News

We Stand With You

GLHF News

The National Hemophilia Foundation, along with Great Lakes Hemophilia Foundation and affiliated chapters across the nation, condemns discrimination of ANY Kind. We…

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COVID-19 Assistance Programs

COVID-19

Many of the charitable organizations you may be familiar with including, Patient Services Inc. (PSI), PAN, The Assistance Fund, and the Patient…

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COVID-19 Update

COVID-19, GLHF News

In response to the COVID-19 pandemic, GLHF has produced two new vehicles for information: a COVID-19 specific category in the News section…

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Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients

Industry News & Research

Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

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Judith Graham Pool Postdoctoral Research Fellowships

Industry News & Research

Letter of Intent Deadline: July, 5, 2020 Application Deadline: August 16, 2020 Award Start Date: December 2020 NHF’s premier research fellowship program is named in honor…

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Accredited Gene Therapy Educational Opportunities Available Online Now

Industry News & Research

These continuing education activities are intended for hematologists, pediatricians, and other healthcare professionals who manage patients with hemophilia. The National Hemophilia Foundation…

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Industry News & Research

NHF is excited to launch Run, White, & Blue for Bleeding Disorders – a family-friendly virtual event, featuring a 5K and Family Fun…

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Mental Health:

COVID-19

Want to take a break from the news and watch something delightful for the whole family? Thor: Ragnarok director Taika Waititi has…

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How Contact Tracing Works

COVID-19

While you may have heard of contact tracing only recently, it’s actually a method that has been used in fighting pandemics all…

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Protective Measures to Keep Your Family Safe During COVID-19

COVID-19

Kids are itching to see their friends, have the run of the playground, and generally get back to the practice of being…

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Assessing Risk During the Reopening

COVID-19

All fifty states have begun “reopening” – loosening restrictions around gatherings and how businesses can operate. However, nothing has changed about the…

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Live Today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care

COVID-19

Live today! A Closer Look at Hemophilia Management: Improving Outcomes with Personalized Care Join NHF for this live, educational session to hear…

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17 Patient Groups Urge Appeals Court to Uphold Health Care Law

Advocacy & Legislation

Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…

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Coverage Concerns and Unanswered Questions: We Get It

Advocacy & Legislation

Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.

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Establishing a New Paradigm to Realize Health Equity in Hemophilia

Industry News & Research

A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling out…

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Managing a Bleeding Disorder During a Pandemic: Answers to 6 Common Questions About COVID-19

COVID-19

As the world continues to grapple with the COVID-19 pandemic, the bleeding disorders community understandably has many questions about the disease’s specific…

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Mental Health: Discussing the Pandemic with Your Child and Helping Your Child Cope with Anxiety and Stress

COVID-19

Discussing the Pandemic with Your Child: The American Academy of Child and Adolescent Psychiatry has a simple fact sheet that will help…

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Visiting Parks and Recreational Facilities – Protect Yourself and Others From COVID-19

COVID-19

Parks and beaches are reopening in some states. The CDC has recommendations to follow if you choose to visit these recreational facilities….

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Telemedicine and Hemophilia in the Age of COVID-19

COVID-19

Role of telemedicine during the COVID-19 pandemic analysed in Haemophilia A commentary, published in the World Federation of Hemophilia’s journal Haemophilia by NHF…

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Encouraging Safety Results on Trial Vaccine

COVID-19

Moderna’s coronavirus vaccine shows encouraging early results Moderna, a biotech company from Massachusetts which has been working on a COVID-19 vaccine, has…

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CDC Issues Alert on New COVID-linked Disorder

COVID-19

Multisystem Inflammatory Syndrome in Children (MIS-C) Associated with Coronavirus Disease 2019 (COVID-19) The CDC issued an alert on a multisystem inflammatory syndrome…

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HFA’s Annual Symposium is Going Virtual – August 24-29!

Industry News & Research

HFA is pleased to announce new dates for our previously-postponed Symposium. The 2020 Symposium will be held Aug. 24-29, 2020. HFA’s Symposium is an…

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Statement from Novo Nordisk on Rebinyn and COVID-19

Industry News & Research

To all physicians, hematologists, and other healthcare professionals It has become apparent in the recent weeks that COVID-19 patients with severe disease…

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Watch NHF’s Webinar: Playing It Safe – Coping During COVID-19

COVID-19

 

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