GLHF is honored to announce that we have secured another five-year cooperative agreement with the Health Resources Services Administration (HRSA) to continue our work and role as the Regional Core Center for the Northern States Regional Hemophilia Network (NSRHN).
As grantee, GLHF manages, monitors, and supports the regional infrastructure of the Northern States Regional Hemophilia Network composed of 13 HTCs in five states: Wisconsin, Illinois, Minnesota, North Dakota and South Dakota. The overall goal of the project is to promote comprehensive, evidence-based care for people with bleeding disorders and their families. Since 1982, Great Lakes Hemophilia Foundation (GLHF) has served as the Regional Core Center.
We are proud to work with:
- Northwestern University- Chicago, IL
- Ann & Robert H. Lurie Children’s Hospital- Chicago, IL
- Bleeding and Clotting Disorders Institute- Peoria, IL
- Children’s Hospitals and Clinics of Minnesota- Minneapolis, MN
- M Health Fairview- Minneapolis, MN
- Mayo Clinic- Rochester, MN
- Sanford Medical Center- Fargo, ND
- Hemophilia Outreach Center- Green Bay, WI
- Gundersen Lutheran- La Crosse, WI
- University of Wisconsin Hospitals and Clinics- Madison, WI
- Rush University Medical Center- Chicago, IL
- Sanford Children’s Specialty Clinic- Sioux Falls, SD
- Versiti Comprehensive Center for Bleeding Disorders- Milwaukee, WI
HRSA funds support the comprehensive care clinic model employed by all Hemophilia Treatment Centers (HTCs) to treat patients with bleeding disorders. In addition, this grant has historically focused on reporting on measures like quality improvement, patient transition, Healthy People 2020, support for regional collaboration and technical assistance to HTCs. The upcoming five-year cooperative agreement will also support an enhanced focus on health equity in our patient population as well as a national quality improvement project with hemophilia treatment centers (HTCs) across the nation.
GLHF and the NSRHN aim to work with regional leadership across the country, our federal partners and regional HTCs to contribute to a national QI project on transition as well as provide mechanisms to support health equity with an emphasis on our underserved patients.