News

Choosing a Day Care: A Guide for Parents of Children with Bleeding Disorders
GLHF News
Finding the right day care provider can be difficult for any parent. But when a child has a bleeding disorder, there are important safety issues…

How to Cope with Seasonal Depression When You Have a Bleeding Disorder
Health and Well Being, Living with a Bleeding Disorder
About 1 in 20 people have seasonal affective disorder, or SAD, a form of depression that occurs during the winter and gets…

Postponed: GLHF’s 2025 Green Bay’s Best Bloody
GLHF News
We are disappointed to announce that it is both necessary and responsible to postpone Green Bay’s Best Bloody, which was scheduled for March 2. Tickets…

Join us at Camp Klotty Pine, August 3-8
GLHF News
Camp Klotty Pine offers more than just a traditional summer camp experience. It’s a place where children gain confidence, independence and form…

Calling All Former Campers and LITs: Learn How to Apply for Camp Klotty Pine’s 2025 Leader in Training (LIT) Program!
GLHF News
We are excited to announce that applications for Camp Klotty Pine’s 2025 Leader-in-Training (LIT) program are open! This three-year program is designed…

Make Your Voice Heard! Join us on February 18 to Advocate for the Bleeding Disorders Community of Wisconsin. Register by February 1!
Advocacy & Legislation, GLHF News
With many newly elected legislators in Wisconsin, it is crucial to speak up and share what it is like to live with…

Join us for the Wisconsin Bleeding Disorders Conference, June 6-8! Tickets are on Sale Through May 1.
GLHF News
“My family is very new to the bleeding disorders community. We have great support from our HTC care team, but something was…

Sanofi Announces Positive Data for Its Investigational ITP Therapy
Industry News & Research
ITP is a rare autoimmune disorder that causes a significant reduction in platelets, which are necessary for clotting. Sanofi has announced positive…

Michigan Study Explores Gene Therapy Understanding in Hemophilia Community
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Participate in Groundbreaking Michigan Study on Gene Therapy Awareness in the Hemophilia Community The National Bleeding Disorders Foundation is supporting an important…

Greater Los Angeles Wildfires: Community Support
GLHF News, Health and Well Being
Our hearts are with everyone affected by the devastating wildfires sweeping through Greater Los Angeles. The National Bleeding Disorders Foundation (NBDF) is…

NBDF’s Patient Assistance Programs (PAPs) Listing Updated!
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation’s (NBDF) HANDI program has updated the online Patient Assistance Programs (PAPs) listing. The PAPs resource page encompasses programs designed to…

FDA Approves Subcutaneous Therapy for Hemophilia Patients with Inhibitors
Industry News & Research
The U.S. Food and Drug Administration (FDA) has approved Alhemo (concizumab-mtci) for routine prophylaxis to prevent or reduce the frequency of bleeding…

Global Experts Create Blueprint for Future VWD Research
Industry News & Research
In a significant advancement for von Willebrand Disease (VWD) research and treatment, an international team of experts, including patients, clinicians, and researchers,…

Investigational Sub-Q von Willebrand Disease Therapy Put on Fast Track
Industry News & Research
The U.S. Food and Drug Administration (FDA) has granted Fast Track designation to the investigational von Willebrand disease (VWD) therapy VGA039. The…

Clinical Practice and Hemophilia Gene Therapy the Focus of New Accredited Activity
Gene Therapy, Industry News & Research
The National Bleeding Disorders Foundation (NBDF) is excited to announce a new online, enduring, and accredited educational activity available to healthcare providers….

Your Holiday Giving Will Make an Impact!
GLHF News
Dear Friend, Every summer, there’s a magical place called Camp Klotty Pine where kids find confidence, build lifelong friendships, and experience a…

Washington Days 2025, NBDF’s Annual Advocacy Event, is March 5-7
Advocacy & Legislation, Industry News & Research
Are you ready to advocate for the bleeding disorders community? Join us at Washington Days 2025 for a powerful and impactful experience. Learn…

Learn About the T.H.R.I.V.E. Campaign
Health and Well Being, Industry News & Research
The T.H.R.I.V.E. campaign is an initiative to educate individuals with bleeding disorders and their support networks about six key steps for leading…

How to Protect Yourself from Fractures
Health and Well Being, Industry News & Research
Bone health isn’t necessarily top of mind — especially at younger ages — but it should be. One study revealed that people with…

Beyond Medication: The Benefits of Physical Therapy for Chronic Pain
Industry News & Research, Pain Management
Chronic pain affects up to 58% of people with hemophilia, impacting mobility, mental health and daily activities. Recognizing this widespread issue, the…

New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

New Video Series: Voices for Policy Change
Advocacy & Legislation, Living with a Bleeding Disorder
Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

B Informed!
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

New Study Looks at GI Bleeding in von Willebrand Disease
Industry News & Research
A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…