GLHF’s Spring Programs Are Well Underway. Learn More About What GLHF Programs Have to Offer You!
GLHF News
Camp Klotty Pine Registration is Now Open! GLHF works diligently to provide programs for people and families living with a bleeding disorder…
NHF Supports Senate Bill to Stop Spread of Short-Term Plans
Industry News & Research
NHF has applauded Senators Baldwin (D-WI) and Jones (D-AL) for introducing the No Junk Plans Act, which seeks to stop the spread of short-term health…
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World
Industry News & Research
The St. Jude Children’s Research Hospital and the World Federation of Hemophilia (WFH) recently announced that they have entered into a unique…
Researchers Look at Clinical Outcomes in FXIII Babies
Industry News & Research
Individuals with factor XIII deficiency (FXIII), a very rare inherited bleeding disorder, may experience a number of symptoms including umbilical cord bleeding,…
Sigilon Releases Study Data on Hemophilia Cell Therapy
Industry News & Research
At the recent 2019 American Society of Gene and Cell Therapy Annual Meeting in Washington, DC, Sigilon Therapeutics presented data on an…
CHOP Researchers Study Factor VIIa Prophylaxis Through Gene Transfer
Industry News & Research
In a newly published study, researchers at the Children’s Hospital of Philadelphia (CHOP) described how they utilized gene transfer technology to illicit…
CMS Finalizes Policy to Limit Co-Pay Accumulator Programs
Industry News & Research
On April 18, 2019, the Centers for Medicare and Medicaid Services (CMS) released the final Notice of Benefit and Payment Parameters Rule…
New Books to Manage Hemophilia for All Ages
Living with a Bleeding Disorder
Global health education company Jumo Health is releasing four new comic books that provide contextual and age-appropriate information for children, teenagers, and…
GLHF Addresses Key Issues Impacting the Bleeding Disorders Community at Washington Days
GLHF News
In March, GLHF staff participated in the National Hemophilia Foundation’s Washington Days on Capitol Hill in Washington, D.C. “Washington Days is an…
Sangamo and Pfizer Announce Interim Trial Data for Hemophilia A Gene Therapy
Industry News & Research
Sangamo Therapeutics, Inc and Pfizer, Inc. recently announced interim data from the phase 1/2 Alta study designed to evaluate SB-525, the company’s…
New Financial and Patient Support Services for People Living With Hemophilia
Industry News & Research
The Patient Access Network (PAN) Foundation and the National Hemophilia Foundation (NHF) announced they are launching a new alliance to offer a…
17 Patient Groups Urge Appeals Court to Uphold Healthcare Law
Advocacy & Legislation
Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for…