NHF Receives Five-Year CDC Grant for Education Programs
Industry News & Research
The National Hemophilia Foundation (NHF) has received a five-year cooperative agreement from the Centers from Disease Control and Prevention (CDC). The collaboration,…
BioMarin Hemophilia A Clinical Development Program: An Update for the Hemophilia Community
Industry News & Research
BioMarin is committed to updating the community regarding our ongoing gene therapy clinical trial program in hemophilia A. BioMarin’s investigational gene therapy…
FDA Recommends Additional Data for BioMarin’s Investigational Gene Therapy
Industry News & Research
Biomarin announced that they received a Complete Response Letter (CRL) from the U.S. Food and Drug Administration (FDA) on August 18th for their…
Novo Nordisk Announces Near Resumption of Concizumab Trials
Industry News & Research
Novo Nordisk has announced that clinical trials for their investigational subcutaneous therapy concizumab will resume after an approximate five month pause, initiated…
GLHF Recognized as Chapter of Excellence at NHF’s Virtual Bleeding Disorders Conference
GLHF News
Each year, NHF recognizes Chapters achieving high standards and demonstrating best practices through its Chapter Review Process. Chapters achieving Chapter of Excellence…
Medical Advisory #427: Stimate Recall Update
Industry News & Research
August 13, 2020 CSL Behring and Ferring Pharmaceuticals have announced additional information about a recent recall of lots of Stimate® that was…
Last Week’s Camp Klotty Pine Was Just What Camper’s Needed!
GLHF News
Last week, we had our first virtual Camp Klotty Pine experience – and the results were amazing! GLHF and camp staff provided…
Documentary Film, Bombardier Blood, Released Worldwide. Order Today!
GLHF News
The film, Bombardier Blood (@bombardierblood) had its worldwide release on August 18! The documentary of Chris Bombardier’s attempt to be the first…
Be a Part of Our Walk Community! Unite for Bleeding Disorders Walk is Going Virtual, September 26. Register Today!
GLHF News
This year, we invite you to join us for our first-ever Virtual Walk on Saturday, September 26! While we are disappointed that…
A New Study of Hemophilia Occurrence Finds Many More Cases in the United States
Industry News & Research
Hemophilia is an inherited bleeding disorder in which the blood does not clot properly due to a lack or decrease in a…
MASAC Encourages People with Bleeding Disorders to be Included in COVID-19 Vaccine Trials
COVID-19 / Coronavirus, Industry News & Research
Individuals with inherited and acquired bleeding disorders, including hemophilia have substantial deficits in coagulation, for which they receive a variety of protein…
New Online Space for Black/African Americans with Bleeding Disorders
Industry News & Research
In 2019, the National Hemophilia Foundation conducted a series of listening sessions and guided conversations with Black and African American members of…
Stimate Recall Update – CSL Behring & Ferring Pharmaceuticals Response to HFA-NHF Letter, Voluntary Recall Due to “Superpotency”
Industry News & Research, Advocacy & Legislation
Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…
HFA and NHF Respond to Stimate Drug Recall
Industry News & Research
On July 21, CSL Behring and Ferring Pharmaceuticals announced a recall of multiple lots of Stimate (desmopressin) in the United States and in other countries…
NHF Increases Financial Support of Chapters
COVID-19 / Coronavirus
The National Hemophilia Foundation has created a new grant program to support local bleeding disorders organizations in their efforts to provide financial…
Alex Borstein Brings Star Power to Raise Awareness of VWD
Industry News & Research
The National Hemophilia Foundation (NHF) and Takeda have teamed up to launch a series of PSAs and resources that hope to increase…
A New Path Forward in Research
Industry News & Research
At the National Hemophilia Foundation’s (NHF) Bleeding Disorders Conference, held virtually this year, NHF president and CEO Leonard Valentino, MD, asked each…
Milwaukee Respods to the Coronavirus Outbreak: Latest Updates
COVID-19 / Coronavirus
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling…
Irish Investigators Review Fetal Precautions and Delivery Mode in Congenital Bleeding Disorders
Industry News & Research
It is well established that the clinical management of pregnant women with congenital bleeding disorders (CBDs) is challenging, as healthcare providers, including…
CARES Act Funding Announcement and MCTS Mask Guidelines
COVID-19 / Coronavirus
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
COVID-19 and VWF
Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…
Stimate Recall: NHF and HFA Seek Answers
Industry News & Research, Advocacy & Legislation
Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…
NHF Medical Advisory: CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®
Industry News & Research
Ferring Pharmaceuticals Inc. is initiating a precautionary voluntary recall of all batches of Stimate® Nasal Spray (desmopressin acetate) 1.5 mg/mL. During testing…