The National Hemophilia Foundation (NHF) is seeking comments on draft ASH, ISTH, NHF and WHF clinical practice guidelines on VWD Diagnosis & Management. The goal of this joint effort is to create and maintain state-of-the-art guidelines to improve diagnosis and management of VWD, and improving care and health outcomes important to patients and their caregivers. We are asking people with von Willebrand disease and their family members, caregivers, and healthcare providers to participate in this important endeavor.
Comments are being accepted at: https://hematology.org/education/clinicians/guidelines-and-quality-care/public-comment-guidelines/public-comment-on-guidelines-on-the-diagnosis-and-management-of-von-willebrand-disease. The deadline to comment is April 30th, 2020.
This comment period is open to all members of the bleeding disorders community Feedback received will be provided to the guideline panels for review. Comments will also be considered during ASH ISTH NHF WFH organizational approval of the guidelines, peer review of the guidelines for journal publication, implementation and dissemination efforts following publication, and future revision efforts.
These guidelines for the diagnosis and management of VWD were developed through a collaboration between the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), the World Federation of Hemophilia (WFH), and the National Hemophilia Foundation (NHF). These guidelines followed a systematic process, led by the University of Kansas Medical Center, intended to meet recommendations of the Institute of Medicine (now the National Academy of Medicine). Recommendations were formed by guideline panels that include experts in VWD from multiple disciplines, methodologists, and patient representatives.