News
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New Paper Highlights Integrated Care Model and the National HTC Network
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
For more than 40 years, the hemophilia treatment center (HTC), the U.S. HTC Network (USHTCN), and its model of integrated, patient-centered care…
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NHF’s Dr. Leonard Valentino Talks COVID-19, Vacccinations and Gratitude
COVID-19, Industry News & Research
Life during the time of COVID-19 Can you describe your life during the pandemic … in only six words? Well, a group…
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HFA Action Alert: Tell Congress to permanently secure enhanced Advance Premium Tax Credits passed in the American Rescue Plan Act.
Advocacy & Legislation
Join more than 30 community members from across the country who are holding virtual visits and calls with their senators and representatives…
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NHF’s National Youth Leadership Institute (NYLI) is Accepting Applications Until Dec. 15 for 2022. Apply Today!
Industry News & Research
Are you between the ages of 18-22 and interested in a leadership program made just for you? Or do you know a…
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Ask A Social Worker! NHF’s HemAware Column Offers Advice for Community Members
Health and Well Being, Industry News & Research
Do you have questions about caregiving, aging, insurance, relationships, or other issues impacted by your status as a community member? NHF can…
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Descriptive Study Looks at HTC Social Worker Roles
Industry News & Research
While social workers have functioned as essential members of the multidisciplinary care teams at the core of U.S. hemophilia treatment center (HTC)…
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Ask Your Elected Official to Make All Copays Count!
Advocacy & Legislation, Industry News & Research
The National Hemophilia Foundation helped spearhead new legislation that aims to support the more than 133 million Americans living with a chronic…
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All Copays Count Coalition Applauds House Introduction of Help Ensure Lower Patient Copays Act
Advocacy & Legislation, Industry News & Research
Legislation Introduced by Representatives McEachin and Davis Would Eliminate Harmful and Misleading Health Plan Pricing Schemes and Protect Vulnerable Patients. The All…
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NHF Responds: Gov. Whitmer Signs First Bill Repealing Tampon Tax, Drives Down Costs for Families
Advocacy & Legislation, Health and Well Being
Bill is part of two-bill bipartisan package that will repeal taxes on menstrual products. NHF Statement In Response to New Michigan Law: “The…
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NHF Statement on HELP Copays Act
Advocacy & Legislation, Industry News & Research
NHF has led the All Copays Count Coalition in helping support HR 5801. The National Hemophilia Foundation applauds Congressional Representatives Donald McEachin…
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NHF Statement on Approval of the Pfizer-BioNTech Vaccine for Children Ages 5-11
Health and Well Being, Industry News & Research
COVID-19 vaccine for children ages 5-11 receives final approval. “NHF applauds the CDC’s recommendation of the Pfizer-BioNTech COVID-19 vaccine for children 5…
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Together We Give! #GivingTuesday is November 30. Donate Today!
GLHF News
In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over nearly…
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Patient-Reported Data Informs New Study on Sexual Health and Hemophilia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
An understanding of sexual health in people living with hemophilia (PWH), including difficulties with sexual activity and intimacy, has been historically lacking….
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The Importance of Saying No
Health and Well Being
by: Lori Jocobwith As I learn to set better boundaries and focus on self-care before I put on my cape to help…
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Op-Ed Outlines the Value of Copay Assistance and the Challenges of Copay Accumulator Adjustment Programs
Advocacy & Legislation, GLHF News
A recent op-ed in the Milwaukee Journal Sentinel by Jim Turk, titled Why Wisconsin Lawmakers Need to Protect the Value of Copay…
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What You Should Know About Hematomas
Health and Well Being, Living with a Bleeding Disorder
Bruises and hematomas are similar, but they have some important differences. See what causes hematomas, what makes them unique, and how you…
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Back Together! GLHF Raises Funds – and Spirits – at Unite for Bleeding Disorders Walk
GLHF News
“I walk so that I can be around other people who are like me,” said one young Unite for Bleeding Disorders Walk…
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CDC Looks at COVID-19’s Impact in Public Health Workers
COVID-19, Health and Well Being, Industry News & Research
A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…
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NHF Applauds Congressional Enactment of The Hemophilia SNF Access Act
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act. The National…
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State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied? What should you do if you’ve already…
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National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”
Advocacy & Legislation, Industry News & Research
New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…
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CDC Public Health Webinar on NHF Guidelines
Industry News & Research
Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…
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NHF Responds to STIMATE® Production Update
Industry News & Research
CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed…
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Prophylaxis Indication Restored for BeneFIX®
Industry News & Research
Prophylaxis Indication Restored for BeneFIX® Sep 14, 2021 In February 2021, the U.S. Food and Drug Administration (FDA) partially rescinded a supplemental Biologics…