News

Star Therapuetics has shared an update on its ongoing clinical trial of VGA039, an investigational therapy for von Willebrand disease. The therapy…

The bill aims to require insurers and pharmacy benefits managers to count all payments, including copay assistance, towards patients’ annual deductibles. Learn…

CSL Behring has published five years of data from their clinical trial of Hemgenix®, a gene therapy product for the treatment of…

Your voice has power — and GLHF’s Wisconsin Advocacy Day is your chance to use it. Every year, community members, advocates and…

This video showcases the Bleeding Disorders Research Collaborative (BDRC), a groundbreaking initiative led by the National Bleeding Disorders Foundation to transform research…

Here’s how to give your child tools not just to manage their condition, but to grow confidently into who they are.

HemAware magazine spent a morning at UTHealth’s Gulf States Hemophilia and Thrombophilia Center in Houston to see this unique comprehensive care model…

The National Bleeding Disorders Foundation (NBDF) is launching Educate to Elevate, a multi-year initiative to raise public awareness, educate communities, and improve healthcare…

At the 2025 Chapter Leadership Summit (CLS), the National Bleeding Disorders Foundation (NBDF) celebrated the generosity of chapter contributions to research.  For…

Help GLHF raise critical funds for the bleeding disorders community of WI! Tickets go on sale Thanksgiving Day! New this year: Ultra VIP…

What was behind the prolonged government shutdown, a hearing on the role of the 340B program, and state advocacy updates from Michigan,…

The three new recommendations concern off-label use for emicizumab for acquired hemophilia A; the use of anti-tissue factor pathway Inhibitors in hemophilia;…

BioMarin has decided to pursue allowing another company to market and sell ROCTAVIAN, its one-time gene therapy used to treat adults with…

The holiday season is just around the corner — and what better way to celebrate than by joining GLHF for the production…

Join us for an educational program about Hemlibra at GLHF’s new office, 12700 W. Bluemound Rd., Suite 130, Elm Grove, on Tuesday,…

CSL Behring will be hosting the Gettin’ in the Game Junior National Championship (JNC) in Henderson, NV, from May 1-3, 2026! This…

Updates to the World Health Organization’s Essential Medicines List represent a major step forward for the bleeding disorders community. Source: National Hemophilia…

For people with a bleeding disorder, exercise and proactive care can keep pain in check. Source: National Bleeding Disorders Foundation, HemAware, November…

The National Bleeding Disorder Foundation provides a new series of customizable emergency alert card templates for patients with bleeding disorders. These wallet-sized…

The U.S. FDA approved Takeda’s supplemental Biologics License Application (sBLA) for Von Vendi, to expand its indication for routine prophylaxis to reduce…

In the 1980s, product safety was the bleeding disorders community primary concern. Now the main concern is coverage: how to pay for…

This registered nonprofit was founded by two men with hemophilia to offer support to people with bleeding disorders. Wingmen Foundation offers individuals,…

Nearly 400 people with hemophilia joined gene therapy trials, and shared their data to help future generations. The WFH Gene Therapy Registry…

Women with bleeding disorders are finally getting the attention they deserve and need in our community. Doctors and patients are often clued…