News

The year has already seen incredible changes with a new presidential administration and over 45 new executive orders. A great article explores…

The hemophilia community mourns the passing of Suzanne Massie, age 94, arguably the “first lady” of hemophilia. She and her former husband…

Download LA Kelley Communications’ updated Factor Chart to see how many choices you may have, what might be right for you and…

Want to hear firsthand how NBDF is advocating for the bleeding disorders community? Watch the video of Bill Robie, NBDF’s Senior Director…

Our Commitment to Health Equity & Inclusive Care At NBDF, our mission is clear—every person and family affected by bleeding disorders deserves…

Transitioning to higher education is an exciting but potentially challenging time for everyone. Don’t fret, we are here to help! This new…

Winter is the peak season for sneezin’ — and the congestion, coughing, and achiness that often come with colds and flu. Here’s what…

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

The U.S. Food and Drug Administration (FDA) recently approved Journavx™ (suzetrigine) 50 milligram oral tablets, a first-in-class non-opioid analgesic developed to treat…

Join us for our 13th annual Milwaukee’s Best Bloody at our new venue, Wisconsin State Fair Park on April 13! Drink local, give…

This inspiring event celebrates the exceptional individuals and organizations making a lasting impact in the bleeding disorders community. Trailblazing healthcare professionals and dedicated advocates were…

Did You Know? The name for a well-known bleeding disorder has a surprising origin tied to a 5-year-old boy from Canada. Learn why…

Finding the right day care provider can be difficult for any parent. But when a child has a bleeding disorder, there are important safety issues…

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

We are disappointed to announce that it is both necessary and responsible to postpone Green Bay’s Best Bloody, which was scheduled for March 2. Tickets…

Camp Klotty Pine offers more than just a traditional summer camp experience. It’s a place where children gain confidence, independence and form…

We are excited to announce that applications for Camp Klotty Pine’s 2025 Leader-in-Training (LIT) program are open! This three-year program is designed…

With many newly elected legislators in Wisconsin, it is crucial to speak up and share what it is like to live with…

“My family is very new to the bleeding disorders community. We have great support from our HTC care team, but something was…

ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…

Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

The U.S. Food and Drug Administration (FDA) has approved Alhemo (concizumab-mtci) for routine prophylaxis to prevent or reduce the frequency of bleeding…