News
Specialized Clinics for Women and Girls with Bleeding Disorders Are Improving Care
Health and Well Being, Women with Bleeding Disorders
Many women spend years searching for answers. Clinics that bring hematology and gynecology together are helping close gaps with coordinated care.
What Meaningful Change Looks Like
Living with a Bleeding Disorder, Women with Bleeding Disorders
Improving care for women and girls with bleeding disorders requires changes at multiple levels. It includes earlier recognition of heavy menstrual bleeding…
FAQ: The Importance of Genetic Counseling for Hemophilia and Other Bleeding Disorders
Living with a Bleeding Disorder, Women with Bleeding Disorders
What is genetic counseling? Genetic counseling helps people understand how a genetic test for inherited bleeding disorders may affect themselves, others in…
Heavy Periods: What Can Help
Living with a Bleeding Disorder, Women with Bleeding Disorders
Track Your Symptoms Keeping track of bleeding patterns can help providers recognize warning signs sooner. Consider noting: How many days bleeding lastsHow…
Bleeding Disorder Symptoms Across Stages of Life
Living with a Bleeding Disorder, Women with Bleeding Disorders
Bleeding disorders can affect women and girls differently at different stages of life. Symptoms may appear during childhood, intensify with menstruation or…
The Toll of Heavy Bleeding
Living with a Bleeding Disorder, Women with Bleeding Disorders
Heavy bleeding can disrupt nearly every aspect of daily life. People describe missing school and work, carrying extra clothes and menstrual products…
The Problem with Women As “Just Carriers” for Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Classic medical teaching around hemophilia focused on X-linked inheritance: Males were affected, while females were carriers. But providers say that framework oversimplified the reality….
Von Willebrand Disease Research Gets Active
Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders
The first serious efforts to develop long-acting subcutaneous preventive treatments for VWD are taking place. VGA039 is a subcutaneous antibody designed to…
Introducing Bleeding.org Conversations: A New Podcast from NBDF
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Each month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org…
Podcast for VWD Patients
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
The Canadian Hemophilia Society has a new podcast about von Willebrand Disease. Source: LA Kelley Communications, Inc., Communique, June 2026
FED UP Act Introduced in Congress
Advocacy & Legislation, Women with Bleeding Disorders
The Fostering Effective Diagnosis (FED) and Treatment for Underserved Populations with Bleeding Disorders Act, the product of work between bleeding disorders advocates…
Period Tracking Apps and Privacy: What You Should Know
Living with a Bleeding Disorder, Women with Bleeding Disorders
Menstruation tracking is a valuable tool for women with bleeding disorders, but experts say you need to be vigilant about what information…
First Documentation of VWD?
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders are finally getting the attention they deserve and need in our community. Doctors and patients are often clued…
Stroke Prevention for Women with Bleeding Disorders
Health and Well Being, Women with Bleeding Disorders
Learn how hormonal treatments and inherited risks raise the stakes — and what to do about it. Source: National Bleeding Disorders Foundation,…
Focus on Females
Living with a Bleeding Disorder, Women with Bleeding Disorders
While von Willebrand Disease can appear in both men and women equally, the symptoms affect females more by far. A Guide to Living…
Provider Webinar Focuses on Bone and Mental Health for Women
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders need to be screened for anxiety/depression and bone health. A new webinar for healthcare providers discusses case studies…
Women Bleed Too: Closing Gaps in Bleeding Disorder Care
Industry News & Research, Women with Bleeding Disorders
Women and girls with bleeding disorders face delays in diagnosis and care. Learn how research and community voices are changing the future…
Why Genetic Testing Matters for Girls at Risk for Hemophilia
Gene Therapy, GLHF News, Living with a Bleeding Disorder, Women with Bleeding Disorders
Research reveals that many at-risk girls aren’t getting tested, which may lead to missed diagnoses and delayed care. Source: National Bleeding Disorders…
Breaking Barriers in Bleeding & Thrombotic Disorders in Women
Living with a Bleeding Disorder, Women with Bleeding Disorders
The 2025 Research Journal Club brings together experienced researchers, new research fellows, and lived experience experts to explore critical topics in bleeding…
Women & Girls Bleed Too
Living with a Bleeding Disorder, Women with Bleeding Disorders
This year’s World Hemophilia Day, which was held April 17, focused on “Access for All: Women and Girls Bleed Too” — tackling…
HANDI Highlights Resources for Historically Underserved Population
Living with a Bleeding Disorder, Women with Bleeding Disorders
October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…
Charting New Waters in Women’s Bleeding Disorders Care
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
A session led by Dawn Rotellini at the National Bleeding Disorders Conference this past summer, spotlighted inclusive care for women with bleeding…
Navigating Labor, Delivery, and Postpartum with a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Learn why creating a birth plan with your medical team is essential. Source: National Bleeding Disorders Foundation, HemAware, September 2024
Learn About Clinical Issues in Women with Bleeding Disorders
Industry News & Research, Women with Bleeding Disorders
The National Bleeding Disorders Foundation (NBDF) is pleased to announce a series of educational videos on clinical issues in women, girls, and…