B Informed!
For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families through education, empowerment, advocacy, and outreach. Their programs bring patients with hemophilia B together from all over the US, connecting with a common bond and empowering them to gain support, lifetime friends, and the knowledge needed to make important life decisions and to act as advocates on their behalf. Download its semiannual newsletter to stay informed.
Source: Communique, Laurie Kelley Communications, Inc., November 2024