News

Dr. Glenn Pierce reflects on the passing of former NHF CEO, Val Bias. Val and I first got to know one another…

Former CEO spent decades inspiring the inheritable blood disorders community. NHF is deeply saddened to announce that former NHF CEO and community…

Here’s what we know about these ultra-rare platelet disorders. Most bleeding disorders are relatively rare. Even the most common bleeding disorder, von…

A roundup of films, TV shows and plays that have featured hemophilia and other bleeding disorders. Having a rare disease like hemophilia…

In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over nearly…

A recent op-ed in the Milwaukee Journal Sentinel by Jim Turk, titled Why Wisconsin Lawmakers Need to Protect the Value of Copay…

“I walk so that I can be around other people who are like me,” said one young Unite for Bleeding Disorders Walk…

At Camp Klotty Pine, GLHF helps kids become more independent, learn about their bleeding disorder and take control of their care. Camp is…

The 2021 Unite for Bleeding Disorders Walk is just three months away! We are so excited to see all of you this…

We are sad to announce that due to the current situation in Madison, we are cancelling this year’s Madison’s Best Bloody.  Restaurants…

Join us, August 9 – 13, 2021, as we head back to Camp Klotty Pine for a very special hybrid version of…

Hemophilia Treatment Centers (HTCs) across the United States are participating in the 2021 National HTC Patient Satisfaction Survey! If you, or someone…

We have been limited in our ability to meet face-to-face over the last year, but we want to continue to stay connected…

Phone2Action is a new software system that allows GLHF to connect with you regarding our state advocacy work. It gives us the…

This year, in celebration of World Hemophilia Day, Saturday, April 17, we’re challenging the bleeding disorders community to a friendly game of…

Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go! Keep an eye on your email and social…

Join GLHF for a special screening of Let’s Talk: Mental Health, followed by a live talk back with Believe Limited’s Co-Founder and CEO, Patrick…

Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…

In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over the…

The federally funded hemophilia treatment center (HTC) network, with its model of a multidisciplinary care team (MDT) and regional infrastructure, has proven…

In a year with so many “new normals” and unique challenges, the community came together on September 26 to raise $48,225!  In our…

Remember a few simple recommendations to stay safe during the pandemic and a possible second wave of infection: practice good hygiene by…

Each year, NHF recognizes Chapters achieving high standards and demonstrating best practices through its Chapter Review Process. Chapters achieving Chapter of Excellence…

Last week, we had our first virtual Camp Klotty Pine experience – and the results were amazing! GLHF and camp staff provided…