News
Milwaukee’s Best Bloody Tickets Go on Sale November 27!
GLHF News
Help GLHF raise critical funds for the bleeding disorders community of WI! Tickets go on sale Thanksgiving Day! New this year: Ultra VIP…
Government Relations Update
Advocacy & Legislation
What was behind the prolonged government shutdown, a hearing on the role of the 340B program, and state advocacy updates from Michigan,…
New Recommendations from NBDF’s Medical and Scientific Advisory Council (MASAC)
Industry News & Research
The three new recommendations concern off-label use for emicizumab for acquired hemophilia A; the use of anti-tissue factor pathway Inhibitors in hemophilia;…
BioMarin Announces Out-licensing Plan for ROCTAVIAN
Industry News & Research
BioMarin has decided to pursue allowing another company to market and sell ROCTAVIAN, its one-time gene therapy used to treat adults with…
Join Us for A Christmas Carol on Wednesday, December 10!
GLHF News
The holiday season is just around the corner — and what better way to celebrate than by joining GLHF for the production…
GLHF Hosts Educational Program About Hemlibra December 9!
GLHF News, Industry News & Research
Join us for an educational program about Hemlibra at GLHF’s new office, 12700 W. Bluemound Rd., Suite 130, Elm Grove, on Tuesday,…
Gettin’ in the Game is May 1-3 in Nevada! Apply with GLHF Today!
GLHF News
CSL Behring will be hosting the Gettin’ in the Game Junior National Championship (JNC) in Henderson, NV, from May 1-3, 2026! This…
A Global Victory for People with Hemophilia and VWD
Living with a Bleeding Disorder
Updates to the World Health Organization’s Essential Medicines List represent a major step forward for the bleeding disorders community. Source: National Hemophilia…
Managing Joint Pain as You Age
Health and Well Being, Living with a Bleeding Disorder, Pain Management
For people with a bleeding disorder, exercise and proactive care can keep pain in check. Source: National Bleeding Disorders Foundation, HemAware, November…
Emergency Card Templates
Health and Well Being, Living with a Bleeding Disorder
The National Bleeding Disorder Foundation provides a new series of customizable emergency alert card templates for patients with bleeding disorders. These wallet-sized…
VWD Medicine Now Indicated for Prophy
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The U.S. FDA approved Takeda’s supplemental Biologics License Application (sBLA) for Von Vendi, to expand its indication for routine prophylaxis to reduce…
Major Changes to Medicaid
Advocacy & Legislation, Living with a Bleeding Disorder
In the 1980s, product safety was the bleeding disorders community primary concern. Now the main concern is coverage: how to pay for…
Wingmen Foundation
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This registered nonprofit was founded by two men with hemophilia to offer support to people with bleeding disorders. Wingmen Foundation offers individuals,…
World Federation Reports on Progress
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Nearly 400 people with hemophilia joined gene therapy trials, and shared their data to help future generations. The WFH Gene Therapy Registry…
First Documentation of VWD?
Health and Well Being, Living with a Bleeding Disorder, Women with Bleeding Disorders
Women with bleeding disorders are finally getting the attention they deserve and need in our community. Doctors and patients are often clued…
Novo Nordisk Applies for FDA Approval for Mim8
Industry News & Research
Mim8 (denecimig) is an injection therapy for preventing bleeds in people with hemophilia A with or without inhibitors. Antibody-based, Mim8 is designed…
Gene Therapy: The Positive
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Gene therapy has received some doubtful news: not about its effectiveness, but about cost and slow acceptance. Here’s some good news: two…
Game On!
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders
This program, supported by Bayer HealthCare, empowers young adults age 18 and older with hemophilia to be accountable for their treatment, to…
Educating Emergency Personnel about Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Danny’s Dose is a nonprofit organization that educates the public to advocate for improved emergency medical protocols for chronic illnesses and rare…
Pilot Study Highlights Health Equity Gaps in Bleeding Disorders Community
Industry News & Research, Living with a Bleeding Disorder
A new pilot study reveals how social determinants of health disproportionately affect underserved groups — including Black, Indigenous, and Hispanic/Latino individuals —…
Star Therapeutics Secures $125M to Advance VGA039 for Von Willebrand Disease
Industry News & Research
Star Therapeutics has raised $125 million to propel the development of VGA039, a subcutaneous monoclonal antibody targeting Protein S. This investigational therapy…
New Bispecific Antibody Therapy is One Step Closer to Approval
Industry News & Research
Novo Nordisk has filed for FDA approval of denecimig (Mim8), an investigational subcutaneous therapy designed to treat people with hemophilia A with…
GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…
GLHF’s Unite Walk Raises Critical Funds for the Bleeding Disorders Community of WI!
GLHF News
Thank you to everyone who came out for this year’s Unite for Bleeding Disorders Walk at the Milwaukee County Zoo! Twenty-nine teams,…