News
Educating Emergency Personnel about Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Danny’s Dose is a nonprofit organization that educates the public to advocate for improved emergency medical protocols for chronic illnesses and rare…
Pilot Study Highlights Health Equity Gaps in Bleeding Disorders Community
Industry News & Research, Living with a Bleeding Disorder
A new pilot study reveals how social determinants of health disproportionately affect underserved groups — including Black, Indigenous, and Hispanic/Latino individuals —…
Star Therapeutics Secures $125M to Advance VGA039 for Von Willebrand Disease
Industry News & Research
Star Therapeutics has raised $125 million to propel the development of VGA039, a subcutaneous monoclonal antibody targeting Protein S. This investigational therapy…
New Bispecific Antibody Therapy is One Step Closer to Approval
Industry News & Research
Novo Nordisk has filed for FDA approval of denecimig (Mim8), an investigational subcutaneous therapy designed to treat people with hemophilia A with…
GLHF Hosted Another Transformative Week at Camp Klotty Pine! Watch our 2025 Recap Video!
GLHF News, Health and Well Being, Living with a Bleeding Disorder
Click on the photo to watch our 2025 Camp Klotty Pine Video! View more videos and photographs on Facebook and Instagram. (@WiBloodDisorder)…
GLHF’s Unite Walk Raises Critical Funds for the Bleeding Disorders Community of WI!
GLHF News
Thank you to everyone who came out for this year’s Unite for Bleeding Disorders Walk at the Milwaukee County Zoo! Twenty-nine teams,…
What Friends Need to Know About Your Bleeding Disorder
Living with a Bleeding Disorder
Here’s why young adults should consider disclosing to their inner circle. Source: National Bleeding Disorders Foundation, October 2025, HemAware
3 Ways to Build Resilience in the Face of Chronic Pain
Health and Well Being, Living with a Bleeding Disorder, Pain Management
Persistent pain may be a part of life when you have a bleeding disorder. Try these strategies to cope. Source: National Bleeding…
Meet TikTok Influencers in the Bleeding Disorders Community
Health and Well Being, Living with a Bleeding Disorder
These two women are using the popular video-focused social media platform to inspire and help others. Source: National Bleeding Disorders Foundation, October…
The Importance of Participating in Research
Industry News & Research, Living with a Bleeding Disorder
In this webinar, you’ll learn about the gaps that exist in modern research, and how Community Voices in Research uses lived experiences…
What Should I Be Doing to Age Well with Hemophilia?
Health and Well Being, Living with a Bleeding Disorder
From joint care to legal documents, here’s what to consider as you plan for your later years with a bleeding disorder. Source:…
Stroke Prevention for Women with Bleeding Disorders
Health and Well Being, Women with Bleeding Disorders
Learn how hormonal treatments and inherited risks raise the stakes — and what to do about it. Source: National Bleeding Disorders Foundation,…
Beware of Health Advice on Social Media
Health and Well Being, Living with a Bleeding Disorder
You can find any information you’re looking for on Facebook, Instagram, TikTok, and YouTube, but that doesn’t mean it’s true. Source: National…
Pathway to Cures Spotlight: Be Biopharma
Industry News & Research, Living with a Bleeding Disorder
NBDF’s Pathway to Cures is investing in cutting edge technology and new approaches to bleeding disorders therapies. Learn more about Be Biopharma,…
Help Prevent Insurance Premiums Hike
Industry News & Research
Tax credits that were created as part of the ACA to help people afford their insurance were increased in 2022 are slated…
VONVENDI Approved for Prophylaxis
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The FDA has expanded the indication for VONVENDI, a recombinant von Willebrand factor replacement therapy. It is now approved for prophylactic treatment…
A Milestone Victory for the Global Bleeding Disorders Community
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Dedicated advocacy work by the World Federation of Hemophilia (WFH) has resulted in crucial changes to the World Health Organization (WHO) Essential…
Grappling with Healthcare Changes: States Begin Preparing for the Implementation of Medicaid Work Reporting Requirements Under H.R. 1
Advocacy & Legislation, Health and Well Being, Living with a Bleeding Disorder
Track your state’s readiness to implement the changes under H.R. 1 at the CFF’s tracker and find your state-specific name for its Medicaid…
What Treatments are Available for Bleeding Disorders?
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Do you know the full range of therapy choices for you or your loved one? Read a great summary of information presented…
Pain and Joint Problems Drive Higher Depression, Anxiety in People with Hemophilia
Health and Well Being, Industry News & Research
According to a study published in Haemophilia, patients with hemophilia face heightened risks of depression and anxiety due to pain and joint issues,…
Protecting Mental Health Care and Standards
Health and Well Being, Living with a Bleeding Disorder
The Bleeding Disorders Substance Use and Mental Health Access Coalition (BD SUMHAC) has been working to identify leaders in states who will…
Why is Gene Therapy So Slow to Gain Customers?
Gene Therapy
The bleeding disorder community predicted “a cure by 2000.” While that didn’t happen until much later, gene therapy finally arrived with much…
Focus on Females
Living with a Bleeding Disorder, Women with Bleeding Disorders
While von Willebrand Disease can appear in both men and women equally, the symptoms affect females more by far. A Guide to Living…
Raising a Child with Hemophilia is Back!
Health and Well Being, Living with a Bleeding Disorder
The world’s first parenting book on hemophilia written by a parent of a child with hemophilia, now updated for the 6th edition,…