News

Let’s Talk: Mental Health – Join us Sunday, January 31 at 11 a.m.! Register Today!

GLHF News, Health and Well Being

Join GLHF for a special screening of Let’s Talk: Mental Health, followed by a live talk back with Believe Limited’s Co-Founder and CEO, Patrick…

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Navigating the Pandemic with a Bleeding Disorder

COVID-19, Living with a Bleeding Disorder

Learn how three young adults with bleeding disorders are living life during the COVID-19 pandemic. Read more hemaware.org

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Women Fighting for Change

Health and Well Being, Living with a Bleeding Disorder

Six women share their own stories of overcoming challenges and offer their best advice in hopes of educating, inspiring and uplifting other…

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Marijuana and CBD for Chronic Pain: What You Need to Know

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org

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Video: Dr. Jill Johnsen on My Life, Our Future Research Repository

Health and Well Being, Living with a Bleeding Disorder

In this video, Dr. Jill Johnsen of the University of Washington discusses how the My Life, Our Future Research Repository is helping her…

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COVID-19: Latest News & Updates

COVID-19, Health and Well Being, Industry News & Research

Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…

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GLHF Needs Your Support! Donate Today!

GLHF News

Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…

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COVID-19: Latest News and Updates

COVID-19

How to Be Safe This Holiday Season The Center for Disease Control and Prevention (CDC) is urging people to alter holiday plans to…

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Roundup of Drug Pricing Executive Orders

Advocacy & Legislation, Industry News & Research

President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….

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CDC Recommends Healthcare Workers, Nursing Homes First in Line for COVID-19 Vaccine

COVID-19, Industry News & Research

The CDC is recommending that healthcare workers and residents of nursing homes be the first to receive the new coronavirus vaccines. The…

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Comments From NHF’s Dr. Leonard Valentino About the COVID-19 Vaccine

COVID-19, Industry News & Research

The makers of two coronavirus vaccines, Pfizer and its German partner BioNTech, and Massachusetts-based Moderna, have applied to the FDA for emergency…

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COVID-19: Latest News and Updates

COVID-19, Industry News & Research

Leaders of Wisconsin’s Two Medical Schools Urge Everyone to Take Action During the COVID-19 Outbreak. Med School Leaders Urge Public to Stay…

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From the CDC: Mental Health and Coping During COVID-19 – Tools and Resources

COVID-19, Health and Well Being

Pandemics can be stressful The coronavirus disease 2019 (COVID-19) pandemic may be stressful for people. Fear and anxiety about a new disease…

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Patient Advocacy Organizations Release Blueprint to Protect Access to Care

Advocacy & Legislation, Industry News & Research

Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…

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Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events

Industry News & Research

A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF). The WFH, EHC…

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Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law

Advocacy & Legislation, Industry News & Research

Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…

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Access the World’s Largest Hemophilia Repository

Industry News & Research

Note: The My Life, Our Future Research Repository includes the largest bank of genomic and phenotypic data about people with hemophilia. While…

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Webinar Creates Opportunity to Learn More About Rare Platelet and Bleeding Disorders!

Industry News & Research

Note: This webinar explores the diagnosis and clinical management of patients with rare inherited bleeding and platelet disorders. The National Hemophilia Foundation…

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Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab

Industry News & Research

Note: Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors. Pfizer recently announced…

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COVID-19 and the Growing Mental Health Crisis in Milwaukee

COVID-19, Health and Well Being

The COVID-19 pandemic may be worsening an already growing mental health crisis in Milwaukee County. In the county, crisis calls have been…

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Milwaukee Area Physicians Appeal to the Community

COVID-19, Industry News & Research

Our local physicians are here to help when we need it most. Now they’re asking us to do our part in preventing…

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COVID-19: Latest News and Updates

COVID-19

With COVID-19 cases and deaths at an all time high, we must stay safe and continue to protect ourselves and others in…

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uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B

Industry News & Research

uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…

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Together We Can! #GivingTuesday is December 1. Donate Today!

GLHF News

In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over the…

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