News
Vector Biology and Hemophilia Gene Therapy the Focus of Review
Industry News & Research
A new review article, The Intersection of Vector Biology, Gene Therapy and Hemophilia, was published recently in the journal Research Practice in…
Read New COVID-19 FAQs
COVID-19
NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…
Medicaid 101: Why Medicaid is Important to the Bleeding Disorders Community
Advocacy & Legislation, Industry News & Research
With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…
Learn More About the Latest in Gene Therapy: FAQ’s, Clinical Trials and Scientific Research
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation (NHF) heard a lot of questions from the community about gene therapy clinical trials for hemophilia at its…
Cardinal Health announces a voluntary recall for select Monoject™ Flush Prefilled Saline Syringes
Industry News & Research
News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be…
Camp Klotty Pine Focused on Health and Friendships – And It Was Just What Camper’s Needed!
GLHF News
At Camp Klotty Pine, GLHF helps kids become more independent, learn about their bleeding disorder and take control of their care. Camp is…
New Nursing Guidelines Available on Administration of Bleeding Disorders Therapies
Industry News & Research
These guidelines are readily accessible in PDF format on the NHF website. NHF is pleased to announce that two new resources have…
Living with Bleeding Disorders in the Time of COVID
COVID-19, Living with a Bleeding Disorder
by: Sari Harrar Pandemic stories of strength, perseverance and resiliency from three members of the bleeding disorders community. The COVID-19 pandemic has…
TARPA-H Overview
Industry News & Research
President Biden has called for the creation of a new $6.5 billion research institute, the Advanced Research Projects Agency for Health (ARPA-H),…
Four Decades of HIV
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…
COVID-19: Health and Wellness Update from NHF’s Dr. Leonard Valentino
COVID-19, Industry News & Research
The cautious optimism of May and June with regards to emerging from the pandemic has shifted as we are witnessing a resurgence…
Spark Provides Trial Updates for Investigational Gene Therapy SPK-8011
Industry News & Research
SPK-8011 is Spark Therapeutics’ investigational gene therapy candidate for hemophilia A. Spark Therapeutics recently announced updates from an ongoing phase 1/2 clinical…
New Descriptive Study Looks at Bleeding Disorder Camps
Industry News & Research
The study included a number of notable findings relevant to the participation of healthcare providers in bleeding disorder camps (BDCs), adherence to…
NHF Responds to New CMS Guidance
Industry News & Research
New guidance from the U.S. Department of Health and Human Services encourages states to educate eligible immigrants about Medicaid coverage. In a…
BioMarin Hemophilia A Clinical Development Program: An Update for the Hemophilia Community
Industry News & Research
BioMarin is pleased to update the community regarding our ongoing gene therapy clinical trial program in hemophilia A. BioMarin’s investigational gene therapy…
Review Your Health Coverage: Recent Federal Law Lowers Costs, Opens Up New Options
Advocacy & Legislation, Industry News & Research
The American Rescue Plan (ARP), signed into law on March 11, 2021, provides new opportunities to get health insurance coverage, and/or to…
New Data for Genentech’s Hemlibra (emicizumab-kxwh) Reinforce Safety Profile in People With Hemophilia A
Industry News & Research
Final analysis from the Phase IIIb STASEY study, including data from 193 people with hemophilia A, further support the benefit/risk profile of…
FDA Places Clinical Hold on Sigilon’s Investigational Hemophilia Therapy
Industry News & Research
Sigilon’s cell-based therapy is designed to carry significant amounts of synthetic DNA material to elicit the production of factor VIII in individuals…
Learn More About Shared Decision Making in Hemophilia
Health and Well Being
Shared decision making (SDM) in hemophilia embraces a “patient-as-partner” style for a truly reciprocal relationship. Learn more about both the process and…
NHF Responds to SCOTUS: New Affordable Care Act Ruling Benefits Chronic Disease Patients
Advocacy & Legislation
Dr. Valentino: “Today’s decision protects members of the inheritable blood disorder community, as well as others” Today, the United States Supreme Court…
New Article Offers Scientific Overview of AAV Vectors and Hemophilia Gene Therapy
Industry News & Research
Read about some of the primary considerations relevant to investigational hemophilia gene therapies that employ adeno-associated viral (AAV) vectors. Source: National Hemophilia…
Wisconsin State Journal: Don’t Let Insurers Undermine Copay Help for Wisconsin Patients
Advocacy & Legislation, Industry News & Research
by: Sen. André Jacque and Rep. Paul Tittl | April 17, 2021 The health and economic impacts of the ongoing pandemic have…
The Unite for Bleeding Disorders Walk is September 25! Learn More and Register Today!
GLHF News
The 2021 Unite for Bleeding Disorders Walk is just three months away! We are so excited to see all of you this…
Madison’s Best Bloody 2021 is Cancelled. So, Be Ready for Tastings in 2022!
GLHF News
We are sad to announce that due to the current situation in Madison, we are cancelling this year’s Madison’s Best Bloody. Restaurants…