News
Takeda Announces Discontinuation of Two of its Hemophilia Treatments: HEMOFIL® M and RECOMBINATE®
Industry News & Research
On March 18, 2025, Takeda Pharmaceuticals announced it will globally discontinue two of its hemophilia treatments: HEMOFIL® M [Antihemophilic Factor (Human), Method…
Calling all Camp Klotty Pine Campers – New and Returning!
GLHF News
Save-the-Date(s): Camp Klotty Pine Open House: Sunday, May 4, 1-4 pmCamp Klotty Pine: Sunday, August 3 to Friday, August Register Today! We’re…
Together We Advocate. Together We Make a Difference.
Advocacy & Legislation, GLHF News
Advocates from across Wisconsin have been using their voices, making a lasting impact, and driving change for access to healthcare in both…
Join us for a Bloody Good Time on April 13 for our 13th Annual Milwaukee’s Best Bloody
GLHF News
DRINK LOCAL. GIVE LOCAL. Get your tickets today! Milwaukee’s Best Bloody, Sunday, April 13, from 11:30 am to 2:30 pm at Wisconsin State…
Read, Learn, Act!
Advocacy & Legislation, Living with a Bleeding Disorder
The year has already seen incredible changes with a new presidential administration and over 45 new executive orders. A great article explores…
Rest in Peace, First Lady
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The hemophilia community mourns the passing of Suzanne Massie, age 94, arguably the “first lady” of hemophilia. She and her former husband…
All Your Choices in One Place
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Download LA Kelley Communications’ updated Factor Chart to see how many choices you may have, what might be right for you and…
Watch NBDF’s Testimony on Key Prescription Drug Affordability Bill!
Advocacy & Legislation, Living with a Bleeding Disorder
Want to hear firsthand how NBDF is advocating for the bleeding disorders community? Watch the video of Bill Robie, NBDF’s Senior Director…
A Message from the Heart of NBDF
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Our Commitment to Health Equity & Inclusive Care At NBDF, our mission is clear—every person and family affected by bleeding disorders deserves…
Support for Young Adults Navigating Higher Education
Health and Well Being, Living with a Bleeding Disorder
Transitioning to higher education is an exciting but potentially challenging time for everyone. Don’t fret, we are here to help! This new…
How to Navigate Cold and Flu Season with a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder
Winter is the peak season for sneezin’ — and the congestion, coughing, and achiness that often come with colds and flu. Here’s what…
Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity
Industry News & Research, Living with a Bleeding Disorder
The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…
FDA Approves New Non-Opioid Treatment for Pain
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Pain Management
The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…
We are Excited to Announce a New Venue for Milwaukee’s Best Bloody!
GLHF News
Join us for our 13th annual Milwaukee’s Best Bloody at our new venue, Wisconsin State Fair Park on April 13! Drink local, give…
Watch the 2024 Awards of Excellence Ceremony at the National Bleeding Disorders Foundation Annual Conference
Health and Well Being, Industry News & Research
This inspiring event celebrates the exceptional individuals and organizations making a lasting impact in the bleeding disorders community. Trailblazing healthcare professionals and dedicated advocates were…
Ever Wonder Why Hemophilia B Was Once Called Christmas Disease?
Industry News & Research, Living with a Bleeding Disorder
Did You Know? The name for a well-known bleeding disorder has a surprising origin tied to a 5-year-old boy from Canada. Learn why…
Choosing a Day Care: A Guide for Parents of Children with Bleeding Disorders
GLHF News
Finding the right day care provider can be difficult for any parent. But when a child has a bleeding disorder, there are important safety issues…
How to Cope with Seasonal Depression When You Have a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder
About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…
Postponed: GLHF’s 2025 Green Bay’s Best Bloody
GLHF News
We are disappointed to announce that it is both necessary and responsible to postpone Green Bay’s Best Bloody, which was scheduled for March 2. Tickets…
Join us at Camp Klotty Pine, August 3-8
GLHF News
Camp Klotty Pine offers more than just a traditional summer camp experience. It’s a place where children gain confidence, independence and form…
Calling All Former Campers and LITs: Learn How to Apply for Camp Klotty Pine’s 2025 Leader in Training (LIT) Program!
GLHF News
We are excited to announce that applications for Camp Klotty Pine’s 2025 Leader-in-Training (LIT) program are open! This three-year program is designed…
Make Your Voice Heard! Join us on February 18 to Advocate for the Bleeding Disorders Community of Wisconsin. Register by February 1!
Advocacy & Legislation, GLHF News
With many newly elected legislators in Wisconsin, it is crucial to speak up and share what it is like to live with…
Join us for the Wisconsin Bleeding Disorders Conference, June 6-8! Tickets are on Sale Through May 1.
GLHF News
“My family is very new to the bleeding disorders community. We have great support from our HTC care team, but something was…
Sanofi Announces Positive Data for Its Investigational ITP Therapy
Industry News & Research
ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…