Skip to main content
  • Visit us on facebook
  • Visit us on instagram
  • Visit us on twitter
  • Visit us on youtube
  • Visit us on linkedin
Great Lakes Hemophilia Foundation
Donate
  • What We Do
    • Advocacy
    • Camp
    • Community Events
    • Fundraising Events
    • Financial Assistance
    • Scholarships
  • Resources
    • COVID-19: Coronavirus Information and Resources
    • Facts About Bleeding Disorders
    • Regional Hemophilia Network
    • Hemophilia Treatment Centers
  • Events Calendar
  • News
  • Support Us
    • Ways to Give
    • The Impact of Your Gift
    • DIY – Plan Your Own Event!
    • Volunteer
  • Donate
  • What We DoView Children
    • Advocacy
    • Camp
    • Community Events
    • Fundraising Events
    • Financial Assistance
    • Scholarships
  • ResourcesView Children
    • COVID-19: Coronavirus Information and Resources
    • Facts About Bleeding Disorders
    • Regional Hemophilia Network
    • Hemophilia Treatment Centers
  • Events Calendar
  • News
  • Support UsView Children
    • Ways to Give
    • The Impact of Your Gift
    • DIY – Plan Your Own Event!
    • Volunteer
  • Donate
  • Visit us on facebook
  • Visit us on instagram
  • Visit us on twitter
  • Visit us on youtube
  • Visit us on linkedin

News

Categories
  • Advocacy & Legislation
  • COVID-19 / Coronavirus
  • Events
  • GLHF News
  • Health and Well Being
  • Industry News & Research
  • Living with a Bleeding Disorder
  • Research
  • Uncategorized
July 20, 2021

Review Your Health Coverage: Recent Federal Law Lowers Costs, Opens Up New Options

Advocacy & Legislation, Industry News & Research

The American Rescue Plan (ARP), signed into law on March 11, 2021, provides new opportunities to get health insurance coverage, and/or to…

Read More
July 20, 2021

New Data for Genentech’s Hemlibra (emicizumab-kxwh) Reinforce Safety Profile in People With Hemophilia A

Industry News & Research

Final analysis from the Phase IIIb STASEY study, including data from 193 people with hemophilia A, further support the benefit/risk profile of…

Read More
July 20, 2021

FDA Places Clinical Hold on Sigilon’s Investigational Hemophilia Therapy

Industry News & Research

Sigilon’s cell-based therapy is designed to carry significant amounts of synthetic DNA material to elicit the production of factor VIII in individuals…

Read More
July 7, 2021

Learn More About Shared Decision Making in Hemophilia

Health and Well Being

Shared decision making (SDM) in hemophilia embraces a “patient-as-partner” style for a truly reciprocal relationship. Learn more about both the process and…

Read More
July 7, 2021

NHF Responds to SCOTUS: New Affordable Care Act Ruling Benefits Chronic Disease Patients

Advocacy & Legislation

Dr. Valentino: “Today’s decision protects members of the inheritable blood disorder community, as well as others” Today, the United States Supreme Court…

Read More
July 7, 2021

New Article Offers Scientific Overview of AAV Vectors and Hemophilia Gene Therapy

Industry News & Research

Read about some of the primary considerations relevant to investigational hemophilia gene therapies that employ adeno-associated viral (AAV) vectors. Source: National Hemophilia…

Read More
June 22, 2021

Wisconsin State Journal: Don’t Let Insurers Undermine Copay Help for Wisconsin Patients

Advocacy & Legislation, Industry News & Research, Uncategorized

by: Sen. André Jacque and Rep. Paul Tittl | April 17, 2021 The health and economic impacts of the ongoing pandemic have…

Read More
June 21, 2021

The Unite for Bleeding Disorders Walk is September 25! Learn More and Register Today!

GLHF News, Events

The 2021 Unite for Bleeding Disorders Walk is just three months away! We are so excited to see all of you this…

Read More
June 19, 2021

Madison’s Best Bloody 2021 is Cancelled. So, Be Ready for Tastings in 2022!

Events, GLHF News

We are sad to announce that due to the current situation in Madison, we are cancelling this year’s Madison’s Best Bloody.  Restaurants…

Read More
June 19, 2021

Camp Klotty Pine Registration Opens Soon!

GLHF News

Join us, August 9 – 13, 2021, as we head back to Camp Klotty Pine for a very special hybrid version of…

Read More
June 19, 2021

NHF’s Bleeding Disorders Conference, August 25 – 28, 2021!

Events, Industry News & Research

NHF’s Annual Bleeding Disorders Conference (BDC) is their signature event and highlights their commitment to education. Leading community members and experts on…

Read More
June 16, 2021

A Message from NHF President and CEO Leonard A. Valentino, M.D. Regarding the Fight Against Racism

Industry News & Research, Health and Well Being

The verdict is an important and significant step forward in the fight against racism, and the violence that it brings to our…

Read More
June 10, 2021

WFH: Specific Risks of COVID-19 to the Bleeding Disorders Community

COVID-19 / Coronavirus, Industry News & Research

The COVID-19 Task Force of the World Federation of Hemophilia (WFH) has released a statement on risks of acquiring COVID-19 disease and…

Read More
June 8, 2021

BioMarin Presents Positive Safety and Efficacy Data for their Hemophilia A Gene Therapy

Industry News & Research

These data were presented by BioMarin at the American Society of Gene & Cell Therapy Virtual Meeting, which was held May 11-14,…

Read More
June 8, 2021

Gene Therapy Trial Data Suggests Efficacy in the Presence of Antibodies

The recent American Society of Gene & Cell Therapy (ASGCT) Virtual Meeting featured updates from the phase III HOPE-B clinical trial of…

Read More
June 8, 2021

NHF Marks the 40th Anniversary of the HIV Epidemic

Living with a Bleeding Disorder, Industry News & Research

June 3, 2021 – Statement from Nathan Schaefer, Vice President of Public Policy, National Hemophilia Foundation This June marks a painful anniversary…

Read More
June 2, 2021

June is Joint Health Month!

Health and Well Being, Living with a Bleeding Disorder

This June learn what your joints want, what they need, and how to help them keep you going. Read more. Source: National…

Read More
June 2, 2021

NHF Compiles List of 2021 Scholarships! Apply Today!

Industry News & Research, Health and Well Being

Time for an important reminder – “Scholarship season” is now in full swing! NHF’s information service, HANDI, compiles an annual online list…

Read More
June 2, 2021

National Patient & Caregiver Survey Shows that COVID-19 Has Exacerbated Treatment Affordability Challenges & Health Inequities for Vulnerable Americans

COVID-19 / Coronavirus

Many patients across the country – including those in vulnerable and underserved communities – are experiencing challenges in affording and accessing necessary…

Read More
May 25, 2021

Video: Diagnostic Challenges and New VWD Guidelines

Living with a Bleeding Disorder, Industry News & Research

In this video, Robert Sidonio Jr., M.D., discusses the new von Willebrand Disease (VWD) Guidelines and the most significant changes that healthcare…

Read More
May 13, 2021

NHF Celebrates Women’s Health Month with Series of Webinars Critical to Women and Bleeding Disorders

Health and Well Being, Industry News & Research

We are marking women’s health month with a series of webinars that focus on critical issues for women with bleeding disorders. Our…

Read More
May 13, 2021

Health and Wellness Update from Dr. Leonard Valentino About Vaccines, Hesitancy and Understanding VITT

COVID-19 / Coronavirus, Health and Well Being

COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…

Read More
May 12, 2021

Take the National HTC Patient Satisfaction Survey

Industry News & Research

This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes….

Read More
May 12, 2021

Study Looks at Neuraxial Anesthesia and Postpartum Complications in Hemophilia

Industry News & Research

Neuraxial anesthesia, a focus of this study, refers to the administration of local anesthetics and analgesia to targeted locations in the spinal…

Read More
<...34567...1020...>

Contact Us

Great Lakes Hemophilia Foundation
638 North 18th Street Milwaukee, WI 53233
888.797.GLHF

414.257.0200

414.257.1225 (Fax)

  • Contact Us
  • Support our work with a donation!

Stay Connected

Join the conversation on Social Media:

  • Visit us on facebook
  • Visit us on instagram
  • Visit us on twitter
  • Visit us on youtube
  • Visit us on linkedin
Subscribe to email updates:
  • This field is for validation purposes and should be left unchanged.

About Us

  • Our Story
  • Our Impact
  • Our Team
  • Board of Directors
  • Annual Report
  • Patient Choice Policy
  • Medical Disclaimer
  • Privacy Policy
  • Affiliated Chapter

  • Member Organization

  • Non-Profit Partner

© 2022 Great Lakes Hemophilia Foundation. All Rights Reserved.