News

Charting New Waters in Women’s Bleeding Disorders Care

Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders

A session led by Dawn Rotellini at the National Bleeding Disorders Conference this past summer, spotlighted inclusive care for women with bleeding…

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Navigating Labor, Delivery, and Postpartum with a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders

Learn why creating a birth plan with your medical team is essential. Source: National Bleeding Disorders Foundation, HemAware, September 2024

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Learn About Clinical Issues in Women with Bleeding Disorders

Industry News & Research, Women with Bleeding Disorders

The National Bleeding Disorders Foundation (NBDF) is pleased to announce a series of educational videos on clinical issues in women, girls, and…

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New Study Reveals That Age Affects von Willebrand Disease Diagnosis

Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders, Women with Bleeding Disorders

The findings could help further define VWD and address current challenges in treatment. The age that a person is first tested for…

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Who’s at Higher Risk for Iron Deficiency?

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

Learn why women, girls, and people with the potential to menstruate (WGPPM) who have hemophilia, von Willebrand disease, or other inheritable blood…

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Yale Researchers Explore the Possibilities of von Willebrand Factor

Industry News & Research, Women with Bleeding Disorders

Researchers at the Yale School of Medicine have been studying the key clotting protein von Willebrand factor (VWF), to shed light on…

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Women with VWD or Hemophilia Not at Risk for Other Female Medical Problems – But Additional Concerns May Need Diagnosis and Treatment

Living with a Bleeding Disorder, Women with Bleeding Disorders

Women who have von Willebrand disease or hemophilia are not at risk for other female medical problems, but two common disorders in…

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Concerns for Women with Polycystic Ovary Syndrome and Endometriosis

Health and Well Being, Pain Management, Women with Bleeding Disorders

Women with bleeding disorders and other medical concerns, or who have von Willebrand disease or hemophilia, are not necessarily at risk for…

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Study Results Encourage Discussion of Therapeutic Options for VWD Patients with Menorrhagia

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

A new study investigated therapeutic options for von Willebrand Disease patients to help mitigate the negative health impacts of heavy menstrual bleeding. …

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Gynecologists Have Significant Part to Play in Shrinking Diagnostic Gaps

Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

A new commentary, “Closing the Diagnostic Gap in Adolescents and Young Adult Women with Bleeding Disorders,” published in the August issue of…

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HFA’s New Resource for Blood Sisters and Menstruators

Living with a Bleeding Disorder, Women with Bleeding Disorders

The Hemophilia Federation of America (HFA) launched a valuable NEW toolkit, designed by Blood Sisters for Blood Sisters and menstruators. This resource…

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Black Women with Bleeding Disorders Are Striving to Be Seen and Heard

Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders

by: Andrea Collier Black women who have inheritable blood and bleeding disorders often face obstacles all along their journey—from diagnosis to treatment…

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GET WIRED WITH HFA

Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…

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