News

Choosing a Day Care: A Guide for Parents of Children with Bleeding Disorders

GLHF News

Finding the right day care provider can be difficult for any parent. But when a child has a bleeding disorder, there are important safety issues…

Read More

How to Cope with Seasonal Depression When You Have a Bleeding Disorder

Health and Well Being, Living with a Bleeding Disorder

About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

Read More

Postponed: GLHF’s 2025 Green Bay’s Best Bloody

GLHF News

We are disappointed to announce that it is both necessary and responsible to postpone Green Bay’s Best Bloody, which was scheduled for March 2. Tickets…

Read More

Join us at Camp Klotty Pine, August 3-8

GLHF News

Camp Klotty Pine offers more than just a traditional summer camp experience. It’s a place where children gain confidence, independence and form…

Read More

Calling All Former Campers and LITs: Learn How to Apply for Camp Klotty Pine’s 2025 Leader in Training (LIT) Program!

GLHF News

We are excited to announce that applications for Camp Klotty Pine’s 2025 Leader-in-Training (LIT) program are open! This three-year program is designed…

Read More

Make Your Voice Heard! Join us on February 18 to Advocate for the Bleeding Disorders Community of Wisconsin. Register by February 1!

Advocacy & Legislation, GLHF News

With many newly elected legislators in Wisconsin, it is crucial to speak up and share what it is like to live with…

Read More

Join us for the Wisconsin Bleeding Disorders Conference, June 6-8! Tickets are on Sale Through May 1.

GLHF News

“My family is very new to the bleeding disorders community. We have great support from our HTC care team, but something was…

Read More

Sanofi Announces Positive Data for Its Investigational ITP Therapy

Industry News & Research

ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…

Read More

Michigan Study Explores Gene Therapy Understanding in Hemophilia Community

Gene Therapy, Industry News & Research, Living with a Bleeding Disorder

Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

Read More

Greater Los Angeles Wildfires: Community Support

GLHF News, Health and Well Being

Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

Read More

NBDF’s Patient Assistance Programs (PAPs) Listing Updated!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

Read More

FDA Approves Subcutaneous Therapy for Hemophilia Patients with Inhibitors

Industry News & Research

The U.S. Food and Drug Administration (FDA) has approved Alhemo (concizumab-mtci) for routine prophylaxis to prevent or reduce the frequency of bleeding…

Read More

Global Experts Create Blueprint for Future VWD Research

Industry News & Research

In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers,…

Read More

Investigational Sub-Q von Willebrand Disease Therapy Put on Fast Track

Industry News & Research

The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

Read More

Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity

Gene Therapy, Industry News & Research

The National Bleeding Disorders Foundation (NBDF) is excited to announce a new online, enduring, and accredited educational activity available to healthcare providers….

Read More

Your Holiday Giving Will Make an Impact!

GLHF News

Dear Friend, Every summer, there’s a magical place called Camp Klotty Pine where kids find confidence, build lifelong friendships, and experience a…

Read More

Washington Days 2025, NBDF’s Annual Advocacy Event, is March 5-7

Advocacy & Legislation, Industry News & Research

Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…

Read More

Learn About the T.H.R.I.V.E. Campaign

Health and Well Being, Industry News & Research

The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

Read More

How to Protect Yourself from Fractures

Health and Well Being, Industry News & Research

Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

Read More

Beyond Medication: The Benefits of Physical Therapy for Chronic Pain

Industry News & Research, Pain Management

Chronic pain affects up to 58% of people with hemophilia, impacting mobility, mental health and daily activities. Recognizing this widespread issue, the…

Read More

New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

Read More

New Video Series: Voices for Policy Change

Advocacy & Legislation, Living with a Bleeding Disorder

Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

Read More

B Informed!

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

Read More

New Study Looks at GI Bleeding in von Willebrand Disease

Industry News & Research

A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…

Read More