News
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New Partners Module Explores Home Treatment Logs
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of a new online learning module, “Accounting for Home Care: The Role…
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CSL Acquires Hemophilia B Gene Therapy Candidate from uniQure
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
CSL Behring recently announced that it has agreed to acquire exclusive global license rights from uniQure, to commercialize etranacogene dezaparvovec (AMT-061), an…
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Sanofi and Sobi Make Additional Factor Donation to Aid Program
Industry News & Research
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
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Mental Health
COVID-19, Living with a Bleeding Disorder
The upheaval and fear we experience during COVID-19 can have a lasting impact on our mental health. Learn more about how to…
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Health & Exercise
COVID-19, Living with a Bleeding Disorder
How can two balloons keep your kids active? You’d be surprised. This video from Raising Rookies shows an array of games kids…
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Understanding Cornonavirus Testing
COVID-19
Testing people for the coronavirus is the best way we can understand the spread of the virus. But understanding the data is…
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New Insights into Who Gets Sicker from COVID-19
COVID-19
As the coronavirus continues to spread, infectious disease experts have been able to gain more understanding into why some people get sicker…
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A Message from NHF’s Dr. Leonard Valentino: Wear a Mask.
COVID-19, Health and Well Being
In the past few weeks, we’ve seen a lot of discussion in the media about face coverings. Unfortunately, for some people, the…
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NHF Webinar Today, June 30: June for Joint Health
COVID-19, Living with a Bleeding Disorder
Join us for an active and educational June for Joint Health webinar. Learn how you can start to form healthy habits by…
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Deciding to Go Out
COVID-19
Published June 15, 2020 by the Centers for Disease Control What you need to know In general, the more closely you interact…
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Pain Management: Coping During COVID-19
COVID-19
June 15, 2020
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Sanofi and Sobi Make Additional Factor Donation to Aid Program
Industry News & Research
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
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Physical Health, Mental Health and Exercise: Let’s Keep it Positive!
COVID-19
Physical Health and Exercise: It’s getting hot, and with pools and beaches operating at limited capacity (if at all), you may need…
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National Versus State Numbers in COVID-19: Visit COVIDexitstrategy.org
COVID-19
If you look at the national COVID-19 infection rate, overall the numbers are down. However, it is more important to look at…
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There is a 60 Day Window to Get Health Insurance if You’re Unemployed Due to COVID-19
COVID-19
About one-sixth of all American workers have lost their jobs due to the coronavirus. For many, that means their health insurance is…
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NHF Webinar En español, Tuesday, June 16: El Estrés y Ansiedad: Copiando con COVID-19
COVID-19
La Fundación Nacional de Hemofilia te invita para un seminario de web: El Estrés y Ansiedad: Copiando con COVID-19, el martes 16…
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NHF Webinar, Friday, June 12: Pain Management – Coping During COVID-19
COVID-19
Join NHF on Friday, June 12th at 3 pm (4 pm ET – new time!) for our townhall webinar, Pain Management: Coping…
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CDC Issues Guidelines on Office Buildings
COVID-19
The CDC issued new guidelines designed to protect people who work in office buildings. They include modifying office furniture to allow social…
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WHO Walks Back Comments on Asymptomatic Spread of Coronavirus
COVID-19
On June 8th, The World Health Organization released a statement saying that people who have COVID-19 but are asymptomatic only spread the…
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Hemophilia History the Focus of New Partners Modules
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of…
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BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
Industry News & Research
BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…
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We Stand With You
GLHF News
The National Hemophilia Foundation, along with Great Lakes Hemophilia Foundation and affiliated chapters across the nation, condemns discrimination of ANY Kind. We…
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COVID-19 Assistance Programs
COVID-19
Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…
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COVID-19 Update
COVID-19, GLHF News
In response to the COVID-19 pandemic, GLHF has produced two new vehicles for information: a COVID-19 specific category in the News section…