News

UniQure Announces Highlights of Recent Progress
Industry News & Research
UniQure N.V., a gene therapy company advancing transformative therapies for patients with severe medical needs, reported recent progress across its business. “Despite…

Pfizer and Biontech Dose First Participants In the COVID-19 Vaccine Development Program
Industry News & Research
Pfizer Inc. and BionTech SE announced the first participants have been dosed in the U.S. in the Phase 1/2 clinical trial for…

Town Hall Webinar – Ask the Experts: Coping During COVID-19
COVID-19
Listen to NHF’s Townhall Meeting from May 1, 2020. Or, make suggestions about what you want to hear NHF discuss in one…

Investigators Look at Hematuria as Hypertension Risk Factor in Hemophilia Patients
Industry News & Research
Findings from an international study published in the journal Medicine suggest that the visible presence of blood in urine (macroscopic hematuria) could represent increased…

NHF’s next Spanish Townhall COVID-19 webinar is May 19, 2020
COVID-19
NHF’s next Spanish Townhall COVID-19 Webinar is May 19, 2020. La Fundación Nacional de Hemofilia te invita para un seminario de web:…

#GivingTuesdayNow! Thank You! We are Stronger Together!
COVID-19, GLHF News
Thank you for your generosity to GLHF on #GivingTuesdayNow!. Your support helps insure that we may offer the programs and services that make a difference for…

Listen to NHF’s Townhall Webinar: Coping During COVID-19
COVID-19
May 5, 2020

Ignited Fundraising: Stories for People Hungry for Inspiration
GLHF News
Aren’t we all hungry for inspiration? Hungry for examples of how life might be a little better for someone else. That’s why…

BDC 2020 Updates and Transition to Virtual
Industry News & Research
Dear Community Members, The National Hemophilia Foundation’s priority has always been the health and safety of the bleeding disorders community. As the…

NHF’s Bleeding Disorders Conference is Fully Virtual: August 1-8, 2020!
GLHF News
The National Hemophilia Foundation’s (NHF) priority has always been the health and safety of the bleeding disorders community. As the COVID-19 pandemic…

Health and Wellness Update #7 from Dr. Valentino
COVID-19
I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of…

NHF/HFA Seek Feedback on Product Safety and Communication
Industry News & Research
The National Hemophilia Foundation (NHF) and Hemophilia Federation of America (HFA) are seeking comments from the bleeding disorders community on the executive summary…

Health and Exercise During COVID-19
COVID-19
Keeping kids active during the pandemic is important – and it helps them burn up all that excess energy! The United Federation…

Mental Health
COVID-19
Source: NHF and the National Association of Mental Illness (NAMI) We are all experiencing stress and anxiety right now. NAMI, the National…

CDC Adds to List of Symptoms to COVID-19
COVID-19
The Centers for Disease Control and Prevention have updated their list of symptoms for COVID-19, adding a sore throat and loss of…

Advocacy Efforts During COVID-19
Advocacy & Legislation, COVID-19
While Congress and state governments work to respond to the COVID-19 pandemic, the National Hemophilia Foundation (NHF) has been advocating on a…

NHF Webinar: As the Experts: Coping During COVID-19, Friday, May 1 at 5 pm (6 pm ET)
COVID-19
Do you have questions about COVID-19? Join us on Friday, May 1st at 3pm ET for our townhall webinar, Ask the Experts: Coping…

Help Us Continue Providing Support to Those Depending on Us! Donate on #GivingTuesday, May 5.
GLHF News
The health and safety of this community are always at the center of our work. COVID-19 won’t prevent GLHF from serving our friends…

Genentech Notice on COVID-19, Hemlibra®, and Laboratory Assays
Industry News & Research
Genentech recently distributed a notice relevant to its product Hemlibra®, reminding health care providers that it is known to interfere with certain laboratory assays used to…

Voluntary Recall Notice for BD PosiFlush™ SF Saline Flush Syringes
Industry News & Research
BD is conducting a voluntary medical device recall for multiple lots of the BD PosiFlush™ SF (Sterile Field) Saline Flush Syringe 10mL identified…

CDC Calls for Stakeholder Comments on Pain, Pain Management and Opioid Use
Industry News & Research
The Centers for Disease Control and Prevention (CDC) are currently soliciting written comments on pain and pain management, including those relevant to…

GLHF Welcomes Tomi Vandergriff, Special Events Coordinator
GLHF News
Tomi is very excited to start at GLHF as our Special Events Coordinator! She received her B.A. in Religious Studies from UW-Milwaukee…

How Your Plasma Could Lead to a Potential Treatment for COVID-19
COVID-19
Source: National Hemophilia Foundation When you donate your plasma, you become the essential first step in a journey to develop a potential…

Health and Wellness Update #6 from Dr. Valentino
COVID-19
Source: National Hemophilia Foundation I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and…