Ask a Social Worker: How Can I Be an Advocate for the Hemophilia Community?

Advice for people who are looking to help raise awareness.

by: Bobby Korathu, MSSA, LCSW. Korathu is a social worker at the Cardeza Foundation Hemophilia and Thrombosis Center in Philadelphia and a member of the Social Work Working Group.

Ask a Social Worker is a monthly column featuring questions from the community and answers from members of NHF’s Social Work Working Group. If you have questions for our social workers, send them to

Dear Bobby:

How can I begin raising more awareness for hemophilia? I want to be an advocate! 

Engaging in advocacy is important in bringing about change that can help people living with rare diseases. Patients and caregivers can begin by using a collective voice to call attention to your narratives and to become an agent for change. Disease awareness efforts can help educate the public and also make an impact on delivery of services. Furthermore, involvement through the legislative process can bring forth dramatic changes in policy across a broad spectrum of issues, including patient choice, health disparities and access to services. Taking on the task of being heard can sometimes feel like a tough fight. Here are some tips that can help you on your way:

 Source: HEMAWARE, National Hemophilia Foundation

Back to all News