The National Hemophilia Foundation (NHF) is working with the bleeding disorders community to envision our future for the next decade, and they need your input. Earlier this summer, they conducted teleconferences, co-moderated by NHF President and CEO Leonard Valentino, MD, with members of the bleeding disorders community, including healthcare providers, chapter leaders, patients and family members, advocacy groups, and NHF board and staff. The goal was to discover what — if money, time, and effort were no object — would the future of the bleeding disorders community look like? They summarized the findings and would like your feedback on the ideas and topics these groups generated.
NHF is striving to be an organization that meets the needs of the entire bleeding disorders community. Please read the summary and let them know your thoughts on the future direction of NHF.