News

A recent op-ed in the Milwaukee Journal Sentinel by Jim Turk, titled Why Wisconsin Lawmakers Need to Protect the Value of Copay…

New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…

With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…

The American Rescue Plan (ARP), signed into law on March 11, 2021, provides new opportunities to get health insurance coverage, and/or to…

Dr. Valentino: “Today’s decision protects members of the inheritable blood disorder community, as well as others” Today, the United States Supreme Court…

by: Sen. André Jacque and Rep. Paul Tittl | April 17, 2021 The health and economic impacts of the ongoing pandemic have…

Whereas; since its designation by the World Federation of Hemophilia in 1989, World Hemophilia Day has been celebrated on April 17 as…

This year, in celebration of World Hemophilia Day, Saturday, April 17, we’re challenging the bleeding disorders community to a friendly game of…

Learn about the power of advocacy in the bleeding disorders community. Read more. Source: National Hemophilia Foundation, HemaWare.  

The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…

President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….

Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…

Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…

Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…

Vote Your Way The 2020 General Election is Tuesday, Nov. 3. Voter registration deadlines for the 2020 General Election are: Oct. 30,…

There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…

The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…

A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…

The recent news about the passing of United State Supreme Court Justice Ruth Bader Ginsburg and nomination of Judge Amy Coney Barrett…

One of our most important civil liberties is the right to vote. With your vote, you have the power to influence public…

Policy and Advocacy work is increasingly important at the state level. In an effort to keep you informed about the work happening…

Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…

Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…

Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…