News
Casebia Presents Dual Approach to Gene Therapy
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Cambridge, Massachusetts-based Casebia Therapeutics recently presented new research on a novel therapy being developed for patients with hemophilia A. Casebia Therapeutics is…
Sanofi Presents Final Trial Data for rFVIII Candidate
Industry News & Research
Sanofi Genzyme reported positive data from their recently completed phase 1/2 EXTEN-A study of their investigational factor replacement product for hemophilia A….
BioMarin to Submit Marketing Applications to FDA and EMA
Industry News & Research
BioMarin Pharmaceutical recently announced that they plan to submit marketing applications to both the European Medicines Agency (EMA) and the U.S. Food…
uniQure Announces New Gene Therapy Trial Data
Industry News & Research
uniQure recently announced updated data related to a phase IIb clinical study of AMT-061, the company’s investigational gene therapy candidate for patients…
Good News! @GovEvers Signs Bipartisan #steptherapy Legislation into Law!
Advocacy & Legislation
Great Lakes Hemophilia Foundation (GLHF) is excited to announce that Governor Evers signed the WI Step Therapy bill on July 9. We…
Genentech Announces New Data from Hemlibra® Clinical Trial Program
Industry News & Research
Through a series of abstracts and oral presentations at the recent 2019 Congress of the International Society on Thrombosis and Haemostasis (ISTH),…
Octapharma Presents Final Data on Personalized Therapy with Nuwiq®
Industry News & Research
Octapharma recently announced new data on the benefits of their recombinant factor VIII therapy Nuwiq® in patients with hemophilia A. Nuwiq® is…
NHF Joins Organizations Urging Court to Protect ACA
Industry News & Research
Patient groups are urging the Fifth Circuit Court of Appeals to prioritize patient protections, including those for people with pre-existing conditions, when…
Sangamo and Pfizer Announce Interim Gene Therapy Findings
Industry News & Research
In an oral presentation at the XXVII Congress of the International Society on Thrombosis and Haemostasis (ISTH), Sangamo Therapeutics, Inc and Pfizer,…
Comparing Adherence and Physical Activity in Hemophilia A Patients
Industry News & Research
In a recently published study, a team of Italian investigators studied potential correlations between levels of physical activity and adherence to a…
NHF-McMasters Guidelines on ECRI
Industry News & Research
The ECRI Institute, an independent, nonprofit patient safety organization, has published the NHF-McMaster University Guideline on Care Models for Haemophilia Management in the…
Wisconsin Bleeding Disorders Conference Provides Opportunity to Learn, Connect and Build Relationships
GLHF News
“A major part of our experience in attending [the conference] has been the people we’ve met. It was a great opportunity to…
Children’s Storybooks Provide Insight and Education for Kids with Hemophilia
Living with a Bleeding Disorder
LA Kelley Communications has many books back in print that provide the bleeding disorders community with high quality educational materials. Their content…
Report Focuses on Two Cases of Sporadic CJD in the UK
Industry News & Research
Medscape Education recently launched a new activity, the focus of which is a report from the journal Emerging Infectious Diseases (EID) on surveillance as…
BioMarin Provides Trial Updates for Hemophilia A Gene Therapy
Industry News & Research
BioMarin recently announced clinical trial updates relevant to valoctocogene roxaparvovec (formerly known as BMN 270) its investigational gene therapy for the treatment…
NHF to Host Preconference Medical Symposium on Glanzmann’s Thrombasthenia
Industry News & Research
The National Hemophilia Foundation will hold the first annual Victor Grifols Roura Medical Preconference Symposium at its 71st Annual Bleeding Disorders Conference on…
ASC and Expression Therapeutics Collaborate on Hemophilia Gene Therapies
Industry News & Research
ASC Therapeutics recently announced that they have obtained an exclusive therapeutics license from Atlanta, GA-based Expression Therapeutics. ASC, a division of Applied…
Registration is Open for NHF’s 2019 Bleeding Disorders Conference
GLHF News
The National Hemophilia Foundation’s (NHF) 71st Bleeding Disorders Conference (BDC), a three-day educational experience that is designed to support the entire bleeding…
The 2019 Unite for Bleeding Disorders Walk is September 28. Start Forming Your Walk Team Today!
GLHF News
Every year, Wisconsin walkers team up with the National Hemophilia Foundation (NHF) and walkers from across the country to raise dollars and…
Thanks for Your Support Raising Funds and Awareness for the 2019 Red Tie Campaign!
GLHF News
Each and every day we are thankful for supporters and community members like you. Over the years you have provided your time…
2nd Annual Madison’s Best Bloody Draws Support and Awareness for the Bleeding Disorders Community
GLHF News
Building on the success of Milwaukee’s Best Bloody, which started seven years ago, GLHF decided to take our event to Madison in…
GLHF’s Spring Programs Are Well Underway. Learn More About What GLHF Programs Have to Offer You!
GLHF News
Camp Klotty Pine Registration is Now Open! GLHF works diligently to provide programs for people and families living with a bleeding disorder…
NHF Supports Senate Bill to Stop Spread of Short-Term Plans
Industry News & Research
NHF has applauded Senators Baldwin (D-WI) and Jones (D-AL) for introducing the No Junk Plans Act, which seeks to stop the spread of short-term health…
St. Jude/WFH to Bring Hemophilia B Gene Therapy Trials to Developing World
Industry News & Research
The St. Jude Children’s Research Hospital and the World Federation of Hemophilia (WFH) recently announced that they have entered into a unique…