News
NHF Applauds Congressional Enactment of The Hemophilia SNF Access Act
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act. The National…
State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied? What should you do if you’ve already…
National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”
Advocacy & Legislation, Industry News & Research
New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…
CDC Public Health Webinar on NHF Guidelines
Industry News & Research
Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…
NHF Responds to STIMATE® Production Update
Industry News & Research
CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed…
Prophylaxis Indication Restored for BeneFIX®
Industry News & Research
Prophylaxis Indication Restored for BeneFIX® Sep 14, 2021 In February 2021, the U.S. Food and Drug Administration (FDA) partially rescinded a supplemental Biologics…
Vector Biology and Hemophilia Gene Therapy the Focus of Review
Industry News & Research
A new review article, The Intersection of Vector Biology, Gene Therapy and Hemophilia, was published recently in the journal Research Practice in…
Read New COVID-19 FAQs
COVID-19
NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…
Medicaid 101: Why Medicaid is Important to the Bleeding Disorders Community
Advocacy & Legislation, Industry News & Research
With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…
Learn More About the Latest in Gene Therapy: FAQ’s, Clinical Trials and Scientific Research
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation (NHF) heard a lot of questions from the community about gene therapy clinical trials for hemophilia at its…
Cardinal Health announces a voluntary recall for select Monoject™ Flush Prefilled Saline Syringes
Industry News & Research
News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be…
Camp Klotty Pine Focused on Health and Friendships – And It Was Just What Camper’s Needed!
GLHF News
At Camp Klotty Pine, GLHF helps kids become more independent, learn about their bleeding disorder and take control of their care. Camp is…
New Nursing Guidelines Available on Administration of Bleeding Disorders Therapies
Industry News & Research
These guidelines are readily accessible in PDF format on the NHF website. NHF is pleased to announce that two new resources have…
Living with Bleeding Disorders in the Time of COVID
COVID-19, Living with a Bleeding Disorder
by: Sari Harrar Pandemic stories of strength, perseverance and resiliency from three members of the bleeding disorders community. The COVID-19 pandemic has…
TARPA-H Overview
Industry News & Research
President Biden has called for the creation of a new $6.5 billion research institute, the Advanced Research Projects Agency for Health (ARPA-H),…
Four Decades of HIV
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…
COVID-19: Health and Wellness Update from NHF’s Dr. Leonard Valentino
COVID-19, Industry News & Research
The cautious optimism of May and June with regards to emerging from the pandemic has shifted as we are witnessing a resurgence…
Spark Provides Trial Updates for Investigational Gene Therapy SPK-8011
Industry News & Research
SPK-8011 is Spark Therapeutics’ investigational gene therapy candidate for hemophilia A. Spark Therapeutics recently announced updates from an ongoing phase 1/2 clinical…
New Descriptive Study Looks at Bleeding Disorder Camps
Industry News & Research
The study included a number of notable findings relevant to the participation of healthcare providers in bleeding disorder camps (BDCs), adherence to…
NHF Responds to New CMS Guidance
Industry News & Research
New guidance from the U.S. Department of Health and Human Services encourages states to educate eligible immigrants about Medicaid coverage. In a…
BioMarin Hemophilia A Clinical Development Program: An Update for the Hemophilia Community
Industry News & Research
BioMarin is pleased to update the community regarding our ongoing gene therapy clinical trial program in hemophilia A. BioMarin’s investigational gene therapy…
Review Your Health Coverage: Recent Federal Law Lowers Costs, Opens Up New Options
Advocacy & Legislation, Industry News & Research
The American Rescue Plan (ARP), signed into law on March 11, 2021, provides new opportunities to get health insurance coverage, and/or to…
New Data for Genentech’s Hemlibra (emicizumab-kxwh) Reinforce Safety Profile in People With Hemophilia A
Industry News & Research
Final analysis from the Phase IIIb STASEY study, including data from 193 people with hemophilia A, further support the benefit/risk profile of…
FDA Places Clinical Hold on Sigilon’s Investigational Hemophilia Therapy
Industry News & Research
Sigilon’s cell-based therapy is designed to carry significant amounts of synthetic DNA material to elicit the production of factor VIII in individuals…