News

NHF Assumes Leadership of the American Plasma Users Coalition

Advocacy & Legislation, Industry News & Research

NHF Assumes Leadership of the American Plasma Users CoalitionThe organization’s public policy representatives offer new perspectives in the mission for blood and…

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Hemophilia Federation of America Outlines Year-End Omnibus Spending Bill with Important Health Provisions Affecting Medicaid, Telehelath, New Drugs and More

Advocacy & Legislation, Industry News & Research

Hemophilia Federation of America’s Word from Washington outlines a massive year-end omnibus spending bill containing numerous important health provisions affecting Medicaid, telehealth,…

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Safeguarding an Essential Treatment for Heavy Periods – What Contraception Bans Would Mean for the Bleeding Disorders Community.

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

In June, when the Supreme Court overturned Roe v. Wade and ended the constitutional right to abortion, women’s health advocates around the…

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CDC Public Health Webinar on Blood Disorders; Featured GLHF’s Kaveh Shabtaie

Advocacy & Legislation, GLHF News, Uncategorized

The Centers for Disease Control and Prevention’s (CDC) Division of Blood Disorders offers an ongoing Public Health Webinar Series on Blood Disorders. The…

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Rare Disease Day is Feb. 27! Dr. Califf, Commissioner of Food and Drugs, Kicks Off This Year’s Theme, “Intersections with Rare Diseases – A Patient Focused Event”

Advocacy & Legislation, Living with a Bleeding Disorder, Uncategorized

The Food and Drug Administration (FDA) has announced that FDA’s Rare Disease Day is Monday, February 27. Registration is open for this…

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Continued Conversation on the State of Access to Women’s Health Care

Advocacy & Legislation, Health and Well Being

Recent changes in access to women and girls’ health care are likely to have detrimental effects for the blood and bleeding disorders…

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Open Enrollment for 2023 Health Insurance is Underway!

Advocacy & Legislation, Health and Well Being

Open enrollment for 2023 health insurance programs has started! The Hemophilia Federation of America (HFA) offers tips for navigating the open enrollment…

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Be Your Own Advocate!

Advocacy & Legislation

Accessia Health (formerly PSI) is offering free webinars to help you learn to advocate for your insurance and health needs. Information covered…

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NHF Calls on CMS to Address Copay Accumulator Adjustors in the 2024 Notice of Benefit and Payment Parameters

Advocacy & Legislation, Industry News & Research

In early October, NHF joined members of The All Copays Count Coalition (ACCC), sending a letter signed by 73 leading patient advocacy and…

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How Does the Supreme Court’s Ruling on the Reversal of Roe vs. Wade Impact the Bleeding Disorders Community?

Advocacy & Legislation

There are many questions regarding the affects the June Supreme Court decision could have on the bleeding disorders community – including genetic testing and…

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The High Cost of Hemophilia

Advocacy & Legislation, Health and Well Being, Industry News & Research

Just one bleed in people with severe hemophilia A receiving prophylaxis has the potential to negatively affect health-related quality of life, and raise…

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NHF Addresses Potential Contraception Bans

Advocacy & Legislation

A statement from the National Hemophilia Foundation. Abortion and contraception can both be critical components of an individual’s health care journey. However,…

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Read the HFA’s Latest Legislative Updates – State of the States July 2022

Advocacy & Legislation

Read the Hemophila Federation of America’s (HFA) latest legislative update – State of the States, July 2022. This update includes information on…

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NHF Responds to Roe v. Wade Reversal

Advocacy & Legislation

NHF Statement in Response to the June 24, 2022 Supreme Court Ruling  “The National Hemophilia Foundation (NHF) is aware of today’s Supreme…

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The Role of Pharmacy Benefits Managers (PBMs)

Advocacy & Legislation

Pharmacy benefits managers (PBMs) are middlemen that create and administer drug formularies on behalf of health insurers, self-insured employers, Medicaid, and other…

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National Hemophilia Foundation “Starts the Conversation” During Bleeding Disorders Awareness Month, March 1-31

Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder

Awareness month campaign encourages the community to raise their voices and share what is most important and relevant to their conditions throughout…

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Copay Accumulator Adjustor Programs (CAAP)

Advocacy & Legislation

Copay Accumulator Adjustor Programs (CAAPs) are a strategy used by insurers to redirect the value of manufacturer copay assistance – which is…

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Co-pay Accumulator Policies Hurt Patients. There’s a Simple Solution.

Advocacy & Legislation

by: Kollet Koulianos and Amy NilesV This piece is a joint effort by Amy Niles, Executive Vice President at the PAN Foundation,…

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The FDA’s Office of Patient Affairs Shares Highlights from 2021 Programs and Encourages you to Participate in their Upcoming 2022 Activities.

Advocacy & Legislation, COVID-19 / Coronavirus, Industry News & Research

The United States Food and Drug Administration’s Office of Patient Affairs is sharing recent highlights with the public from 2021 and is…

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All Copays Count Coalition Statement on Draft 2023 CMS Notice of Benefit and Payment Parameters

Advocacy & Legislation, Industry News & Research

The latest breaking news from the All Copays Count Coalition. In response to additional rulemaking for the Centers for Medicare & Medicaid…

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HFA Action Alert: Tell Congress to permanently secure enhanced Advance Premium Tax Credits passed in the American Rescue Plan Act.

Advocacy & Legislation

Join more than 30 community members from across the country who are holding virtual visits and calls with their senators and representatives…

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Ask Your Elected Official to Make All Copays Count!

Advocacy & Legislation, Industry News & Research

The National Hemophilia Foundation helped spearhead new legislation that aims to support the more than 133 million Americans living with a chronic…

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All Copays Count Coalition Applauds House Introduction of Help Ensure Lower Patient Copays Act

Advocacy & Legislation, Industry News & Research

Legislation Introduced by Representatives McEachin and Davis Would Eliminate Harmful and Misleading Health Plan Pricing Schemes and Protect Vulnerable Patients. The All…

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NHF Responds: Gov. Whitmer Signs First Bill Repealing Tampon Tax, Drives Down Costs for Families

Advocacy & Legislation, Health and Well Being

Bill is part of two-bill bipartisan package that will repeal taxes on menstrual products. NHF Statement In Response to New Michigan Law: “The…

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