-secondary educational scholarships that are available to students…

Earlier this week, the Trump Administration announced drastic changes and reductions to the federal health programs that support the bleeding disorders community….

Less than a year after FDA approval, Beqvez, a gene therapy for hemophilia B, has been discontinued. Manufactured by Pfizer, the one-time…

“Voices for Policy Change” is an on-line resource designed to educate, empower and mobilize on important legislative issues related to bleeding disorders…

Read Hemophilia Federation of America’s excellent “Word from Washington” about how new policies can affect you and overage for your medical care….

Advocates from across Wisconsin have been using their voices, making a lasting impact, and driving change for access to healthcare in both…

The year has already seen incredible changes with a new presidential administration and over 45 new executive orders. A great article explores…