News

Camp Klotty Pine offers more than just a traditional summer camp experience. It’s a place where children gain confidence, independence, and form…

We are excited to announce that applications are now open for Camp Klotty Pine’s highly anticipated 2025 Leader in Training (LIT) program!…

With many newly elected legislators in Wisconsin, now is the time to speak up and make a difference in the bleeding disorders…

Each year, GLHF hosts the Wisconsin Bleeding Disorders Conference, bringing together people and families impacted by a bleeding disorder. Our weekend event offers…

ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…

Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

HANDI would like to remind the community that the online Patient Assistance Programs (PAPs) listing has been updated. The PAPs resource page encompasses programs designed…

The U.S. Food and Drug Administration (FDA) has approved Alhemo (concizumab-mtci) for routine prophylaxis to prevent or reduce the frequency of bleeding…

In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers,…

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

The National Bleeding Disorders Foundation (NBDF) is excited to announce a new online, enduring, and accredited educational activity available to healthcare providers….

Dear Friend, Every summer, there’s a magical place called Camp Klotty Pine where kids find confidence, build lifelong friendships, and experience a…

We need your support more than ever to help educate more than 30 newly elected officials about the challenges of living with…

Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…

The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

Chronic pain affects up to 58% of people with hemophilia, impacting mobility, mental health and daily activities. Recognizing this widespread issue, the…

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…

Green Bay will be hosting the NFL draft in 2025, so we moved our event to March. Same great event, new date!…

CHOP Researchers Investigate Durability of Hemophilia A Gene Therapy Findings of a new preclinical study published online in Nature Communications may help address lingering…