News
What’s the Best Way to Learn About Your Bleeding Disorder?
Living with a Bleeding Disorder
by: Laurie Kelley Our world is biased toward visual information and learning, because humans are mainly visual beings. From advertising to teaching…
NHF and Partners Announce Innovative Infusion Logging Tool
Industry News & Research
The National Hemophilia Foundation (NHF) has announced a new two-year pilot program that aims to improve the efficacy of patient infusion logs…
Online Health Information: Is It Reliable?
Industry News & Research
by: Paul Clement It’s an exciting time for people with inhibitors. In addition to bypassing agents, new products may prevent or control…
PT Study Focuses on Comprehensive Survey of Physical Activities Risks for 101 Activities
Industry News & Research
Physical therapists (PTs) at hemophilia treatment centers (HTCs) often consult with hemophilia patients about engaging in new physical activities like exercise, team/individual…
Catalyst Reports Positive Trial Updates for Subcutaneous Therapy for Hemophilia
Industry News & Research
Catalyst Biosciences, Inc recently reported updated interim data from their phase 2/3, multinational clinical study of marzeptacog alfa (MarzAA), a subcutaneous (administered…
GLHF Hosts Event to Help Young Adults Own Their Future
GLHF News
Part of GLHF’s mission is to educate the bleeding disorders community about opportunities and information that can benefit them and impact their…
Camp Klotty Pine Celebrates Five Successful Years of Service to the Bleeding Disorders Community
GLHF News
This past January, GLHF hosted more than 40 children, families, Hemophilia Treatment Center staff and donors to celebrate Camp Klotty Pine’s five…
Own Your Future: College, Career and Independence Workshop
GLHF News
Discover the resources and information you need to take advantage of the educational, career and scholarship opportunities that are available to the…
Takeda Completes Acquisition of Shire
Industry News & Research
Takeda Pharmaceutical Company Limited recently announced the completion of its acquisition of Shire plc on January 8, 2019. The acquisition was approved…
5 Myths and Facts About von Willebrand Disease (VWD)
Living with a Bleeding Disorder
The most prevalent bleeding disorder, von Willebrand disease (VWD), affects more than 3 million Americans, about 1% of the population. And, its…
Be a Part of Making Tough Decisions Now
Living with a Bleeding Disorder
by: Steve Place I have lived for 64 years with mild hemophilia and have voluminous experience, from which I came to my…
Sangamo Announces First Patient Treated in Hemophilia B Gene Therapy Trial
Industry News & Research
Sangamo Therapeutics, Inc. recently announced it has treated the first patient in a Phase 1/2 clinical trial evaluating SB-FIX, the company’s investigational…
NHF Statement on Texas vs. United States Lawsuit
Advocacy & Legislation
On December 14, 2018, a Texas judge ruled in Texas vs. United States, a case challenging the constitutionality of the Affordable Care…
To Play or Not to Play?
Living with a Bleeding Disorder
by: Derek Markley As a father, I will be the first to say that learning about hemophilia leads to a number of…
Copay Accumulator Adjustments: What Are They and How They Can Affect You
Advocacy & Legislation
In the age of high deductibles and patient out of pocket expenditures, more and more people depend on copay assistance to afford…
Two New MASAC Documents Issued
Industry News & Research
The National Hemophilia Foundation’s (NHF) Medical and Scientific Advisory Council has issued two new documents on November 21, 2018 that were approved…
Inhibitor Chapter Updated in Nurses’ Guide to Bleeding Disorders
Industry News & Research
The National Hemophilia Foundation’s (NHF’s) Nursing Working Group continues to revise and expand its Nurses’ Guide to Bleeding Disorders (NGBD). The latest chapter that has…
Results of Bayer’s PROTECT VIII Extension Study Announced
Industry News & Research
Bayer announced findings from an analysis of the PROTECT VIII extension study. This study found that long-term safety and efficacy was consistent…
Bioverativ and Sobi Release Long-Term Study Results for Extended Half-Life Therapies
Industry News & Research
Swedish Orphan Biovitrum AB (Sobi) and Bioverativ Inc. announced the results of ASPIRE and B-YOND, the most comprehensive long-term studies of extended…
GLHF’s First Men’s Retreat Offered as Part of Community Connection Series
GLHF News
In early October, GLHF hosted a Men’s Retreat at the Blue Harbor Resort in Sheboygan as part of Great Lakes Hemophilia Foundation’s…
Poinsettia and Wreath Sale Discontinued
GLHF News
As the holiday season gets underway, you might be wondering — is Great Lakes Hemophilia Foundation (GLHF) offering poinsettias and wreaths for sale this…
Introducing GLHF’s New Website, Logo and Colors
GLHF News
Big news! We are proud to share our new website which is part of our refreshed identity. The updates show the evolution…
Unite for Bleeding Disorders Walk Raises Funds for Bleeding Disorders Community
GLHF News
There’s a tremendous amount of energy and camaraderie when 550 dedicated walkers raise nearly $80,000 for the bleeding disorders community. In September,…
GLHF Welcomes New Regional Coordinator and Special Events Coordinator to its Team
GLHF News
We are proud to announce that Kaveh Shabtaie, MPH, and Julie Pahnke, MS, have joined the GLHF team! Kaveh has accepted a…