News
Last Week’s Camp Klotty Pine Was Just What Camper’s Needed!
GLHF News
Last week, we had our first virtual Camp Klotty Pine experience – and the results were amazing! GLHF and camp staff provided…
Documentary Film, Bombardier Blood, Released Worldwide. Order Today!
GLHF News
The film, Bombardier Blood (@bombardierblood) had its worldwide release on August 18! The documentary of Chris Bombardier’s attempt to be the first…
Be a Part of Our Walk Community! Unite for Bleeding Disorders Walk is Going Virtual, September 26. Register Today!
GLHF News
This year, we invite you to join us for our first-ever Virtual Walk on Saturday, September 26! While we are disappointed that…
A New Study of Hemophilia Occurrence Finds Many More Cases in the United States
Industry News & Research
Hemophilia is an inherited bleeding disorder in which the blood does not clot properly due to a lack or decrease in a…
MASAC Encourages People with Bleeding Disorders to be Included in COVID-19 Vaccine Trials
COVID-19, Industry News & Research
Individuals with inherited and acquired bleeding disorders, including hemophilia have substantial deficits in coagulation, for which they receive a variety of protein…
New Online Space for Black/African Americans with Bleeding Disorders
Industry News & Research
In 2019, the National Hemophilia Foundation conducted a series of listening sessions and guided conversations with Black and African American members of…
Stimate Recall Update – CSL Behring & Ferring Pharmaceuticals Response to HFA-NHF Letter, Voluntary Recall Due to “Superpotency”
Advocacy & Legislation, Industry News & Research
Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…
HFA and NHF Respond to Stimate Drug Recall
Industry News & Research
On July 21, CSL Behring and Ferring Pharmaceuticals announced a recall of multiple lots of Stimate (desmopressin) in the United States and in other countries…
NHF Increases Financial Support of Chapters
COVID-19
The National Hemophilia Foundation has created a new grant program to support local bleeding disorders organizations in their efforts to provide financial…
Alex Borstein Brings Star Power to Raise Awareness of VWD
Industry News & Research
The National Hemophilia Foundation (NHF) and Takeda have teamed up to launch a series of PSAs and resources that hope to increase…
A New Path Forward in Research
Industry News & Research
At the National Hemophilia Foundation’s (NHF) Bleeding Disorders Conference, held virtually this year, NHF president and CEO Leonard Valentino, MD, asked each…
Milwaukee Respods to the Coronavirus Outbreak: Latest Updates
COVID-19
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
Establishing a New Paradigm to Realize Health Equity in Hemophilia
Industry News & Research
A paper published in the journal Haemophilia, suggests that clinical expectations for people with hemophilia have remained relatively static for years, falling…
Irish Investigators Review Fetal Precautions and Delivery Mode in Congenital Bleeding Disorders
Industry News & Research
It is well established that the clinical management of pregnant women with congenital bleeding disorders (CBDs) is challenging, as healthcare providers, including…
CARES Act Funding Announcement and MCTS Mask Guidelines
COVID-19
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
COVID-19 and VWF
COVID-19, Living with a Bleeding Disorder
Recently, there has been considerable interest in the role von Willebrand Factor (VWF) may play in the complications of COVID-19, the infection…
Stimate Recall: NHF and HFA Seek Answers
Advocacy & Legislation, Industry News & Research
Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…
NHF Medical Advisory: CSL Behring and Ferring Pharmaceuticals have announced a recall of lots of Stimate®
Industry News & Research
Ferring Pharmaceuticals Inc. is initiating a precautionary voluntary recall of all batches of Stimate® Nasal Spray (desmopressin acetate) 1.5 mg/mL. During testing…
Common Council approves mask mandate for City of Milwaukee
COVID-19
The Milwaukee Common Council voted Monday afternoon to approve a mandatory mask ordinance for the City of Milwaukee, in order to slow…
Anger Happens: Coping During COVID-19 – Listen to NHF’s Town Hall Webinar
COVID-19
New Data From Phase IIIb Study Reinforces Safety Profile of Genentech’s Hemlibra (emicizumab-kxwh) in People With Hemophilia A
Industry News & Research
Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), today announced results from the second interim analysis of the…
CDC Expands List of Those at Higher COVID-19 Risk
COVID-19
The CDC has added to their list of who is more at risk to developing serious cases of the coronavirus, including people…
“We Must Resist Confusing Re-opening With Returning to Normalcy”
COVID-19
Three major health organizations published a letter on July 6th urging Americans to wear masks in public. The American Medical Association, American Hospital…
Scientists Urge W.H.O. to Consider Airborne Transmission
COVID-19
239 scientists from more than 30 countries are calling for the World Health Organization to acknowledge that the coronavirus can spread in…