News
Children’s Storybooks Provide Insight and Education for Kids with Hemophilia
Living with a Bleeding Disorder
LA Kelley Communications has many books back in print that provide the bleeding disorders community with high quality educational materials. Their content…
Report Focuses on Two Cases of Sporadic CJD in the UK
Industry News & Research
Medscape Education recently launched a new activity, the focus of which is a report from the journal Emerging Infectious Diseases (EID) on surveillance as…
BioMarin Provides Trial Updates for Hemophilia A Gene Therapy
Industry News & Research
BioMarin recently announced clinical trial updates relevant to valoctocogene roxaparvovec (formerly known as BMN 270) its investigational gene therapy for the treatment…
NHF to Host Preconference Medical Symposium on Glanzmann’s Thrombasthenia
Industry News & Research
The National Hemophilia Foundation will hold the first annual Victor Grifols Roura Medical Preconference Symposium at its 71st Annual Bleeding Disorders Conference on…
ASC and Expression Therapeutics Collaborate on Hemophilia Gene Therapies
Industry News & Research
ASC Therapeutics recently announced that they have obtained an exclusive therapeutics license from Atlanta, GA-based Expression Therapeutics. ASC, a division of Applied…
Registration is Open for NHF’s 2019 Bleeding Disorders Conference
GLHF News
The National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference (BDC), a three-day educational experience that is designed to support the entire bleeding…
The 2019 Unite for Bleeding Disorders Walk is September 28. Start Forming Your Walk Team Today!
GLHF News
Every year, Wisconsin walkers team up with the National Hemophilia Foundation (NHF) and walkers from across the country to raise dollars and…
Thanks for Your Support Raising Funds and Awareness for the 2019 Red Tie Campaign!
GLHF News
Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time…
2nd Annual Madison’s Best Bloody Draws Support and Awareness for the Bleeding Disorders Community
GLHF News
Building on the success of Milwaukee’s Best Bloody, which started seven years ago, GLHF decided to take our event to Madison in…
GLHF’s Spring Programs Are Well Underway. Learn More About What GLHF Programs Have to Offer You!
GLHF News
Camp Klotty Pine Registration is Now Open! GLHF works diligently to provide programs for people and families living with a bleeding disorder…
NHF Supports Senate Bill to Stop Spread of Short-Term Plans
Industry News & Research
NHF has applauded Senators Baldwin (D-WI) and Jones (D-AL) for introducing the No Junk Plans Act, which seeks to stop the spread of short-term health…
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World
Industry News & Research
The St. Jude Children’s Research Hospital and the World Federation of Hemophilia (WFH) recently announced that they have entered into a unique…
Researchers Look at Clinical Outcomes in FXIII Babies
Industry News & Research
Individuals with factor XIII deficiency (FXIII), a very rare inherited bleeding disorder, may experience a number of symptoms including umbilical cord bleeding,…
Sigilon Releases Study Data on Hemophilia Cell Therapy
Industry News & Research
At the recent 2019 American Society of Gene and Cell Therapy Annual Meeting in Washington, DC, Sigilon Therapeutics presented data on an…
CHOP Researchers Study Factor VIIa Prophylaxis Through Gene Transfer
Industry News & Research
In a newly published study, researchers at the Children’s Hospital of Philadelphia (CHOP) described how they utilized gene transfer technology to illicit…
CMS Finalizes Policy to Limit Co-Pay Accumulator Programs
Industry News & Research
On April 18, 2019, the Centers for Medicare and Medicaid Services (CMS) released the final Notice of Benefit and Payment Parameters Rule…
New Books to Manage Hemophilia for All Ages
Living with a Bleeding Disorder
Global health education company Jumo Health is releasing four new comic books that provide contextual and age-appropriate information for children, teenagers, and…
GLHF Addresses Key Issues Impacting the Bleeding Disorders Community at Washington Days
GLHF News
In March, GLHF staff participated in the National Hemophilia Foundation’s Washington Days on Capitol Hill in Washington, D.C. “Washington Days is an…
Sangamo and Pfizer Announce Interim Trial Data for Hemophilia A Gene Therapy
Industry News & Research
Sangamo Therapeutics, Inc and Pfizer, Inc. recently announced interim data from the phase 1/2 Alta study designed to evaluate SB-525, the company’s…
New Financial and Patient Support Services for People Living With Hemophilia
Industry News & Research
The Patient Access Network (PAN) Foundation and the National Hemophilia Foundation (NHF) announced they are launching a new alliance to offer a…
17 Patient Groups Urge Appeals Court to Uphold Healthcare Law
Advocacy & Legislation
Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for…
New CME-Accredited Activity on Evaluating Patients with Suspected VWD
Industry News & Research
Register today for a new CME-accredited educational activity on “Recognizing and Remediating von Willebrand Disease – A Case Study in Collaborative Care,” provided by Haymarket…
Give Where You Live for The Red Tie Campaign!
GLHF News
Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time,…
Light it Up Red! for World Hemophilia Day, April 17
Advocacy & Legislation
Light it Up Red! for World Hemophilia Day, April 17 Last year, thousands of people united to show their support for the…