News

Herd Immunity Isn’t Going to Happen

COVID-19

Scientists – including Dr. Fauci – are estimating that around 90% of the US population would need to be either recovered from…

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COVID-19 Update: Vaccinations

COVID-19

CDC COVID Data Tracker: To date, there have been 27,879,604 cases reported in the US resulting in nearly 500,000 deaths of Americans!…

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NHF: Vaccination and COVID-19 Update

COVID-19

by: Dr. Leonard Valentino, Chief Executive Officer, National Hemophilia Foundation So, where are we with vaccines for COVID-19? Well, let’s first start…

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Should People with Hemophilia Get the COVID-19 Vaccine?

COVID-19

Answers for the bleeding disorders community to frequently asked questions about the vaccine. Read more. Source: National Hemophilia Foundation, HemaWare.

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Infusing the World with Knowledge

Advocacy & Legislation

Learn about the power of advocacy in the bleeding disorders community. Read more. Source: National Hemophilia Foundation, HemaWare.  

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Video: The State of Copay Accumulator Adjustment

Industry News & Research

In this video, Kollet Koulianos from NHF’s Payer Relations team explains the significance of copay Accumulator Adjustment programs. Watch now. Source: National…

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19 Recommendations for Better Diagnosis and Treatment of VWD

Industry News & Research

The guidelines were developed by panels of 32 individuals, including hematologists, people living with VWD, and scientists with expertise in guideline development…

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BioMarin Announces Positive Phase 3 Study Data for Valoctocogene Roxaparvovec

Industry News & Research

The phase 3 trial currently includes 134 participants with hemophilia A, all of whom have received a single dose of the gene…

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as i see it: Patient Education Through Social Media in the COVID Era

COVID-19, Health and Well Being, Living with a Bleeding Disorder

by: Laurence Woollard, Hemophilia Influencer © PEN (Parent Empowerment Newsletter), LA Kelley Communications, Inc. The unparalleled, seismic societal shifts over the past…

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Video: COVID-19: Mitigation, Treatment and Vaccines

COVID-19, Health and Well Being

In this video, Dr. Phillip Jacobson of Rush University discusses vaccine administration and distribution, community risks, and vaccine delivery mechanisms. Watch Video.

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COVID-19 Vaccines and Bleeding Disorders: FAQs and Guidance

COVID-19, Health and Well Being, Living with a Bleeding Disorder

COVID-19 Vaccines and Bleeding Disorders: FAQs These FAQs were created in anticipation of questions or concerns individuals with bleeding disorders may have…

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Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go!

GLHF News

Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go! Keep an eye on your email and social…

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President Trump Signs FY21 Federal Funding Bill Including Hemophilia SNF Access Act and Funding for Bleeding Disorders Programs

Advocacy & Legislation, COVID-19, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…

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COVID-19: Latest News and Updates

COVID-19

What You May Feel After Getting the COVID-19 Vaccine It’s important that people understand that there may be some side effects after…

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NHF Offers Weekly Webinars Beginning Jan. 13 – What You Can Expect From NHF in the Upcoming Year

Industry News & Research

The National Hemophilia Foundation (NHF) will be hosting a series of weekly webinars every Wednesday at 1 p.m. CST (2 p.m. ET) beginning…

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Let’s Talk: Mental Health – Join us Sunday, January 31 at 11 a.m.! Register Today!

GLHF News, Health and Well Being

Join GLHF for a special screening of Let’s Talk: Mental Health, followed by a live talk back with Believe Limited’s Co-Founder and CEO, Patrick…

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Navigating the Pandemic with a Bleeding Disorder

COVID-19, Living with a Bleeding Disorder

Learn how three young adults with bleeding disorders are living life during the COVID-19 pandemic. Read more hemaware.org

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Women Fighting for Change

Health and Well Being, Living with a Bleeding Disorder

Six women share their own stories of overcoming challenges and offer their best advice in hopes of educating, inspiring and uplifting other…

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Marijuana and CBD for Chronic Pain: What You Need to Know

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org

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Video: Dr. Jill Johnsen on My Life, Our Future Research Repository

Health and Well Being, Living with a Bleeding Disorder

In this video, Dr. Jill Johnsen of the University of Washington discusses how the My Life, Our Future Research Repository is helping her…

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COVID-19: Latest News & Updates

COVID-19, Health and Well Being, Industry News & Research

Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…

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GLHF Needs Your Support! Donate Today!

GLHF News

Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…

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COVID-19: Latest News and Updates

COVID-19

How to Be Safe This Holiday Season The Center for Disease Control and Prevention (CDC) is urging people to alter holiday plans to…

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Roundup of Drug Pricing Executive Orders

Advocacy & Legislation, Industry News & Research

President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….

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