News

Shared decision making (SDM) in hemophilia embraces a “patient-as-partner” style for a truly reciprocal relationship. Learn more about both the process and…

Dr. Valentino: “Today’s decision protects members of the inheritable blood disorder community, as well as others” Today, the United States Supreme Court…

Read about some of the primary considerations relevant to investigational hemophilia gene therapies that employ adeno-associated viral (AAV) vectors. Source: National Hemophilia…

by: Sen. André Jacque and Rep. Paul Tittl | April 17, 2021 The health and economic impacts of the ongoing pandemic have…

The 2021 Unite for Bleeding Disorders Walk is just three months away! We are so excited to see all of you this…

We are sad to announce that due to the current situation in Madison, we are cancelling this year’s Madison’s Best Bloody.  Restaurants…

Join us, August 9 – 13, 2021, as we head back to Camp Klotty Pine for a very special hybrid version of…

NHF’s Annual Bleeding Disorders Conference (BDC) is their signature event and highlights their commitment to education. Leading community members and experts on…

The verdict is an important and significant step forward in the fight against racism, and the violence that it brings to our…

The COVID-19 Task Force of the World Federation of Hemophilia (WFH) has released a statement on risks of acquiring COVID-19 disease and…

These data were presented by BioMarin at the American Society of Gene & Cell Therapy Virtual Meeting, which was held May 11-14,…

The recent American Society of Gene & Cell Therapy (ASGCT) Virtual Meeting featured updates from the phase III HOPE-B clinical trial of…

June 3, 2021 – Statement from Nathan Schaefer, Vice President of Public Policy, National Hemophilia Foundation This June marks a painful anniversary…

This June learn what your joints want, what they need, and how to help them keep you going. Read more. Source: National…

Time for an important reminder – “Scholarship season” is now in full swing! NHF’s information service, HANDI, compiles an annual online list…

Many patients across the country – including those in vulnerable and underserved communities – are experiencing challenges in affording and accessing necessary…

In this video, Robert Sidonio Jr., M.D., discusses the new von Willebrand Disease (VWD) Guidelines and the most significant changes that healthcare…

We are marking women’s health month with a series of webinars that focus on critical issues for women with bleeding disorders. Our…

COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…

This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes….

Neuraxial anesthesia, a focus of this study, refers to the administration of local anesthetics and analgesia to targeted locations in the spinal…

The commercialization and licensing agreement between the two companies went into effect on May 6th. May 7, 2021 uniQure recently announced that…

Kevin Mills, PhD has joined the National Hemophilia Foundation as chief scientific officer. A graduate of University of Colorado Boulder, MIT, and…

Late last year the FDA put a clinical hold on the program in response to a single trial participant who was diagnosed…