News

Beyond Medication: The Benefits of Physical Therapy for Chronic Pain
Industry News & Research, Pain Management
Chronic pain affects up to 58% of people with hemophilia, impacting mobility, mental health and daily activities. Recognizing this widespread issue, the…

New Recommendations Issued on Bleeding Disorders Treatment, Bone Health and Mental Health
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) has announced that three new documents have been issued by the Medical and Scientific Advisory Council…

New Video Series: Voices for Policy Change
Advocacy & Legislation, Living with a Bleeding Disorder
Voices for Policy Change is a video series created by the National Bleeding Disorders Foundation (NBDF) designed to educate, empower and mobilize the community about important legislative…

B Informed!
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
For thirty years, the Coalition for Hemophilia B has improved the quality of life for people with hemophilia B and their families…

New Study Looks at GI Bleeding in von Willebrand Disease
Industry News & Research
A new study sheds light on the challenges of diagnosing and managing gastrointestinal (GI) bleeding in individuals with severe von Willebrand disease…

Green Bay’s Best Bloody is March 2! Tickets on Sale Now!
GLHF News
Green Bay will be hosting the NFL draft in 2025, so we moved our event to March. Same great event, new date!…

Durability of FactorVIII Focus of New Hemophilia A Gene Therapy Study
Industry News & Research
CHOP Researchers Investigate Durability of Hemophilia A Gene Therapy Findings of a new preclinical study published online in Nature Communications may help address lingering…

FDA Approves Pfizer’s HYMPAVZI for Hemophilia A and B Treatment
Industry News & Research
On October 11, 2024, Pfizer announced that the U.S. FDA approved HYMPAVZI™ (marstacimab-hncq) for routine prophylaxis to prevent or reduce the frequency…

HANDI Highlights Resources for Historically Underserved Population
Living with a Bleeding Disorder, Women with Bleeding Disorders
October HANDI Highlights is dedicated to an historically underserved group within the inherited bleeding disorders community – women, girls, and people with the propensity…

Telling Your Life Story?
Health and Well Being, Living with a Bleeding Disorder
With the advent of self-publishing, many people who live with hemophilia, including patients, spouses, and children, are sharing their personal stories by…

Can Someone with a Bleeding Disorder Join the Military?
Advocacy & Legislation, Living with a Bleeding Disorder
When you turn 18, you need to sign up with Selective Services. Will the armed forces accept someone with a bleeding disorder?…

Educational Video for Kids!
Living with a Bleeding Disorder
Meet “Kevin” and learn about hemophilia. Cincinnati Children’s Hemophilia Treatment Center presents a colorful and age-appropriate video called “Clot Control” with animated…

New Study Uncovers Breakthrough for Long-Term Hemophilia A Gene Therapy
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
new preclinical study led by CHOP researchers, published in Nature Communications, offers promising insights into the long-term effectiveness of hemophilia A gene therapy….

2025 World Hemophilia Day Theme Revealed
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The World Federation of Hemophilia (WFH) announced the 2025 World Hemophilia Day theme: Access for All: Women and Girls Bleed Too. Learn…

FDA Approves Pfizer’s HYMPAVZI for Hemophilia A and B Treatment without Inhibitors
Industry News & Research
Phil Gattone said, “We greatly appreciate Pfizer’s innovative efforts in developing this novel treatment option that addresses some of the ongoing challenges…

We’ve Moved!
GLHF News
GLHF Has Moved! Our new office address:12700 West Bluemound RoadSuite 130Elm Grove, WI 53122Phone: 414.257.0200, 888.797.GLHF For a full team directory, click here.

GLHF Celebrated 50 Years at Our Community Picnic October 13!
GLHF News
GLHF brought the community together to celebrate progress! And most importantly to celebrate YOU! On October 13 we met up at Camp…

Unite for Bleeding Disorders Walk Raised More Than $70,000 – Supporting Crucial Funds for GLHF Programs and Services
GLHF News
This year’s Unite for Bleeding Disorders Walk was a great success! As a community we raised $70,400 and we couldn’t have done…

Ask a Social Worker: Can Someone with a Bleeding Disorder Join the Military?
Health and Well Being, Living with a Bleeding Disorder
Learn the steps you need to take if you’re interested in serving your country. To ask a social worker, email askasocialworker@bleeding.org. Learn More….

Talking to Teens and Young Adults with Bleeding Disorders About Safer Sex
Health and Well Being, Living with a Bleeding Disorder
Learn why and how you should have these tough conversations. Learn More Source: National Bleeding Disorders Foundation, October 2024

How Parents of Kids with Bleeding Disorders Can Avoid Burnout
Health and Well Being, Living with a Bleeding Disorder
Planning ahead and safeguarding your own health – physical and mental – can help keep your responsibilities from overwhelming you. Read More….

Critical Policy Updates: Medicaid Changes, ACA Credits, and More
Advocacy & Legislation, Health and Well Being, Industry News & Research
Dive into NBDF’s August 2024 Government Relations Update for essential information on Medicaid unwinding, ACA premium tax credits, NIH reform, and state-level…

Product Update from NovoNordisk
Industry News & Research
A manufacturing deviation at NovoNordisk’s Danish facility has led to potential underfilling of vials for NovoSeven©, NovoEight©, and Esperoct© – crucial treatments…

Beyond Band-Aids: The Evolution of Bleeding Disorders Treatment
Health and Well Being, Living with a Bleeding Disorder
At the National Bleeding Disorders Foundation’s Conference this past summer, Dr. Karen Zimowski highlighted the latest personalized treatments for inherited bleeding disorders,…