News
NHF Statement on Approval of the Pfizer-BioNTech Vaccine for Children Ages 5-11
Health and Well Being, Industry News & Research
COVID-19 vaccine for children ages 5-11 receives final approval. “NHF applauds the CDC’s recommendation of the Pfizer-BioNTech COVID-19 vaccine for children 5…
Together We Give! #GivingTuesday is November 30. Donate Today!
GLHF News
In this time of uncertainty, there’s fundamental truth that gives us hope – that together we can do extraordinary things. Over nearly…
Patient-Reported Data Informs New Study on Sexual Health and Hemophilia
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
An understanding of sexual health in people living with hemophilia (PWH), including difficulties with sexual activity and intimacy, has been historically lacking….
The Importance of Saying No
Health and Well Being
by: Lori Jocobwith As I learn to set better boundaries and focus on self-care before I put on my cape to help…
Op-Ed Outlines the Value of Copay Assistance and the Challenges of Copay Accumulator Adjustment Programs
Advocacy & Legislation, GLHF News
A recent op-ed in the Milwaukee Journal Sentinel by Jim Turk, titled Why Wisconsin Lawmakers Need to Protect the Value of Copay…
What You Should Know About Hematomas
Health and Well Being, Living with a Bleeding Disorder
Bruises and hematomas are similar, but they have some important differences. See what causes hematomas, what makes them unique, and how you…
Back Together! GLHF Raises Funds – and Spirits – at Unite for Bleeding Disorders Walk
GLHF News
“I walk so that I can be around other people who are like me,” said one young Unite for Bleeding Disorders Walk…
CDC Looks at COVID-19’s Impact in Public Health Workers
COVID-19, Health and Well Being, Industry News & Research
A new CDC survey suggests that the pandemic has had significant negative impacts on public health responders. A new study highlighted in The…
NHF Applauds Congressional Enactment of The Hemophilia SNF Access Act
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act. The National…
State of Denial: Tips on How to Work with Your Insurance Provider When You are Denied Coverage for Services or Medications
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
by: Laurie Kelley When you submit an insurance form for coverage, have you ever been denied? What should you do if you’ve already…
National Hemophilia Foundation and Hemophilia Federation of America Partner for “Together Project”
Advocacy & Legislation, Industry News & Research
New partnership kicks off with a focus on mental health. The National Hemophilia Foundation (NHF) joins the Hemophilia Federation of America (HFA)…
CDC Public Health Webinar on NHF Guidelines
Industry News & Research
Healthcare professionals, register now for February CDC webinar on new NHF-McMaster hemophilia care guidelines. NHF is excited to announce that the Centers for…
NHF Responds to STIMATE® Production Update
Industry News & Research
CSL Behring announced that the company’s distribution agreement with Ferring Pharmaceuticals for STIMATE® nasal spray recently expired and will not be renewed…
Prophylaxis Indication Restored for BeneFIX®
Industry News & Research
Prophylaxis Indication Restored for BeneFIX® Sep 14, 2021 In February 2021, the U.S. Food and Drug Administration (FDA) partially rescinded a supplemental Biologics…
Vector Biology and Hemophilia Gene Therapy the Focus of Review
Industry News & Research
A new review article, The Intersection of Vector Biology, Gene Therapy and Hemophilia, was published recently in the journal Research Practice in…
Read New COVID-19 FAQs
COVID-19
NHF recently updated its COVID-19 FAQ web page. See the latest community questions and guidance and share with others who might be…
Medicaid 101: Why Medicaid is Important to the Bleeding Disorders Community
Advocacy & Legislation, Industry News & Research
With Medicaid much in the news in August, it seemed timely to offer a refresher on how Medicaid is structured, and why…
Learn More About the Latest in Gene Therapy: FAQ’s, Clinical Trials and Scientific Research
Industry News & Research, Living with a Bleeding Disorder
The National Hemophilia Foundation (NHF) heard a lot of questions from the community about gene therapy clinical trials for hemophilia at its…
Cardinal Health announces a voluntary recall for select Monoject™ Flush Prefilled Saline Syringes
Industry News & Research
News on a recent FDA recall affecting the inheritable blood disorder community. NHF requests members of the inheritable blood disorders community be…
Camp Klotty Pine Focused on Health and Friendships – And It Was Just What Camper’s Needed!
GLHF News
At Camp Klotty Pine, GLHF helps kids become more independent, learn about their bleeding disorder and take control of their care. Camp is…
New Nursing Guidelines Available on Administration of Bleeding Disorders Therapies
Industry News & Research
These guidelines are readily accessible in PDF format on the NHF website. NHF is pleased to announce that two new resources have…
Living with Bleeding Disorders in the Time of COVID
COVID-19, Living with a Bleeding Disorder
by: Sari Harrar Pandemic stories of strength, perseverance and resiliency from three members of the bleeding disorders community. The COVID-19 pandemic has…
TARPA-H Overview
Industry News & Research
President Biden has called for the creation of a new $6.5 billion research institute, the Advanced Research Projects Agency for Health (ARPA-H),…
Four Decades of HIV
Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
This past June marked a significant milestone for the bleeding disorders community. Forty years ago, on June 5, 1981, the CDC first…