News

Study Suggests Hemophilia Patient Preferences Evolving Along with Treatments

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

In recent years, the arrival of novel hemophilia treatments that are effective and less burdensome to administer have opened up new possibilities…

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Takeda Issues Voluntary Product Withdrawal

Industry News & Research

Takeda today announced that it is conducting a voluntary market withdrawal for two product lots of 650 IU VONVENDI® [von Willebrand factor]…

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Patient Receives First Hemophilia A Gene Therapy Outside a Clinical Trial

Gene Therapy, Industry News & Research

Roctavian™ was approved in the summer of 2023 for the treatment of adults with severe hemophilia. The first hemophilia A gene therapy…

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Takeda’s Voluntary Withdrawal: Alert on Misprinted Labels for VONVENDI®

Industry News & Research

Takeda announces a voluntary withdrawal for 650 IU VONVENDI® due to misprinted labels showing incorrect expiration dates. Takeda announced today that it…

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Takeda’s Voluntary Withdrawal: Alert on Misprinted Labels for VONVENDI®

GLHF News

Takeda announces a voluntary withdrawal for 650 IU VONVENDI® due to misprinted labels showing incorrect expiration dates. Takeda announced today that it…

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Patient Receives First Hemophilia A Gene Therapy Outside a Clinical Trial

GLHF News

Roctavian™ was approved in the summer of 2023 for the treatment of adults with severe hemophilia A The first hemophilia A gene…

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GLHF Celebrates 50 Years of Educating, Supporting and Advocating for the Bleeding Disorders Community of WI 

GLHF News

GLHF is excited to celebrate 50 years of educating, supporting and advocating for the bleeding disorders community of Wisconsin. Since 1974, GLHF…

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Nurses Working in the Bleeding Disorders Community Share Their Stories in These 2023 Video Interviews

Health and Well Being, Industry News & Research

In recognition of the National Bleeding Disorders Foundation’s 75th anniversary, the Nursing Working Group gathered recorded video interviews of established nurses working…

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Who’s at Higher Risk for Iron Deficiency?

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders

Learn why women, girls, and people with the potential to menstruate (WGPPM) who have hemophilia, von Willebrand disease, or other inheritable blood…

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Yale Researchers Explore the Possibilities of von Willebrand Factor

Industry News & Research, Women with Bleeding Disorders

Researchers at the Yale School of Medicine have been studying the key clotting protein von Willebrand factor (VWF), to shed light on…

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Statement: HFA and NBDF Address WHO Recommendations

Health and Well Being, Industry News & Research

Hemophilia Federation of America (HFA) and the National Bleeding Disorders Foundation (NBDF) are deeply concerned by the World Health Organization’s (WHO) recommendation…

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Women with VWD or Hemophilia Not at Risk for Other Female Medical Problems – But Additional Concerns May Need Diagnosis and Treatment

Living with a Bleeding Disorder, Women with Bleeding Disorders

Women who have von Willebrand disease or hemophilia are not at risk for other female medical problems, but two common disorders in…

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Pilot Study Explores Educational Needs of HTC Physical Therapists

Industry News & Research, Living with a Bleeding Disorder

Though it is generally recognized in the bleeding disorders community that physical therapists (PTs) are essential members of the core interdisciplinary teams…

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VWD Book for Children!

Health and Well Being, Living with a Bleeding Disorder

Fun Facts About a von Willebrand Warrior is a new softcover storybook for children with von Willebrand disease that empowers and educates…

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Gene Therapy Preparedness – It’s Time to Get Educated

Industry News & Research, Living with a Bleeding Disorder

With the advent of gene therapy, patients will need to educate themselves more about eligibility, risks, compliance and costs. And they should educate…

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Concerns for Women with Polycystic Ovary Syndrome and Endometriosis

Health and Well Being, Pain Management, Women with Bleeding Disorders

Women with bleeding disorders and other medical concerns, or who have von Willebrand disease or hemophilia, are not necessarily at risk for…

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Study Suggests Racial and Ethnic Disparities in Hemophilia and ITI

Industry News & Research, Living with a Bleeding Disorder

Findings of a new study uncovered specific disparities in hemophilia care by focusing on the use of immune tolerance therapy (ITI) in…

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The Importance of Transgender Health: Interview with Alexis Dinno

Health and Well Being, Living with a Bleeding Disorder

November was Transgender Health Awareness Month, a time to reflect on the experiences of transgender and gender nonconforming individuals seeking and receiving…

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First Patient Dosed with Hemophilia Gene Therapy Candidate ASC618

Gene Therapy, Industry News & Research

The first patient has been dosed in ASC Therapeutics clinical trial of ASC618, the company’s investigational AAV8 vector-based gene therapy for patients…

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Save-the-Date for our 2024 Best Bloody Competitions! Tickets on Sale Next Week!

GLHF News

Tickets on sale December 18!  Holiday-priced tickets for Milwaukee’s, Madison’s and Green Bay’s Best Bloody will be on sale Dec. 18 – Jan….

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Gene Therapy for Hemophilia — Progress and Conundrums

GLHF News

In this video, Dr. Radek Kaczmarek of the Indiana University School of Medicine lays out the scientific advances underpinning two currently approved gene…

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What is Therapeutic Phlebotomy?

Health and Well Being

While bloodletting was abandoned long ago by modern medicine, the procedure is still used today to treat specific medical conditions. Phlebotomy —…

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The Liver Disease That’s on the Rise

Health and Well Being, Industry News & Research, Living with a Bleeding Disorder

Here’s why people with bleeding disorders need to know about it. Have you heard of metabolic dysfunction-associated steatotic liver disease, or MASLD?…

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GLHF Plans Successful 2023 Regional Meeting – 13 HTCs Join to Discuss Goals and Emerging Issues

GLHF News

Did you know that GLHF serves as the Regional Core Center of Region V-West/Northern States Region for the United States Hemophilia Treatment…

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