News
Health and Wellness Update #9 from Dr. Valentino
COVID-19
On March 11, 2020 the World Health Organization (WHO) declared the novel coronavirus (COVID-19) outbreak a global pandemic. Our life and lifestyle…
NHF’s Board of Directors Meeting
Industry News & Research
The National Hemophilia Foundation will be holding our quarterly Board of Directors meeting on Thursday, May 28th at 7:00 PM EDT. The Board…
NHF’s Community Voices in Research Replaces MyBDC Program – A Message From Leonard Valentino, M.D.
Industry News & Research
Dear Community Members, The National Hemophilia Foundation wishes to inspire and partner with the community on their journeys to a cure and…
GLHF Announces Winners of Multi-Media Art Contest!
GLHF News
To ring in World Hemophilia Day, GLHF gave community members two weeks to create and submit a piece of artwork for our…
Take GLHF’s 3-Minute Survey!
GLHF News
Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…
GLHF Wants to Help Celebrate Your 2020 Graduate!
GLHF News
Do you have a loved one graduating from a university, high school, middle school or elementary school? Let us give them a…
HFA: A Whole New World – Parenting In a Pandemic. A Series of Live Webinars for Parents Seeking Support.
COVID-19
Parenting is hard enough! How can parents navigate this “new normal” brought about by a pandemic? Join the Hemophilia Federation of America…
UniQure Announces Highlights of Recent Progress
Industry News & Research
UniQure N.V., a gene therapy company advancing transformative therapies for patients with severe medical needs, reported recent progress across its business. “Despite…
Pfizer and Biontech Dose First Participants In the COVID-19 Vaccine Development Program
Industry News & Research
Pfizer Inc. and BionTech SE announced the first participants have been dosed in the U.S. in the Phase 1/2 clinical trial for…
Town Hall Webinar – Ask the Experts: Coping During COVID-19
COVID-19
Listen to NHF’s Townhall Meeting from May 1, 2020. Or, make suggestions about what you want to hear NHF discuss in one…
Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…
NHF’s next Spanish Townhall COVID-19 webinar is May 19, 2020
COVID-19
NHF’s next Spanish Townhall COVID-19 Webinar is May 19, 2020. La Fundación Nacional de Hemofilia te invita para un seminario de web:…
#GivingTuesdayNow! Thank You! We are Stronger Together!
COVID-19, GLHF News
Thank you for your generosity to GLHF on #GivingTuesdayNow!. Your support helps insure that we may offer the programs and services that make a difference for…
Listen to NHF’s Townhall Webinar: Coping During COVID-19
COVID-19
May 5, 2020
Ignited Fundraising: Stories for People Hungry for Inspiration
GLHF News
Aren’t we all hungry for inspiration? Hungry for examples of how life might be a little better for someone else. That’s why…
BDC 2020 Updates and Transition to Virtual
Industry News & Research
Dear Community Members, The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the…
NHF’s Bleeding Disorders Conference is Fully Virtual: August 1-8, 2020!
GLHF News
The National Hemophilia Foundation’s (NHF) priority has always been the health and safety of the bleeding disorders community. As the COVID-19 pandemic…
Health and Wellness Update #7 from Dr. Valentino
COVID-19
I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of…
NHF/HFA Seek Feedback on Product Safety and Communication
Industry News & Research
The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary…
Health and Exercise During COVID-19
COVID-19
Keeping kids active during the pandemic is important – and it helps them burn up all that excess energy! The United Federation…
Mental Health
COVID-19
Source: NHF and the National Association of Mental Illness (NAMI) We are all experiencing stress and anxiety right now. NAMI, the National…
CDC Adds to List of Symptoms to COVID-19
COVID-19
The Centers for Disease Control and Prevention have updated their list of symptoms for COVID-19, adding a sore throat and loss of…
Advocacy Efforts During COVID-19
Advocacy & Legislation, COVID-19
While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…
NHF Webinar: As the Experts: Coping During COVID-19, Friday, May 1 at 5 pm (6 pm ET)
COVID-19
Do you have questions about COVID-19? Join us on Friday, May 1st at 3pm ET for our townhall webinar, Ask the Experts: Coping…