News

(Editors note: January 22, 2026. Following publication of this joint statement from the National Bleeding Disorders Foundation (NBDF) and the World Federation…

Good news: the House has reintroduced the HELP Copays Act, aimed at ending copay accumulator adjustor programs and copay maximizers. Learn how…

The National Bleeding Disorders Foundation (NBDF) has joined with World Federation of Hemophilia (WFH) with issuing a joint statement on a severe…

NBDF is proud to announce the 2025 recipients of the Judith Graham Pool Postdoctoral Research Fellowship, the NEHA Postdoctoral Research Fellowship, the…

When will Wisconsin protect patients and not PBMs? Wisconsin patients are falling further behind as New Jersey becomes the 26th state in…

Help us choose the design of our 2026 Walk shirt! GLHF thanks all 2025 Walk teams for helping us reach Star Chapter…

The holidays can be a particularly hectic time for caregivers in the bleeding disorders community. This month’s Resource Roundup has resources on…

Results from a phase 2 clinical trial of an investigational therapy for the treatment for Glanzmann thrombasthenia were announced by Hemab Therapeutics….

A look inside the legislation to reopen the government after the fall shutdown, a new Medicaid drug pricing model, and changes at…

Star Therapuetics has shared an update on its ongoing clinical trial of VGA039, an investigational therapy for von Willebrand disease. The therapy…

The bill aims to require insurers and pharmacy benefits managers to count all payments, including copay assistance, towards patients’ annual deductibles. Learn…

CSL Behring has published five years of data from their clinical trial of Hemgenix®, a gene therapy product for the treatment of…

Your voice has power — and GLHF’s Wisconsin Advocacy Day is your chance to use it. Every year, community members, advocates and…

This video showcases the Bleeding Disorders Research Collaborative (BDRC), a groundbreaking initiative led by the National Bleeding Disorders Foundation to transform research…

Here’s how to give your child tools not just to manage their condition, but to grow confidently into who they are.

HemAware magazine spent a morning at UTHealth’s Gulf States Hemophilia and Thrombophilia Center in Houston to see this unique comprehensive care model…

The National Bleeding Disorders Foundation (NBDF) is launching Educate to Elevate, a multi-year initiative to raise public awareness, educate communities, and improve healthcare…

At the 2025 Chapter Leadership Summit (CLS), the National Bleeding Disorders Foundation (NBDF) celebrated the generosity of chapter contributions to research.  For…

Help GLHF raise critical funds for the bleeding disorders community of WI! Tickets go on sale Thanksgiving Day! New this year: Ultra VIP…

What was behind the prolonged government shutdown, a hearing on the role of the 340B program, and state advocacy updates from Michigan,…

The three new recommendations concern off-label use for emicizumab for acquired hemophilia A; the use of anti-tissue factor pathway Inhibitors in hemophilia;…

BioMarin has decided to pursue allowing another company to market and sell ROCTAVIAN, its one-time gene therapy used to treat adults with…

The holiday season is just around the corner — and what better way to celebrate than by joining GLHF for the production…

Join us for an educational program about Hemlibra at GLHF’s new office, 12700 W. Bluemound Rd., Suite 130, Elm Grove, on Tuesday,…