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News

Category: Advocacy & Legislation
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February 17, 2021

Infusing the World with Knowledge

Advocacy & Legislation

Learn about the power of advocacy in the bleeding disorders community. Read more. Source: National Hemophilia Foundation, HemaWare.  

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January 12, 2021

President Trump Signs FY21 Federal Funding Bill Including Hemophilia SNF Access Act and Funding for Bleeding Disorders Programs

Industry News & Research, Advocacy & Legislation, COVID-19 / Coronavirus, Health and Well Being, Living with a Bleeding Disorder

The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…

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December 8, 2020

Roundup of Drug Pricing Executive Orders

Advocacy & Legislation, Industry News & Research

President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….

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December 2, 2020

Patient Advocacy Organizations Release Blueprint to Protect Access to Care

Advocacy & Legislation, Industry News & Research

Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…

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December 2, 2020

Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law

Advocacy & Legislation, Industry News & Research

Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…

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November 5, 2020

ACA Open Enrollment Underway

Advocacy & Legislation, Industry News & Research

Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…

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October 28, 2020

Vote Your Way! Make a Plan TODAY!

Advocacy & Legislation

Vote Your Way The 2020 General Election is Tuesday, Nov. 3. Voter registration deadlines for the 2020 General Election are: Oct. 30,…

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October 22, 2020

Be an Informed Voter! Register to Vote Today!

Advocacy & Legislation, Industry News & Research

There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…

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October 20, 2020

Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs

Industry News & Research, Advocacy & Legislation

The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…

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October 20, 2020

Patient Advocacy Organizations Release Blueprint to Protect Access to Care

Industry News & Research, Advocacy & Legislation

A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…

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October 8, 2020

What’s Next for the ACA?

Advocacy & Legislation, Industry News & Research

The recent news about the passing of United State Supreme Court Justice Ruth Bader Ginsburg and nomination of Judge Amy Coney Barrett…

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September 29, 2020

Exercise Your Right to Vote!

Advocacy & Legislation

One of our most important civil liberties is the right to vote. With your vote, you have the power to influence public…

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September 29, 2020

HFA’s State of the States: Summer 2020

Advocacy & Legislation, COVID-19 / Coronavirus

Policy and Advocacy work is increasingly important at the state level. In an effort to keep you informed about the work happening…

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August 11, 2020

Stimate Recall Update – CSL Behring & Ferring Pharmaceuticals Response to HFA-NHF Letter, Voluntary Recall Due to “Superpotency”

Industry News & Research, Advocacy & Legislation

Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…

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July 23, 2020

Stimate Recall: NHF and HFA Seek Answers

Industry News & Research, Advocacy & Legislation

Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…

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May 26, 2020

17 Patient Groups Urge Appeals Court to Uphold Health Care Law

Advocacy & Legislation

Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…

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May 26, 2020

Coverage Concerns and Unanswered Questions: We Get It

Advocacy & Legislation, Uncategorized

Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.

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April 30, 2020

Advocacy Efforts During COVID-19

COVID-19 / Coronavirus, Advocacy & Legislation

While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…

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July 11, 2019

Good News! @GovEvers Signs Bipartisan #steptherapy Legislation into Law!

Advocacy & Legislation

Great Lakes Hemophilia Foundation (GLHF) is excited to announce that Governor Evers signed the WI Step Therapy bill on July 9. We…

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April 3, 2019

17 Patient Groups Urge Appeals Court to Uphold Healthcare Law

Advocacy & Legislation

Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for…

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March 20, 2019

Light it Up Red! for World Hemophilia Day, April 17

Advocacy & Legislation

Light it Up Red! for World Hemophilia Day, April 17 Last year, thousands of people united to show their support for the…

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March 8, 2019

At Wisconsin Legislative Day, We Share our Stories, Experiences and Strength with Lawmakers

Advocacy & Legislation

Last month, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true reality…

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February 21, 2019

Advocacy Priorities Established by NHF

Advocacy & Legislation

The National Hemophilia Foundation (NHF) has advocated for the needs and interests of people affected by hemophilia and related bleeding disorders for…

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December 17, 2018

NHF Statement on Texas vs. United States Lawsuit

Advocacy & Legislation

On December 14, 2018, a Texas judge ruled in Texas vs. United States, a case challenging the constitutionality of the Affordable Care…

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Great Lakes Hemophilia Foundation
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414.257.0200

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