News

Your Holiday Giving Will Make an Impact!

GLHF News

Dear Friend, Every summer, there’s a magical place called Camp Klotty Pine where kids find confidence, build lifelong friendships, and experience a…

Read More

Attention Community Advocates – Your Voice is Needed for GLHF’s 2025 Advocacy Day!

Advocacy & Legislation, GLHF News

We need your support more than ever to help educate more than 30 newly elected officials about the challenges of living with…

Read More

Washington Days 2025, NBDF’s Annual Advocacy Event, is March 5-7

Advocacy & Legislation, Industry News & Research

Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…

Read More

Learn About the T.H.R.I.V.E. Campaign

Health and Well Being, Industry News & Research

The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

Read More

How to Protect Yourself from Fractures

Health and Well Being, Industry News & Research

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

Read More

Beyond Medication: The Benefits of Physical Therapy for Chronic Pain

Industry News & Research, Pain Management

Chronic pain affects up to 58% of people with hemophilia, impacting mobility, mental health and daily activities. Recognizing this widespread issue, the…

Read More

New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

Read More

New Video Series: Voices for Policy Change

Advocacy & Legislation, Living with a Bleeding Disorder

Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

Read More

B Informed!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

Read More

New Study Looks at GI Bleeding in von Willebrand Disease

Industry News & Research

A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…

Read More

Green Bay’s Best Bloody is March 2! Tickets on Sale Now!

GLHF News

Green Bay will be hosting the NFL draft in 2025, so we moved our event to March. Same great event, new date!…

Read More

Durability of FactorVIII Focus of New Hemophilia A Gene Therapy Study

Industry News & Research

CHOP Researchers Investigate Durability of Hemophilia A Gene Therapy Findings of a new preclinical study published online in Nature Communications may help address lingering…

Read More

FDA Approves Pfizer’s HYMPAVZI for Hemophilia A and B Treatment

Industry News & Research

On October 11, 2024, Pfizer announced that the U.S. FDA approved HYMPAVZI™ (marstacimab-hncq) for routine prophylaxis to prevent or reduce the frequency…

Read More

HANDI Highlights Resources for Historically Underserved Population

Living with a Bleeding Disorder, Women with Bleeding Disorders

October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…

Read More

Telling Your Life Story?

Health and Well Being, Living with a Bleeding Disorder

With the advent of self-publishing, many people who live with hemophilia, including patients, spouses, and children, are sharing their personal stories by…

Read More

Can Someone with a Bleeding Disorder Join the Military?

Advocacy & Legislation, Living with a Bleeding Disorder

When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

Read More

Educational Video for Kids!

Living with a Bleeding Disorder

Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…

Read More

New Study Uncovers Breakthrough for Long-Term Hemophilia A Gene Therapy

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

 new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

Read More

2025 World Hemophilia Day Theme Revealed

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…

Read More

FDA Approves Pfizer’s HYMPAVZI for Hemophilia A and B Treatment without Inhibitors

Industry News & Research

Phil Gattone said, “We greatly appreciate Pfizer’s innovative efforts in developing this novel treatment option that addresses some of the ongoing challenges…

Read More

We’ve Moved!

GLHF News

GLHF Has Moved! Our new office address:12700 West Bluemound RoadSuite 130Elm Grove, WI 53122Phone: 414.257.0200, 888.797.GLHF For a full team directory, click here.

Read More

GLHF Celebrated 50 Years at Our Community Picnic October 13!

GLHF News

GLHF brought the community together to celebrate progress! And most importantly to celebrate YOU! On October 13 we met up at Camp…

Read More

Unite for Bleeding Disorders Walk Raised More Than $70,000 – Supporting Crucial Funds for GLHF Programs and Services

GLHF News

This year’s Unite for Bleeding Disorders Walk was a great success!  As a community we raised $70,400 and we couldn’t have done…

Read More

Ask a Social Worker: Can Someone with a Bleeding Disorder Join the Military?

Health and Well Being, Living with a Bleeding Disorder

Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….

Read More