Managing Pain
Living with a Bleeding Disorder, Industry News & Research
by Paul Clement Pain and hemophilia go hand-in-hand. During a joint or muscle bleed, blood fills the joint cavity or makes muscles…
Scientists Identify the Five Symptoms That May Predict a Long-Term Case of Coronavirus
COVID-19 / Coronavirus
Preliminary studies are beginning to pinpoint the early signs that a patient won’t recover right away. For a select group of coronavirus…
COVID-19 Vaccines: What to Expect
COVID-19 / Coronavirus, Events
We all want an end to this global pandemic, and an effective vaccine is a critical part of finding that path. However,…
Interesting Fictional Teens….With Bleeding Disorders!
Living with a Bleeding Disorder
by Richard J. Atwood Do you ever wonder whether teenage fictional characters with bleeding disorders can foreshadow the future of our community?…
Vote Your Way! Make a Plan TODAY!
Advocacy & Legislation
Vote Your Way The 2020 General Election is Tuesday, Nov. 3. Voter registration deadlines for the 2020 General Election are: Oct. 30,…
Milwaukee Adds Virtual Field Trip Portal and a Virtual Weatherization Day – Including Free Weatherization & Grab and Go Bags on Halloween!
COVID-19 / Coronavirus, Events
Virtual Field Trip Planning Planning field trips has been a challenge with COVID-19. Milwaukee cultural institutions have launched a virtual field trip…
Halloween Re-Imagined in the Age of COVID-19! Ways to Make it Fun and Stay Safe
COVID-19 / Coronavirus
The Milwaukee Health Department encourages residents to re-imagine Halloween this year. There are many low-risk activities you and your family can participate…
COVID-19 Updates: Testing Locations, Handling COVID-19 Misinformation and Free Flu Shots!
COVID-19 / Coronavirus
For daily COVID-19 statistics locally, nationally and worldwide, go to: Milwaukee County COVID-19 Dashboard State of Wisconsin United States and Countries Worldwide…
Update on ACA Lawsuit
Industry News & Research, Uncategorized
The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…
Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients
Industry News & Research
Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…
Pfizer and Sangamo Dose First Participant in Phase 3 Study Evaluating Hemophilia A in Gene Therapy Treatment
Industry News & Research
AFFINE is a global Phase 3, open-label, multicenter, single arm study that will evaluate the efficacy and safety of giroctocogene fitelparvovec in…
Be an Informed Voter! Register to Vote Today!
Advocacy & Legislation, Industry News & Research
There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…
GLHF’s 1st Virtual Unite Walk Proves Successful While #BeingTogetherApart!
GLHF News
In a year with so many “new normals” and unique challenges, the community came together on September 26 to raise $48,225! In our…
Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs
Industry News & Research, Advocacy & Legislation
The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Industry News & Research, Advocacy & Legislation
A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…
Does Having a Bleeding Disorder Mean I’m at a Higher Risk for Contracting COVID? Q & A.
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
Managing a Bleeding Disorder During a Pandemic
COVID-19 / Coronavirus, Living with a Bleeding Disorder, Uncategorized
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…
GET WIRED WITH HFA
Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…
Public Health Symposia Now Available on the NHF Website!
Industry News & Research
This summer’s Virtual Bleeding Disorders Conference (BDC) featured a pair of excellent public health symposiums, which were developed through an inspired collaboration…
COVID-19 and Coagulopathy: Frequently Asked Questions
What is COVID-19-associated coagulopathy? Is it any different from disseminated intravascular coagulopathy (DIC)? The most common pattern of coagulopathy observed in patients…
First Patient Dosed in Phase 3 Gene Therapy Trial
Industry News & Research
The purpose of the study is to evaluate the efficacy and safety of this investigational gene therapy in patients with moderately severe…
Unanswered Questions Remain in Gene Therapy Trial
Industry News & Research
This commentary was authored by six individuals with severe hemophilia, all of whom have worked to achieve better health outcomes for patients…
What’s Next for the ACA?
Advocacy & Legislation, Industry News & Research
The recent news about the passing of United State Supreme Court Justice Ruth Bader Ginsburg and nomination of Judge Amy Coney Barrett…
CSL Behring States Stimate Will Not Be Resupplied until 2022
Industry News & Research
NHF and HFA have been provided the following statement from CSL Behring. The statement says, in part: “Ferring Pharmaceuticals Inc. initiated a voluntary,…