News

NHF’s Community Voices in Research Replaces MyBDC Program – A Message From Leonard Valentino, M.D.

Industry News & Research

Dear Community Members, The National Hemophilia Foundation wishes to inspire and partner with the community on their journeys to a cure and…

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GLHF Announces Winners of Multi-Media Art Contest!

GLHF News

To ring in World Hemophilia Day, GLHF gave community members two weeks to create and submit a piece of artwork for our…

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Take GLHF’s 3-Minute Survey!

GLHF News

Given our “new normal” — help us create new online opportunities that are helpful, informative, educational and fun for you by taking…

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GLHF Wants to Help Celebrate Your 2020 Graduate!

GLHF News

Do you have a loved one graduating from a university, high school, middle school or elementary school? Let us give them a…

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HFA: A Whole New World – Parenting In a Pandemic. A Series of Live Webinars for Parents Seeking Support.

COVID-19

Parenting is hard enough! How can parents navigate this “new normal” brought about by a pandemic? Join the Hemophilia Federation of America…

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UniQure Announces Highlights of Recent Progress

Industry News & Research

UniQure N.V., a gene therapy company advancing transformative therapies for patients with severe medical needs, reported recent progress across its business. “Despite…

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Pfizer and Biontech Dose First Participants In the COVID-19 Vaccine Development Program

Industry News & Research

Pfizer Inc. and BionTech SE announced the first participants have been dosed in the U.S. in the Phase 1/2 clinical trial for…

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Town Hall Webinar – Ask the Experts: Coping During COVID-19

COVID-19

Listen to NHF’s Townhall Meeting from May 1, 2020. Or, make suggestions about what you want to hear NHF discuss in one…

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Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients

Industry News & Research

Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

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NHF’s next Spanish Townhall COVID-19 webinar is May 19, 2020

COVID-19

NHF’s next Spanish Townhall COVID-19 Webinar is May 19, 2020. La Fundación Nacional de Hemofilia te invita para un seminario de web:…

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#GivingTuesdayNow! Thank You! We are Stronger Together!

COVID-19, GLHF News

Thank you for your generosity to GLHF on #GivingTuesdayNow!. Your support helps insure that we may offer the programs and services that make a difference for…

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Listen to NHF’s Townhall Webinar: Coping During COVID-19

COVID-19

May 5, 2020  

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Ignited Fundraising: Stories for People Hungry for Inspiration

GLHF News

Aren’t we all hungry for inspiration? Hungry for examples of how life might be a little better for someone else. That’s why…

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BDC 2020 Updates and Transition to Virtual

Industry News & Research

Dear Community Members, The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the…

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NHF’s Bleeding Disorders Conference is Fully Virtual: August 1-8, 2020!

GLHF News

The National Hemophilia Foundation’s (NHF) priority has always been the health and safety of the bleeding disorders community. As the COVID-19 pandemic…

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Health and Wellness Update #7 from Dr. Valentino

COVID-19

I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of…

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NHF/HFA Seek Feedback on Product Safety and Communication

Industry News & Research

The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary…

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Health and Exercise During COVID-19

COVID-19

Keeping kids active during the pandemic is important – and it helps them burn up all that excess energy! The United Federation…

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Mental Health

COVID-19

Source: NHF and the National Association of Mental Illness (NAMI) We are all experiencing stress and anxiety right now. NAMI, the National…

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CDC Adds to List of Symptoms to COVID-19

COVID-19

The Centers for Disease Control and Prevention have updated their list of symptoms for COVID-19, adding a sore throat and loss of…

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Advocacy Efforts During COVID-19

Advocacy & Legislation, COVID-19

While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…

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NHF Webinar: As the Experts: Coping During COVID-19, Friday, May 1 at 5 pm (6 pm ET)

COVID-19

Do you have questions about COVID-19? Join us on Friday, May 1st at 3pm ET for our townhall webinar, Ask the Experts: Coping…

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Help Us Continue Providing Support to Those Depending on Us! Donate on #GivingTuesday, May 5.

GLHF News

The health and safety of this community are always at the center of our work. COVID-19 won’t prevent GLHF from serving our friends…

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Genentech Notice on COVID-19, Hemlibra®, and Laboratory Assays

Industry News & Research

Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain laboratory assays used to…

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