News

A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…

GLHF’s 4th annual Green Bay’s Best Bloody will be held March 2, 2025 at the beautiful Resch Expo across from Lambeau Field. YOU…

CHOP Researchers Investigate Durability of Hemophilia A Gene Therapy Findings of a new preclinical study published online in Nature Communications may help address lingering…

On October 11, 2024, Pfizer announced that the U.S. FDA approved HYMPAVZI™ (marstacimab-hncq) for routine prophylaxis to prevent or reduce the frequency…

October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…

With the advent of self-publishing, many people who live with hemophilia—including patients, spouses, and children—are sharing their personal stories by publishing their…

When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…

 new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…

Phil Gattone said, “We greatly appreciate Pfizer’s innovative efforts in developing this novel treatment option that addresses some of the ongoing challenges…

GLHF Has Moved! Our new office address:12700 West Bluemound RoadSuite 130Elm Grove, WI 53122Phone: 414.257.0200, 888.797.GLHF For a full team directory, click here.

GLHF brought the community together to celebrate progress! And most importantly to celebrate YOU! On October 13 we met up at Camp…

This year’s Unite for Bleeding Disorders Walk was a great success!  As a community we raised $70,400 and we couldn’t have done…

Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….

Learn why and how you should have these tough conversations. Learn More Source: National Bleeding Disorders Foundation, October 2024

Planning ahead and safeguarding your own health – physical and mental – can help keep your responsibilities from overwhelming you. Read More….

Dive into NBDF’s August 2024 Government Relations Update for essential information on Medicaid unwinding, ACA premium tax credits, NIH reform, and state-level…

A manufacturing deviation at NovoNordisk’s Danish facility has led to potential underfilling of vials for NovoSeven©, NovoEight©, and Esperoct© – crucial treatments…

At the National Bleeding Disorders Foundation’s Conference this past summer, Dr. Karen Zimowski highlighted the latest personalized treatments for inherited bleeding disorders,…

A session on von Willebrand Disease (VWD) at the National Bleeding Disorders Foundation Conference this past summer, highlighted patient-driven treatment advancements and…

A session led by Dawn Rotellini at the National Bleeding Disorders Conference this past summer, spotlighted inclusive care for women with bleeding…

A comprehensive document identifies 50 various publications about gene therapy, much of it accessible for parents and patients. The list includes: FAQs,…

Multimillion-dollar gene therapies were long awaited and desired, but patients were unsure whether insurance would cover the costs. So far, very few patients are…