News

Statement from Novo Nordisk on Rebinyn and COVID-19

Industry News & Research

To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…

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Watch NHF’s Webinar: Playing It Safe – Coping During COVID-19

COVID-19

 

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GLHF Wins Award for #RedTieCampaign – Most Unique Way of Celebrating World Hemophilia Day

GLHF News

Every year, GLHF participates in the #RedTieCampaign, a fundraising campaign that kicks off on March 1, with the start of Bleeding Disorders…

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WFH Virtual Summit, June 14-19, 2020: Connecting the Global Bleeding Disorders Community

Industry News & Research

Join the World Federation of Hemophilia (WFH) for a high-profile six-day virtual event, June 14-19, 2020: Connecting the Global Bleeding Disorders Community….

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HFA’S COVID-19 RELIEF FUND

COVID-19

As COVID-19 threatens the livelihood of families across the U.S. who are part of the bleeding disorders community, the need for a…

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Health and Wellness Update #9 from Dr. Valentino

COVID-19

On March 11, 2020 the World Health Organization (WHO) declared the novel coronavirus (COVID-19) outbreak a global pandemic. Our life and lifestyle…

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NHF’s Board of Directors Meeting

Industry News & Research

The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT. The Board…

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NHF’s Community Voices in Research Replaces MyBDC Program – A Message From Leonard Valentino, M.D.

Industry News & Research

Dear Community Members, The National Hemophilia Foundation wishes to inspire and partner with the community on their journeys to a cure and…

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GLHF Announces Winners of Multi-Media Art Contest!

GLHF News

To ring in World Hemophilia Day, GLHF gave community members two weeks to create and submit a piece of artwork for our…

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Take GLHF’s 3-Minute Survey!

GLHF News

Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…

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GLHF Wants to Help Celebrate Your 2020 Graduate!

GLHF News

Do you have a loved one graduating from a university, high school, middle school or elementary school? Let us give them a…

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HFA: A Whole New World – Parenting In a Pandemic. A Series of Live Webinars for Parents Seeking Support.

COVID-19

Parenting is hard enough! How can parents navigate this “new normal” brought about by a pandemic? Join the Hemophilia Federation of America…

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UniQure Announces Highlights of Recent Progress

Industry News & Research

UniQure N.V., a gene therapy company advancing transformative therapies for patients with severe medical needs, reported recent progress across its business. “Despite…

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Pfizer and Biontech Dose First Participants In the COVID-19 Vaccine Development Program

Industry News & Research

Pfizer Inc. and BionTech SE announced the first participants have been dosed in the U.S. in the Phase 1/2 clinical trial for…

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Town Hall Webinar – Ask the Experts: Coping During COVID-19

COVID-19

Listen to NHF’s Townhall Meeting from May 1, 2020. Or, make suggestions about what you want to hear NHF discuss in one…

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Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients

Industry News & Research

Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

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NHF’s next Spanish Townhall COVID-19 webinar is May 19, 2020

COVID-19

NHF’s next Spanish Townhall COVID-19 Webinar is May 19, 2020. La Fundación Nacional de Hemofilia te invita para un seminario de web:…

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#GivingTuesdayNow! Thank You! We are Stronger Together!

COVID-19, GLHF News

Thank you for your generosity to GLHF on #GivingTuesdayNow!. Your support helps insure that we may offer the programs and services that make a difference for…

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Listen to NHF’s Townhall Webinar: Coping During COVID-19

COVID-19

May 5, 2020  

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Ignited Fundraising: Stories for People Hungry for Inspiration

GLHF News

Aren’t we all hungry for inspiration? Hungry for examples of how life might be a little better for someone else. That’s why…

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BDC 2020 Updates and Transition to Virtual

Industry News & Research

Dear Community Members, The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the…

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NHF’s Bleeding Disorders Conference is Fully Virtual: August 1-8, 2020!

GLHF News

The National Hemophilia Foundation’s (NHF) priority has always been the health and safety of the bleeding disorders community. As the COVID-19 pandemic…

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Health and Wellness Update #7 from Dr. Valentino

COVID-19

I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of…

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NHF/HFA Seek Feedback on Product Safety and Communication

Industry News & Research

The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary…

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