News

Assessing Risk During the Reopening
COVID-19
All fifty states have begun “reopening” – loosening restrictions around gatherings and how businesses can operate. However, nothing has changed about the…

Live Today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care
COVID-19
Live today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care Join NHF for this live, educational session to hear…

17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Advocacy & Legislation
Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…

Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.

Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling out…

Managing a Bleeding Disorder During a Pandemic: Answers to 6 Common Questions About COVID-19
COVID-19
As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

Mental Health: Discussing the Pandemic with Your Child and Helping Your Child Cope with Anxiety and Stress
COVID-19
Discussing the Pandemic with Your Child: The American Academy of Child and Adolescent Psychiatry has a simple fact sheet that will help…

Visiting Parks and Recreational Facilities – Protect Yourself and Others From COVID-19
COVID-19
Parks and beaches are reopening in some states. The CDC has recommendations to follow if you choose to visit these recreational facilities….

Telemedicine and Hemophilia in the Age of COVID-19
COVID-19
Role of telemedicine during the COVID-19 pandemic analysed in Haemophilia A commentary, published in the World Federation of Hemophilia’s journal Haemophilia by NHF…

Encouraging Safety Results on Trial Vaccine
COVID-19
Moderna’s coronavirus vaccine shows encouraging early results Moderna, a biotech company from Massachusetts which has been working on a COVID-19 vaccine, has…

CDC Issues Alert on New COVID-linked Disorder
COVID-19
Multisystem Inflammatory Syndrome in Children (MIS-C) Associated with Coronavirus Disease 2019 (COVID-19) The CDC issued an alert on a multisystem inflammatory syndrome…

HFA’s Annual Symposium is Going Virtual – August 24-29!
Industry News & Research
HFA is pleased to announce new dates for our previously-postponed Symposium. The 2020 Symposium will be held Aug. 24-29, 2020. HFA’s Symposium is an…

Statement from Novo Nordisk on Rebinyn and COVID-19
Industry News & Research
To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…

Watch NHF’s Webinar: Playing It Safe – Coping During COVID-19
COVID-19

GLHF Wins Award for #RedTieCampaign – Most Unique Way of Celebrating World Hemophilia Day
GLHF News
Every year, GLHF participates in the #RedTieCampaign, a fundraising campaign that kicks off on March 1, with the start of Bleeding Disorders…

WFH Virtual Summit, June 14-19, 2020: Connecting the Global Bleeding Disorders Community
Industry News & Research
Join the World Federation of Hemophilia (WFH) for a high-profile six-day virtual event, June 14-19, 2020: Connecting the Global Bleeding Disorders Community….

HFA’S COVID-19 RELIEF FUND
COVID-19
As COVID-19 threatens the livelihood of families across the U.S. who are part of the bleeding disorders community, the need for a…

Health and Wellness Update #9 from Dr. Valentino
COVID-19
On March 11, 2020 the World Health Organization (WHO) declared the novel coronavirus (COVID-19) outbreak a global pandemic. Our life and lifestyle…

NHF’s Board of Directors Meeting
Industry News & Research
The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT. The Board…

NHF’s Community Voices in Research Replaces MyBDC Program – A Message From Leonard Valentino, M.D.
Industry News & Research
Dear Community Members, The National Hemophilia Foundation wishes to inspire and partner with the community on their journeys to a cure and…

GLHF Announces Winners of Multi-Media Art Contest!
GLHF News
To ring in World Hemophilia Day, GLHF gave community members two weeks to create and submit a piece of artwork for our…

Take GLHF’s 3-Minute Survey!
GLHF News
Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…

GLHF Wants to Help Celebrate Your 2020 Graduate!
GLHF News
Do you have a loved one graduating from a university, high school, middle school or elementary school? Let us give them a…

HFA: A Whole New World – Parenting In a Pandemic. A Series of Live Webinars for Parents Seeking Support.
COVID-19
Parenting is hard enough! How can parents navigate this “new normal” brought about by a pandemic? Join the Hemophilia Federation of America…