News
Alex Borstein Brings Star Power to Raise Awareness of VWD
Industry News & Research
The National Hemophilia Foundation (NHF) and Takeda have teamed up to launch a series of PSAs and resources that hope to increase…
A New Path Forward in Research
Industry News & Research
At the National Hemophilia Foundation’s (NHF) Bleeding Disorders Conference, held virtually this year, NHF president and CEO Leonard Valentino, MD, asked each…
Milwaukee Respods to the Coronavirus Outbreak: Latest Updates
COVID-19
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling…
Irish Investigators Review Fetal Precautions and Delivery Mode in Congenital Bleeding Disorders
Industry News & Research
It is well established that the clinical management of pregnant women with congenital bleeding disorders (CBDs) is challenging, as healthcare providers, including…
CARES Act Funding Announcement and MCTS Mask Guidelines
COVID-19
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
COVID-19 and VWF
COVID-19, Living with a Bleeding Disorder
Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…
Stimate Recall: NHF and HFA Seek Answers
Advocacy & Legislation, Industry News & Research
Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…
NHF Medical Advisory: CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®
Industry News & Research
Ferring Pharmaceuticals Inc. is initiating a precautionary voluntary recall of all batches of Stimate® Nasal Spray (desmopressin acetate) 1.5 mg/mL. During testing…
Common Council approves mask mandate for City of Milwaukee
COVID-19
The Milwaukee Common Council voted Monday afternoon to approve a mandatory mask ordinance for the City of Milwaukee, in order to slow…
Anger Happens: Coping During COVID-19 – Listen to NHF’s Town Hall Webinar
COVID-19
New Data From Phase IIIb Study Reinforces Safety Profile of Genentech’s Hemlibra (emicizumab-kxwh) in People With Hemophilia A
Industry News & Research
Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), today announced results from the second interim analysis of the…
CDC Expands List of Those at Higher COVID-19 Risk
COVID-19
The CDC has added to their list of who is more at risk to developing serious cases of the coronavirus, including people…
“We Must Resist Confusing Re-opening With Returning to Normalcy”
COVID-19
Three major health organizations published a letter on July 6th urging Americans to wear masks in public. The American Medical Association, American Hospital…
Scientists Urge W.H.O. to Consider Airborne Transmission
COVID-19
239 scientists from more than 30 countries are calling for the World Health Organization to acknowledge that the coronavirus can spread in…
What to Know About Air Purifiers and COVID-19
COVID-19
Considering the possibility of airborne transmission of coronavirus, the use of an air purifier may help prevent COVID-19 by capturing virus particles…
Reducing Risk of Outdoor Gatherings
COVID-19
Experts concur: outdoor social events are safer than indoor ones. However, some outdoor gatherings have resulted in multiple people being exposed to…
Health & Exercise – Little League Releases Best Practices Guidelines
COVID-19
Is your kid itching to get back in the batter’s box? Little League has released a series of “best practices” guidelines to…
Mental Health – Become a Pen Pal with a Senior Living Facility Resident
COVID-19
Many senior living facilities and nursing homes are still under visitor restrictions, and the residents are lonely – and so facilities are…
Join Us! GLHF Adds Virtual Programming through November!
GLHF News
To help you feel more connected during these uncertain times, GLHF is adding virtual programming through November. Our programming includes: a Virtual…
Milwaukee Responds to the Coronovirus Outbreak
COVID-19
Do you live in Milwaukee County or near Milwaukee County? Below is a full list of the most recent Milwaukee County COVID-19…
We Stand With You – Stay Connected with GLHF
COVID-19, GLHF News
Dear Friends, On March 11, 2020 the World Health Organization (WHO) declared the novel Coronavirus (COVID-19) outbreak a global pandemic. Since then,…
New Partners Module Explores Home Treatment Logs
Industry News & Research
The Partners in Bleeding Disorders Education Program has announced the launch of a new online learning module, “Accounting for Home Care: The Role…
CSL Acquires Hemophilia B Gene Therapy Candidate from uniQure
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
CSL Behring recently announced that it has agreed to acquire exclusive global license rights from uniQure, to commercialize etranacogene dezaparvovec (AMT-061), an…