Register Today for the 2019 Unite for Bleeding Disorders Walk, September 28 at the Milwaukee County Zoo!
GLHF News
We are only one month away from the Unite for Bleeding Disorders Walk, Setpember 28 at the Milwaukee County Zoo! Register your…
Bayer Responds to NHF-HFA Joint Statement
Industry News & Research
Bayer announced the recall of two lots of Kogenate® FS antihemophilic factor (recombinant) 2000 IU vials on July 19, 2019. Bayer announced that…
6 Do’s and Don’ts for Better Sleep
Living with a Bleeding Disorder
by Ian Landau Taking Charge In his TED Talk, “Sleep is your superpower,” Matthew Walker, PhD, a professor of neuroscience and psychology…
Freeline Provides Updates on Hemophilia Gene Therapy Programs
Industry News & Research
The UK-based biotechnology company Freeline announced updates for its investigative gene therapies for hemophilia A and B at the recent XXVII Congress…
Joint Statement on Recall of Bayer Kogenate® FS Lots
Industry News & Research
Last week, Bayer announced the recall of two lots of Kogenate® FS antihemophilic factor (recombinant) 2000 IU vials. That highly concerning announcement…
Investigators Report Progress on New Subcutaneous Therapy
Industry News & Research
Results from a pair of phase 2 clinical trials of the investigational subcutaneous therapy, Concizumab were presented at the recent XXVII Congress…
Casebia Presents Dual Approach to Gene Therapy
Industry News & Research
Cambridge, Massachusetts-based Casebia Therapeutics recently presented new research on a novel therapy being developed for patients with hemophilia A. Casebia Therapeutics is…
Sanofi Presents Final Trial Data for rFVIII Candidate
Industry News & Research
Sanofi Genzyme reported positive data from their recently completed phase 1/2 EXTEN-A study of their investigational factor replacement product for hemophilia A….
BioMarin to Submit Marketing Applications to FDA and EMA
Industry News & Research
BioMarin Pharmaceutical recently announced that they plan to submit marketing applications to both the European Medicines Agency (EMA) and the U.S. Food…
uniQure Announces New Gene Therapy Trial Data
Industry News & Research
uniQure recently announced updated data related to a phase IIb clinical study of AMT-061, the company’s investigational gene therapy candidate for patients…
Good News! @GovEvers Signs Bipartisan #steptherapy Legislation into Law!
Advocacy & Legislation
Great Lakes Hemophilia Foundation (GLHF) is excited to announce that Governor Evers signed the WI Step Therapy bill on July 9. We…
Genentech Announces New Data from Hemlibra® Clinical Trial Program
Industry News & Research
Through a series of abstracts and oral presentations at the recent 2019 Congress of the International Society on Thrombosis and Haemostasis (ISTH),…