News
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COVID-19: Latest News and Updates
COVID-19
What You May Feel After Getting the COVID-19 Vaccine It’s important that people understand that there may be some side effects after…
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NHF Offers Weekly Webinars Beginning Jan. 13 – What You Can Expect From NHF in the Upcoming Year
Industry News & Research
The National Hemophilia Foundation (NHF) will be hosting a series of weekly webinars every Wednesday at 1 p.m. CST (2 p.m. ET) beginning…
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Let’s Talk: Mental Health – Join us Sunday, January 31 at 11 a.m.! Register Today!
GLHF News, Health and Well Being
Join GLHF for a special screening of Let’s Talk: Mental Health, followed by a live talk back with Believe Limited’s Co-Founder and CEO, Patrick…
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Navigating the Pandemic with a Bleeding Disorder
COVID-19, Living with a Bleeding Disorder
Learn how three young adults with bleeding disorders are living life during the COVID-19 pandemic. Read more hemaware.org
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Women Fighting for Change
Health and Well Being, Living with a Bleeding Disorder
Six women share their own stories of overcoming challenges and offer their best advice in hopes of educating, inspiring and uplifting other…
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Marijuana and CBD for Chronic Pain: What You Need to Know
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org
Video: Dr. Jill Johnsen on My Life, Our Future Research Repository
Health and Well Being, Living with a Bleeding Disorder
In this video, Dr. Jill Johnsen of the University of Washington discusses how the My Life, Our Future Research Repository is helping her…
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COVID-19: Latest News & Updates
COVID-19, Health and Well Being, Industry News & Research
Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…
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GLHF Needs Your Support! Donate Today!
GLHF News
Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…
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COVID-19: Latest News and Updates
COVID-19
How to Be Safe This Holiday Season The Center for Disease Control and Prevention (CDC) is urging people to alter holiday plans to…
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Roundup of Drug Pricing Executive Orders
Advocacy & Legislation, Industry News & Research
President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….
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CDC Recommends Healthcare Workers, Nursing Homes First in Line for COVID-19 Vaccine
COVID-19, Industry News & Research
The CDC is recommending that healthcare workers and residents of nursing homes be the first to receive the new coronavirus vaccines. The…
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Comments From NHF’s Dr. Leonard Valentino About the COVID-19 Vaccine
COVID-19, Industry News & Research
The makers of two coronavirus vaccines, Pfizer and its German partner BioNTech, and Massachusetts-based Moderna, have applied to the FDA for emergency…
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COVID-19: Latest News and Updates
COVID-19, Industry News & Research
Leaders of Wisconsin’s Two Medical Schools Urge Everyone to Take Action During the COVID-19 Outbreak. Med School Leaders Urge Public to Stay…
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From the CDC: Mental Health and Coping During COVID-19 – Tools and Resources
COVID-19, Health and Well Being
Pandemics can be stressful The coronavirus disease 2019 (COVID-19) pandemic may be stressful for people. Fear and anxiety about a new disease…
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Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…
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Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events
Industry News & Research
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF). The WFH, EHC…
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Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law
Advocacy & Legislation, Industry News & Research
Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…
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Access the World’s Largest Hemophilia Repository
Industry News & Research
Note: The My Life, Our Future Research Repository includes the largest bank of genomic and phenotypic data about people with hemophilia. While…
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Webinar Creates Opportunity to Learn More About Rare Platelet and Bleeding Disorders!
Industry News & Research
Note: This webinar explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. The National Hemophilia Foundation…
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Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab
Industry News & Research
Note: Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors. Pfizer recently announced…
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COVID-19 and the Growing Mental Health Crisis in Milwaukee
COVID-19, Health and Well Being
The COVID-19 pandemic may be worsening an already growing mental health crisis in Milwaukee County. In the county, crisis calls have been…
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Milwaukee Area Physicians Appeal to the Community
COVID-19, Industry News & Research
Our local physicians are here to help when we need it most. Now they’re asking us to do our part in preventing…
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COVID-19: Latest News and Updates
COVID-19
With COVID-19 cases and deaths at an all time high, we must stay safe and continue to protect ourselves and others in…