News
Sanofi and Sobi Make Additional Factor Donation to Aid Program
Industry News & Research
Sanofi and Sobi, along with the World Federation of Hemophilia (WFH) and WFH USA recently announced as extension of the two companies’…
Physical Health, Mental Health and Exercise: Let’s Keep it Positive!
COVID-19
Physical Health and Exercise: It’s getting hot, and with pools and beaches operating at limited capacity (if at all), you may need…
National Versus State Numbers in COVID-19: Visit COVIDexitstrategy.org
COVID-19
If you look at the national COVID-19 infection rate, overall the numbers are down. However, it is more important to look at…
There is a 60 Day Window to Get Health Insurance if You’re Unemployed Due to COVID-19
COVID-19
About one-sixth of all American workers have lost their jobs due to the coronavirus. For many, that means their health insurance is…
NHF Webinar En español, Tuesday, June 16: El Estrés y Ansiedad: Copiando con COVID-19
COVID-19
La Fundación Nacional de Hemofilia te invita para un seminario de web: El Estrés y Ansiedad: Copiando con COVID-19, el martes 16…
NHF Webinar, Friday, June 12: Pain Management – Coping During COVID-19
COVID-19
Join NHF on Friday, June 12th at 3 pm (4 pm ET – new time!) for our townhall webinar, Pain Management: Coping…
CDC Issues Guidelines on Office Buildings
COVID-19
The CDC issued new guidelines designed to protect people who work in office buildings. They include modifying office furniture to allow social…
WHO Walks Back Comments on Asymptomatic Spread of Coronavirus
COVID-19
On June 8th, The World Health Organization released a statement saying that people who have COVID-19 but are asymptomatic only spread the…
Hemophilia History the Focus of New Partners Modules
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of two new online learning modules that speak to the history of…
BioMarin Releases Trial Updates in Lead Up to WFH Virtual Summit
Industry News & Research
BioMarin has released updates on the ongoing clinical trial program for their investigational gene therapy valoctocogene roxaparvovec, which is intended for the…
We Stand With You
GLHF News
The National Hemophilia Foundation, along with Great Lakes Hemophilia Foundation and affiliated chapters across the nation, condemns discrimination of ANY Kind. We…
COVID-19 Assistance Programs
COVID-19
Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…
COVID-19 Update
COVID-19, GLHF News
In response to the COVID-19 pandemic, GLHF has produced two new vehicles for information: a COVID-19 specific category in the News section…
Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…
Judith Graham Pool Postdoctoral Research Fellowships
Industry News & Research
Letter of Intent Deadline: July, 5, 2020 Application Deadline: August 16, 2020 Award Start Date: December 2020 NHF’s premier research fellowship program is named in honor…
Accredited Gene Therapy Educational Opportunities Available Online Now
Industry News & Research
These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia. The National Hemophilia Foundation…
Industry News & Research
NHF is excited to launch Run, White, & Blue for Bleeding Disorders – a family-friendly virtual event, featuring a 5K and Family Fun…
Mental Health:
COVID-19
Want to take a break from the news and watch something delightful for the whole family? Thor: Ragnarok director Taika Waititi has…
How Contact Tracing Works
COVID-19
While you may have heard of contact tracing only recently, it’s actually a method that has been used in fighting pandemics all…
Protective Measures to Keep Your Family Safe During COVID-19
COVID-19
Kids are itching to see their friends, have the run of the playground, and generally get back to the practice of being…
Assessing Risk During the Reopening
COVID-19
All fifty states have begun “reopening” – loosening restrictions around gatherings and how businesses can operate. However, nothing has changed about the…
Live Today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care
COVID-19
Live today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care Join NHF for this live, educational session to hear…
17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Advocacy & Legislation
Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…
Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.