News
Infusing the World with Knowledge
Advocacy & Legislation
Learn about the power of advocacy in the bleeding disorders community. Read more. Source: National Hemophilia Foundation, HemaWare.
President Trump Signs FY21 Federal Funding Bill Including Hemophilia SNF Access Act and Funding for Bleeding Disorders Programs
Advocacy & Legislation, COVID-19, Health and Well Being, Industry News & Research, Living with a Bleeding Disorder
The Consolidated Omnibus Appropriations Bill, 2021, signed into law by President Trump on December 27, 2020 included a number of provisions important…
Roundup of Drug Pricing Executive Orders
Advocacy & Legislation, Industry News & Research
President Trump has issued a number of executive orders on drug pricing. We show which ones could affect people with bleeding disorders….
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
Thirty three organizations, including NHF, urge elected officials to ensure all people living in the US have access to adequate and affordable health…
Patient Groups Urge U.S. Supreme Court to Prioritize Patients and Uphold Health Care Law
Advocacy & Legislation, Industry News & Research
Twenty patient groups representing millions of Americans with pre-existing conditions are urging the U.S. Supreme Court to prioritize patient protections, including those…
ACA Open Enrollment Underway
Advocacy & Legislation, Industry News & Research
Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…
Vote Your Way! Make a Plan TODAY!
Advocacy & Legislation
Vote Your Way The 2020 General Election is Tuesday, Nov. 3. Voter registration deadlines for the 2020 General Election are: Oct. 30,…
Be an Informed Voter! Register to Vote Today!
Advocacy & Legislation, Industry News & Research
There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…
Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs
Advocacy & Legislation, Industry News & Research
The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…
What’s Next for the ACA?
Advocacy & Legislation, Industry News & Research
The recent news about the passing of United State Supreme Court Justice Ruth Bader Ginsburg and nomination of Judge Amy Coney Barrett…
Exercise Your Right to Vote!
Advocacy & Legislation
One of our most important civil liberties is the right to vote. With your vote, you have the power to influence public…
HFA’s State of the States: Summer 2020
Advocacy & Legislation, COVID-19
Policy and Advocacy work is increasingly important at the state level. In an effort to keep you informed about the work happening…
Stimate Recall Update – CSL Behring & Ferring Pharmaceuticals Response to HFA-NHF Letter, Voluntary Recall Due to “Superpotency”
Advocacy & Legislation, Industry News & Research
Ferring Pharmaceuticals issued a voluntary recall of Stimate (desmopressin) nasal spray due to “superpotency” – in other words, amounts of desmopressin being higher than…
Stimate Recall: NHF and HFA Seek Answers
Advocacy & Legislation, Industry News & Research
Immediately following the issuance of medical advisories to the community regarding the recall of Stimate® (desmopressin nasal spray ) a product used to control…
17 Patient Groups Urge Appeals Court to Uphold Health Care Law
Advocacy & Legislation
Patient and health advocacy groups representing millions of Americans with pre-existing conditions filed an amicus curiae or friend of the court brief urging the…
Coverage Concerns and Unanswered Questions: We Get It
Advocacy & Legislation
Wednesday, March 18, 2020 Do you have questions regarding insurance coverage in light of the COVID-19 pandemic? We’re here to help.
Advocacy Efforts During COVID-19
Advocacy & Legislation, COVID-19
While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…
Good News! @GovEvers Signs Bipartisan #steptherapy Legislation into Law!
Advocacy & Legislation
Great Lakes Hemophilia Foundation (GLHF) is excited to announce that Governor Evers signed the WI Step Therapy bill on July 9. We…
17 Patient Groups Urge Appeals Court to Uphold Healthcare Law
Advocacy & Legislation
Seventeen patient groups representing millions of Americans with pre-existing conditions filed an amicus curiae (“friend-of-the-court”) brief today in the U.S. Court of Appeals for…
Light it Up Red! for World Hemophilia Day, April 17
Advocacy & Legislation
Light it Up Red! for World Hemophilia Day, April 17 Last year, thousands of people united to show their support for the…
At Wisconsin Legislative Day, We Share our Stories, Experiences and Strength with Lawmakers
Advocacy & Legislation
Last month, GLHF headed to Madison for our annual Wisconsin Legislative Day – a chance to share with lawmakers the true reality…
Advocacy Priorities Established by NHF
Advocacy & Legislation
The National Hemophilia Foundation (NHF) has advocated for the needs and interests of people affected by hemophilia and related bleeding disorders for…
NHF Statement on Texas vs. United States Lawsuit
Advocacy & Legislation
On December 14, 2018, a Texas judge ruled in Texas vs. United States, a case challenging the constitutionality of the Affordable Care…