News
Pfizer Announces First Participant Dosed Phase 3 Study of Marstacimab
Industry News & Research
Note: Marstacimab is a laboratory-engineered monoclonal antibody developed to treat hemophilia A and B patients, with or without inhibitors. Pfizer recently announced…
Milwaukee Area Physicians Appeal to the Community
COVID-19, Industry News & Research
Our local physicians are here to help when we need it most. Now they’re asking us to do our part in preventing…
uniQure Announces Positive Top-Line Data from the HOPE-B Pivotal Trial of Etranacogene Dezaparvovec Gene Therapy in Patients with Hemophilia B
Industry News & Research
uniQure N.V. (NASDAQ: QURE), a leading gene therapy company advancing transformative therapies for patients with severe medical needs, today announced positive top-line…
COVID-19 Vaccines: What to Expect
COVID-19, Industry News & Research
In this webinar, NHF President and CEO Leonard A. Valentino, MD, discusses common questions about COVID-19 vaccines. Watch video. Source: National Hemophilia…
New Paper Published on the First National Patient Satisfaction Survey of U.S. HTCs
GLHF News, Industry News & Research
The federally funded hemophilia treatment center (HTC) network, with its model of a multidisciplinary care team (MDT) and regional infrastructure, has proven…
ACA Open Enrollment Underway
Advocacy & Legislation, Industry News & Research
Enrollment for the Affordable Care Act 2021 health insurance is now open. Open enrollment runs through Tuesday, Dec. 15, 2020. Coverage begins…
Sharp Increase in COVID-19 Cases
COVID-19, Industry News & Research
The coronavirus case numbers in the US are not looking good. The COVID-19 Tracking Project is an excellent reason for both viewing…
Eli Lilly’s Antibody Treatment Proves Unhelpful for Advanced COVID Cases
COVID-19, Industry News & Research
A paused clinical trial of an Eli Lilly & Co. experimental antibody therapy won’t resume after federal researchers concluded the drug likely…
Managing Pain
Industry News & Research, Living with a Bleeding Disorder
by Paul Clement Pain and hemophilia go hand-in-hand. During a joint or muscle bleed, blood fills the joint cavity or makes muscles…
Update on ACA Lawsuit
Industry News & Research
The death of eminent Supreme Court justice Ruth Bader Ginsburg on September 18th brought renewed attention to the fate of the Affordable Care…
Octapharma Announces FDA Approval of Updated Nuwiq® Prescribing Information to Include Immunogenicity Data in Previously Untreated Patients
Industry News & Research
Octapharma is pleased to announce that the U.S. Food and Drug Administration (FDA) has approved an updated Prescribing Information (PI) for NUWIQ®,…
Pfizer and Sangamo Dose First Participant in Phase 3 Study Evaluating Hemophilia A in Gene Therapy Treatment
Industry News & Research
AFFINE is a global Phase 3, open-label, multicenter, single arm study that will evaluate the efficacy and safety of giroctocogene fitelparvovec in…
Be an Informed Voter! Register to Vote Today!
Advocacy & Legislation, Industry News & Research
There’s still time to PLAN YOUR VOTE!. If you’re a new voter, or not registered yet, use your voice and prepare yourself…
Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs
Advocacy & Legislation, Industry News & Research
The election is right around the corner and there’s a lot of information to absorb. That is why the National Hemophilia Foundation…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
Advocacy & Legislation, Industry News & Research
A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today…
GET WIRED WITH HFA
Industry News & Research, Living with a Bleeding Disorder, Women with Bleeding Disorders
Feeling disconnected from knowledge about women’s health and research? Get WIRED with the Hemophilia Federation of America (HFA) is seeking women with bleeding…
Public Health Symposia Now Available on the NHF Website!
Industry News & Research
This summer’s Virtual Bleeding Disorders Conference (BDC) featured a pair of excellent public health symposiums, which were developed through an inspired collaboration…
First Patient Dosed in Phase 3 Gene Therapy Trial
Industry News & Research
The purpose of the study is to evaluate the efficacy and safety of this investigational gene therapy in patients with moderately severe…
Unanswered Questions Remain in Gene Therapy Trial
Industry News & Research
This commentary was authored by six individuals with severe hemophilia, all of whom have worked to achieve better health outcomes for patients…
What’s Next for the ACA?
Advocacy & Legislation, Industry News & Research
The recent news about the passing of United State Supreme Court Justice Ruth Bader Ginsburg and nomination of Judge Amy Coney Barrett…
CSL Behring States Stimate Will Not Be Resupplied until 2022
Industry News & Research
NHF and HFA have been provided the following statement from CSL Behring. The statement says, in part: “Ferring Pharmaceuticals Inc. initiated a voluntary,…
Milwaukee County COVID-19 Update
COVID-19, Industry News & Research
The Milwaukee Unified Emergency Operations Center continues to put out up-to-date information for the citizens of Milwaukee County. This information is also…
NHF Wants Your Input as They Chart a Course for the Future. Take Their Survey Today!
Industry News & Research
The National Hemophilia Foundation (NHF) is working with the bleeding disorders community to envision our future for the next decade, and they…
NHF Friday Webinar – Gene Therapy: What’s New and What’s Next? October 2, 3 pm.
Industry News & Research
Gene therapy for hemophilia remains a very active area of research, although it may take longer than expected. To discuss this, join…