News
Results of Bayer’s PROTECT VIII Extension Study Announced
Industry News & Research
Bayer announced findings from an analysis of the PROTECT VIII extension study. This study found that long-term safety and efficacy was consistent…
Bioverativ and Sobi Release Long-Term Study Results for Extended Half-Life Therapies
Industry News & Research
Swedish Orphan Biovitrum AB (Sobi) and Bioverativ Inc. announced the results of ASPIRE and B-YOND, the most comprehensive long-term studies of extended…
GLHF’s First Men’s Retreat Offered as Part of Community Connection Series
GLHF News
In early October, GLHF hosted a Men’s Retreat at the Blue Harbor Resort in Sheboygan as part of Great Lakes Hemophilia Foundation’s…
Poinsettia and Wreath Sale Discontinued
GLHF News
As the holiday season gets underway, you might be wondering — is Great Lakes Hemophilia Foundation (GLHF) offering poinsettias and wreaths for sale this…
Introducing GLHF’s New Website, Logo and Colors
GLHF News
Big news! We are proud to share our new website which is part of our refreshed identity. The updates show the evolution…
Unite for Bleeding Disorders Walk Raises Funds for Bleeding Disorders Community
GLHF News
There’s a tremendous amount of energy and camaraderie when 550 dedicated walkers raise nearly $80,000 for the bleeding disorders community. In September,…
GLHF Welcomes New Regional Coordinator and Special Events Coordinator to its Team
GLHF News
We are proud to announce that Kaveh Shabtaie, MPH, and Julie Pahnke, MS, have joined the GLHF team! Kaveh has accepted a…
Bayer Receives FDA Approval for Jivi, New Hemophilia A Treatment With Step-Wise Prophylaxis Dosing Regimen
Industry News & Research
Jivi’s extended half-life allows for twice-weekly initial dosing and may be adjusted to every five days and further individually adjusted to less…
A Parent’s Story of Learning, Making Connections and Finding Support
Living with a Bleeding Disorder
Deana’s son, Raffi, was diagnosed with severe hemophilia A when he was seven months old. “He had strange bruising to the point…
Scholarship Spotlight — Professional Pianist, Kangwoo Jin Living with Hemophilia and Pursuing his Passion
Living with a Bleeding Disorder
“I’m always thankful that I can still play the piano and make the music I can,” said Kangwoo, who began playing piano…
GLHF’s Camp Director, Karin Koppen, Reflects on Five Years of Growth and the Future
GLHF News
More than five years ago, GLHF brought together all four Wisconsin Hemophilia Treatment Centers with the goal of starting a summer camp…
They Thought Hemophilia Was a ‘Lifelong Thing.’ They May Be Wrong.
Industry News & Research
In a recent New York Times article by Gina Kolata, scientists are edging closer to defeating a longtime enemy of human health:…
Tim Ringgold Delivers Musical Keynote that Inspires and Motivates
GLHF News
Tim Ringgold Delivers Musical Keynote that Inspires and Motivates “Frame it anyway you want,” sang Tim. “It’s all what you make of it,…
Tracie’s Journey as a Mother and Advocate
Advocacy & Legislation
When Tracie and her husband Tim had their son Zach, everything seemed perfect. Shortly after his birth, doctors noticed some bruising on…
UniQure Reports Successful Delivery of FIX Gene Despite Antibodies
Industry News & Research
UniQure presented new hemophilia B clinical trial data on May 19, 2018 at the American Society of Gene and Cell Therapy (ASGCT)…
A Mother’s Perspective on Her Son’s Life with Hemophilia
Living with a Bleeding Disorder
Jessica details her son’s life with hemophilia Some might consider Dean to be “lucky,” because although he has severe hemophilia, he is…
Active Dad Doesn’t Let Hemophilia Slow Him Down
Living with a Bleeding Disorder
He’s Completed Ten Triathlons Since 2015! David Varney was diagnosed with Hemophilia B when he was 3 months old. He has never…
A Day in Owen’s Life
Living with a Bleeding Disorder
A Day in the life of this busy 2-year old, as told by his incredible parents, Stacie and Kyle Owen is just…
HTC Investigators Look at Rates of Cardiovascular Disease in Hemophilia Patients
Industry News & Research
Because of their lower factor levels, hemophilia patients are generally thought to be better protected from cardiovascular disease (CVD). To determine whether…
Drive-In Fusion Fundraiser a Huge Success
GLHF News
Incredible Parents Infusing Huge Support for Their Sons and GLHF Jessica and Stacie are the biggest advocates for their sons because they…
Prophylaxis Study Results for Boys with Severe Hemophilia A
Industry News & Research
A group of Canadian researchers recently published findings from a clinical study on the use of prophylaxis with a standard half-life recombinant…
New Study on Aging, VWF Levels and Bleeding Risk
Industry News & Research
Investigators from the Hemophilia Center of Western Pennsylvania (HCWP) recently looked at the effect of aging on von Willebrand factor (VWF) levels…
March Declared Bleeding Disorders Awareness Month
Advocacy & Legislation
Beginning in 2018, Wisconsin Governor Scott Walker proclaimed March as Bleeding Disorders Awareness Month – which will now be included on the…