News
Planting the Seeds of Leadership
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
NBDF’s National Youth Leadership Institute (NYLI) provides 18-24 year olds in the bleeding disorders community with leadership opportunities to encourage personal growth,…
Travel Tips for Young Adults with Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
A globe-trotting college traveler shares advice for traveling safely. Having a bleeding disorder shouldn’t keep you from seeing the world. Just ask…
PTSD Can Affect People with Bleeding Disorders
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
While post-traumatic stress disorder is commonly connected with soldiers, people battling chronic illnesses can have it, too. Here’s how to identify the…
HANDI Highlights Resources on Pain Management
Health and Well Being, Living with a Bleeding Disorder, Pain Management
As we enter the “dog days” of summer with high temperatures and heat weighing folks down throughout much of the US, it’s…
NBDF Unveils THRIVE Campaign: Empowering Individuals with Bleeding Disorders through 6 Essential Steps
Industry News & Research
The National Bleeding Disorders Foundation (NBDF) announces the THRIVE campaign to raise awareness and educate on living healthily with bleeding disorders. The…
Pfizer Presents Marstacimab Trial Updates at EHA Annual Meeting
Industry News & Research
Pfizer recently provided new clinical trial updates for their investigational therapy marstacimab. The data was presented last month at the 2024 annual meeting…
WTAE-TV (PA) Feature: Copay Accumulators – Who Really Benefits?
Industry News & Research, Living with a Bleeding Disorder
In an NBDF interview, Bill Robie, Senior Director of Government Relations, highlighted the ongoing challenges of living with von Willebrand disease. In…
FDA Rare Disease Innovation Hub to Enhance and Advance Outcomes for Patients
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
by: Patrizia Cavazzoni, MD, Director, Center for Drug Evaluation and Research and Peter Marks, MD, PhD, Director, Center for Biologics Evaluation and…
Where is Your HTC?
Advocacy & Legislation, Living with a Bleeding Disorder
Do you need an HTC? A new HTC? Do you need to find one when you travel across the US? Check out the…
GLHF’s Wisconsin Bleeding Disorders Conference Celebrates Another Successful Year – Hosting More Than 50 Families!
GLHF News, Living with a Bleeding Disorder
GLHF’s annual Wisconsin Bleeding Disorders Conference, for people and families living with a bleeding disorder, was held June 7-9 at the Kalahari…
What May Be on the Horizon for Hemophilia Treatment?
Industry News & Research
Gene therapy research continues to evolve. As more information becomes available, the below may help you better understand gene therapy and shared…
Hemophilia Affects Everyone – What Are Some Truths About the Care Partner Journey?
Health and Well Being, Living with a Bleeding Disorder
Hemophilia truth time: hemophilia is a shared experience—affecting family, friends, and loved ones. In a global survey of more than 2700 participants,…
ERIN Initiative Champions Inclusivity in Inherited Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Discover how the European Rare & Inhibitor Network (ERIN) is breaking barriers and advancing inclusivity for those with inherited bleeding disorders. This…
For People with Bleeding Disorders, Adherence Is Still a Problem
Health and Well Being, Living with a Bleeding Disorder
Even as therapies for hemophilia have expanded and improved, the issue of not following treatment regimens as directed remains a major point…
Black Men with Hemophilia Have a Shorter Life Expectancy than White Men
Health and Well Being, Men with Bleeding Disorders
A researcher of disparities in hemophilia care discusses her findings and what’s still left to learn. by: James Langford In the early…
Calling All Walkers! The 2024 Unite for Bleeding Disorders Walk Is September 28! Register Your Walk Team Today and Learn About Some of This Year’s Great Prizes!
GLHF News
Last year as a community we raised $76,437! This year’s goal is $78,000 and we need your help to get there! Check…
Calling all Athletes! The Gettin’ in the Game Junior National Championship is in Henderson, NV Sept. 20-22.
GLHF News, Living with a Bleeding Disorder
CSL Behring will host the Gettin’ in the Game Junior National Championship (JNC) in Henderson, NV on September 20 – 22, 2024. Participants will…
In Loving Memory of Neil Frick, NBDF’s Senior Vice President for Medical Programs and Information
GLHF News, Industry News & Research
From the National Bleeding Disorders Foundation’s President and CEO, Phil M. Gattone, M.Ed. It is with profound sadness that we share the…
Product Update from Novo
Industry News & Research
Novo Nordisk sent a letter to NBDF sharing more information about the current product issue related to NovoSeven® RT and Novoeight ®….
Free Educational Videos on the use of Novel Non-Factor Therapies
Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of educational videos on the use of…
Learn About Clinical Issues in Women with Bleeding Disorders
Industry News & Research, Women with Bleeding Disorders
The National Bleeding Disorders Foundation (NBDF) is pleased to announce a series of educational videos on clinical issues in women, girls, and…
Study Provides New Data on Neurodevelopment in Younger Hemophilia Population
Industry News & Research
It has been several decades since the publishing of large U.S. studies of neurodevelopment and other cognitive functions in children and young…
Activity Explores Non-Factor Replacement Therapy in Hemophilia Care
Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is excited to announce a new accredited educational opportunity for healthcare providers. This live/virtual program will…
Own Your Path
Living with a Bleeding Disorder
Take charge of your health care journey with the Own Your Path program! If you’re an adult on prophylaxis treatment for VWD…