News
Join us for the Wisconsin Bleeding Disorders Conference, June 6-8! Tickets are on Sale Through May 1.
GLHF News
“My family is very new to the bleeding disorders community. We have great support from our HTC care team, but something was…
Sanofi Announces Positive Data for Its Investigational ITP Therapy
Industry News & Research
ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…
Michigan Study Explores Gene Therapy Understanding in Hemophilia Community
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…
Greater Los Angeles Wildfires: Community Support
GLHF News, Health and Well Being
Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…
NBDF’s Patient Assistance Programs (PAPs) Listing Updated!
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…
FDA Approves Subcutaneous Therapy for Hemophilia Patients with Inhibitors
Industry News & Research
The U.S. Food and Drug Administration (FDA) has approved Alhemo (concizumab-mtci) for routine prophylaxis to prevent or reduce the frequency of bleeding…
Global Experts Create Blueprint for Future VWD Research
Industry News & Research
In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers,…
Investigational Sub-Q von Willebrand Disease Therapy Put on Fast Track
Industry News & Research
The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…
Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity
Gene Therapy, Industry News & Research
The National Bleeding Disorders Foundation (NBDF) is excited to announce a new online, enduring, and accredited educational activity available to healthcare providers….
Your Holiday Giving Will Make an Impact!
GLHF News
Dear Friend, Every summer, there’s a magical place called Camp Klotty Pine where kids find confidence, build lifelong friendships, and experience a…
Washington Days 2025, NBDF’s Annual Advocacy Event, is March 5-7
Advocacy & Legislation, Industry News & Research
Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…
Learn About the T.H.R.I.V.E. Campaign
Health and Well Being, Industry News & Research
The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…
How to Protect Yourself from Fractures
Health and Well Being, Industry News & Research
Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…
Beyond Medication: The Benefits of Physical Therapy for Chronic Pain
Industry News & Research, Pain Management
Chronic pain affects up to 58% of people with hemophilia, impacting mobility, mental health and daily activities. Recognizing this widespread issue, the…
New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…
New Video Series: Voices for Policy Change
Advocacy & Legislation, Living with a Bleeding Disorder
Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…
B Informed!
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…
New Study Looks at GI Bleeding in von Willebrand Disease
Industry News & Research
A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…
Green Bay’s Best Bloody is March 2! Tickets on Sale Now!
GLHF News
Green Bay will be hosting the NFL draft in 2025, so we moved our event to March. Same great event, new date!…
Durability of FactorVIII Focus of New Hemophilia A Gene Therapy Study
Industry News & Research
CHOP Researchers Investigate Durability of Hemophilia A Gene Therapy Findings of a new preclinical study published online in Nature Communications may help address lingering…
FDA Approves Pfizer’s HYMPAVZI for Hemophilia A and B Treatment
Industry News & Research
On October 11, 2024, Pfizer announced that the U.S. FDA approved HYMPAVZI™ (marstacimab-hncq) for routine prophylaxis to prevent or reduce the frequency…
HANDI Highlights Resources for Historically Underserved Population
Living with a Bleeding Disorder, Women with Bleeding Disorders
October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…
Telling Your Life Story?
Health and Well Being, Living with a Bleeding Disorder
With the advent of self-publishing, many people who live with hemophilia, including patients, spouses, and children, are sharing their personal stories by…
Can Someone with a Bleeding Disorder Join the Military?
Advocacy & Legislation, Living with a Bleeding Disorder
When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…