News
National Hemophilia Foundation “Starts the Conversation” During Bleeding Disorders Awareness Month, March 1-31
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Awareness month campaign encourages the community to raise their voices and share what is most important and relevant to their conditions throughout…
Copay Accumulator Adjustor Programs (CAAP)
Advocacy & Legislation
Copay Accumulator Adjustor Programs (CAAPs) are a strategy used by insurers to redirect the value of manufacturer copay assistance – which is…
Co-pay Accumulator Policies Hurt Patients. There’s a Simple Solution.
Advocacy & Legislation
by: Kollet Koulianos and Amy NilesV This piece is a joint effort by Amy Niles, Executive Vice President at the PAN Foundation,…
The FDA’s Office of Patient Affairs Shares Highlights from 2021 Programs and Encourages you to Participate in their Upcoming 2022 Activities.
Industry News & Research, Advocacy & Legislation, COVID-19 / Coronavirus
The United States Food and Drug Administration’s Office of Patient Affairs is sharing recent highlights with the public from 2021 and is…
All Copays Count Coalition Statement on Draft 2023 CMS Notice of Benefit and Payment Parameters
Advocacy & Legislation, Industry News & Research
The latest breaking news from the All Copays Count Coalition. In response to additional rulemaking for the Centers for Medicare & Medicaid…
HFA Action Alert: Tell Congress to permanently secure enhanced Advance Premium Tax Credits passed in the American Rescue Plan Act.
Advocacy & Legislation
Join more than 30 community members from across the country who are holding virtual visits and calls with their senators and representatives…
Ask Your Elected Official to Make All Copays Count!
Advocacy & Legislation, Industry News & Research
The National Hemophilia Foundation helped spearhead new legislation that aims to support the more than 133 million Americans living with a chronic…
All Copays Count Coalition Applauds House Introduction of Help Ensure Lower Patient Copays Act
Advocacy & Legislation, Industry News & Research
Legislation Introduced by Representatives McEachin and Davis Would Eliminate Harmful and Misleading Health Plan Pricing Schemes and Protect Vulnerable Patients. The All…
NHF Responds: Gov. Whitmer Signs First Bill Repealing Tampon Tax, Drives Down Costs for Families
Advocacy & Legislation, Health and Well Being
Bill is part of two-bill bipartisan package that will repeal taxes on menstrual products. NHF Statement In Response to New Michigan Law: “The…
NHF Statement on HELP Copays Act
Advocacy & Legislation, Industry News & Research
NHF has led the All Copays Count Coalition in helping support HR 5801. The National Hemophilia Foundation applauds Congressional Representatives Donald McEachin…
Op-Ed Outlines the Value of Copay Assistance and the Challenges of Copay Accumulator Adjustment Programs
Advocacy & Legislation, GLHF News
A recent op-ed in the Milwaukee Journal Sentinel by Jim Turk, titled Why Wisconsin Lawmakers Need to Protect the Value of Copay…
National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”
Industry News & Research, Advocacy & Legislation
New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…
Medicaid 101: Why Medicaid is Important to the Bleeding Disorders Community
Advocacy & Legislation, Industry News & Research
With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…
Review Your Health Coverage: Recent Federal Law Lowers Costs, Opens Up New Options
Advocacy & Legislation, Industry News & Research
The American Rescue Plan (ARP), signed into law on March 11, 2021, provides new opportunities to get health insurance coverage, and/or to…
NHF Responds to SCOTUS: New Affordable Care Act Ruling Benefits Chronic Disease Patients
Advocacy & Legislation
Dr. Valentino: “Today’s decision protects members of the inheritable blood disorder community, as well as others” Today, the United States Supreme Court…
Wisconsin State Journal: Don’t Let Insurers Undermine Copay Help for Wisconsin Patients
Advocacy & Legislation, Industry News & Research, Uncategorized
by: Sen. André Jacque and Rep. Paul Tittl | April 17, 2021 The health and economic impacts of the ongoing pandemic have…
State of WI Declares April 17 World Hemophilia Day!
Advocacy & Legislation
Whereas; since its designation by the World Federation of Hemophilia in 1989, World Hemophilia Day has been celebrated on April 17 as…
In Celebration of World Hemophilia Day, Join GLHF for a Friendly Game on GooseChase, April 12-18!
GLHF News, Advocacy & Legislation
This year, in celebration of World Hemophilia Day, Saturday, April 17, we’re challenging the bleeding disorders community to a friendly game of…
Infusing the World with Knowledge
Advocacy & Legislation
Learn about the power of advocacy in the bleeding disorders community. Read more. Source: National Hemophilia Foundation, HemaWare.
President Trump Signs FY21 Federal Funding Bill Including Hemophilia SNF Access Act and Funding for Bleeding Disorders Programs
Industry News & Research, Advocacy & Legislation, COVID-19 / Coronavirus, Health and Well Being, Living with a Bleeding Disorder
The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…
Roundup of Drug Pricing Executive Orders
Advocacy & Legislation, Industry News & Research
President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…
Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law
Advocacy & Legislation, Industry News & Research
Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…
ACA Open Enrollment Underway
Advocacy & Legislation, Industry News & Research
Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…