Success as a Hemophilia Leader
World’s first guide to founding, managing, and growing a grassroots hemophilia organization or improving an existing one. Advice on creating vision and mission, forming a board, fundraising, producing a newsletter, programming, establishing an office, working with a medical advisory board. Available as hardcopy and as PDF download.
Source: LA Kelley Communications, Inc., Communique, March 2026, by Laureen Kelley