UniQure Reports Successful Delivery of FIX Gene Despite Antibodies
Industry News & Research
UniQure presented new hemophilia B clinical trial data on May 19, 2018 at the American Society of Gene and Cell Therapy (ASGCT)…
A Mother’s Perspective on Her Son’s Life with Hemophilia
Living with a Bleeding Disorder
Jessica details her son’s life with hemophilia Some might consider Dean to be “lucky,” because although he has severe hemophilia, he is…
Active Dad Doesn’t Let Hemophilia Slow Him Down
Living with a Bleeding Disorder
He’s Completed Ten Triathlons Since 2015! David Varney was diagnosed with Hemophilia B when he was 3 months old. He has never…
A Day in Owen’s Life
Living with a Bleeding Disorder
A Day in the life of this busy 2-year old, as told by his incredible parents, Stacie and Kyle Owen is just…
HTC Investigators Look at Rates of Cardiovascular Disease in Hemophilia Patients
Industry News & Research
Because of their lower factor levels, hemophilia patients are generally thought to be better protected from cardiovascular disease (CVD). To determine whether…
Drive-In Fusion Fundraiser a Huge Success
GLHF News
Incredible Parents Infusing Huge Support for Their Sons and GLHF Jessica and Stacie are the biggest advocates for their sons because they…
Prophylaxis Study Results for Boys with Severe Hemophilia A
Industry News & Research
A group of Canadian researchers recently published findings from a clinical study on the use of prophylaxis with a standard half-life recombinant…
New Study on Aging, VWF Levels and Bleeding Risk
Industry News & Research
Investigators from the Hemophilia Center of Western Pennsylvania (HCWP) recently looked at the effect of aging on von Willebrand factor (VWF) levels…
March Declared Bleeding Disorders Awareness Month
Advocacy & Legislation
Beginning in 2018, Wisconsin Governor Scott Walker proclaimed March as Bleeding Disorders Awareness Month – which will now be included on the…