News

Good news for the bleeding disorders community in the House of Representative’s FY26 Labor, Health and Human Services appropriations bill, which included…

The current coverage environment can create challenges for individuals seeking to explore gene therapy as a potential treatment option, as well as…

It is with a heavy heart that Great Lakes Hemophilia Foundation (GLHF) joins associates across the bleeding disorders, medical and research communities…

Calling all former Camp Klotty Pine campers ages 15–18 who are ready to step into leadership! If you’ve experienced the magic of camp,…

August 2–7 | Cambellsport, WI  For many families in the bleeding disorders community, summer camp can feel complicated. Questions about safety, treatment schedules,…

At the end of January, advocates from across Wisconsin gathered at the State Capitol for GLHF’s annual Wisconsin Advocacy Day. Patients, parents, caregivers, and HTC providers…

Certain common “natural” remedies can interfere with your body’s ability to clot. Source: National Bleeding Disorders Foundation, HemAware, February 2026

Here’s a snapshot of the activities participants enjoyed at three men’s retreats held at chapters across the country. Source: National Bleeding Disorders…

Learn how to spot emotional warning signs — and what steps to take. Source: National Bleeding Disorders Foundation, HemAware, February 2026

(Editors note: January 22, 2026. Following publication of this joint statement from the National Bleeding Disorders Foundation (NBDF) and the World Federation…

Good news: the House has reintroduced the HELP Copays Act, aimed at ending copay accumulator adjustor programs and copay maximizers. Learn how…

The National Bleeding Disorders Foundation (NBDF) has joined with World Federation of Hemophilia (WFH) with issuing a joint statement on a severe…

NBDF is proud to announce the 2025 recipients of the Judith Graham Pool Postdoctoral Research Fellowship, the NEHA Postdoctoral Research Fellowship, the…

When will Wisconsin protect patients and not PBMs? Wisconsin patients are falling further behind as New Jersey becomes the 26th state in…

Help us choose the design of our 2026 Walk shirt! GLHF thanks all 2025 Walk teams for helping us reach Star Chapter…

The holidays can be a particularly hectic time for caregivers in the bleeding disorders community. This month’s Resource Roundup has resources on…

Results from a phase 2 clinical trial of an investigational therapy for the treatment for Glanzmann thrombasthenia were announced by Hemab Therapeutics….

A look inside the legislation to reopen the government after the fall shutdown, a new Medicaid drug pricing model, and changes at…

Star Therapuetics has shared an update on its ongoing clinical trial of VGA039, an investigational therapy for von Willebrand disease. The therapy…

The bill aims to require insurers and pharmacy benefits managers to count all payments, including copay assistance, towards patients’ annual deductibles. Learn…

CSL Behring has published five years of data from their clinical trial of Hemgenix®, a gene therapy product for the treatment of…

Your voice has power — and GLHF’s Wisconsin Advocacy Day is your chance to use it. Every year, community members, advocates and…

This video showcases the Bleeding Disorders Research Collaborative (BDRC), a groundbreaking initiative led by the National Bleeding Disorders Foundation to transform research…

Here’s how to give your child tools not just to manage their condition, but to grow confidently into who they are.