News
Calling all Athletes! The Gettin’ in the Game Junior National Championship is in Henderson, NV Sept. 20-22.
GLHF News, Living with a Bleeding Disorder
CSL Behring will host the Gettin’ in the Game Junior National Championship (JNC) in Henderson, NV on September 20 – 22, 2024. Participants will…
In Loving Memory of Neil Frick, NBDF’s Senior Vice President for Medical Programs and Information
GLHF News, Industry News & Research
From the National Bleeding Disorders Foundation’s President and CEO, Phil M. Gattone, M.Ed. It is with profound sadness that we share the…
Product Update from Novo
Industry News & Research
Novo Nordisk sent a letter to NBDF sharing more information about the current product issue related to NovoSeven® RT and Novoeight ®….
Free Educational Videos on the use of Novel Non-Factor Therapies
Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is pleased to announce the availability of a series of educational videos on the use of…
Learn About Clinical Issues in Women with Bleeding Disorders
Industry News & Research, Women with Bleeding Disorders
The National Bleeding Disorders Foundation (NBDF) is pleased to announce a series of educational videos on clinical issues in women, girls, and…
Study Provides New Data on Neurodevelopment in Younger Hemophilia Population
Industry News & Research
It has been several decades since the publishing of large U.S. studies of neurodevelopment and other cognitive functions in children and young…
Activity Explores Non-Factor Replacement Therapy in Hemophilia Care
Industry News & Research, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is excited to announce a new accredited educational opportunity for healthcare providers. This live/virtual program will…
Own Your Path
Living with a Bleeding Disorder
Take charge of your health care journey with the Own Your Path program! If you’re an adult on prophylaxis treatment for VWD…
New Study Suggests Prophylactic Treatment May Reduce “Brain Bleed” Risk for People with Hemophilia A
Industry News & Research
Results of a new study published in the Journal of Blood Medicine (JBM), indicate that people with hemophilia A (HA) who have…
Discover the New Steps for Living Website Coming Soon!
Health and Well Being, Living with a Bleeding Disorder
The National Bleeding Disorders Foundation (NBDF) is thrilled to announce the upcoming launch of the revamped Steps for Living website, your ultimate…
It’s Camp Season! Camp Klotty Pine is August 4-9! Register Today!
GLHF News
Camp Klotty Pine is a place of encouragement, mentoring, and education. It is a space that allows everyone to be uniquely themselves, breaking…
Huge Win for Advocacy Groups as People with Bleeding Disorders See Increased Equity and Access to Behavioral Health Facilities
Advocacy & Legislation, Health and Well Being
The Bleeding Disorders Substance Use and Mental Health Access Coalition, National Bleeding Disorder Foundation (NBDF), and Hemophilia Federation of America (HFA), are…
Bleeding Disorders Substance Use and Mental Health Access Coalition
Health and Well Being, Living with a Bleeding Disorder, Pain Management
The BD SUMHAC was created from tragedy. A young man with a bleeding disorder facing a substance use disorder was repeatedly denied…
What is “Health Equity”?
Advocacy & Legislation, Living with a Bleeding Disorder
Unfortunately, health inequities are a sad reality in the United States health care system. Together with the inheritable blood and bleeding disorders…
Gene Therapy Candidates Face ‘Once in a Lifetime’ Choice
Gene Therapy, Health and Well Being, Living with a Bleeding Disorder
People with hemophilia considering gene therapy are wrestling with concerns including the cost of treatment and variations in results. You only get…
Get to Know Bleeding Severity Levels for Hemophilia
Living with a Bleeding Disorder
Learn how mild, moderate, or severe hemophilia influences lifestyle choices and medical care. Your hemophilia doesn’t define who you are. But it…
New Study Reveals That Age Affects von Willebrand Disease Diagnosis
Health and Well Being, Living with a Bleeding Disorder, Men with Bleeding Disorders, Women with Bleeding Disorders
The findings could help further define VWD and address current challenges in treatment. The age that a person is first tested for…
How to Keep Summer Activities Safe for Kids with Bleeding Disorders
Health and Well Being, Living with a Bleeding Disorder
Learn why a popular piece of backyard play equipment is riskier than you might think. It’s summertime, and kids are out of…
First Sickle Cell Patient to Receive Gene Therapy Featured in NYT
Gene Therapy, Industry News & Research, Living with a Bleeding Disorder
Sickle cell disease is linked to an abnormality in the hemoglobin protein, which normally helps carry oxygen throughout the body via red…
FDA Approval Includes Full ALTUVIIIO™ Pediatric Trial Results
Industry News & Research
The U.S. Food and Drug Administration (FDA) has approved updated prescribing information for ALTUVIIIO™ (Sanofi) to include the full results of the phase…
A New Review on Primary Immune Thrombocytopenia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
A new review published in the European Journal of Haematology describes the challenges inherent in managing both bleeding and excessive clot risk…
May is Mental Health Awareness Month
Industry News & Research, Living with a Bleeding Disorder
This month HANDI offers resources that support mental well-being and connect the bleeding disorders community with timely, practical, and readily accessible information.
NBDF Supports WFH Statement on ISTH Hemophilia Treatment Guidelines
Industry News & Research, Living with a Bleeding Disorder
The NBDF concurs with WFH’s assessment that the proposed guidelines risk setting hemophilia treatment back 30 years. The National Bleeding Disorders Foundation (NBDF) echoes…
P2C Announces Partnership to Support Development for Sickle Cell Disease
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Pathway to Cures (P2C) announced its collaborative partnership with Afimmune to support the development of Epeleuton as a potential therapeutic for Sickle Cell Disease…