News

The verdict is an important and significant step forward in the fight against racism, and the violence that it brings to our…

The COVID-19 Task Force of the World Federation of Hemophilia (WFH) has released a statement on risks of acquiring COVID-19 disease and…

These data were presented by BioMarin at the American Society of Gene & Cell Therapy Virtual Meeting, which was held May 11-14,…

The recent American Society of Gene & Cell Therapy (ASGCT) Virtual Meeting featured updates from the phase III HOPE-B clinical trial of…

June 3, 2021 – Statement from Nathan Schaefer, Vice President of Public Policy, National Hemophilia Foundation This June marks a painful anniversary…

This June learn what your joints want, what they need, and how to help them keep you going. Read more. Source: National…

Time for an important reminder – “Scholarship season” is now in full swing! NHF’s information service, HANDI, compiles an annual online list…

Many patients across the country – including those in vulnerable and underserved communities – are experiencing challenges in affording and accessing necessary…

In this video, Robert Sidonio Jr., M.D., discusses the new von Willebrand Disease (VWD) Guidelines and the most significant changes that healthcare…

We are marking women’s health month with a series of webinars that focus on critical issues for women with bleeding disorders. Our…

COVID-19 and the pandemic continue to dominate the news cycle for most Americans, although many of us would like to think about…

This national survey is designed to assess patient demographics, their satisfaction with the HTC’s core treatment team, its services, and care processes….

Neuraxial anesthesia, a focus of this study, refers to the administration of local anesthetics and analgesia to targeted locations in the spinal…

The commercialization and licensing agreement between the two companies went into effect on May 6th. May 7, 2021 uniQure recently announced that…

Kevin Mills, PhD has joined the National Hemophilia Foundation as chief scientific officer. A graduate of University of Colorado Boulder, MIT, and…

Late last year the FDA put a clinical hold on the program in response to a single trial participant who was diagnosed…

by: Michael Hickey Caregivers devote themselves to the well-being of others, but to be their best they need to practice self-care. Being…

Biochemist Gordon Vehar, PhD, vice president of external innovation at BioMarin Pharmaceutical Inc., has been at the forefront of a scientific revolution….

Hemophilia Treatment Centers (HTCs) across the United States are participating in the 2021 National HTC Patient Satisfaction Survey! If you, or someone…

We have been limited in our ability to meet face-to-face over the last year, but we want to continue to stay connected…

You can enroll in health plans due to the COVID-19 emergency through August 15, or anytime if you have certain life changes…

Whereas; since its designation by the World Federation of Hemophilia in 1989, World Hemophilia Day has been celebrated on April 17 as…

Early studies have indicated that women who are pregnant or breastfeeding who have received a COVID-19 vaccination can pass antibodies along to…

There has been much positive news around the US vaccine efforts: about 207.9 million doses of the vaccine have been administered, 62.4 million…