News
BioMarin Announces Positive Phase 3 Study Data for Valoctocogene Roxaparvovec
Industry News & Research
The phase 3 trial currently includes 134 participants with hemophilia A, all of whom have received a single dose of the gene…
as i see it: Patient Education Through Social Media in the COVID Era
COVID-19, Health and Well Being, Living with a Bleeding Disorder
by: Laurence Woollard, Hemophilia Influencer © PEN (Parent Empowerment Newsletter), LA Kelley Communications, Inc. The unparalleled, seismic societal shifts over the past…
Video: COVID-19: Mitigation, Treatment and Vaccines
COVID-19, Health and Well Being
In this video, Dr. Phillip Jacobson of Rush University discusses vaccine administration and distribution, community risks, and vaccine delivery mechanisms. Watch Video.
COVID-19 Vaccines and Bleeding Disorders: FAQs and Guidance
COVID-19, Health and Well Being, Living with a Bleeding Disorder
COVID-19 Vaccines and Bleeding Disorders: FAQs These FAQs were created in anticipation of questions or concerns individuals with bleeding disorders may have…
Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go!
GLHF News
Join us on February 13-14 for a special edition of Milwaukee’s Best Bloody…To Go! Keep an eye on your email and social…
President Trump Signs FY21 Federal Funding Bill Including Hemophilia SNF Access Act and Funding for Bleeding Disorders Programs
Advocacy & Legislation, COVID-19, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…
COVID-19: Latest News and Updates
COVID-19
What You May Feel After Getting the COVID-19 Vaccine It’s important that people understand that there may be some side effects after…
NHF Offers Weekly Webinars Beginning Jan. 13 – What You Can Expect From NHF in the Upcoming Year
Industry News & Research
The National Hemophilia Foundation (NHF) will be hosting a series of weekly webinars every Wednesday at 1 p.m. CST (2 p.m. ET) beginning…
Let’s Talk: Mental Health – Join us Sunday, January 31 at 11 a.m.! Register Today!
GLHF News, Health and Well Being
Join GLHF for a special screening of Let’s Talk: Mental Health, followed by a live talk back with Believe Limited’s Co-Founder and CEO, Patrick…
Navigating the Pandemic with a Bleeding Disorder
COVID-19, Living with a Bleeding Disorder
Learn how three young adults with bleeding disorders are living life during the COVID-19 pandemic. Read more hemaware.org
Women Fighting for Change
Health and Well Being, Living with a Bleeding Disorder
Six women share their own stories of overcoming challenges and offer their best advice in hopes of educating, inspiring and uplifting other…
Marijuana and CBD for Chronic Pain: What You Need to Know
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
Learn about the potential benefits and risks, along with what to look out for when evaluating products. Read more hemaware.org
Video: Dr. Jill Johnsen on My Life, Our Future Research Repository
Health and Well Being, Living with a Bleeding Disorder
In this video, Dr. Jill Johnsen of the University of Washington discusses how the My Life, Our Future Research Repository is helping her…
COVID-19: Latest News & Updates
COVID-19, Health and Well Being, Industry News & Research
Milwaukee County Updates to the COVID-19 Dashboard Since the pandemic began in March, the Milwaukee County COVID-19 dashboard has provided residents with…
GLHF Needs Your Support! Donate Today!
GLHF News
Artist: Ami, 2020 Dear Friend, This has been a year unlike any other. COVID-19 turned our world upside down. Never in my…
COVID-19: Latest News and Updates
COVID-19
How to Be Safe This Holiday Season The Center for Disease Control and Prevention (CDC) is urging people to alter holiday plans to…
Roundup of Drug Pricing Executive Orders
Advocacy & Legislation, Industry News & Research
President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….
CDC Recommends Healthcare Workers, Nursing Homes First in Line for COVID-19 Vaccine
COVID-19, Industry News & Research
The CDC is recommending that healthcare workers and residents of nursing homes be the first to receive the new coronavirus vaccines. The…
Comments From NHF’s Dr. Leonard Valentino About the COVID-19 Vaccine
COVID-19, Industry News & Research
The makers of two coronavirus vaccines, Pfizer and its German partner BioNTech, and Massachusetts-based Moderna, have applied to the FDA for emergency…
COVID-19: Latest News and Updates
COVID-19, Industry News & Research
Leaders of Wisconsin’s Two Medical Schools Urge Everyone to Take Action During the COVID-19 Outbreak. Med School Leaders Urge Public to Stay…
From the CDC: Mental Health and Coping During COVID-19 – Tools and Resources
COVID-19, Health and Well Being
Pandemics can be stressful The coronavirus disease 2019 (COVID-19) pandemic may be stressful for people. Fear and anxiety about a new disease…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…
Global Dosing Hold in Fitusiran Trials Initiated by Sanofi Genzyme to Investigate New Adverse Events
Industry News & Research
A joint statement of the World Federation of Hemophilia (WFH), European Haemophilia Consortium (EHC) and National Hemophilia Foundation (NHF). The WFH, EHC…
Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law
Advocacy & Legislation, Industry News & Research
Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…